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DISABILITY AND HEALTH PARTNERS MEETING June 14 – 16, 2011 Chicago, Illinois Conference Collaborators Conf

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Page 1: Conf - AUCD Home FINAL.pdf · community A flexible blueprint for planning, implementing, and evaluating programs in any community setting, as well as building and maintaining partnerships

D I S A B I L I T Y A N D H E A L T H P A R T N E R S M E E T I N G

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C h i c a g o , I l l i n o i s

C o n f e r e n c e C o l l a b o r a t o r s

Conf

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Dear Colleagues:

Welcome to the 2011 CDC Disability and Health Partners Meeting. The theme of this year’s meeting, Building Healthy Communities for Everyone, encompasses the work your projects and organizations are doing to improve the health and well-being of all people, including people with disabilities.

The 2011 planning committee is excited to introduce this year’s meeting theme because

it recognizes efforts in many areas to improve health outcomes in all communities. Your work in many of these areas, including health promotion and recreation, transportation, universal design, surveillance, and emergency preparedness, addresses the need for available and accessible opportunities for everyone. We thank you for your work and for your participation in this meeting. The meeting will provide opportunities to join with other disability and health leaders and to reflect on best practices, share success stories, and facilitate plans for continued collaboration and success. It is also an exciting time to highlight local, state and national efforts to ensure policy which results in equity across many dimensions for people with disabilities.

Attached you will find the meeting program that describes the presentation sessions and speakers. Once again, thanks for joining us—we hope you enjoy and benefit from the presentations and discussions this week! Sincerely,

Gloria Krahn, PhD, MPH George S. Jesien, PhD Director, Division on Human Development and Disability Executive Director, AUCD NCBDDD

James H. Rimmer, PhD Robert M. Pestronk Department of Disability & Human Development Executive Director, NACCHO University of Illinois at Chicago Director, NCPAD

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Celebrating Ten Years of Service

National Center on Birth Defects and Developmental Disabilities

(NCBDDD)

The National Center on Birth Defects and Developmental Disabilities (NCBDDD) was established in April 2001 as a result of The Children's Health Act of 2000. Since its establishment, NCBDDD has continued to bring a public health focus to the fields of birth defects, child development, blood disorders, and disability across the lifespan.

For more information on activities commemorating NCBDDD’s 10 Years of Service, visit

http://www.cdc.gov/ncbddd/tenyears/index.html.

Save the Date! Partner Open House, August 11, 2011 from 9 AM-5 PM in Atlanta, Georgia

Join NCBDDD and their partners for a day spent reflecting on accomplishments

and discovering new ways to move forward with shared work! Attendees will hear updates from across the center and meet with program staff from every division.

Planned activities also include interactive sessions with Center and Division leadership, representatives from the Procurement and Grants Office, CDC

Foundation, and opportunities to network with other NCBDDD partners.

For more information, please contact Julia Richardson, 404-498-4054,

[email protected]

If you are interested in having a table-top display (no charge) please contact

Esther Wilson, 404-498-0038, [email protected]

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Fragrance Free Event

We strive to make the CDC Disability and Health Partners Meeting a fragrance free event. For the safety and comfort of those with chemical and environmental sensitivities, please refrain from wearing perfumes, colognes, or using scented products such as aftershave, hairspray, lotion, etc.

Shared Resource Tables and Virtual Resource Table

The CDC Disability and Health Partners Meeting has gone virtual! Share your resources with conference attendees on the Virtual Shared Resource Table through AUCD’s State

Disability and Health Grantee Sharepoint Portal at https://sharepoint.aucd.org/disability_health_portal/default.aspx. All of the conference presentations will be available on Sharepoint as well as on the AUCD website. If you require Sharepoint login information, contact Sharon Romelczyk, [email protected]. For tips on navigating Sharepoint, visit AUCD’s award-winning Webinar Library (http://www.aucd.org/resources/webinars.cfm) for instructional videos. If you have any hard copy materials, feel free to place any resources you would like to share on the Shared Resource Tables located in the meeting plenary area.

Physical Activity Breaks Exercise is for EVERY body! The National Center on Physical Activity and Disability (NCPAD) is sponsoring optional physical activity breaks throughout the meeting as a chance to practice inclusive exercise and stretching techniques. The NCPAD sponsored breaks are just a glimpse into the work that NCPAD does—to view a collection of specific exercises and techniques; research on conditions, disabilities and exercises; and video clips demonstrating exercise for different bodies, visit NCPAD’s website at www.ncpad.org.

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NCPAD has also sponsored sessions throughout the meeting, denoted by the ―NCPAD joint session‖ symbol. These sessions feature representatives from many local, state, and national organizations with a focus on promoting health, inclusivity, community partnerships and action.

Healthy Dining Options

This meeting will feature healthy dining options in an effort to promote health and emphasize the importance of healthy lifestyles in preventing secondary health conditions. Preventing and reducing obesity is a key focus areas of this meeting, as well as the work of many of your organizations. We hope that you enjoy the menu options available throughout the meeting!

New Resource Available

A Guide for Community Action

This textbook is written for: Physical activity and public health researchers and

practitioners People working in state, territorial, tribal, and local

governments; public health departments; and, parks and recreation, urban planning, and transportation sectors

Community planners and stakeholders involved in promoting physical activity

Why? They are some of the key catalysts who can encourage communities or group members to hop on their bikes, take the stairs, play in the parks, or walk the neighborhood to get active. This newly updated second edition translates current research into accessible practice, laying out all the information you need to create an intervention that meets your community’s needs. Whether you are a novice or

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experienced health and wellness professional, this user-friendly book has the tools you need to generate new ideas to improve or expand existing programs:

Information on the health benefits of physical activity to help you make a case for

physical activity intervention programs

A practical overview of recommended evidence-based community interventions

with advice and examples that will help you carry out the interventions in your

community

A flexible blueprint for planning, implementing, and evaluating programs in any

community setting, as well as building and maintaining partnerships

Real-world examples, suggestions, and tips from a variety of settings to give you

multiple perspectives on planning community-based interventions

An appendix on Physical Activity and Disability

To order the textbook go to www.HumanKinetics.com or call Human Kinetics toll free at 1-800-747-4457. Copies of this great resource available for all conference attendees, free of

charge! Be sure to grab your copy of the book at the Shared Resource Table. (As government employees the editors of this book receive no royalties or financial gain from the sale of this book).

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Conference Collaborators

June 14 Day 1

8:30am Registration & Networking Breakfast

Optional Physical Activity

Shared Information Resource Tables (Public Health Resource and Information Centers and Disability and Health Grantees)

Disability and Health Grantees Project Officers Check in

9:15am Welcome & Overview Adriane K. Griffen, MPH, MCHES, Association of University Centers on Disabilities, AUCD George Jesien, PhD, Association of University Centers on Disabilities, AUCD Gloria Krahn, PhD, MPH, Division on Human Development and Disability, National Center on Birth Defects and Developmental Disabilities, CDC

9:45am-10:45pm

Opening Plenary: Building Healthy Communities for Everyone Eduardo Simoes, MD, MSc, MPH, Prevention Research Centers Program, CDC Carolyn Brooks, MA, Communities Putting Prevention to Work, Division of Adult and Community Health, CDC

10:45am-11:00am

Break

11:00am-12:00pm

Plenary: Health Promotion Data – Basis for Change Ismaila Ramon, MPH, Division on Human Development and Disability, National Center on Birth Defects and Developmental Disabilities, CDC Measuring Disability: Considerations and Challenges Brian Armour, PhD, Division on Human Development and Disability, National Center on Birth Defects and Developmental Disabilities, CDC Online Tool Resource

12:00pm-1:30pm

Networking Luncheon Access Living - Helping Hands Recognition and Award Karen Minyard, PhD, GA Health Policy Center Health Care Reform: Implementing Affordable Care Act

1:30pm-1:45pm

Break

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Conference Collaborators

June 14 Day 1 (continued)

1:45pm- 3:00pm

Healthy Communities Action Planning: Part 1-Partner Communication Strategies A facilitated session to process the discussion and formulate strategies on how to communicate with partners

George Packard, MA, MDiv, CTF, Bridging Futures, LLC

3:00pm-3:15pm

Break

3:15pm-4:30pm

Cross-cutting Issues - Concurrent Sessions

Session 1: Creating Healthy Communities Through Tool Development & Dissemination- Metro Rooms 3 & 4

Shannon Griffin-Blake, PhD, Healthy Communities Program, CDC Jennifer Leeman, DrPh, Center of Excellence for Training and Research Translation Sarah Strunk, MHA, Healthy Kids, Healthy Communities Active Living By Design, UNC

Session 2: Incorporating Disability into Policy: Healthy People 2020- Metro Room 2

Lisa Sinclair, MPH, National Center on Birth Defects and Developmental Disabilities, CDC

Session 3: Christopher and Dana Reeve Foundation – Quality of Life Grants: Model Programs Of Inclusion- Metro Room 1

Sarah Milligan-Toffler, Wilderness Inquiry, Inc. Frederick Leone, JD, Boundless Playgrounds, Inc. Melinda Kremer & Robert Hansberry, American DanceWheels Foundation, Inc.

4:30pm- 5:00pm

Break

Optional Physical Activity- Metro Rooms 3 & 4

5:00pm-6:00pm

Partner Welcome Reception Supported by NCPAD Dance Workshop facilitated by Dance Detour with Optional Physical Activity

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Conference Collaborators

June 15 Day 2

8:00am Workforce Disability Competencies Committee Meeting (by invitation, breakfast)- Metro Room 1

8:30am- 9:15am

Registration & Networking Breakfast

Disability and Health Grantees Project Officers Check in

Optional Physical Activity

9:15am- 10:45am

Cross-cutting Issues – Concurrent Sessions

Session 1: Health Care Access – Part 1- Salon A (Ballroom) Topic 1) ADA in Medical Settings Amanda Maisels, JD, Civil Rights Division, DOJ Topic 2) Accessible Medical Equipment David Baquis, US Access Board

Session 2: Strengthening Community Leadership For Families, Children, & Youth- Metro Rooms 3 & 4

Margaret Hower, MPH, MSW, Transtria

David Brown, PhD, Division of Nutrition, Physical Activity and Obesity

(DNPAO), CDC

Linda Bandini, PhD, RD, Shriver Center at UMASS Medical School Joan Almon, Alliance for Childhood

Session 3: Tobacco Prevention and Control- Metro Rooms 1 & 2 Topic 1) Virginia Tobacco Control Collaborations Monica Uhl, MA, Virginia Commonwealth University Topic 2) TCS – Tobacco Control Strategies (TCS) for Mississippians with Disabilities Mina Li, MD, MS, PhD, CSM, Southern Mississippi University Topic 3) Evaluating a Smoking Cessation Program Christopher Anderson, California Smokers’ Helpline

10:45am-11:00am

Break

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Conference Collaborators

June 15 Day 2 (continued)

11:00am-12:15pm

Plenary: Collaborating with Public Health Resource and Information Centers Patricia Isenberg, MS, Amputee Coalition Joseph Canose, Christopher and Dana Reeve Foundation Paralysis Resource Center Amy Rauworth, MS, RCEP, National Center for Physical Activity and Disability (NCPAD) Roberta Carlin, MS, JD, American Association on Health and Disability Darcie Mersereau, Special Olympics, Inc. Lisa Raman, RN, MS ANP, Spina Bifida Association

12:15pm-

12:30pm

Break

12:30pm-1:30pm

Luncheon Keynote Symposium: Healthy Lifestyles for Everyone Across the Lifespan Jeff Levi, PhD, Executive Director, Trust for America’s Health, Chair, The President’s Advisory Group on Prevention, Health Promotion, and Integrative and Public Health

1:30pm-1:45pm

Break

1:45pm-3:00pm

Cross-cutting Issues - Concurrent Sessions

Session 1: Environmental Change Strategies- Metro Rooms 3 & 4 Rebecca Lee, PhD, University of Houston Philip J. Troped, PhD, Purdue University Amy Hillier, PhD, MSW, PennDesign Department of City & Regional Planning

Session 2: FEMA and Accessible Shelters- Metro Rooms 1 & 2 Jessica Mitchell, Region V Disability Integration Specialist, Federal Emergency Management Agency

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Conference Collaborators

June 15 Day 2 (continued)

1:45pm-3:00pm

Session 3: Health Care Access – Part 2- Salon A (Ballroom)

Topic 1) Provider Training and Ability to Work with Patients with Disabilities Ken Robey, PhD, Alliance for Disability in Healthcare Education

Topic 2) Dental Health and Working with Cognitive Disabilities Paul Glassman, DDS, MA, MBA, University of the Pacific, School of Dentistry, San Francisco

Topic 3) Nursing and Disability Suzanne Smeltzer, RN, EdD, FAAN, Professor and Director of Nursing Research at Villanova University

3:00pm-3:40pm

Break

Optional Physical Activity

3:40pm- 4:45pm Discussions will repeat every 30 minutes.

“You Pick Two” Attendees have the chance to attend two sessions from a selection of four topics.

Presentation with Discussion

Topic 1: Building Capacity to Create Healthy Community Change-

Salon A (Ballroom)

Sandra Viera, MPAc, Prevention Institute Joanne Gooley, MA, RD, California Project Lean/CA Dept. of Public Health

Roundtable Discussions

Topic 2: Evaluation and Sustainability- Metro Room 1 Facilitator: Adriane K. Griffen, MPH, MCHES, AUCD

Topic 3: Social Isolation and Mental Health- Metro Room 2 Facilitator: Danielle Edson, MSW, AUCD

Topic 4: Developing Effective Community Models (how do you get what you do out into the community)- Metro Room 3 Facilitator: Sharon Romelczyk, MPA, AUCD

4:45pm-5:30pm

Break

5:30pm--? Evening Walk-N-Roll /Optional Physical Activity Meet in lobby 5:30pm

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Conference Collaborators

June 16 Day 3

8:30am Networking Breakfast

Optional Physical Activity

Welcome & Overview of Day 3

9:00am-10:00am

Cross-talk plenary panel: Integrating Disability Policy throughout Public Health Noelle Wiggins, Chair- Health and Disability Workgroup, NACCHO Shelley O’Brien, National Recreation and Parks Association

10:00am-10:15am

Break

10:15am-11:30am

Cross-cutting Issues - Concurrent Sessions

Session 1: Celebrating Success: Evaluating Health Promotion Programs and Promoting Success Stories- Metro Rooms 3 & 4

Chelsea Carlson Payne, MPH Melissa Fahrenbruch, MEd Division of Adolescent and School Health, National Center for Chronic Disease Prevention and Health Promotion

Session 2: Policy Change Strategies- Metro Rooms 1 & 2

Kara Vonasek, MPH, Health Impact Project Stefanie Seskin, MUPP, National Complete Streets Coalition Terrence Roche, MS, YMCA of the USA

11:45pm-1:15pm

Networking Lunch Healthy Communities Action Planning: Part 2-Incorporating Partners into Programs A facilitated session to process the discussion and formulate action plans on inclusive, healthy communities for the states and partners.

George Packard, MA, MDiv, CTF, Bridging Futures, LLC

1:15pm-1:30pm

Closing Plenary: Sustaining Your Initiative: Take Home Messages and Next Steps Gloria Krahn, PhD, MPH, Division on Human Development and Disability, National Center on Birth Defects and Developmental Disabilities, CDC

1:30pm-2:00pm

Disability and Health Grantees Project Officers Check in

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Many Thanks to This Year’s Speaker Faculty

Joan Almon

Joan Almon is the Executive Director of the Alliance for Childhood, a nonprofit organization that works to restore play for all children. The Alliance promotes policies and practices that support children’s healthy development, love of learning, and joy in

living. Joan holds a Bachelor of Arts in Sociology from the University of Michigan and spent 30 years as an early childhood educator and consultant in the U.S. and abroad.

Christopher Anderson

Christopher Anderson is the Program Director for California Smokers’ Helpline and the

Center for Tobacco Cessation. Chris has over 15 years of experience in tobacco cessation, including counseling, protocol development, study design, program administration, and evaluation. He consults widely with state and national organizations on the implementation of cessation programs and served as lead writer for the CDC's Telephone Quitlines: A Resource for Development, Implementation and Evaluation.

Chris received his BA in Literature from the University of Dallas. Brian Armour, PhD

Dr. Brian Armour is the lead health scientist for the Division of Human Development and Disability at the National Center for Birth Defects and Developmental Disabilities. His research interests include physician financial incentives, the economics of poverty and the economics of disability. Dr. Armour received a PhD in Economics from North Carolina State University.

Linda Bandini, PhD, RD

Linda Bandini is an Associate Professor of Pediatrics at the University of Massachusetts Medical School/ Eunice Kennedy Shriver Center, and the lead author of a new study published in the Journal of Pediatrics on food selectivity in children with autism. Her

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research interests are in health promotion for children/adults with developmental disabilities with a focus on nutrition, physical activity and obesity.

David Baquis

David Baquis is an Accessibility Specialist in technology with the U.S. Access Board, where he provides technical assistance on Sections 508 and 255 and is closely involved with the current effort to update those standard and guidelines. He delivers presentations on electronic and information technology, including telecommunications; writes technical assistance materials and responds to public inquiries. His background reflects experience in technology, public policy, disability issues and consumer education. Shannon Griffin-Blake, PhD

Dr. Shannon Griffin-Blake serves as the Team Lead for Program Services and Evaluation within the CDC’s Healthy Communities Program. In her current role as a lead health scientist, she oversees programmatic and evaluation efforts in the areas of diabetes, obesity, asthma, cardiovascular disease and their underlying risk factors in high-risk populations and underserved communities. She holds a Bachelor of Science degree in Public Health from the University of North Carolina at Chapel Hill, a Master of Arts in Health Education and Promotion from East Carolina University, and a Doctor of Philosophy degree in Health Behavior and Promotion from the University of Georgia.

Carolyn Brooks, MA

Carolyn Brooks currently serves as the Health Equity Specialist for CDC’s Communities

Putting Prevention to Work (CPPW) Program which is focused on policy, systems, and environmental changes to prevent chronic disease. In this role, Carolyn works across the program to coordinate the health equity efforts, which includes providing training and technical assistance related to health equity; coordinating evaluation efforts to build the practice- and evidence-base; and highlighting the communities’ efforts to advance health equity. Carolyn joined the Centers for Disease Control and Prevention (CDC) as a Presidential Management Fellow in 2008 and has worked across the agency on a

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variety of communication, policy, and programmatic issues. She joined CPPW from CDC’s Office of the Associate Director for Communication where she served as a co-lead of the agency’s health literacy efforts.

David Brown, PhD

Dr. David Brown is a Senior Behavioral Scientist with the Division of Nutrition, Physical Activity and Obesity at the CDC. With advanced degrees in kinesiology and educational psychology, Brown served the world of education and research first before joining CDC in 1992. As a behavioral scientist with the Physical Activity and Health Branch, Brown conducts research, monitors cooperative agreements, and provides technical assistance related to physical activity and mental and physical health outcomes and health equity.

Joseph Canose

Joseph Canose is the Senior Vice President of the Quality of Life Grants program at the Christopher and Dana Reeve Paralysis Resource Center. The PRC also leads a national effort to carry out public health initiatives like a national survey to determine the extent of paralysis in the United States; developing multicultural websites and materials to reduce health disparities among minority groups; and promoting the awareness of proven health promotion interventions and clinical guidelines for paralysis.

Roberta Carlin, MS, JD

Roberta Carlin is the executive director of the American Association on Health and Disability (AAHD). She has been involved in the disability field for nearly 25 years, working in the areas of primary prevention, health promotion and wellness for people with disabilities, government relations, grassroots advocacy and expanding partnerships and collaborative opportunities in the disability field.

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Melissa Fahrenbruch, MEd

Melissa Fahrenbruch currently serves as the Professional Development Team Lead in the Division of Adolescent and School Health (DASH) at the National Center for Chronic Disease Prevention and Health Promotion at CDC. Melissa currently oversees all the internal and external professional development events for CDC/DASH staff and funded partners.

Paul Glassman, DDS, MA, MBA

Paul Glassman currently serves as Professor of Dental Practice and Director of Community Oral Health and Director of the Pacific Center for Special Care (PCSC) at the University of the Pacific Arthur A. Dugoni School of Dentistry in San Francisco (Pacific). He has been at Pacific for 20 years. Dr. Glassman is also Co-Director of the Statewide Taskforce on Oral Health for People with Special Needs with representation from over 80 government agencies and other advocacy groups. Joanne Gooley, MA, RD

Joanne Gooley currently serves as the Physical Activity Coordinator for the California Project LEAN (Leaders Encouraging Activity and Nutrition). California Project LEAN works to advance nutrition and physical activity policy in schools and communities in order to prevent obesity and its associated chronic diseases. Robert Hansberry, MS, CNA, CWDT

Robert Hansberry is a master instructor for American DanceWheels Foundation (ADF). Robert is a former Marine from Newark, Delaware, currently employed as a network engineer for Hewlett-Packard. His interest in the community led him to ADF where he has been a standing dancer, competitor, performer, etc. for ADF for over 3 years.

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Amy Hillier, MSW, PhD

Dr. Amy Hillier is an Assistant Professor in City and Regional Planning in the School of Design at the University of Pennsylvania. Dr. Hillier studies geographic disparities. Her research applies geographic information systems (GIS) and spatial analysis methods to housing and health topics. Specifically, she has studied historical mortgage redlining, affordable housing, housing abandonment, and childhood obesity. Amy has a Masters in Social Work and a PhD in Social Welfare.

Margaret Hower, MPH, MSW

Margaret Hower currently serves as Chief Project Officer at Transtria. She has over 20 years experience in community development, program and grants management, program design, evaluation and training. Her past work has included developing, evaluating and sustaining public and private partnerships in federal, state and city governments along with grants management and evaluation for statewide community based child abuse prevention.

Patricia Isenberg, MS

Patricia Isenberg has served as Chief Operating Officer of the Amputee Coalition since 2002, after joining the organization in 2000 as Outreach and Education Coordinator. Currently she serves as PI for the National Limb Loss Information Center and Co-PI on collaborative projects with the Veterans Administration, Department of Defense and Johns Hopkins University Bloomberg School of Public Health. Ms. Isenberg holds Masters Degrees in Psychology and Special Education from the University of Tennessee and has been a certified master trainer since 1998.

Gloria Krahn, PhD, MPH

Dr. Gloria Krahn is the Director of the Division of Human Development and Disability at the National Center on Birth Defects and Developmental Disabilities (NCBDDD) at the Centers for Disease Control and Prevention (CDC). She joined the CDC after 25 years as an academic clinician, researcher, teacher and administrator. Her early work in child

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development was followed by an interest in disabilities and development across the lifespan. Dr. Krahn is widely regarded as a national and international expert in the field of disability and public health.

Melinda Kremer, CWDT (Master)

Melinda Kremer is the Executive Director of American DanceWheels Foundation (ADF). Melinda co-founded ADF and co-authored the Wheel One™ Wheelchair Ballroom and Latin Dance curriculum. Melinda Kremer is a trained classical singer from the Academy of Vocal Arts in Philadelphia. She was the first U.S. National Wheelchair Ballroom and Latin Dance Champion. She has taught hundreds of dancers using wheelchairs and their able-bodied partners in ADF classes and performance venues. Melinda also trains therapists and dance professionals across the country in this unique artistic form of therapy.

Rebecca E. Lee, PhD

Dr. Rebecca E. Lee is the principal investigator for the Understanding Neighborhood Determinants of Obesity research team at the University of Houston. Dr. Rebecca E. Lee serves as founding director of the Texas Obesity Research Center and is an associate professor in the Department of Health and Human Performance. She holds a courtesy appointment at the University of Texas School of Public Health. Rebecca Lee holds a Doctor of Philosophy in Human Services Psychology with a dual emphasis of Community Psychology and Behavioral Medicine from The University of Maryland Baltimore County. Jennifer Leeman, DrPh Dr. Jennifer Leeman is an Assistant Professor in the School of Nursing at the University of North Carolina at Chapel Hill. She is co- principal investigator of the CDC-funded Center of Excellence in Training and Research Translation, where she is developing processes to identify and disseminate the best evidence on how to change practice, policy, and environments to prevent obesity and other chronic illnesses. Dr. Leeman

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received a MPH from Columbia University, a MDiv from Union Theological Seminary in New York, and a DrPH from the University of North Carolina at Chapel Hill. Frederick Leone, JD

Frederick A. Leone is the Chief Executive Officer of Boundless Playgrounds, Inc., a national nonprofit that develops inclusive playgrounds for children. Leone has a Bachelor of Arts degree in political science from Yale University and a juris doctorate from the Fordham University School of Law.

Jeff Levi, PhD

Dr. Jeffrey Levi, PhD, is Executive Director of Trust for America's Health, where he leads the organization's advocacy efforts on behalf of a modernized public health system. Dr. Levi oversees TFAH's work on a range of public health policy issues, including its annual reports assessing the nation's public health preparedness, investment in public health infrastructure, and response to chronic diseases such as obesity. Dr. Levi received a BA from Oberlin College, an MA from Cornell University, and a PhD from The George Washington University.

Mina Li, MD, MS, PhD, CSM Dr. Mina Li is the Coordinator for Health Services and Research and Project Manager for Mississippi Integrated Community Systems at the Institute for Disability Studies at the University of Southern Mississippi. Dr. Li serves on the Health Equity Board of Region IV of the Office of Minority Health of the U.S. Department of Health and Human Services. She also oversees the Tobacco Control Strategies for Mississippians with Disabilities project funded by the Office of Tobacco Control with the Mississippi State Department of Health and contributes to the Family to Family Health Information Center and Education Center. Dr. Li is trained as a medical doctor and holds a PhD from Jackson University.

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Amanda Maisels, JD

Amanda Maisels is a Trial Attorney for the Disability Rights Section of the Office of Civil Rights at the U.S. Department of Justice. Amanda works on justice issues around discrimination and barred access. Amanda received her JD from Harvard University.

Darcie Mersereau

Darcie Mersereau is the Senior Manager for Research and Evaluation at Special Olympics. Ms. Mersereau has been with Special Olympics for three and a half years. She helps set the research agenda, design and oversee research projects, administers Health Professions student grants, and directs the Eunice Kennedy Shriver Fellowship program.

Karen Minyard, PhD

Karen Minyard, PhD has directed the Georgia Health Policy Center at Georgia State University’s Andrew Young School of Policy Studies since 2001. Minyard connects the

research, policy, and programmatic work of the center across issue areas including, community and public health, end of life care, child health, health philanthropy, public and private health coverage, and the uninsured. Dr. Minyard holds a Bachelor’s in

Nursing from the University of Virginia, a Master’s in Nursing Administration from the

Medical College of Georgia, and a Ph.D. in Business from Georgia State University. Jessica Mitchell Jessica Mitchell is the Regional Disability Integration Specialist for Federal Emergency Management Agency (FEMA) Region V. In this role, Jessica serves six states including Illinois, Indiana, Michigan, Minnesota, Ohio and Wisconsin.

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Shelley O’Brien Shelley O’Brien is the Senior Fundraising Manager for the National Recreation and Parks Association (NRPA). NRPA is dedicated to educating professionals and the public on the essential nature of parks and recreation. Through learning opportunities, research, and communications initiatives, NRPA strives to generate significant public support for our movement in order to advance the development of best practices and resources that will make parks and recreation indispensable elements of American communities. George Packard, MA, MDiv, CTF

George Packard is a certified ToP facilitator and trainer whose experience as a process designer enables him to help a group get to their desired outcomes in the most effective way given their time. George is a graduate of the University of Wisconsin, Stevens Point, Wisconsin and holds a Bachelor of Arts in English and Music. He has a Masters of Divinity from Garret-Evangelical Theological Seminary in Evanston, Illinois, and a Masters of Arts in Human Resource Leadership from Azusa Pacific University in Azusa, California.

Chelsea Carlson Payne, MPH

Chelsea Carlson Payne is the Health Communications Team Lead in the Division of Adolescent and School Health (DASH), Office of the Director at CDC. Chelsea received an MPH in behavioral science and health education from the Rollins School of Public Health of Emory University and a BA in health and society from Brown University.

Lisa Raman, RN, MS ANP

Lisa Raman is the Information and Referral Coordinator at the Spina Bifida Association. Lisa holds several degrees including a Master’s degree in Advanced Nursing Practice

from the University of Nottingham, England, dual Bachelor’s degrees in Nursing and

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Psychology from the University of Michigan, and a Teaching Certificate in Nursing Education from Wayne State University in Detroit, MI.

Ismaila Ramon, MPH

Ismaila Ramon is the current Association of University Centers on Disability (AUCD) Surveillance and Epidemiology Fellow and a member of the Disability and Health Branch in the Division of Human Development and Disability (NCBDDD). Ismaila received a bachelor’s degree in Human Anatomy from Ahmadu Bello University in

Nigeria and a Master of Public Health degree in epidemiology from the University of Oklahoma. He is currently working on his doctoral degree in Public Health.

Amy Rauworth, MS, RCEP

Amy Rauworth is the Associate Director of Operations and Exercise Physiology Research at the Center on Health Promotion Research for Persons with Disabilities (CHP), at the University of Illinois Chicago. She is a Registered Clinical Exercise Physiologist with the American College of Sports Medicine. She has applied exercise physiology experience in the areas of orthopedic and cardiac rehabilitation, health promotion, and corporate wellness. Ms. Rauworth conducts Inclusive Fitness trainings nationally on behalf of NCPAD and specializes in accessible fitness center design.

Ken Robey, PhD

Dr. Ken Robey is the Director of a research institute located at the Matheny Medical and Educational Center. His research focuses on psychosocial aspects of disability at the individual and societal levels. Dr. Robey’s particularly interested in structural aspects of the "disability identity" and in professionals' attitudes (implicit or explicit) that might impact on services or care provided to persons with disabilities. Dr. Robey holds a PhD in Social Psychology from Rutgers University.

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Terrence Roche, MS

As Senior Director for Organizational and Community Change at YMCA of the USA, Terrence has the responsibility for overseeing several national initiatives in partnership with the Centers for Disease Control, the Robert Wood Johnson Foundation and other private foundations. He and his team accomplish this by empowering hundreds of Ys and their communities with proven strategies and models that will allow them to create and sustain positive, lasting change around a range of social issues related to youth development, healthy living and social responsibility. Terrence earned a BS in Management from the A.B. Freeman School of Business at Tulane University and holds a Master’s of Science in Learning and Organizational Change from Northwestern

University’s School of Education and Social Policy.

Stefanie Seskin, MUPP

Stefanie Seskin, State & Local Policy Manager for the National Complete Streets Coalition, provides technical assistance to advocates, practitioners, and elected officials as they develop and implement Complete Streets policies. Complete Streets policies alter planning, design, and construction of roads for maximum inclusivity and safety. Stefanie is primary author of Complete Streets Policy Analysis 2010 and co-author of Complete Streets: Best Policy and Implementation Practices. She holds a Master of Urban Planning and Policy from the University of Illinois at Chicago.

Eduardo Simoes, MD, MSc, MPH

Dr. Eduardo Simoes is the Director of the Prevention Research Centers Program in the Division of Adult and Community Health, National Center for Chronic Disease Prevention and Health Promotion, Centers for Disease Control and Prevention. Dr. Simoes is a medical doctor, epidemiologist and public health practitioner. Dr. Simoes received his medical degree from Faculdade de Medicina, Universidad de Pernambuco in 1981, his Master of Science in Community Health and Diploma of Hygiene and Tropical Medicine from the London School of Hygiene and Tropical Medicine, University of London in 1987, and Master of Public Health from Emory School of Public Health, Emory University in 1991.

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Lisa Sinclair, MPH

Lisa Sinclair is a Health Policy Analyst for the Disability and Health Team at the National Center on Birth Defects and Developmental Disabilities (NCBDDD). Ms. Sinclair earned a Master’s in Public Health with an emphasis in Health Promotion and Disease

Prevention from The George Washington University. She also studied clinical medicine several years at the University of Maryland Medical School in Baltimore demonstrating skills in microbiology, reproductive health, and surgery.

Suzanne Smeltzer, RN, EdD, FAAN

Suzanne Smeltzer is Professor and Director of Nursing Research at Villanova University. Much of Dr. Smeltzer’s research has addressed health issues of people with multiple sclerosis and other disabilities. Dr. Smeltzer holds an EdD from the University of Pennsylvania, an MS from Texas Women’s University and a BSN from St. Louis University. Sarah Strunk, MHA

Sarah Strunk is Director of Active Living By Design (ALBD), which creates community-led change by working with local and national partners to build a culture of active living and healthy eating. Established by the Robert Wood Johnson Foundation, ALBD is part of the North Carolina Institute for Public Health at the UNC Gillings School of Global Public Health in Chapel Hill, NC. In this role, she oversees a variety of grant programs, including Healthy Kids, Healthy Communities, a five-year, $33-million collaboration with the Robert Wood Johnson Foundation. Strunk earned a BA in Public Policy from the Sanford Institute of Policy Sciences and Public Affairs from Duke University and an MHA in Health Policy and Administration from the UNC School of Public Health.

Sarah Milligan-Toffler Sarah Milligan-Toffler is the Associate Director of Wilderness Inquiry, a non-profit organization that helps people from all walks of life to personally experience the natural world. Sarah is currently in charge of Wilderness Inquiry's resource development efforts

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and serves as a part of the management team. Sarah received her Bachelor’s Degree

in Philosophy from Miami University in Oxford, OH.

Philip J. Troped, PhD

Philip J. Troped, PhD is an Associate Professor of Public Health, Department of Health and Kinesiology at Purdue University in West Lafayette, Indiana. His areas of interest are physical activity and public health; evaluation of behavioral interventions; examination of perceived and objective environmental influences on physical activity; and measurement of physical activity with accelerometers and GPS devices. Philip holds a PhD from the Arnold School of Public Health at the University of South Carolina.

Monica Uhl, MA

Monica Uhl is the Project Director for the Virginia Health Promotion for People with Disabilities Project at Virginia Commonwealth University. The Virginia Health Promotion for People with Disabilities Project is one of the 16 CDC-funded State Disability and Health Implementation Projects that strive to promote health and prevent secondary health conditions for people with disabilities.

Sandra Viera, MPAc

Sandra Viera is a Program Coordinator at Prevention Institute, works to promote safe and healthy communities through projects focused on improving the built environment, preventing unintentional injuries and increasing equitable opportunities for physical activity and play. Sandra provides support to the Healthy Places Coalition, a statewide coalition seeking to advance public health involvement in land-use and transportation planning, and coordinates the Joint Use Statewide Task Force (JUST) whose mission is to increase community access to playgrounds through the policy of joint use agreements between school districts and local governments.

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Kara Vonasek, MPH

Kara Vonasek is the project manager of the Health Impact Project, a collaboration of the Robert Wood Johnson Foundation and The Pew Charitable Trusts, designed to promote the use of health impact assessments (HIAs) and support the growth of the field in the United States. Ms. Vonasek has a master’s degree in public health from the Johns

Hopkins Bloomberg School of Public Health with a concentration in social and behavioral sciences. She earned an undergraduate degree in biochemistry from Wesleyan University in Middletown, Connecticut.

Noelle Wiggins

Noelle Wiggins is the Manager of the Community Capacitation Center at Multnomah County Health Department. Noelle serves as the chairperson for the National Association of City and County Health Officials (NACCHO) Health and Disability Workgroup.

Program Highlights Join us throughout the meeting to discuss the meeting theme of Building Healthy Communities for Everyone! Featured events include: Helping Hands Award Presentation to Access Living, Tuesday, June 14 at 12 pm Health Reform Plenary Presentation by Dr. Karen Minyard, Tuesday, June 14 at

12:30 pm Dance>Detour Performance and Interactive Dance Workshop, Tuesday, June 14 at

5 pm Healthy Lifestyles for Everyone Across the Lifespan Plenary Presentation by Dr. Jeff

Levi, Wednesday, June 15 at 12:30 pm Evening Walk-N-Roll Event, Wednesday, June 15 at 5:30 pm

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Helping Hands Award

Access Living of Metropolitan Chicago

Join us Tuesday, June 14, 2011 at 12:00 pm as we recognize Access Living for their commitment to Building Healthy Communities for Everyone. Accepting the award for Access Living will be Judy Panko Reis, Health Care Policy Analyst, and Mary Martin, Health Care Policy Analyst.

Established in 1980, Access Living is a change agent committed to fostering an inclusive society that enables Chicagoans with disabilities to live fully-engaged and self-directed lives. Access Living promotes the inclusion of people with disabilities into the health care workforce so that they may enhance the cultural competency of health care professionals and improve the care of those in need of medical services. To address health care issues affecting people with disabilities, Access Living’s health care activities include educating legislators; advocating for quality, affordable care for Medicaid and Medicare recipients; ensuring accessibility of health care facilities; and educating consumers on accessible equipment and accommodations that improve the quality of health care.

Health Care Reform: Implementing the Affordable Care Act

Tuesday, June 14, Luncheon Session

Karen Minyard, PhD

Dr. Minyard, has directed the Georgia Health Policy Center at Georgia State University’s Andrew Young School of Policy Studies since 2001. Dr. Minyard connects the research, policy, and programmatic work of the center across issue areas including, community and public health, end of life care, child health, health philanthropy, public and private health coverage, and the uninsured. Dr. Minyard has 13 years of experience in nursing and hospital administration. Dr. Minyard’s research interests include: the

financing and evaluation of health related social policy programs; the strategic alignment of national, state, and local, public and private health policy and resources;

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the role of local health initiatives in access and health improvement; the role of targeted external facilitation and technical assistance in improving the sustainability, efficiency, and programmatic effectiveness of non-profit health collaboratives. Dr. Minyard holds a Bachelor’s in Nursing from the University of Virginia, a Master’s in Nursing

Administration from the Medical College of Georgia, and a PhD in Business from Georgia State University.

Dance>Detour Performance and Interactive Dance Workshop

Tuesday, June 14, 5:00-6:00 pm

Founded in 1995, Dance>Detour is Chicago’s

first professional "diverse-abilities‖ dance

company – comprised of multi-talented artists with and without disabilities. The company’s

work is solely dedicated to exploring movement possibilities that include dancers of varying abilities who collaborate creatively together as EQUALS.

Dance>Detour grounds its work in the diversity of its dancers, celebrating their physical, ethnic, generational, cultural, and artistic differences. Their work includes many forms of dance alongside acting, singing, writing, and other media. Alana Wallace, a Chicago native who contracted polio at the age of five, serves as Founder and Artistic Director of Dance>Detour. She strives to expand the concept of what dance IS and WHO can be involved. Thus, Wallace and her dancers, effectively demonstrate that capable artists with disabilities EXIST and make significant contributions to the arts. For more information, visit http://www.dancedetour.org.

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Healthy Lifestyles for Everyone Across the Lifespan

Wednesday, June 15, Luncheon Keynote Symposium

Jeffrey Levi, PhD

Jeffrey Levi, PhD, is Executive Director of Trust for America's Health, where he leads the organization's advocacy efforts on behalf of a modernized public health system. Dr. Levi oversees TFAH's work on a range of public health policy issues, including its annual reports assessing the nation's public health preparedness, investment in public health infrastructure, and response to chronic diseases such as obesity. Dr. Levi was recently appointed by President Obama to the President’s Advisory Group on Prevention, Health Promotion, and Integrative and Public Health. Dr. Levi is also a Professor at The George Washington University's Department of Health Policy, where his research has focused on HIV/AIDS, Medicaid, and integrating public health with the healthcare delivery system. He has also served as an associate editor of the American Journal of Public Health, and Deputy Director of the White House Office of National AIDS Policy. Dr. Levi received a BA from Oberlin College, an MA from Cornell University, and a PhD from The George Washington University.

Evening Walk-N-Roll

Wednesday, June 15, 5:30pm Want to get out and see the local Chicago area, but don’t know your way around? Join us for a casual walk and roll around and through the local Greektown area. Grab your colleagues and join us in the hotel lobby at 5:30pm. Walk leaders who are familiar with the area will be available with maps. Groups with similar destinations, desired walking distance, or walk/roll speed are encouraged to form for this fun journey.

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Things to Do in Chicago Local Dining Options (All within walking distance)

Roditys – 222 S. Halsted Customer favorite since 1972, this popular restaurant serves traditional Greek food, comfortable dining rooms, wall murals & Greek music. 11 am – Midnight Sunday thru Thursday, 11am – 1 am Friday & Saturday Greek Islands – 200 S. Halsted Popular, established & the biggest restaurant in Greek Town with several dining options. Open kitchen allows you to watch the chefs & choose your dish. 11 am – Midnight Sunday thru Thursday, 11am – 1am Friday & Saturday

Parthenon – 314 S. Halsted Hearty, simple food & a warm welcome produce infectious goodwill at this Greek Town staple. More than 140 dishes offered. Huge portions. 11 am – 1 am Sunday thru Friday, 11am – 2 am Saturday Athena – 212 S. Halsted More a fine dining restaurant than a party spot. Attire is dress- casual to suite & tie. Menu features regional Greek specialties including kebabs, seafood & lamb dishes. 11am – Midnight Sunday thru Thursday, 11 am – 1 am Friday & Saturday

Other Local Restaurants

Santorini Restaurant-- 800 W. Adams (0.21 MI) Greek 312-829-8820 VIVO Restaurant--838 W. Randolph (0.29 M) Italian 312-733-3379 Alhambra Palace--1240 W. Randolph (0.78 MI) Mediterranean 312-666-9555

Blackbird--619 W. Randolph (0.51 MI) American 312-715-0708 Carmichael’s Chicago Steak House--1052 W. Monroe (0.44 MI) Steak & Beef 312-433-0025

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Carnivale--702 W. Fulton 0.40 MI Latin 312-850-5005 Veerasway--844 W. Randolph 0.29 MI Indian 312-491-0844 Sushi Wabi--842 W. Randolph 0.29 MI

Red Light--820 W. Randolph 0.26 MI Asian Fusion 312-733-8880 The Publican--837 W. Fulton Market 0.45 MI American La Sardine--111 N. Carpenter 0.45 MI French

Sushi/Japanese

Attractions (Within walking distance of the Metro)

Willis Tower – 233 S. Wacker Drive Tallest building in Western Hemisphere – so big it has its own zip code. The Skydeck is on 103rd floor with breath-taking views. Tower entrance is on Jackson Blvd Old Saint Patrick’s Church – 700 W. Adams Celebrating the church’s 150-year anniversary. Sunday Mass at 10 am & 12:45 pm 10:00 am – 10:00 pm Millennium Park-103 N. Michigan Ave. millenniumpark.org 6am ‐ 11pm Daily Free (312) 742‐1168 Entrance on Columbus Drive is accessible.

Navy Pier- 600 E. Grand Avenue navypier.com Sunday ‐ Thursday: 10 am- 8 pm Friday & Saturday: 10 am- 10 pm General Admission is free but the various programs vary in pricing. (312) 595‐PIER Accessible Lincoln Park Zoo- 2001 N. Clark Street lpzoo.org Weekdays 10 a.m.–5 p.m. Weekends 10 a.m.–6:30 p.m. Free (312) 742‐2000 Entrance on the north side of building at Delaware St. is accessible

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Thank You

2011 Disability and Health Partners Meeting

Planning Committee Members

Anita Albright

Danielle Bailey

Jacqui Butler

Carla Cox

Kay DeGarmo

Karin Ford

Jamylle Gilyard

Catherine Graham

Nancy Guenther

Jennifer Li

Karen Luken

Theresa Paeglow

Amy Rauworth

Jim Rimmer

Don Sharman

Eileen Sparling

Meg Ann Traci

Mary Helen Witten

Kiyoski Yamaki

Sarah Yates

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Thank You Conference Collaborators

CDC/NCBDDD Sponsor Statement: The purpose of conference support funding is to provide PARTIAL support for specific nonfederal conferences in the areas of health promotion and disease prevention information/education programs. Because conference support by CDC creates the appearance of CDC cosponsorship, there will be active participation by CDC in the development and approval of those portions of the agenda supported by CDC funds. CDC funds will not be expended for

nonapproved portions of meetings. In addition, CDC will reserve the right to approve or reject the content of the full agenda, press events, promotional materials (including press releases), speaker selection, and site selection. Contingency awards will be made allowing usage of only 10% of the total amount to be awarded until a final full agenda is approved by CDC. This will provide funds to support costs associated with preparation of the agenda. The remainder of funds will be released only upon

approval of the final full agenda. CDC reserves the right to terminate cosponsorship if it does not concur with the final agenda. All scientific conferences receiving CDC funds must meet CDC's Guiding Principles for the Conduct of Scientific Conferences

and follow relevant policies and procedures indicated under "Securing Approval for Sponsorship of Conferences."

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