consensual vs. coercive treatments: new manifestations of ... · stopped bathing regularly. at...
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Consensual vs. Coercive Treatments: New Manifestations
of an Old Dilemma
Paul S. Appelbaum, MD Dollard Professor of Psychiatry, Medicine, and Law Columbia University/NY State Psychiatric Institute
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Goals
To briefly review the history of coercive approaches in psychiatry
To consider the extent to which the use of coercive interventions has diminished over time—or merely changed its form
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History of Coercive Approaches to Mental Health Treatment
Can be traced back to beginnings of organized care
Will focus on examples from U.S., but history is similar in other countries
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Pre-institutional period (1607-1751)
Approaches to dealing with mentally ill persons Commitment under the poor laws Jailing for minor offenses “Warning out”
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Early Institutional Period (1752-1833)
Hospitalization limited; few public or private facilities
Controlled by family and physician No legal oversight Identical to process for other medical
disorders
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Development of Public Hospitals (1833-1881)
System of large state hospitals is developed as progressive reform
Preexisting system codified
Family/physician control maintained
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Voluntary Hospitalization Authorized (1881)
Massachusetts is first state to enact voluntary admission provision
Prior to this, never considered as a legitimate option
Other states soon follow suit
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Involuntary Treatment Predominates (1882-1980)
Despite voluntary admission statutes, majority of admissions remain involuntary
Why?
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Factors Reinforcing Coercive Approaches - 1
Presumption that committed, mentally ill persons are incompetent Written into statutes until mid-20th century Burden on committed person to
demonstrate that competence has been restored
If incompetent, patients’ consent was considered irrelevant and interventions used regardless of their desires
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Factors Reinforcing Coercive Approaches - 2
Association between mental illness and violence Common assumption in the popular mind—
notwithstanding the empirical data
Police power rationale preempts patients’ decisions, so again treatment can be undertaken regardless of patients’ desires
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New Approach to Psychiatric Treatment (1960-1979)
From a psychiatric perspective, institutional care—especially if involuntary—viewed as inherently inferior to community-based care—especially if voluntary Evolution from CMHC movement to recovery movement
From a legal and moral perspective, the legitimate scope of the state’s power to intervene seen as limited to danger to self/others
Movement for statutory change draws on both and is explicitly aimed at reducing use of coercion
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Results of Legal Reform By 1979, every state limits commitment
criteria to danger to self/others By mid-1980s, most states adopt rules
restricting involuntary treatment of committed patients Variety of approaches, but most aimed at
reducing extent of coercive treatment Medications, ECT, seclusion and restraint were
all targets Similar changes internationally
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Expectations of Reformers
Involuntary hospitalization will be uncommon
Most treatment will be voluntary Coercive approaches will wither away
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Aftermath of Reform: Coercion Still Exists
Coercive approaches have not disappeared, and may not even have diminished
But the locus of coercion has moved from the institution to the community
And the form has changed from recognizable coercion to more subtle “leverage”
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Concept of Leverage
Leverage is the regulation of access to benefits that patients want (e.g., freedom, money, shelter, interpersonal support) based on patients’ adherence to treatment recommendations
Leveraged approaches can be formal or informal, legal or extralegal, overt or subtle
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The Prevalence of Community-Based Leverage
Five Sites Durham, NC Worcester, MA Chicago, IL Tampa, FL San Francisco, CA
Overall N: 1,011 Refusal Rate: 6.8%
Monahan et al. (2005). Use of leverage to improve adherence to psychiatric treatment in the community. Psychiatric Services, 56, 37-44.
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Eligibility Criteria
18-65 years old English or Spanish-speaking Currently in outpatient treatment with a
public MH service provider In treatment at least 6 months
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Prevalence of Leveraged Community Treatment
Form of Leverage % with Leverage
Obtaining Housing 32
Avoiding Jail (MHCs) 23
Avoiding Hospital (OPC)
15
Obtaining Money (SSDI)
12
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Other Forms of Leverage
Parental custody/visitation Professional licensure Student status in primary and
secondary schools, and in colleges and universities
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Coercive Approaches Today
Plausible case that coercion has not diminished (and may have increased)
But the forms of coercion have morphed (and may have softened)
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What Accounts for the Persistence (Growth?) of Coercive Approaches?
Effects of fear and stigma Especially prevalent after horrendous
acts of violence by persons with mental illness
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DSM-IV Vignette: Schizophrenia (Pescosolido, Monahan, Link, et al, 1999)
NAME is a RACE/ETHNICITY, MAN/WOMAN, who has completed EDUCATION. Up until a year ago, life
was pretty okay for NAME. But then, things started to change. He/She thought that people around him/her were making disapproving comments, and talking behind his/her back. NAME was convinced that people were spying on him/her and that they could hear what s/he was thinking. NAME lost his/her drive to participate in his/her usual work and family activities and retreated to his/her home, eventually spending most of his/her day in his/her room. NAME became so preoccupied with what s/he was thinking that s/he skipped meals and stopped bathing regularly. At night, when everyone else was sleeping, s/he was walking back and forth in his/her room. NAME was hearing voices even though no one else was around. These voices told him/her what to do and what to think. S/he has been living this way for six months.
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“How likely is it [John/Mary] would do something violent to other
people?”
% very/somewhat likely
Schizophrenia: 61 Major depression: 34 Drug dependence: 87
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“Do you think that people like [John/Mary] should be forced by law…
to get treatment at a clinic or from a doctor?” (% yes)
Schizophrenia 49
Depression 22
Drug 67
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“Do you think that people like [John/Mary] should be forced by law…
to get treatment… if he or she is dangerous to others?” (% yes)
Schizophrenia 49 → 95
Depression 22 → 94
Drug 67 → 96
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Could Factors Other Than Fear/Stigma Also Be Operative?
Coercion/leverage extraordinarily prevalent and diverse
Might commonsense view that coercion is often necessary be based in reality as well?
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Nature of Mental Illness Plays a Role in Prevalence of Coercion-1
Severe mental illnesses impair decision making in a subset of persons Competence to consent to treatment may
be limited Unawareness of illness may lead to failure
to get treatment
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Unawareness of Illness Common Among Persons with Some Mental
Illnesses
Denial vs. anosognosia Typical finding: 57% of patients with
schizophrenia had “moderate to severe unawareness of having a mental disorder” (Amador, et al., 1994)
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Rates of Treatment of Severe Mental Illnesses
National Comorbidity Survey reported 1-year treatment rate of 48.5% for all persons with severe mental illnesses
Majority of persons not receiving treatment reported that they did not need it
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“Revolving Door” Patients Geller (1986) identified 12 patients in
one hospital’s records with 276 admissions (range 15-46)
Nationwide survey (Geller, 1992) of “worst recidivists” showed mean of 31 admissions (range 5-121) 63% schizophrenia 21% bipolar
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Justification for Soft Paternalism
Legitimate to intervene when people Badly in need of treatment Likely to suffer harm Cannot recognize illness/need for
treatment
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Nature of Mental Illness Plays A Role in Prevalence of Coercion-2
Some people with mental illnesses likely to be violent
Risk is increased compared with general population Attributable risk varies by country/base
rate of violence
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Violence in First 10 Weeks After Discharge – Pittsburgh
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Violence in First 10 Weeks by Substance Abuse Symptoms – Pittsburgh
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Justification for Hard Paternalism
Society has right to protect citizens from danger
Degree of competence may not be material
Threshold lower if benefit provided
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Coercive Approaches Reflect Belief That Paternalism is Justified
Expectation of eliminating coercion appears to have been overly ambitious
Hence, coercion has moved from institutions to the community along with patients
New forms of leverage have been developed
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Appropriate Use of Coercion Requires Caution
Blanket endorsement unwarranted Many people with mental illnesses can and
should make decisions for themselves
Blanket rejection also unwarranted Nature of mental illnesses may justify
coercive intervention
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Challenges for Policy Makers
Limit use of coercion by identifying circumstances that justify it
Even within these contexts, encourage maximum possible exercise of autonomy