community news - united cerebral palsy march 2015.pdf · 2015-03-12 · community news page 5...
TRANSCRIPT
Community
News is
intended
information
only. No
endorsement
of specific
programs,
treatments
or services
by UCP of
San Diego
County is
intended or
implied.
I n s i d e T h i s I s s u e :
P a g e 2 : S C D D C o u n c i l
P a g e 3 : S i b s h o p s P a g e 3 : T a k e M e H o m e R e g i s t r y P a g e s 4 - 5 : U p c o m i n g E v e n t s P a g e s 6 - 7 : L o c a l P r o g r a m s
Self-Determination Program Update:
In October , 2013, Brown signed into law the Self-Determination Program to provide consumers and their families more freedom, control, and responsibility in choosing services and supports to help them meet objectives in their Individual Program Plan. Planning for California's Self-Determination Program is moving forward:
The California Department of Developmental Services (DDS) has sent an
application to the federal government for funds for the Self-Determination Program (called a "waiver application"). I While awaiting waiver approval, a statewide workgroup is preparing outreach and training materials and working out program details.
In the first three years of the Self-Determination Program, there will be a
phase-in period with a maximum of 2,500 participants. Each regional center will get a specific allocation of participants based on their percentage of the population of consumers statewide. Interested individuals and families must attend an information session at their regional center and then let their regional center know that they are interested. DDS will then randomly select the phase-in participants from among those interested individuals based on a set of diversity factors such as disability, ethnicity/race, gender, geographic area, and age. After the three-year phase-in period, the Self-Determination Program will be available to every eligible consumer throughout California.
Each regional center should be working with their State Council on
Developmental Disabilities Regional Office (formerly known as Area Boards) to set up their Local Advisory Committees. Half of the members are appointed by the regional center and the other half are appointed by the SCDD regional office. We encourage you to contact your regional center and SCDD regional office to ask about your local advisory committee.
To learn more about the Self-Determination Program, you can visit the DDS
website: http://www.dds.ca.gov/SDP/index.cfm You can also download session recordings from last year’s sold out Self-Determination conference for free at: https://vimeo.com/channels/876984 , or order the resource book given to attendees for $15 by emailing: [email protected]
Community News Family Support Newsletter
United Cerebral Palsy Association of San Diego
March, 2015
Community News
M a r c h , 2 0 1 5 P a g e 2
Become a Volunteer Member of the California State Council
on Developmental Disabilities
The “Council”, as it is known in the community, is committed to creating better lives for children and adults with developmental disabilities.
As an independent state agency led by 31 members appointed by the Governor, the Council should reflect the geographic and ethnic diversity of California. The Council promotes independent and productive lives by influencing public policy in areas such as education, employment, housing, inclusion and self-determination. You have two opportunities to be involved - on the Council itself, or on one of its 13 regional advisory committees. If you are a person with a developmental disability or family member ready to change lives by improving the disabilities system, contact us for more information or complete the Outreach Application by going to: http://goo.gl/forms/XeZDWlZWRa
Why Join the Council?
You believe all children should have equal access to the best education
possible.
You believe that everyone should have the power to determine their own
lives.
You believe in the equality and inclusion of people with developmental
disabilities.
You believe that you can be a part of the change to improve the lives of
people with developmental disabilities and their families.
www.scdd.ca.gov [email protected] 866-802-0514
Community News
M a r c h , 2 0 1 5
Take Me Home Program Expands to Serve All Disabilities
When sheriff deputies find someone who can't communicate where he or she lives, they can search the Take Me Home database by description and return the person to their loved ones. The system also works in reverse -- if a loved one goes missing, his or her picture and description is immediately available to help with the search. Only law enforcement personnel can access the Take Me Home database. The registry is for people with physical or mental challenges or medical conditions (i.e. autism, Alzheimer's, Down Syndrome, etc.) Enrollment is Easy!!! Caregivers can enroll special needs family members, friends or clients by calling a Crime Prevention Specialist at their local Sheriff's Station or Substation (NOT SDPD only Sheriff). They can also make an appointment during business hours. They must provide an updated photograph and a completed form from www.sdsheriff.net/tmh for entry into the Take Me Home database.
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WANTED: Siblings who have a brother/sister with special needs, 7-12 years old.
Older siblings are welcome to attend as “Junior Leaders”.
WHAT: A fun-filled opportunity geared to the specific needs of siblings with
brothers/sisters with special needs. Join us for games, crafts, hikes,
cooking, and art. Meet other sibs. lunch provided
TIME: 9:00 a.m. – 1:00 p.m.
DATES: March 15 – Rueben H. Fleet Center, Balboa Park
April 26 – Mission Trails Regional Park
June 7 – Mission Trails Regional Park
July 12 – Day at the Bay, family picnic
August 16 – Santee Lakes, 9310 Fanita Pkwy, Santee, CA 92071
DONATION: $5.00 - $10.00 per meeting per family kids (scholarships available)
PRE- REGISTRATION: Requested the Wednesday before the event by email
CONTACT: Email [email protected] for a registration form and / or additional
information. Email preferred. 858-496-8205 (Jody at Riley)
Sibshop Leaders: Jody BonDurant-Strong, Program Manager, Special Education
Gina Clifton, SEEC Medically-Fragile Teacher, Special Education
Pat Moulton, Retired - SDUSD
Community News
M a r c h , 2 0 1 5 P a g e 4
San Diego AccessAbilities Expo:
Helping young individuals with physical disabilities and their families
access San Diego.
Sunday, March 29, 1-5 pm
Paradise Point Resort & Spa, 1404 Vacation Rd., San Diego
FREE to families!
For more information, e-mail: [email protected]
University of Southern California University Center
for Excellence in Developmental Disabilities Presents: Common Core Webinar
How does it relate to special education?
How does it affect my child's IEP?
What kinds of accommodations can be written into the IEP in order to help my child succeed with Common Core?
Date & Time: Thursday, March 26, 2015, 10:00 - 11:00 am PDT
Registration:: http://uscucedd.enterthemeeting.com/m/Q2CXCH2E
Save the Date! May 15-17, 2015
San Diego People First Self Advocacy Conference:
Living Longer, Growing Stronger
San Diego Marriott, Mission Valley
Inspiring keynote and breakout sessions focused on health and
wellness.
2nd Annual SDPF “Street Fair”, featuring self-advocate artisans and boutique
vendors, resources, refreshments, social activities and entertainment.
Catch up with old friends and make new ones at the banquet and dance!
Registration materials will be ready by March 1.
For more information, please contact Laura Krebs, 858-278-5420, ext. 132
Community News
P a g e 5 M a r c h , 2 0 1 5
March 30: In Home Supportive Services (IHSS) -Hot Topics and Frequently Asked Questions,: This free workshop will be held at San Diego Regional Center’s Imperial Valley office, 512 W. Aten Rd., Imperial , CA, starting at 4:30 pm. Megan Chambers Lazet and Susan Alvarado from the Office of Clients’ Rights Advocacy (OCRA) will present in English and Spanish. Featured topics include IHSS overtime, the 7% reducation and preparing for a reassessment . There will be time for general questions, or you can make an appointment to discuss your specific situation in detail. Contact the OCRA at 619-239-7877 or the Regional Center at 760-355-8383. April 8: Ask an Expert Education Roundtable: IEP Workshop Series Session !: What is FAPE (Free Appropriate Public Education?) Sponsored by San Diego Down Syndrome Association, Exceptional Family Resource Center and the ARC San Diego, and held at ARC North County Rex Industries, 1336 Rancheros Drive, Suite 100 in San Marchos from 6:30-8:30 pm. Presenter: Marta Leyva, M.A., Educational Consultant. Seating is limited to 25 participants; RSVP required: 619-594-7416 or 800-281-8252. April 24: 11th Annual Developmental Disabilities Provider Network (DDPN) Legislative Community Forum, Balboa Park Club, 2144 Pan American Rd. West, San Diego, 9-11:30 am. No cost event for families and professionals. Your advocacy matters! May 1: A Night to Remember Prom is a free event for individuals with special needs who are ages 15-22. These honored guests are teamed with host students from an area high school for an unforgettable night of dancing, friendships and memories! Registration is now open for the 5th annual event ! For more information, please visit http://anighttorememberprom.com/ May 4-8: Registration is now open for ICanBike, presented by Crimson Speech-Language Treatment & Research Center at Sol City Sports Center, Alliant University. The goal is for each participant to ride a bike independently by the final session. Participants must be at least 8 years old, walk independently without the assistance of a cane or walker, side step quickly to both sides and wear a properly fitted helmet while on the bike. The program is $375 for 5 days, with partial scholarships available. A down payment of $100 is due on March 4. Register early, as enrollment is limited to 40 participants. For more information, please contact Karyn Searcy at (858) 863-5915 or [email protected]. Volunteers, donors and sponsors are also needed! 2nd Saturday of the Month, 3:00 pm: Calvary Lutheran Church, 424 Via de la Valle, Solana Beach offers Rejoicing Spirits No-Shush Worship and Fellowship services. The ministry is an inclusive, accepting and meaningful worship service for individuals with developmental and intellectual disabilities, their family and friends, and community members. Rejoicing Spirts features lots of singing and music with brief, meaningful messages and provides many ways to serve. All faiths are welcome! Services are wheelchair accessible and offer FM receivers for individuals who are hearing impaired. The ministry shares the Rejoicing Spirts model of spiritual inclusion with disability and faith-based organizations.
UPCOMING OPPORTUNITIES AND EVENTS
Community News
M a r c h , 2 0 1 5 P a g e 6
Equipment Recycling and
Funding Assistance
UCP accepts and recycles pediatric and adult durable medical equipment to families at no cost, and also can help with the purchase of durable medical equipment if no other funding is available. Income guidelines and other eligibility criteria apply for funding assistance. Contact Rhonda Van Eklenberg at (858)571-7803, ext. 115 or [email protected] to learn more about this service, including how to donate equipment you no longer need or how to apply for funding assistance for your equipment needs.
You can view some of the equipment currently available by visiting: www. cecilyscloset.org
Play is how a child learns. The UCP Toy Library offers
families the opportunity to have fun together while building their children’s developmental skills.
Toys can be borrowed for 2 weeks and returned for new ones to try out. The Toy Library visits community sites
throughout San Diego County. Along with the opportunity for you and your child to check out a
variety of developmentally appropriate toys, you can also find information and resources through the Toy
Library and meet and spend time with other families of
young children in your community.
In order to ensure a selection of toys is available for
your child’s developmental age and interests, preregistration is required. A small annual fee will be
collected to offset the costs of batteries, replacement parts, etc. For more information and a schedule of
where and when the Toy Library stops, please call Maiko Yoshida at 858-278-5420.
UCP Youth and Family Programs
United Cerebral Palsy of San Diego County has a
website offering information on local programs as well as general information about Cerebral Palsy, news and
resources. Please visit at www.ucpsd.org
Teen and Young Adult Group
UCP San Diego and Rady Children’s Hospital invite
career and college-bound teens, 14-21, to a newly formed peer group that enjoys social and informational
activities. Meetings are held at Ronald McDonald House and other community locations. For
information, or to RSVP, contact Carolina: [email protected], 858-576-1700, ext. 5362 or
Rhonda: [email protected], 858-571-7803, ext. 115.
UCP Website
Toy Library
Community News
M a r c h , 2 0 1 5
San Diego Assistive Technology Center
6162 Mission Gorge Road, Suite F, 858-278-5420
San Diego Assistive Technology Center (SDATC) offers many opportunities for increasing your knowledge about assistive technology solutions through the hands-on exploration of a wide array of adapted computer hardware/software, environmental control access and Augmentative and Alternative Communication (AAC) devices. SDATC is an Alliance for Technology Access Resource Center. The San Diego Assistive Technology Center is available to individuals with disabilities, their families, professionals and the community at large! Open Labs allow individuals to explore a variety of augmentative communication devices software and computer access equipment. Staff attention for individual support is limited during lab hours due to number of participants. Open Labs are held in San Diego at 6162 Mission Gorge Road, Suite F and in Escondido at 205 W. Mission Ave., Suite G, Escondido. Please note that you must call and make an appointment for the Escondido Open Lab. Open Lab assistance will be available in Spanish on the dates marked with an asterisk. Please call for upcoming Open Lab dates!
What Is Assistive Technology? Assistive Technology (AT) is any item, piece of equipment, or
product system, whether acquired commercially off the shelf, modified, or customized, that is used to increase, maintain, or improve the functional capabilities of persons with disabilities.
What Else Do We Offer? Augmentative and Alternative Communication: Addresses the expressive communication needs of people with significant speech disabilities. Alternative Computer Access and Software: Helps people with disabilities use a computer effectively. Toy and Software Library: Mobile library to serve the community. Adaptive Computer Empowerment Services (A.C.E.S.): Provides low cost computers to low income individuals with disabilities and seniors.
Loan Programs: Our AT Center offers loan programs for augmentative communication devices and adaptive computer access equipment. You can learn about this program and view the equipment available through the Ability Tools AT Exchange website: : http://abilitytools.org Please contact our staff at 858 278-5420 , ext. 121 for more information. and to receive services locally.
VISIT OUR WEB SITE AT http://ucpsdtechcenter.org
Or see us on Facebook at UCP Sdatc
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Community News
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