consultative meeting on role of plhiv organizations

NUR CENTER FOR RESEARCH AND POLICY

CONSULTATIVE MEETING ON ROLE OF

PLHIV ORGANIZATIONS A Joint Collaborative Project of the

Fatima Memorial Hospital and the Association of People Living with HIV

Dr. Shabnum Sarfraz Chief Operating Officer,

Nur Center for Research and Policy February, 2013

CONSULTATIVE MEETING ON ROLE OF PLHIV ORGANIZATIONS

2 Copyrighted to the Nur Center for Research & Policy at the Fatima Memorial Hospital, Feb 2013

Contents Contents ...................................................................................................................... 2

Introduction ................................................................................................................. 3

Objective of training................................................................................................... 3

Scope ....................................................................................................................... 3

Participant Profile....................................................................................................... 3

Facilitator’s Profile ...................................................................................................... 3

Training Methodology................................................................................................. 4

Agenda ........................................................................................................................ 4

Proceedings .............................................................................................................. 5

Session 1 ............................................................................................................... 5

Session 2 ............................................................................................................... 5

Session 3 ............................................................................................................... 6

Session 4 ............................................................................................................... 6

Feedback/Recommendations/Comments of Participants ................................................ 6

Annex 1- Core Values .................................................................................... A

Annex 2- Vision ............................................................................................ B

Annex 3- Mission .......................................................................................... C

Annex 4- Participants’ Registration and Attendance (1 of 3) ............................. D

Annex 4- Participants’ Registration and Attendance (2 of 3) ............................. E

Annex 4- Participants’ Registration and Attendance (3 of 3) ............................. F

Annex 5- Evaluation Form ............................................................................. G

Annex 6- Facilitator Evaluation ....................................................................... H

Annex 7- Pictures from the Consultative Meeting .............................................. I

Annex 7- Pictures from the Consultative Meeting .............................................. J



Introduction The consultative meeting was a project of Global Fund Round 9 organized by the Association of

People Living with HIV. The technical assistance for the project was provided by the Nur Centre for

Research and Policy, the technical arm of the Fatima Memorial Hospital. Both Fatima Memorial

Hospital and the Association of People Living with HIV are both sub recipients of the Global Fund

Round 9 and the present meeting was a joint collaborative project of both the SRs for which they

worked closely together.

Objective of training To develop a shared vision of principles for good practice for PLHIV Organizations that can guide

their work, and to which they can commit to and be held accountable for

Scope The Consultation focused on five thematic areas:

Theme 1: Priority roles of PLHIV Organizations.

Theme 2: Core Values for PLHIV Organizations.

Theme 3: The capacity and resources available and needed for PLHIV Organizations

Theme 4: Partnerships and linkages that integrate prevention, treatment, care and support.

Theme 5: Defining a strategic framework for PLHIV Organizations

Participant Profile

Participants included Provincial Aids Control Program representatives, policymakers, activists,

healthcare workers, educators, community leaders, UN Agencies representatives, senior level staff

of local, national, regional and international NGOs and CSOs working for PLHIV, networks of people

living with HIV (PLHIV Networks), AIDS service organizations(ASOs),community based organizations

(CBOs), AIDS activist organizations, faith‐based organizations (FBOs) and networks or coalitions of

AIDS organizations

Facilitator’s Profile The meeting was facilitated by Dr Shabnum Sarfraz. Dr Sarfraz is a senior health management

professional who holds an MBA from the Surrey University (UK) with a degree in medicine from

Pakistan. She has over 20 years of inter-professional experience in strategic planning &

management, resource mobilization, project designing, monitoring and evaluation, hospital

administration, marketing, human resource development in the health & social sector. She has also

completed the Social Enterprise Management Programme from LUMS-McGill. Educational

background in Management, Business Administration, Leadership, Social and Health Sector provides

Dr Sarfraz with sound knowledge of the concerned sectors; an understanding of the unique needs of

systems and policy frameworks and the technical expertise essential for successful development,

implementation and monitoring of strategies.

Dr Sarfraz has worked extensively for the Global Fund on Pakistan and represented Pakistan on

national and international forums on HIV AIDS. She is overseeing the implementation of the sub



recipient grant to the Fatima Memorial Hospital, an SR to the Global Fund Round 9. She is also one of

the country representatives of the International Planned Parenthood Federation (IPPF). She

developed the national guidelines for Community and Home Based Care for Pakistan and

subsequently compiled an extensive manual for training of CHBC Staff. Dr Sarfraz has worked

extensively at the policy level in Pakistan and has worked with international development partners

on projects aimed at institutional strengthening, manpower planning and effective health service

delivery. She is technical advisor to the Punjab Health Department for issues pertaining to human

resource for health.

Training Methodology Power Point Presentation on the necessary theory and concepts. Presentations lasted

between 15-30 minutes and provided opportunity for questions and discussion.

Group work during which groups, with assistance of their facilitator, utilized the worksheets

and drafted vision, mission and select core values for PLHIV Network for Pakistan.

Reporting of the consensus on vision, mission and core values of the group work in plenary

by a member of each group, so that other groups and facilitator could comment and refine

it.

Agenda

Facilitator Name: Dr Shabnum Sarfraz

Date: 31st Jan 2013

Venue: Embassy Lodge Hotel, Club Road, Islamabad

Session Name Time Scope

Registration 9:00 –9:15 am

Orientation to Workshop 9:15 –9:30

am Introduction of participants

Program Overview

Session #1: PLHIV

Organizations – An overview 9:30 –

10:30 am

PLHIV Organizations- Who all are included

Difference made by the PLHIV Organizations for the affected communities nationally, regionally and globally

The guiding principles for defining role of PLHIV Organizations

Session #2: SWOT Analysis

for PLHIV Organizations 10:30 –

11:15 am

Strengths, weaknesses, opportunities and threats facing the PLHIV Organizations

Priority actions to be undertaken to improve PLHIV



Organizations response to HIV AIDS

Tea/Coffee Break 11:15 –11:35 am

Session #3: Strengthening

Accountability to PLHIV

11:35 –

1:00 pm

Defining Code of Good Practice

Defining vision for PLHIV Network

Defining mission for PLHIV Network

Lunch & Prayer 1:00 – 2:00 pm

Session #4: 2:00 pm –

3:30 pm Sharing of Experiences

Defining the way forward

Closing Ceremony 3:30 pm –

4:00 pm Event & Facilitator Evaluation

Certificate presentation

Proceedings

Session 1

In the first session, the concept of PLHIV organization was discussed and affected communities were

defined. A sheet was circulated that enlisted core values (attached as Annex 3). The participants

were requested to enlist 5 core values that they felt can be used to guide PLHIV organizations for:

– organizational planning

– the development, implementation and evaluation of programs, including advocacy

programs

– advocacy efforts to ensure effective scaling-up of our responses to HIV/AIDS

– allocation of resources based on the principles it outlines, and

– advocacy efforts to ensure that the essential range of programmes is available

where they are needed.

• The participants introduced their organizations, its focus area of work and the geographic

coverage.

Session 2

A SWOT Analysis was undertaken in which the participants were consulted for enlisting the

following:

• The key existing strengths of PLHIV Organizations

• The key existing weaknesses of PLHIV Organizations

• Threats faced by the PLHIV Organizations



• Opportunities available to the PLHIV Organizations

The participants further went on to discuss the priority actions that should be taken to improve

PLHIV Organizations response to HIV AIDS in Pakistan.

Session 3

The participants were asked to draft the vision and mission for PLHIV Networks in Pakistan. Sample

mission and vision statements were shared of PLHIV Networks worldwide (attached as Annex 4 &

35).

Session 4

The participants were invited to share their experience, introduce their area of work and discuss the

way forward.

Feedback/Recommendations/Comments of Participants

An important step in bringing the PLHIV Organizations onto one forum.

The meeting has reinforced the concept of networking and linkage development especially

in a scenario of limited resources.

A good networking forum!

One day was too limited to develop a real consensus.

Facilitator effectively moderated the session and was able to generate productive

discussion.

The meeting is just the start, we need to meet again to develop the strategic plan for PLHIV

for Pakistan

Facilitator had good grasp over the subjects.

CONSULTATIVE MEETING ON ROLE OF PLHIV ORGANIZATIONS ANNEXURE

A Copyrighted to the Nur Center for Research & Policy at the Fatima Memorial Hospital, Feb 2013

Annex 1- Core Values

CORE VALUES Encircle any 5

1. Valuing human life

2. Respecting the dignity of all people

3. Respecting diversity

4. Promoting the equality of all people without distinction of any kind

5. Preventing and eliminating human suffering

6. Supporting community values that encourage respect for others and a willingness to work

7. Together to find solutions, in the spirit of compassion and mutual support

8. Addressing social and economic inequities and fostering social justice

9. Personal integrity, commitment and excellence in service

10. Courtesy in our personal interactions, a collaborative working style, and concern for the rights of others

11. Rendering not for profit services throughout the network

12. High degree of humility and patience, optimism and dedication to service

13. Commitment to our members and colleagues

14. Transparency Accountability

15. Non-stigmatization

16. Non-discrimination

17. Integrity

18. Commitment

19. Gender equality

20. Competence

21. Observance of human rights

22. Equal access to health care and support services


B Copyrighted to the Nur Center for Research & Policy at the Fatima Memorial Hospital, Feb 2013

Annex 2- Vision

VISION

Empowered members leading healthy, productive and sustainable lives

Universal access to HIV prevention, treatment, care and support

A powerful and united worldwide social movement of PLHIV, with PLHIV

leadership and voices at the centre of the response to the HIV pandemic

A world where people do not die of AIDS

Non-discriminatory and non-judgmental access to adequate HIV prevention,

treatment, care and support for all

A country where People Living with HIV and AIDS, Orphans and Vulnerable

Children are given equal rights and privileges like every other member of the society

A nation where PLHIV are in the frontline in the fight against HIV/AIDS and

where their rights are recognized and respected to support their meaningful

involvement in HIV/AIDS prevention, care and support towards an AIDS free

society.

People living with HIV remain socially integrated and lead positive and productive

lives.


C Copyrighted to the Nur Center for Research & Policy at the Fatima Memorial Hospital, Feb 2013

Annex 3- Mission

MISSION

To improve the quality of life of PLHIV

To ensure that governments and policy makers meet the HIV targets they set, the

commitments they made, and mobilize the necessary resources

To empower, strengthen and coordinate all support groups, state networks,

constituencies, associations and organizations of people living with HIV and AIDS

to contribute meaningfully to the national response

To Advocate for the rights of PLHIV and seek to put in place comprehensive HIV

and AIDS prevention, care and support services

To promote greater involvement of PLHIV at all levels of HIV/AIDS prevention,

care and support in Kenya

To work to improve the quality of life of People Living with HIV/AIDS (PLHIV)

through co-ordination of PLHIV activities

To create a better life for positive people by networking with all positive self-help

groups in Myanmar and working towards to a formal national network

To improve the quality of lives of people living with HIV/AIDS and their families


D Copyrighted to the Nur Center for Research & Policy at the Fatima Memorial Hospital, Feb 2013

Annex 4- Participants’ Registration and Attendance (1 of 3)


E Copyrighted to the Nur Center for Research & Policy at the Fatima Memorial Hospital, Feb 2013



F Copyrighted to the Nur Center for Research & Policy at the Fatima Memorial Hospital, Feb 2013



G Copyrighted to the Nur Center for Research & Policy at the Fatima Memorial Hospital, Feb 2013

Annex 5- Evaluation Form


H Copyrighted to the Nur Center for Research & Policy at the Fatima Memorial Hospital, Feb 2013

Annex 6- Facilitator Evaluation

0

2

4

6

8

10

12

14

Facilitator’s understanding of

concepts

Facilitator was well-prepared and answered

to participant`s questions

Facilitator used handouts well to

explain things

Facilitator has good presentation skill/style,

knowledge and command over the

subject

Facilitator has an interactive style with

participants involvement

DR. SHABNUM SARFRAZ

Strongly agreed

Agree

Disagree

Strongly disagree


I Copyrighted to the Nur Center for Research & Policy at the Fatima Memorial Hospital, Feb 2013

Annex 7- Pictures from the Consultative Meeting


J Copyrighted to the Nur Center for Research & Policy at the Fatima Memorial Hospital, Feb 2013

Annex 7- Pictures from the Consultative Meeting

08/03/2013

1

Copyright 2013- Intellectual Property ofNur Center for Research and Policy

WELCOME NOTEMr Asghar Satti


CONSULTATIVE MEETING ONROLE OF PLHIV ORGANIZATIONS

Facilitator :DR SHABNUM SARFRAZDesignation :CHIEF OPERATING OFFICERInstitution : NUR CENTRE FOR RESEARCH & POLICY

Agenda


To develop anunderstanding of

PLHIV Organizations

To understand theirstrengths,

weaknesses,opportunities and

threats

Developing a StrategicFramework for PLHIV

Organization

PLHIV Organizations – Anoverview

SWOT Analysis for PLHIVOrganizations

Strengthening Accountabilityto PLHIV

OBJECTIVE

• To develop a shared vision of principles forgood practice in our programming andadvocacy that can guide our work, and towhich we can commit and be heldaccountable


THEMES

The Consultation will focus on five thematic areas:• Theme 1: Priority roles of PLHIV Organizations.• Theme 2: Core Values for PLHIV Organizations.• Theme 3: The capacity and resources available

and needed for PLHIV Organizations• Theme 4: Partnerships and linkages that integrate

prevention, treatment, care and support.• Theme 5: Defining a strategic framework for

PLHIV Organizations


08/03/2013

2

DEVELOPING AN INSIGHT


What do we mean by ‘PLHIVOrganization’?

• This includes:– Non Government Organizations (NGOs)– Community-Based Organizations (CBOs),– Faith-Based Organizations (FBOs) and– Organizations of affected communities, including

people living with HIV/AIDS, sex workers and women’sgroups, who are active in the HIV/AIDS response


Who all are included in PLHIVOrganizations?

Who are the HIV “affectedcommunities”?

Range of people affected by HIV andAIDS, including:– People living with HIV– people at particular risk of HIV infection and– those who bear a disproportionate burden of the

impact of HIV and AIDS


-The Code of Good Practice for NGOs Responding to HIV/AIDS

What difference has been made by thePLHIV Organizations for the affectedcommunities? Nationally, regionally,

globally• What consultation forums are available to the

PLHIV Organizations?


DEFINING CORE VALUES OF PLHIVORGANIZATIONS


The agreed principles

• Can be used to guide:– organizational planning– the development, implementation and evaluation of

programs, including advocacy programs– advocacy efforts to ensure effective scaling-up of our

responses to HIV/AIDS– allocation of resources based on the principles it

outlines, and– advocacy efforts to ensure that the essential range of

programmes is available where they are needed.Copyright 2013- Intellectual Property of

Nur Center for Research and Policy

08/03/2013

3

Core values Valuing human life Respecting the dignity of all people Respecting diversity Promoting the equality of all people without

distinction of any kind Preventing and eliminating human suffering Supporting community values that encourage respect

for others and a willingness to work together Addressing social and economic inequities Fostering social justice.


SELECTING CORE VALUESActivity Sheet


SWOT ANALYSISFor the PLHIV Organizations in Pakistan


SWOT Analysis

• What are the key existing strengths of PLHIVOrganizations?

• What are the key existing weaknesses ofPLHIV Organizations ?

• What threats are faced by the PLHIVOrganizations ?

• What opportunities are available to the PLHIVOrganizations ?


Way Forward

RECOMMENDATIONS• What are the 2‐3 priority actions that should

be taken to improve PLHIV Organizationsresponse to HIV AIDS?

• Who should take these actions?


ROLE OF APLHIV


08/03/2013

4

Any questions?

Thank you


consultative meeting on role of plhiv organizations

Documents

f annex

g annex

c annex

d annex

e annex

b annex

h annex

policy consultative