core reading 4 give stigma the index finger

8/3/2019 CORE READING 4 Give Stigma the Index Finger

http://slidepdf.com/reader/full/core-reading-4-give-stigma-the-index-finger 1/12

G i v e S t i G

ma

t h e i n d e

x

F i n G e r !

I n I t Ia l f I n d I n g s

f r o m T h e P e o P l e

l i v i n g w i T h h i v S T i g m a i n d e x I n

t h e U K 2 0 0

9



livi wi hIV i UK y i i xpic

vy iiviu. , ki , kiupp, cci vic i ui p wi ci vic cic vib. , ii i ii, upp iuci, cic i bcu iizi. ,i i hIV i i iic ci UK bcu i ipc ccibiiy ii vic ( y , bu ,c upp vic) w - quiy i pp ivi wi hIV.

Th ut i thi t v m th iti ivi ith HIV i th UK i 2009 hvimiti ut i iiti utu ti. Ui i i hIV c ui u iiviu ccivp vci wi iu iciii,iii, ci, pbi ciijuic. I i c pp ivi wi hIV

, y ivi u, ci vci vui iu bviu, bu pki u i pjuic, uppi ip vci piiv ci c.

t ipi Te Pepe l t hiv Stmiex 1 i UK i bu p bi bi cui i iciiixpic vc by pp ivi wi hIV.u p wi b pubi i 2010 pvi

i-p yi cci up iiy, i ic ii, , pic ci.

1 Te tte s te pruct f prtersp beteet tert etrks f pepe thiv (gnP+ iCw), iPPF UnaidS.

ha n d S u

p

F o r c o m m u

n i t y

r e S ea r c h

ei u ixy v

pp ivi wi hIV v biviw u UK, byi p, bu i xpic i iciiii 12 .

THey oUnd THaT 46% o parTIcIpanTs reporTedTHaT THeIr rIgHTs May HaVe been abUsed In soMeway oVer THe lasT year:

60% a u i i ic c bi kpci

31% hv cuciv cvi

wi c pi bu ipuciv , xu iip,u-u i w-bi

people lIVIng wITH HIV play a leadIng role IncHallengIng and oVercoMIng sTIgMa:

45% pp ivi wi hIV v c,c uc

w w iizi

84% v upp pp ivi wi hIV



W ha t i S

S t i G ma ?

W ha t i S the

people

livinG Wi

th hiv

StiGma i

ndex ?

si i cy u

pc vui. I c v y uc (uc iciii, wic i kw c i) i cx hIV cvy c w w cc vic(icui i, upp ), w ppic wi c (icui iip, iipip pi iip), w pciv v i -.

“Fr me, hiv s ss t festyecce. wt mect supprt i just et t t. Ts reserc ske ts up bt e pepe’sfers ps tmey mkeer” parTIcIpanT, london, sepTeMber 2009

Te Pepe l t hiv Stm iex

i cuiy c vccyiiiiv b vp by pp ivi wi hIV.

I cu w pp v xpic—b b c vc—i iciii i hIV v 12 ipi. Cpii cuiy c , c picip upii Te Pepe l

t hiv Stm iex i c vccyiiiiv by pp ivi wi hIV—pc bi ju ip puc.

t pw c pc i i cuiy pp ivi wi hIV— iviwi w picipi—i cpi quii ivic ipi. ti p-iviwippc pu pp ivi wi hIV c pc, iviw pi b pwi y picip, bu iviw.

t puc i cci p i-pquii. t Ix c b u :) a ii y cp ci i v i; b) b u xpic i i up ppcci ci, i ic hIV ii, upiiy, / . div by piii

ii by pp ivi wi hIV, u wi bu i -i b bu cpxci, c upp pp ivi wi hIV.

www.sTIgMaIndex.org

“ i t ’ s b r r c s t

r f r

– t ’ s j u r

y i r

r

f r t. i t

. i

b – f r t ? ”

r e s ea r c H e r, l o n d o n, Ma y 2 0 0 9



p r o c e S S

= p r o d u

c t

tiy-v cuiy c

w i u UK ui p-iviw i.

Picip cp quii uc cu i iciii;cc wk vic; i; i, w pici; ci c; icu ciiy,; vi ci; ciiii hIV ii vci i.

hIV- i i piy

u i i pvi ciu c ubi bck iui cc i vic.

t UK ni sy sxu h hIV(2001) ii ipv ixu vic. ti icu pcic bjciv uc i ci wi hIV xuyi i. I 2009, dp h

(dh) u uk ipv— pi, w v c (uc dibiiy diciii ac i 2005), pubic pii b ii i i ccpb icii

S t i G ma

i n t h e u

K

e

l

sc

W

n I

locaTIon o parTIcIpanTs

19%

4%4%

31%

n uci

Piy c

scyc

tcicc/Uiviy

leVel o edUcaTIon

4%

32%

62%

2%

0 - 1 y

1 - 4 y

5 - 9 y

10 - 14 y

15+ y

TIMe sInce dIagnosIs

4%

27%

32%

17%

20%

ba c K G r

o u n d

i n F o r ma

t i o n

“Yu’re pste t? oK cut me ” parTIcIpanT, MancHesTer, JUne 2009

42%



m w vx wi

gy bi

sx wkIjcidu U

ru yu k

o

Pi

I b

, v i pb , y ci

groUps parTIcIpanTs IdenTIIedwITH aT any TIMe(tICK more than one)

24%

24%

14%

22%

5%

3%5%

3%

i pp u i cu, ibiiy, c xuiy. Y i i iic i UK dh u pi ipv i iuc b . I 2007, uvy by ni aIdstu iic 71% pp b ck pjuic, iu uc jci by iy i, b, ui i hIV ii i iy iizi (nat2007). t UK dp Ii dvp(dId) c “u i” ci cki, u “b wy i i pw pp ivi wi hIV vub up c i w b i i w i”(dId 2008, p. 28). ti i ju i p i UK i y cuy i w.

experIences o sTIgMa relaTIng

To HIV In 2008 - 2009

ti ci ii v i i Te Pepel t hiv Stm iex i UK—c cpivy

cu xpic hIV- i b by pp ivi wi hIV.

18 - 19 y

20 - 24 y

25 - 29 y

30 - 39 y

40 - 49 y

50+ y

age

20%

1%1%

7%

29%

42%

K e y F i n d

i n G S



0 1.

h ea l t h

Iu i ciiy i

i, icu hIV u wiuc, cpiv cui pvii ii i c pp ivi wi hIV i UK.

o u y-ix pp (17%;78 , 68 ) p vi bi vic c bcu i hIV u i 12 .

twy pc picip (171 p) v cuciv icui wi i c pi bu hIV- pii 12 , 31% (262 p)v cuciv icui ubjc uc xu puciv , xuiip, u-u i w-bi.

2010:

ayi ci wi cu ipvi quiy vic pvii i i ,icui piy c pi i b pcic bw hIV pcii vic pvi uc i, pcii, u cpii.

I u y wib kp cpyci

I ’ kw i y ci

I’ c y ci

n-p

How conIdenTIal do yoU THInK THe MedIcalrecords relaTIng To yoUr HIV sTaTUs are?

39%

42%

18%

1%

“ w t u r s p u t

t

s i s s u t

, i

t u t r t

t t ? i f t s

s t k f

f r c y u

c s k y t y u k . ”

pa r T I c I pa n T, l o n d o n, Ma y 2 0 0 9



0 2. S e l F

rcii cpxiy iiviu iv

by i xpic, p p, iiz i i pp pp ivi wi hIV i UK i 2009.

I i ivv pc wby iiz y ju ip pjuicy xpic, vu v. ti c w -, pi, ii / -xcui ci v cci vic.

livi wi hIV i pc y i ’i - bu i i uuby y piivy ivy c, ifuc p iiy i. s-pcpi i ifuc by pciv,icip xpic ipc i. xpi 12 I UK, picipw ii y bi (283 p), 46%i y xpic i iciiibcu i xu ii i

i hIV u. twy-i pc picipw ii bi u yu k(253 p) xpic iciii bcu i iii u i 12 .

Picip w k bu i i i i i hIV u y picipp i uiy, w-i p vi w - i 12 . Cii u b iv vic vib upp pp i ci wi piiv ii—32% picip(274 p) v civ p- p-cui civi i hIV piiv ii.

2010:

ayi wi xp bw xpic i i, w pp xpic i , w pc iiy (uc xuiy, ic iii u) ic wi

xpic i i hIV. w-upquiiv c u yi wi xp iip bw i i, icu, bviu p xpic. aciwi cu civy uppi pp iviwi hIV pw, iv piivy ccvic i pcic iv .

“ i u

t c t b r

k y s t t u

s, y u y s t s c

c s t y s y t t.

i j u s t s i s b t

s c s t u t s u c

f r. ”

pa r T I c I pa n T, Ma n c H e s T e

r, a U g U s T 2 0 0 9

I f e e l

a s H a M e d

I f e e l

g U I l T y

I b l a M e

M y s e l f

I b l a M e

o T H e r s

I H a V e l o w

s e l f - e s T e e M

I f e e l I s H o U l d

b e p U n I s H e d

I f e e l

s U I c I d a l

In THe lasT 12 MonTHs, HaVe yoU experIenced anyo THe ollowIng eelIngs becaUse o yoUr HIV

sTaTUs?

44% 43%48%

22%

65%

13%4%33%

63%

8%

81%

11% 9%

66%

25%

49% 49% 44%

7% 8% 8%

Y n n-p



0 3.

S u p p o r t

t i p bw w vic

iu i ppivi wi hIV upk vic. au 88% pp kw izi y c upp, y29% v u upp vic.

a vic pvi i ii iv pp ivi wi hIV i 2009?hv vic kp qu pc wi ci

ii pp’ iv? a i vib, yccib pp ivi wi hIV i UK?

2010:

ayi ci wi xp iip bwpp w pi i v ii upk vic. Cii wib iv w vic c b civy i pp wy i wihIV, w pp w v b ivi wi hIV y y. rci wi b

bu ipvi quiy cpiv vic pvii iv pp ivi wi hIV iu uc ,upp, iii, ui py.

“ i ’ t

h i v s u p p r t

r u p; i

u r s t

,

p p t u

r s t i t

t f r

t s. ”

pa r T I c I pa n T, s o U T H y o

r K s H I r e, J U n e 2 0 0 9

do yoU Know o any organIzaTIons or groUps

THaT yoU can go To or Help …?

HaVe yoU soUgHT Help roM any o THe aboVeorganIzaTIons or groUps?

88%

28%

84% 16%

70%

12%

In THe lasT 12 MonTHs HaVe yoU sUpporTed oTHerpeople lIVIng wITH HIV?

Y n n-p

2%



0 4. r i G h t S

I UK ky iiv

wk c ui pp ivi wi hIV:

01 Uit nti g am si siit t HIV/aIds (Ungass): dti cmmitmt HIV/aIds (Ii, 2001)—aii u i wk ui i-bu ci u pc viwcuy p i i ci. tUK w 189 cui Ungass

dci Ci i 2001.

02 Th diiit diimiti at (dda) (UK,1995, 2005)—a c pvi picc b pp ivi wi hIV.

03 Th o ait th p at (oapa) (UK,1861)—a ac pvi pi ciiizi hIV ii.

wk—w pi ui pp ivi wi hIV, dda Ungass; uii i, oaPa—kwi ii u picip vw v pcic i ii.

a (46%) picip ii i i b bu (167 p) w u i b bu

(233 p) i 12 .

•o hu iht i tiit(22%) p bi pyicy i 12 —54% i i w i p i hIV u

•iv hu t- tiit(63%) p bi w bi ipbu i 12 —77% i i w i p i hIV u

•Th hu t-t tiit (40%) p bi vby u, / i 12 —54% i iw i p i hIV u

2010:

ayi ci wi cu ipvi ui u i viiv wk, cci vic upp, pcic up pp ivi wi hIV.

“ T r s

t u c t b u

t

p p ’ s r t

s. F r t t

f y t t

t y b

s c r t

s t t

y

t k t r r t s ”

r e s ea r c H e r, l o n d o n, Ma y 2 0 0 9

54% 54%

77%

35% 33%

12%11% 12%11%

phih(186 p)

a ii ut(541 p):

V ut,h /tht(342 p)

parTIcIpanTs reporTIng HarassMenT In THe lasT12 MonTHs—percepTIons o THe reason

r hIV

a

n u wy



0 5.

c ha n G e

Pp ivi wi hIV

cic—i vci ii,cuivi - ivi piivy, w i cpii -iciii, pci

u i uci bu w iiz icii.

45% picip (383 p) pp ivi wi hIV vc, c uc w w iizi

iciii i i 12 .

61% picip (535 p) p y y pw ifuc cii i , c i vpici, p c iiv.

Top prIorITIes:

wh k t h ti th utu, th tth iiti itif th 867 tiit :

01 ri pubic kw w bu hIV (35%)

02 avc i pp ivi wi hIV (27%)

03 Pvi upp ppivi wi hIV by pviii, pyic upp (25%)

2010:

ayi ci wi cu

ui pcic i Ix p pubic b,i ii p upp civ c. Byciui b cuiy-c vccy iiiiv Ix wi upp ppivi wi hIV b - bc - c y w

i w uppvic u u vic i i .

roM researcH To acTIon

I 2010 i-p yi,icui, pi quiiv c wip u xp kyiu v i.

t ii p i i

cu i bi p u cui xpic pp ivi wi hIVi 2009. t cuiy c wi ciu pwi c ci ubui wi b pubi ci i icyi. t bui wi b i ci ipv up vic,pici piic piii iv ppivi wi hIV i UK.

“it’s but t e urseesre t but t

tt te germet s tereste te resutstt mke me fee i mbe stee t.” sTaKeHolder, scoTland,aUgUsT 2009

F u t u r e

p la n S :



researcH desIgn andMeTHodology

t ii vib suvy Pv hIV Ici di(soPhId) b, wic cc iiviu i wi hIV cci cc e, W n I(www.p..uk), w u pvici cuii ivup picip picip i c. ti w x sci p. a c i w

vp fc u hIV i UK u pi c UK. ei u ixy-viviw w cp i , wi83% w ciy, 13% w vi 4% u, wi w iv, bcku, pi iiu UK. Iviw w cucc UK, icui ab,Bii, B, Bi, Ci,

du, eibu, gw, l, l,mc, Wvp. ti i iii p UK p;i vii wi b y i 2010.

Wi cii iii— biuy ip i i UK wi cuiy c w iiiiv—w cb pi,ci uccu ipi c by pp ivi wihIV. I b vub ppuiy ivv fc i ciiviu i, pcpi bi p vccy b ci. uu wk wi Te Pepe lt hiv Stm iex i UK wi bui ucc 2009 bi uy byii v xpiv picipii u pp wi

i wi y vic izi.

acKnowledgeMenTs

ti p i puc yi — by pi ci cuiy c p ci vupp pc. t v icuaB Pu, aIds tu Cyu, aic hIVPicy nwk, B, By & su,By Piiv C, By Piiv nW, By Piiv tyi, BuwickC, Bi, Cui, i m, gy mh, gma, g hu tu, hIV

C sc, t hIV C B, hIVsc, hIVi, lk a, mcPi, mmc, ni aIds tu, niCi’ Buu, nz Pjc, nhs hsc, Pu m, Piiv aci, Piive, Piiv livi, Piivy W,Pz, t Piiv Pc, riv hu tu,scy mzi, oc Pyccirc, tc hii tu, WvyC, Wik ruc C, YmCa Zibbw W’ nwk.

t UK u i p iiiiiiv ci by IiP P i (IPP),i pip wi gb nwk Pp livi wi hIV (gnP+), Ii Cuiy W iviwi hIV (ICW) Ji Ui niP hIV aIds (UnaIds), b upp by m.a.C.aIds u sci gv.

w tu t h tiith v thi tim ttiit i th h ju—h tht thi i tiutt imvi u iiviu tiv t t vmtim ti t HIV i th UK.

** u wi , % ppicci ub p c qui.

resoUrces

• DisabilityDiscriminationAct(DDA)

- www.ic.v.uk// dibPp/riaobii/ dibiiyri/dg_4001068

• OffensesAgainstthePersonsAct(OAPA)

- ciiivii.bp.c/c/b/UK

• UNGASSDeclarationofCommitment hIV/aIds (Ungass)

- www.u2010.//Ungass

reerences

- dId (2008). acivi Uivacc--vic ciwww..v.uk

- ni aIds tu (nat)(2009). www...uk

- dp h (dh) (2001)t ni sy sxuh hIV ipi p

- dh (2007). tcki hIV

si diciii

- dh (2009). mvi w: P Piii--wki i-quiy xu www..v.uk

- Te Pepe l t hiv Stm iex www.iix.

r e S ea r

c h d e S i G n

a n d m e t

h o d o l o

G y

a c K n o W

l e d G e m

e n t S

r e S o u r

c e S

r e F e r e

n c e S



B e t W e e n ma Y a

n d s e P t e

m B e r 2 0 0 9

, 8 6 7

p e o p l e l I V I n g w I T H H I V ha V

e B e e n

I n t e r V I e W

e d B Y t h

e I r P e e r s a B o U

t e x P e r I e n

C e s

o f l I V I n g w I T H H I V, a

C C e s s I n g h ea l t

h a n d

o t h e r s e r

V I C e s, e x

p e r I e n c e s o f s T I g

Ma a n d

d I s c r I M I na T I o

n, s o U r C e

s o f s U P P

o r t, a n d

l I V I n g p o s I T I V

e l y. t h I s

I s t h e f I r

s t r e P o r t

o f

t h e f I n d

I n g s f r o

m T h e P e o P l e l i v i n g w i T h h i v

S T i g m a i n d e x I n t h

e U K.

core reading 4 give stigma the index finger

Documents