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CURRICULUM VITAE

JOAN M. TENO, M.D., M.S.

BUSINESS ADDRESS: Brown Medical School BUSINESS TELEPHONE: 401.863.1606 121 South Main Street, Box G-S612 Providence, RI 02912 E-MAIL ADDRESS: Joan_Teno@brown.edu BUSINESS FAX: 401.863.1742 EDUCATION: Undergraduate: Wilkes College, Wilkes-Barre, PA

Attended between 1976–78 Major: Biology

Degree: B.S., 1982 Honors: Summa Cum Laude

Medical School: Hahnemann Medical University, Philadelphia, PA

Attended between 1978–1982 Degree: M.D., 1982

Honors: Letter of Commendation in Cardiology Other Advanced Brown University, Department of Community Health, Providence, RI Degrees Concentration: Community Health with a specialty in

Gerontology and Chronic Disease Epidemiology Degree: M.S., May 1990

POST-GRADUATE TRAINING: Internal Medicine Residency; Rhode Island Hospital, Providence, RI, 1982 to 1985. Fellowship in Geriatric Medicine and Health Services Research in Gerontology, Center for Gerontology and Health Care Research, Brown University, Providence, RI, 1987 to 1990. POSTGRADUATE HONORS AND AWARDS: 2008 AANP State Award for Excellence for Advocate during the AANP Annual Membership Meeting on June 28, 2008 at the Gaylord National Resort and Convention Center on the Potomac, located right outside the Washington, DC area. American Geriatrics Society Best Paper Award in Geriatrics: Ethics and Quality of Life: Teno JM, Mor V, Intrator O, Rhodes R. Health Care Transitions and Incident Feeding Tube Insertion Among Persons with Advanced Cognitive Impairment: Lost in Transition. 2007 American Geriatrics Society Annual Scientific Meeting. Seattle, WA, May 5, 2007. American Geriatrics Society Best Paper in Health Services Research: Mitchell SL, Teno JM, Intrator O, Feng Z, Mor V. Hospitalization Decisions for Nursing Home Residents with Advanced Dementia: A Nationwide Study. 2006 American Geriatrics Society Annual Scientific Meeting. Chicago, IL, May 5, 2006. Advanced Directives in the Care of the Dying. Jane Poulson Memorial Lecture, Palliative Care McGill Rounds at McGill University Health Centre, Montreal General Hospital, Montreal, Canada, April 19, 2006. American Geriatrics Society Best Paper Award for Geriatrics: Ethics and Quality of Life in May 2005 at the Annual American Geriatrics Society Meeting in Orlando, FL.

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2005 American Academy of Hospice and Palliative Medicine (AAHPM) Award for Excellence in Scientific Research on 1/20/2005 at the Annual Assembly of AAHPM and HPNA in New Orleans, LA. Meritorious Award from the Rhode Island Public Health Association Seventh Annual Meeting on 5/11/2004 for recognition of significant contributions to the advancement of public health in Rhode Island at the federal, state, or local level. Award from the Rhode Island Cancer Pain Initiative and American Cancer Society on 10/29/2002 for recognition of contribution to quality pain management in Rhode Island. Freddie Award from MediMedia USA for the entry "More Than A Failing Heart” in the category of Patient Care in the 2002 International Health & Medical Media Awards announced on 9/18/2002. Awarded 11/8/2002. Merit Award from the American Society of Clinical Oncology and Pain Merit Award for the abstract "Cancer Patients in US Nursing Homes: Quality of End of Life Care” Johnson V, Teno JM, Mor V presented at the Opening Ceremony of the ASCO 2002 Annual Meeting on May 18-21, 2002. Award of the 1998 Annual Session of the American College of Physicians for one of The Year's Most Important Papers in Internal Medicine Subspecialties: "Perceptions by Family Members of the Dying Experience of Older and Seriously Ill Patients." Lynn J, Teno JM, Phillips RS, Wu AW, Desbiens N, Harrold J, Claessens MT, Wenger N, Kreling B, Connors, AF. Annals of Internal Medicine, 1997:126-97-106. National Media Owl Award: Dr. Teno was associated with video produced by Patricia Barey and Therese Burson entitled "Advance Directives: Assisting Patients with End-of-Life Decisions." New Investigator Award, 1995 American Geriatrics Society Annual Meeting, Washington, D.C., May 1995. Best Poster Award, 1995 American Geriatrics Society Annual Meeting, Washington, D.C., May 1995. PROFESSIONAL LICENSES AND BOARD CERTIFICATION: State of Rhode Island No. 6538, 1983 State of New Hampshire No. 8808, 1992 District of Columbia No. 18542, 1990 National Board of Medical Examiners 1983 American Board of Internal Medicine 1985 Diplomat in Geriatric Medicine 1992, 2002 American Board of Hospice and Palliative Medicine 2003 ACADEMIC APPOINTMENTS: Professor of Community Health and Medicine in Research Scholar Track, Brown University, Providence RI, July 1, 2002 to Present. Associate Director, Center for Gerontology and Health Care Research, Brown University, Providence, RI, 1999 to Present. Adjunct Associate Professor of Medicine and of Community and Family Medicine, Dartmouth Medical School, Hanover, NH, 2000 to 2003. Associate Professor of Community Health and Medicine in Research Scholar Track, Brown University, Providence RI, September 1999 to June 2002. Associate Professor of Community Health, Brown University, Providence, RI, 1997 to 1999.

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Associate Professor of Health Care Science and Medicine, The George Washington University, Washington, DC, 1995 to 1997. Assistant Professor of Medicine and of Community and Family Medicine, Dartmouth Medical School, Hanover, NH, 1992 to 1995. Assistant Professor of Health Care Sciences and Medicine, The George Washington University, Washington, DC, 1990 to 1992. Assistant Instructor in Medicine, Brown University Program in Medicine, Providence, RI, 1988 to 1990. Clinical Instructor in Medicine, Brown University Program in Medicine, Providence, RI, 1985 to 1988. HOSPITAL APPOINTMENTS: Ethics Committee, Miriam Hospital, 2003. Physician with admitting privileges, Miriam Hospital, Providence, RI, September 24, 2002 to present Physician with admitting privileges, Rhode Island Hospital, Providence, RI, 1997 to present Physician with admitting privileges, George Washington University Medical Center, Washington, DC, 1995 to 1997. Visiting Physician with admitting privileges, White River Veterans Hospital, White River Junction, VT, 1993 to 1995. Physician with admitting privileges, George Washington University Medical Center, Washington, DC, 1990 to 1992. Assistant Physician, Division of General Internal Medicine, Rhode Island Hospital, Providence, RI, 1985 to 1987. OTHER APPOINTMENTS: Current: Associate Editor for Journal of Pain and Symptom Management (JPSM), 2009 to 2012. Committee on Medical Faculty Appointments at The Warren Albert Medical School of Brown University, 2007 to 2010. Associate Medical Director, Home and Hospice Care of Rhode Island, 1997 to Present. Technical Expert Panel (TEP) for DEcIDE network project requested by AHRQ and NCI, titled "Developing and Testing a Framework for Cancer Quality Measures for End of Life Care,” 2007-2008 National Institute of Health, Health Services Organization and Delivery (HSOD) study section, 2009. American Cancer Society Palliative Care Research Committee, 2008-2012 Rhode Island Hospital and Miriam Hospital Oncology Council Subgroup, 2007 to Present. National PACE Association’s DataPACE 2 Steering Committee, 2006-2007

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Research Planning Committee and Scientific Review Committee (SRC) for the National Palliative Care Research and Training Center (NPCRC), 2006 to Present. Aetna Compassionate Care Advisory Committee, 2004 to Present Mayday Media and Policy Fellows Advisory Committee, 2004 to Present. Task Force for Home and Hospice Care of RI on Palliative Care Consult Service for Nursing Homes, 2003 to Present. RI Attorney General End-of-Life Task Force. 2001 to Present. Editorial Advisory Board, Journal of Pain and Symptom Management, 2001 to Present. Editorial Board, Journal of Palliative Medicine, 2000 to Present. Completed: Medical Director, PACE Organization of Rhode Island, 2005 to 2007 Board Member, American Pain Foundation, Inc., 2006 to 2007 National Institute of Aging (NIA) review panel for the Beeson Career Development Award applications jointly funded by NIA, the John A. Hartford Foundation, Atlantic Philanthropies, and the Starr Foundation, 2007 Technical Advisory Committee for the International Palliative Care Initiative of the Open Society Institute Network Public Health Program, 2005. Member of the “Reducing Barriers to Symptom Management and Palliative Care” Review Committee, February 2005. National Consensus Project Advisory Committee for Quality Palliative Care, 2005. National Quality Forum Symptom Management/End-of-Life Care Technical Panel (Sx-EOLTP), 2004-2005. Technical Expert Panel (TEP) for the Southern California Evidence-Base Practice Center (SCEPC), 2004. National Palliative Care Steering Expert Committee for National Coalition for Cancer Survivorship (NCCS), 2004. Steering Committee, American Academy of Hospice and Palliative Medicine (AAHPM), 2003. Scientific Advisory Committee for the QUESTT Project. 2002 to 2004. Member of Measurement Committee, Department of Health Effort to Implement Quality Indicators, 1999 to 2001. Commissioner, American Bar Association Legal Problems of the Elderly, 1999 to 2003. Co-leader for the National Hospice and Palliative Care Organization’s Data Force, 1999. Missoula Demonstration Project (MDP) National Advisory Committee on The Quality of Life’s End, January 1999. National Advisor for National Hospice Organization CQI project to improve care for dying persons, 1999 to 2002. National Advisor to National Hospice Organization’s Robert Wood Johnson Foundation Grant to Implement Process Improvement in Hospice, 1998 to 1999.

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Vista Hospice Care Foundation National Advisory Board, 1998 to 1999. Advisory Panel for The Alliance for Aging Research, contributor to the publication: "One Final Gift: Humanizing the End of Life for Women in America", April 1998. Agency for Healthcare Research and Quality, Health Systems Research study section, 1998 to 2002. Grant Peer Review for Agency for Health Policy Research, 1997 to 2002. Advisor to the United Health Care Palliative Care Research Effort, July 1996 to 1998. Fellow, Kennedy Institute of Biomedical Ethics, September 1995 to 1998. National Advisory Committee for the Spiritual Beliefs and the Dying Process Survey conducted by the George H. Gallup International Institute, January 1997 to December 1997. Measurement of Health Status and Quality of Life Among Older Persons in a Changing Health Care Market, Institute of Medicine Committee, April 1996 to January 1997. Grant Peer Review for Retirement Research, 1995 to 1996. Associate Director of the Center to Improve the Care of Dying, George Washington University, a multidisciplinary research center devoted to advocacy, education, and research about the dying and disabled persons, July 1995 to July 1997. Faculty Associate in Center for the Evaluative Clinical Sciences, Dartmouth Medical School, July 1992 to June 1995. Fellow, Center for Health Policy Research, George Washington University, 1991 to 1992. Director, Outpatient Geriatric Assessment Clinic, George Washington University, 1990 to 1992. In this position, I developed an interdisciplinary team to comprehensively assess frail elderly patients and their families. Peer Reviewer for the following medical journals: Annals of Internal Medicine Journal of Health Politics, Policy and Law Gerontologist Journal of General Internal Medicine Health Services Research Journal of Gerontology Journal of the American Geriatrics Society Journal of Pain and Symptom Management Journal of the American Medical Association Journal of Palliative Medicine Journal of Clinical Ethics New England Journal of Medicine Journal of Family Practice HOSPITAL COMMITTEES: HIV Task Force, George Washington University Primary Care Center, September 1996 to June 1997. Quality Assurance Transfusion Committee, Rhode Island Hospital, 1986 to 1987. UNIVERSITY COMMITTEES: Search Committee for Health Services Research in Department of Community Health at Brown University, 2006 to Present. T32 Steering Committee, AHRQ Postdoc in Health Service Research, 2003 to Present.

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Search Committee for position of Emergency Medicine Physician-in-Chief/Chair of Emergency Medicine, 2005. Conflicts of Interest Advisory Committee, Community Health representative, 2001 to present. Community Health Clerkship Committee, Brown University, 1998 to 1999 Promotion Committee, Department of Health Care Sciences, George Washington University, July 1995 to June 1997. Admission Committee, School of Public Health, George Washington University, January 1997 to June 1997. MEMBERSHIP IN PROFESSIONAL SOCIETIES: Research Committee, American Academy of Hospice and Palliative Medicine (AAHPM), 2003 to 2007 Research Committee, National Hospice and Palliative Care Organization (NHPCO), 2003 to Present. Society of General Internal Medicine (SGIM) since 1985, involved in a task force for the education of primary care residents regarding geriatrics. American Geriatrics Society (AGS) since 1987, member of the Subcommittee on Ethics and Policy, 1989 to 1991 and Chair of AGS Ethics Committee, 2001 to 2005. Gerontological Society of America (GSA), since 1990. American Academy of Hospice and Palliative Medicine, since 1997 – served on Meeting Planning Committee 2000. PEER REVIEWED PUBLICATIONS: ** Articles included as an appendix. 1. Kuo S, Rhodes RL, Mitchell SL, Mor V, Teno JM. Natural History of Feeding Tube Use in Nursing Home

Residents with Advanced Dementia. Under Review. 2. Farrell TW, Gozalo PL, Casarett D, Connor S, Spence C, Rhodes R, Teno JM. It’s Too Late: Examining the

Role of Hospice and Market Factors in Late Hospice Referrals. Under Review. 3. Nanda A, Bourbonniere M, Wetle T, Teno J. Perception of Not Receiving Enough Home Care in the Last

Year of Life: Association with Last Place of Care. Under Review. 4. Shield RS, Wetle T, Teno J, Miller SC, Welch LC. Vigilant in the Nursing Home: Family Advocacy at the

End of Life. Under Review. 5. Miller S, Teno JM. Nursing Home as the Final Place of Care: The Urgent Need for Health Care Reform.

Under Review.

6. Huskamp HA, Keating NL, Malin JL, Zaslavsky AM, Weeks JC, Earle CC, Teno JM, Virnig BA, Kahn KL, He Y, Ayanian JZ. Discussions with Physicians about Hospice among Patients with Metastatic Lung Cancer. Under Review.

7. Teno JM, Mitchell SL, Skinner J, Kuo S, Fisher E, Intrator O, Mor V. Churning: The Association between

Health Care Transitions and Feeding Tube Insertion for Nursing Home Residents with Advanced Cognitive Impairment. Journal of Palliative Medicine. In Press.

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8. Teno JM, Lima JC, Lyons KD. Cancer Patient Assessment and Reports of Excellence (CARE): Reliability and Validity of Advanced Cancer Patient Perceptions of the Quality of Care. American Society of Clinical Oncology. In Press.

9. Dosa D, Dore D, Teno JM, Mor V. Frequency of Long-Acting Opioid Analgesic Initiation in Opioid-

Naïve Nursing Home Residents. Journal of Pain and Symptom Management. In Press.

10. Teno JM, Connor SR. Referring a Patient and Family to High Quality Medical Care at the Close of Life: “We met a new personality in medicine that we have never met before, with this level of compassion and empathy.” Journal of the American Medical Association. February 2009; 301(6):651-59.

11. Gerardo MP, Teno JM, Mor V. Not So Black and White: Nursing Home Concentration of Hispanics

Associated with Prevalence of Pressure Ulcers. Journal of the American Medical Directors Association. February 2009; 10(2):127-32.

12. Teno JM, Dosa D, Rochon T, Casey V, Mor V. Development of a Brief Survey to Measure Nursing Home

Residents’ Perceptions of Pain Management. Journal of Pain and Symptom Management. December 2008; 36(6):572-83

13. Teno JM, Feng Z, Mitchell SL, Kuo S, Intrator O, Mor V. Do Financial Incentives of Introducing Case Mix

Reimbursement Increase Feeding Tube Use in Nursing Home Residents? Journal of the American Geriatrics Society. May 2008; 56(5):887-90

14. Rhodes RL, Mitchell SL, Miller SC, Connor SR, Teno JM. Bereaved family members’ evaluation of

hospice care: what factors influence overall satisfaction with services? Journal of Pain and Symptom Management. April 2008; 35(4):365-71

15. Ward N, Rubenfeld G, Curtis JR, Levy M, Teno J. Perceptions of Cost Constraints, Resource Limitations,

and Rationing in United States Intensive Care Units: Results of a National Study. Critical Care Medicine. February 2008; 36(2):471-6.

16. Tuya A, Teno J. Feeding tubes for nursing home residents with advanced dementia: how to approach

feeding tube decisions. Medicine and Health Rhode Island. January 2008; 91(1):33-4. 17. Rhodes RL, Teno JM, Connor SR. African American Bereaved Family Members’ Perceptions of the

Quality of Hospice Care: Lessened Disparities, But Opportunities to Improve Remain. Journal of Pain and Symptom Management. November 2007; 34(5):472-9.

18. Teno J, Portenoy J. Hispanic Language Version of the Family Evaluation of Hospice Care. Journal of

Pain and Symptom Management. November 2007; 34(5):459-61. 19. Teno JM, Shu JE, Casarett D, Spence C, Rhodes R, Connor S. Timing of Referral to Hospice and Quality

of Care: Length of Stay and Bereaved Family Members’ Perceptions of the Timing of Hospice Referral. Journal of Pain and Symptom Management. August 2007; 34(2):120-5.

20. Gruneir A, Mor V, Weitzen S, Truchil R, Teno J, Roy J,. Where People Die: A Multilevel Approach to

Understanding Influences on Site of Death in America. Medical Care Research and Review. August 2007; 64(4):351-78.

21. Dosa D, Intrator O, McNicoll L, Cang Y, Teno J. Preliminary Derivation of a Nursing Home Confusion

Assessment Method Based on Data from the Minimum Data Set. Journal of the American Geriatrics Society. . July 2007; 55(7):1099-105.

22. Mitchell S, Teno J, Intrator O, Feng Z, Mor V,. Decisions to Forego Hospitalization in Advanced

Dementia: A Nationwide Study. Journal of the American Geriatrics Society. . March 2007; 55(3):432-8.

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23. Teno JM, Gruneir A, Schwartz Z, Nanda A, Wetle T. Association between advance directives and quality of end-of-life care: a national study. Journal of the American Geriatrics Society. February 2007; 55(2):189-94.

24. Casarett DJ, Teno J, Higginson I. How should nations measure the quality of end-of-life care for older

adults? Recommendations for an international minimum data set. Journal of the American Geriatrics Society. November 2006; 54(11):1765-71.

25. Trask P, Teno J, Nash J. Transitions of Care and Changes in Distressing Pain. Journal of Pain and

Symptom Management. August 2006; 32(2):104-9. 26. Mitchell SL, Kiely DK, Jones RN, Prigerson H, Volicer L, Teno JM. Advanced Dementia Research in the

Nursing Home: The CASCADE Study. Alzheimer Disease and Associated Disorders. July-September 2006; 20(3):166-75.

27. Kiely DK, Volicer L, Teno J, Jones RN, Prigerson HG, Mitchell SL. The Validity and Reliability of Scales

for the Evaluation of End-of-Life Care in Advanced Dementia. Alzheimer Disease and Associated Disorders. July-September 2006; 20(3):176-81.

28. Rhodes RL, Teno JM, Welch LC. Access to Hospice for African Americans: Are They Informed about

the Option of Hospice? Journal of Palliative Medicine. April 2006; 9(2):268-72. 29. Teno JM, Dosa D. You can't always get what you want"--or can you? Canadian Medical Association

Journal. February 28, 2006; 174(5):643-4. 30. Teno JM. Measuring End-of-Life Care Outcomes Retrospectively. Journal of Palliative Medicine.

December 2005; 8(Supp 1):S42-9. 31. Shockett, ER, Teno JM, Miller SC, Stuart B. Late referral to hospice and bereaved family member

perception of quality of end-of-life care. Journal of Pain and Symptom Management. November 2005; 30(5):400-7.

32. Teno JM, Mor V, Ward N, Roy J, Clarridge B, Wennberg JE, Fisher ES. Bereaved Family Member

Perceptions of Quality of End-of-Life Care in U.S. Regions with High and Low Usage of Intensive Care Unit Care. Journal of the American Geriatrics Society. November 2005; 53(11):1905-11.

33. Shield RS, Wetle T, Teno J, Miller SC, Welch L. Physicians “Missing in Action”: Family Perspectives on

Physician and Staffing Problems in End-of-Life Care in the Nursing Home. Journal of the American Geriatrics Society. October 2005; 53(10):1651-7.

34. Wetle T, Shield R, Teno J, Miller SC, Welch L. Family Perspectives on End-of-Life Experiences in

Nursing Homes. Gerontologist. October 2005; 45(5):642-50. 35. Welch LC, Teno JM, Mor V. End-of-Life Care in Black and White: Race Matters for Medical Care of

Dying Patients and their Families. Journal of the American Geriatrics Society. July 2005; 53(7):1145-53. 36. Connor SR, Teno J, Spence C, Smith N. Family Evaluation of Hospice Care: Results from Voluntary

Submission of Data Via Website. Journal of Pain and Symptom Management. July 2005; 30(1):9-17. 37. Teno JM, Rochon T. Rules to use and rules to lose for pain management in the long-term care setting.

Medicine and Health/Rhode Island. April 2005; 88(4):110-4. 38. Johnson VMP, Teno JM, Bourbonniere M, Mor V. Palliative Care Needs of Cancer Patients in U.S.

Nursing Homes. Journal of Palliative Medicine. April 2005; 8(2):273-79.

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39. Mitchell SL, Teno JM, Miller SC, Mor V. A national study of the location of death for older persons with dementia. Journal of the American Geriatrics Society. February 2005; 53(2):299-305.

40. Casarett D, Crowley R, Stevenson C, Xie S, Teno J. Making difficult decisions about hospice enrollment:

What do patients and families want to know? Journal of the American Geriatrics Society. February 2005; 53(2):249-54.

41. Baier RR, Gifford DR, Patry G, Banks SM, Rochon T, DeSilva D, Teno JM. Ameliorating pain in nursing

homes: A collaborative quality-improvement project. Journal of the American Geriatrics Society. December 2004; 52(12):1988-95.

42. Miller SC, Teno JM, Mor V. Hospice and palliative care in nursing homes. Clinics in Geriatric Medicine.

November 2004; 20(4):717-34. 43. Connor SR, Tecca M, LundPerson J, Teno JM. Measuring Hospice Care: The National Hospice and

Palliative Care Organization National Hospice Dataset. Journal of Pain and Symptom Management. October 4, 2004; 28(4):316-28.

44. Mor V, Zinn J, Angelelli J, Teno JM, Miller SC. Driven to Tiers: Socioeconomic and Racial Disparities in

the Quality of Nursing Home Care. The Milbank Quarterly. 2004; 82(2):227-56. 45. Teno JM. Advance Directives: Time to Move On (Editorial). Annals of Internal Medicine. July 20, 2004;

141(2):159-60. 46. Goodlin SJ, Hauptman PJ, Arnold R, Grady K, Hershberger RE, Kutner J, Masoudi F, Spertus J, Dracup K,

Cleary JF, Medak R, Crispell K, Piña I, Stuart B, Whitney C, Rector T, Teno J, Renlund DG. Consensus Statement: Palliative and Supportive Care in Advanced Heart Failure. Journal of Cardiac Failure. June 3, 2004; 10(3):200-9.

47. Teno JM, Kabumoto G, Wetle T, Roy J, Mor V. Daily Pain That Was Excruciating at Some Time in the

Previous Week: Prevalence, Characteristics, and Outcomes in Nursing Home Residents. Journal of the American Geriatrics Society. May 2004; 52(5):762-7.

48. Ward NS, Teno J. A death worth dying for (Editorial). Medical Care. May 2004; 42(5):406-7.

49. Teno JM, Mor V, Welch LC, Wetle T, Shield R, Casey V, Clarridge BR. Memories of Loved Ones About

Care at the End of Life (In Reply). Journal of the American Medical Association. March 24/31, 2004; 291(12):1446.

50. Teno JM, Clarridge BR, Casey V, Welch LC, Wetle T, Shield R, Mor V. Family Perspectives on End-of-

Life Care at the Last Place of Care. Journal of the American Medical Association. January 7, 2004; 291(1):88-93.

51. Teno JM. Do-Not-Resuscitate Orders and Hospitalization of Nursing Home Residents: Trumping,

Neglect, or Shared Decision-Making at the Eleventh Hour (Editorial). Journal of the American Geriatric Society. January 2004; 52(1):159-60.

52. Miller SC, Mor V, Teno J. Hospice Enrollment and Pain Assessment and Management in Nursing

Homes. Journal of Pain and Symptom Management. September 2003; 26(3):791-9. 53. Mitchell SL, Teno JM, Roy J, Kabumoto G, Mor V. Clinical and Organizational Factors Associated with

Feeding Tube Use Among Nursing Home Residents With Advanced Cognitive Impairment. Journal of the American Medical Association. July 2, 2003; 290(1):73-80.

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54. O’Donnell H, Phillips RS, Wenger N, Teno J, Davis RB, Hamel MB. Preferences for Cardiopulmonary Resuscitation Among Patients 80 Years or Older: The Views of Patients and Their Physicians. Journal of the American Medical Directors Association. May/June 2003; 4(3):139-44.

55. Teno JM. Now is the Time to Embrace Nursing Homes as a Place of Care for Dying Persons (Editorial).

Journal of Palliative Medicine. April 2003; 6(2):293-6. 56. Teno J. Health Screening Decisions for Older Adults: AGS Position Paper. Journal of the American

Geriatrics Society. February 2003; 51(2):270-1. 57. Weitzen S, Teno JM, Fennell M, Mor V. Factors Associated With Site of Death: A National Study of

Where People Die. Medical Care. February 2003; 41(2):323-35. 58. Hamel MB, Phillips R, Teno J, Davis RB, Goldman L, Lynn J, Desbiens N, Connors AF, Tsevat J. Cost

effectiveness of aggressive care for patients with nontraumatic coma. Critical Care Medicine. June 2002; 30(6):1191-6.

59. Teno JM. Now is the Time to Embrace Nursing Homes as a Place of Care for Dying Persons (Editorial).

Innovations in End-of-Life Care, Palliative Care in Nursing Homes. March/April 2002; 4(2). 60. Teno JM, Fisher ES, Hamel MB, Coppola K, Dawson NV. Medical Care Inconsistent with Patients’

Treatment Goals: Association with 1-Year Medicare Resource Use and Survival. Journal of the American Geriatrics Society. March 2002; 50(3):496-500.

61. Teno JM. Palliative Care Teams: Self Reflection – Past, Present, and Future (Commentary). Journal of

Pain and Symptom Management. February 2002; 23(2):94-5. 62. Teno JM, Weitzen S, Fennell ML, Mor V. Dying Trajectory in the Last Year of Life: Does Cancer

Trajectory Fit Other Diseases? Journal of Palliative Medicine. Winter 2001; 4(4):457-64. 63. Teno JM, Field MJ, Byock, I. Preface: The Road Taken and to Be Traveled in Improving End-of-Life

Care. Journal of Pain and Symptom Management, Special Section on Measuring Quality of Care at Life’s End. September 2001; 22(3):713-16.

64. Teno JM, Casey VA, Welch LC, Edgman-Levitan S. Patient-Focused, Family-Centered End-of-Life Medical Care: Views of the Guidelines and Bereaved Family Members. Journal of Pain and Symptom Management, Special Section on Measuring Quality of Care at Life’s End. September 2001; 22(3):738-51.

65. Teno JM, Clarridge B, Casey V, Edgman-Levitan S, Fowler J. Validation of Toolkit After-Death Bereaved Family Member Interview. Journal of Pain and Symptom Management, Special Section on Measuring Quality of Care at Life’s End. September 2001; 22(3):752-8.

66. Goodwin DM, Marconi K, Teno JM. Workgroup 4: Research. Journal of the Royal Society of Medicine.

September 2001; 94:484-5.

67. DeSilva DL, Dillon JE, Teno JM. The Quality of Care in the Last Month of Life Among Rhode Island Nursing Home Residents. Medicine and Health Rhode Island. June 2001; 84(6):195-8.

68. Hamel MB, Phillips RS, Davis RB, Teno JM, Desbiens N, Lynn J, Tsevat J. Are Aggressive Treatment

Strategies Less Cost-Effective for Older Patients? The Case of Ventilator Support and Aggressive Care for Patients with Acute Respiratory Failure. Journal of the American Geriatrics Society. April 2001; 49(4):382-90.

69. Hamel MB, Phillips RS, Davis RB, Teno JM, Connors AF, Desbiens N, Lynn L, Dawson NV, Fulkerson W,

Tsevat J. Outcomes and Cost-effectiveness of Ventilator Support and Aggressive Care for Patients with

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Acute Respiratory Failure due to Pneumonia or Acute Respiratory Distress Syndrome. American Journal of Medicine. December 1, 2000; 109(8):614-20.

70. Teno JM. Towards a Tolerable Death (Opinions/Editorials). Providence Journal. September 28, 2000. 71. Wu AW, Yasui Y, Alzola C, Galanos AN, Tsevat J, Phillips RS, Connors Jr. AF, Teno JM, Wenger NS, Lynn J.

Predicting Functional Status Outcomes in Hospitalized Patients Aged 80 Years and Older. Supplement to the Journal of the American Geriatrics Society. May 2000; 48(5):S6-15.

72. Teno JM, Harrell Jr. FE, Knaus W, Phillips RS, Wu AW, Connors Jr. A, Wenger NS, Wagner D, Galanos A,

Desbiens NA, Lynn J. Prediction of Survival for Older Hospitalized Patients: The HELP Survival Model. Supplement to the Journal of the American Geriatrics Society. May 2000; 48(5):S16-24.

73. Wenger NS, Phillips RS, Teno JM, Oye RK, Dawson NV, Liu H, Califf R, Layde P, Hakim R, Lynn J.

Physician Understanding of Patient Resuscitation Preferences: Insights and Clinical Implications. Supplement to the Journal of the American Geriatrics Society. May 2000; 48(5):S44-51.

74. Golin CE, Wenger NS, Liu H, Dawson NV, Teno JM, Desbiens NA, Lynn J, Oye RK, Phillips RS. A Prospective

Study of Patient-Physician Communication About Resuscitation. Supplement to the Journal of the American Geriatrics Society. May 2000; 48(5):S52-60.

75. Baker R, Wu AW, Teno JM, Kreling B, Damiano AM, Rubin HR, Roach MJ, Wenger NS, Phillips RS, Desbiens

NA, Connors Jr. AF, Knaus W, Lynn J. Family Satisfaction with End-of-Life Care in Seriously Ill Hospitalized Adults. Supplement to the Journal of the American Geriatrics Society. May 2000; 48(5):S61-9.

76. Teno JM, Fisher E, Hamel MB, Wu AW, Murphy DJ, Wenger NS, Lynn J, Harrell Jr. FE. Decision Making

and Outcomes of Prolonged ICU Stays in Seriously Ill Patients. Supplement to the Journal of the American Geriatrics Society. May 2000; 48(5):S70-4.

77. Wenger NS, Lynn J, Oye RK, Liu H, Teno JM, Phillips RS, Desbiens NA, Sehgal A, Kussin P, Taub H, Harrell F,

Knaus W. Withholding Versus Withdrawing Life-Sustaining Treatment: Patient Factors and Documentation Associated with Dialysis Decisions. Supplement to the Journal of the American Geriatrics Society. May 2000; 48(5):S75-83.

78. Hamel HB, Lynn J, Teno JM, Covinsky KE, Wu AW, Galanos A, Desbiens NA, Phillips RS. Age-related

differences in care preferences, treatment decisions, and clinical outcomes of seriously ill hospitalized adults: lessons from SUPPORT. Supplement to the Journal of the American Geriatrics Society. May 2000; 48(5 Supplement):S176-82.

79. Puchalski CM, Zhong Z, Jacobs MM, Fox E, Lynn J, Harrold J, Galanos A, Phillips RS, Califf R, Teno JM.

Patients Who Want Their Family and Physician to Make Resuscitation Decisions for Them: Observations from SUPPORT and HELP. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment. Hospitalized Elderly Longitudinal Project. Supplement to the Journal of the American Geriatrics Society. May 2000; 48(5):S84-90.

80. Covinsky KE, Fuller JD, Yaffe K, Johnston CB, Hamel MB, Lynn J, Teno JM, Phillips RS. Communication and

Decision-Making in Seriously Ill Patients: Findings of the SUPPORT Project. The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. Supplement to the Journal of the American Geriatrics Society. May 2000; 48(5):S187-93.

81. Teno JM. Advance Directives for Nursing Home Residents: Achieving Compassionate, Competent,

Cost-Effective Care (Editorial). Journal of the American Medical Association. March 15, 2000; 283(11):1481-2.

82. Phillips RS, Hamel MB, Teno JM, Soukup J, Lynn J, Califf R, Vidaillet H, Davis RB, Bellamy P, Goldman L.

Patient race and decisions to withhold or withdraw life-sustaining treatments for seriously ill

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hospitalized adults. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. American Journal of Medicine. January 2000; 108(1):14-9.

83. Lynn J, Teno JM, Dresser R, Brock D, Nelson HL, Nelson JL, Kielstein R, Fukuchi Y, Lu D, Itakura H.

Dementia and Advance-Care Planning: Perspectives from Three Countries on Ethics and Epidemiology. Journal of Clinical Ethics. Winter 1999; 10(4):271-85.

84. Goodlin SJ, Zhong Z, Lynn J, Teno JM, Fago JP, Desbiens N, Connors AF Jr, Wenger NS, Phillips RS.

Factors Associated with Use of Cardiopulmonary Resuscitation in Seriously Ill Hospitalized Adults. Journal of the American Medical Association. December 22-29, 1999; 282(24):2333-9.

85. Hamel MB, Davis RB, Teno JM, Knaus WA, Lynn J, Harrell F Jr, Galanos AN, Wu AW, Phillips RS. Older

Age, Aggressiveness of Care, and Survival for Seriously Ill, Hospitalized Adults. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. Annals of Internal Medicine. November 16, 1999; 131(10):721-8.

86. Teno JM. Putting Patient and Family Voice Back Into Measuring Quality of Care for the Dying.

Hospice Journal. 1999; 14(3-4):167-76. 87. Byock IR, Teno JM, Field MJ. Special Section on Measuring Quality of Care at Life’s End. Journal of

Pain and Symptom Management. 1999; 17(2):73-4. 88. Fowler JF, Coppola KM, Teno JM. Methodological Challenges for Measuring Quality of Care at the End

of Life. Journal of Pain and Symptom Management. February 1999; 17(2):114-9. 89. Teno JM. Lessons Learned and Not Learned from the SUPPORT Project (Editorial). Palliative

Medicine. March 1999; 13(2):91-3. 90. Stewart AL, Teno JM, Patrick DL, Lynn J. The Concept of Quality of Life of Dying Persons in the Context

of Health Care. Journal of Pain and Symptom Management. February 1999; 17(2):93-108. 91. Teno JM, Byock I, Field MJ. Research Agenda for Developing Measures to Examine Quality of Care and

Quality of Life of Patients Diagnosed with Life-Limiting Illness. Journal of Pain and Symptom Management. February 1999; 17(2):75-82.

92. Teno JM, Coppola KM. For Every Numerator, You Need a Denominator: A Simple Statement But Key

to Measuring the Quality of Care of Dying. Journal of Pain and Symptom Management. February 1999; 17(2):109-13.

93. Hamel MB, Teno JM, Goldman L, Lynn J, Davis RB, Galanos AN, Desbiens N, Connors AF Jr, Wenger N,

Phillips RS. Patient Age and Decisions to Withhold Life-Sustaining Treatments from Seriously Ill, Hospitalized Adults. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment. Annals of Internal Medicine. January 19, 1999; 130(2):116-25.

94. Miller SC, Mor V, Coppola K, Teno JM, Laliberte L, Pretrisek A. The Medicare Hospice Benefit’s

Influence on Dying in Nursing Homes. Journal of Palliative Medicine. 1998; 1(4):367-76. 95. Krumholz HM, Phillips RS, Hamel MB, Teno JM, Bellamy P, Broste SK, Califf RM, Vidaillet H, Davis RB,

Muhlbaier LH, Connors AF Jr, Lynn J, Goldman L. Resuscitation Preferences Among Patients With Severe Congestive Heart Failure: Results from the SUPPORT Project. Circulation. August 18, 1998; 98(7):648-55.

96. Pritchard RS, Fisher ES, Teno JM, Sharp SM, Reding DJ, Knaus WA, Wennberg JE, Lynn J. Influence of

Patient Preferences and Local Health System Characteristics on the Place of Death. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Risks and Outcomes of Treatment. Journal of the American Geriatrics Society. October 1998; 46(10):1242-50.

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97. Teno JM. Looking Beyond the “Form” to Complex Interventions Needed to Improve End-of-Life Care

(Editorial). Journal of the American Geriatric Society. September 1998; 46(9):1170-71. 98. Goodlin SJ, Winzelberg GS, Teno JM, Whedon M, Lynn J. Death in the Hospital. Archives of Internal

Medicine. July 27, 1998; 158(14):1570-72. 99. Teno JM, Stevens M, Spernak S, Lynn J. Role of Written Advance Directives in Decision Making:

Insights from Qualitative and Quantitative Data. Journal of General Internal Medicine. July 1998; 13(7):439-46.

100. Galanos AN, Pieper CF, Kussin PS, Winchell MT, Fulkerson WJ, Harrell FE Jr, Teno JM, Layde P, Connors

AF Jr., Phillips RS, Wenger NS. Relationship of Body Mass Index to Subsequent Mortality Among Seriously Ill Hospitalized Patients. SUPPORT Investigators. The Study to Understand Prognosis and Preferences for Outcomes and Risks of Treatments. Critical Care Medicine. December 1997; 25(12):1962-8.

101. Mor V, Intrator O, Fries BE, Phillips C, Teno J, Hiris J, Hawes C, Morris J. Changes in Hospitalization

Associated with Introducing the Resident Assessment Instrument. Journal of the American Geriatrics Society. August 1997; 45(8):1002-10.

102. Teno JM, Landrum K, Lynn J. Defining and Measuring Outcomes in End-Stage Dementia. Alzheimer

Disease and Associated Disorders. 1997; 11 Suppl. 6:25-9. 103. Mouton C, Teno JM, Mor V, Piette J. Communication of Preferences for Care Among Human

Immunodeficiency Virus-Infected Patients. Barriers to Informed Decisions? Archives of Family Medicine. July/August 1997; 6(4):342-7.

104. Teno JM, Branco KJ, Mor V, Phillips CD, Hawes C, Morris J, Fries BE. Changes in Advance Care

Planning in Nursing Homes Before and After the Patient Self-Determination Act: Report of a 10-State Survey. Journal of the American Geriatrics Society. August 1997; 45(8):939-44.

105. Hamel MB, Phillips RS, Davis RB, Desbiens N, Connors AF Jr, Teno JM, Wenger N, Lynn J, Wu AW,

Fulkerson W, Tsevat J. Outcomes and cost-effectiveness of initiating dialysis and continuing aggressive care in seriously ill hospitalized adults. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. Annals of Intern Med. August 1, 1997; 127(3):195-202.

106. Mattimore TJ, Wenger NS, Desbiens NA, Teno JM, Hamel MB, Liu H, Califf R, Connors AF Jr, Lynn J, Oye

RK. Surrogate and Physician Understanding of Patients' Preferences for Living Permanently in a Nursing Home. Journal of the American Geriatrics Society. July 1997; 45(7):818-24.

107. Hofmann JC, Wenger NS, Davis RB, Teno J, Connors AF Jr, Desbiens N, Lynn J, Phillips RS. Patient

Preferences for Communication with Physicians About End-of-Life Decisions. SUPPORT Investigators. Study to Understand Prognoses and Preference for Outcomes and Risks of Treatment. Annals of Internal Medicine. July 1, 1997; 127(1):1-12.

108. Rudberg MA, Teno JM, Lynn J. Developing and Implementing Measures of Quality of Care at the End of

Life: A Call for Action. Journal of the American Geriatrics Society. April 1997; 45(4):528-30. 109. Teno JM, Licks S, Lynn J, Wenger N, Connors AF Jr, Phillips RS, O'Connor MA, Murphy DP, Fulkerson WJ,

Desbiens, N, Knaus WA. Do Advance Directives Provide Instructions That Direct Care? SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment. Journal of the American Geriatrics Society. April 1997; 45(4):508-12.

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110. Teno JM, Lynn J, Connors AF Jr, Wenger N, Phillips RS, Alzola C, Murphy DP, Desbiens N, Knaus WA. The illusion of end-of-life resource savings with advance directives. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment. Journal of the American Geriatrics Society. April 1997; 45(4):513-8.

111. Teno J, Lynn J, Wenger N, Phillips RS, Murphy DP, Connors AF Jr, Desbiens N, Fulkerson W, Bellamy P,

Knaus WA. Advance directives for seriously ill hospitalized patients: effectiveness with the patient self-determination act and the SUPPORT intervention. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment. Journal of the American Geriatrics Society. April 1997; 45(4):500-7.

112. Lynn J, Teno JM, Phillips RS, Wu AW, Desbiens N, Harrold J, Claessens MT, Wenger N, Kreling B,

Connors, AF Jr. Perceptions by family members of the dying experience of older and seriously ill patients. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. Annals of Internal Medicine. January 15, 1997; 126(2):97-106.

113. Teno JM, Lynn J. Putting Advance-Care Planning Into Action. Journal of Clinical Ethics. Fall 1996;

7(3):205-13. 114. Covinsky KE, Landefeld CS, Teno J, Connors AF Jr, Dawson N, Youngner S, Desbiens N, Lynn J, Fulkerson

W, Reding D, Oye R, Phillips RS. Is economic hardship on the families of the seriously ill associated with patient and surrogate care preferences? SUPPORT Investigators. Archives of Internal Medicine. August 12-26, 1996; 156(15):1737-41.

115. Hamel MB, Phillips RS, Teno JM, Lynn J, Galanos AN, Davis RB, Connors AF Jr, Oye RK, Desbiens N,

Reding DJ, Goldman L. Seriously ill hospitalized adults: do we spend less on older patients? Support Investigators. Study to Understand Prognoses and Preference for Outcomes and Risks of Treatments. Journal of the American Geriatrics Society. September 1996; 44(9):1043-8.

116. Phillips RS, Hamel MB, Teno JM, Bellamy P, Broste SK, Califf RM, Vidaillet H, Davis RB, Muhlbaier LH,

Connors AF Jr. Race, resource use, and survival in seriously ill hospitalized adults. The SUPPORT Investigators. Journal of General Internal Medicine. July 1996; 11(7):387-96.

117. Wenger NS, Oye RK, Desbiens NA, Phillips RU, Teno JM, Connors AF, Liu H, Zemsky A, Kussin P, for the

SUPPORT Investigators. The Stability of DNR Orders on Hospital Readmission. Journal of Clinical Ethics. Spring 1996; 7(1):48-54.

118. Phillips RS, Wenger NS, Teno JM, Oye, RK, Youngner S, Califf R, Layde P, Desbiens N, Connors AF, Lynn

J. Choices of Seriously Ill Patients About Cardiopulmonary Resuscitation: Correlates and Outcomes. American Journal of Medicine. February 1996; 100(2):128-137.

119. **Hakim RB, Teno JM, Harrell FR, Knaus WA, Wenger, N, Phillips, RS, Layde P, Califf R. Connors AF,

Lynn J, for the SUPPORT Investigators. Factors Associated with Do-Not-Resuscitate Orders: Patients’ Preferences, Prognoses and Physicians’ Judgments. Annals of Internal Medicine. 1996; 125 (4):284-293.

120. Council on Scientific Affairs, AMA. Council report: Good Care of the Dying Patient. Journal of the

American Medical Association (Report written for the Council, by Joanne Lynn and Joan Teno). 1996; 275(6):474-478.

121. **The SUPPORT Principal Investigators. A Controlled Trial to Improve Care for Seriously Ill

Hospitalized Patients: The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments (SUPPORT). Journal of the American Medical Association. November 22/29, 1995; 274(20): 1591-1598.

122. Branco K, Teno J, Mor V. Advance Care Planning Among Nursing Home Residents Prior to the Patient

Self-Determination Act. Journal of Health and Social Policy. 1995; 7(1):37-52.

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123. Lynn J, Teno JM, Harrell FE. Accurate Prognostications of Death - Opportunities and Challenges for

Clinicians. Western Journal of Medicine. September 1995; 163(3): 250-257. 124. Teno JM, Hakim RB, Knaus WA, Wenger NS, Phillips RS, Wu AW, Layde P, Connors AF, Dawson NV,

Lynn J, for the SUPPORT Investigators. Preferences for Cardiopulmonary Resuscitation: Physician-Patient Agreement and Hospital Resource Use. Journal of General Internal Medicine. April 1995; 10(4): 179-186.

125. Wu AW, Damiano AM, Lynn J, Alzola C, Teno J, Landefeld CS, Desbiens N, Tsevat J, Mayer-Oakes A, Harrell

FE, Knaus WA. Predicting Future Functional Status for Seriously Ill Hospitalized Adults: The SUPPORT Prognostic Model. Annals of Internal Medicine. March 1, 1995; 122(5): 342-350.

126. Hamel MB, Goldman L, Teno JM, Lynn J, Davis RB, Harrell FE, Connors AF, Califf R, Kussin P, Bellamy P,

Vidaillet H, Phillips RS. Identification of Comatose Patients at High Risk for Death or Severe Disability. Journal of the American Medical Association. June 21, 1995; 273(23):1842-1848.

127. Layde PM, Beam CA, Broste SK, Connors AF, Desbiens N, Lynn J, Phillips RS, Reding D, Teno J, Vidaillet

H, Wenger N. Surrogates’ Predictions of Seriously Ill Patients’ Resuscitation Preferences. Archives of Family Medicine. June 1995; 4(6): 518-523.

128. **Teno JM, Murphy D, Lynn J, Tosteson A, Desbiens N, Connors AF, Hamel MB, Wu A, Phillips R, Wenger

N, Harrell F, Knaus WA for the Support Investigators. Prognosis-Based Futility Guidelines: Does Anyone Win? Support Investigators, Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment Journal of the American Geriatrics Society. November 1994; 42(11): 1202-1207.

129. Murphy DJ, Burrows D, Santilli S, Kemp AW, Tenner S, Kreling B, Teno JM. The Influence of the

Probability of Survival on Patients' Preferences Regarding Cardiopulmonary Resuscitation. New England Journal of Medicine. 1994; 330(8):545-549.

130. Teno JM, Lynn J, Phillips RS, Murphy D, Youngner SJ, Bellamy P, Connors AF, Desbiens NA, Fulkerson W,

Knaus, WA for the SUPPORT Investigators. Do Formal Advance Directives Affect Resuscitation Decisions and the Use of Resources for Seriously Ill Patients? Support Investigators, Study to Understand Prognoses and Preferences for outcomes and Risks of Treatments, Journal of Clinical Ethics. Spring 1994; 5(1): 23-30.

131. Teno JM, Sabatino C, Parisier L, Rouse F, Lynn J. The Impact of the Patient Self-Determination Act's

Requirement that States Describe Law Concerning Patients' Rights. Journal of Law, Medicine, and Ethics. Spring 1993; 21(1):102-108.

132. Lynn J, Teno JM. After the Patient Self-Determination Act: The Need for Empirical Research on Formal

Advance Directives. Hastings Center Report. 1993; 23(1):G9-G13. 133. Teno JM, Lynn J. Voluntary Active Euthanasia: The Individual Case and Public Policy. Journal of the

American Geriatrics Society. 1991; 39:827-830. 134. Kiel D, O'Sullivan P, Teno JM, Mor V. Health Care Utilization and Functional Status in the Aged

Following a Fall. Medical Care. 1991; 29:221-228. 135. Teno JM, Kiel D, Mor V. Multiple stumbles: A Risk Factor for Falls in Community-Dwelling Elderly: A

Prospective Study. Journal of the American Geriatrics Society. 1990; 38(12):1321-1325. 136. Teno JM, Fleishman J, Brock D, Mor V. The Use of Formal Prior Directives by Patients with HIV-

Related Diseases. Journal of General Internal Medicine. 1990; 5:490-494.

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137. Arnold BA, Forrow BL, Wartman SA, Teno JM. Teaching Clinical Medical Ethics: A Model Program for Primary Care Residency. Journal of Medical Ethics. 1988; 14:91-96.

OTHER PUBLICATIONS: Letter to Editor: 1. Teno JM, Mor V. Resurrecting Treatment Histories of Dead Patients (letter to the editor). Journal of the

American Medical Association. April 6, 2005; 293(13):1591-2. 2. Teno JM, Mor V, Welch LC, Wetle T, Shield R, Casey V, Clarridge B. Memories of loved ones about care

at the end of life (reply). Journal of the American Medical Association. March 24/31, 2004; 291(12):1446. 3. Mitchell SL, Teno JM, Mor V. State Legislation and Use of Feeding Tubes in Cognitively Impaired

Patients (reply). Journal of the American Medical Association. October 15, 2003; 290(15):1996. 4. Teno JM, Mor V, DeSilva D, Kabumoto G, Roy J, Wetle T. Use of Feeding Tubes in Nursing Home

Residents With Severe Cognitive Impairment (letter to the editor). Journal of the American Medical Association. June 26, 2002; 287(24):3211-2.

5. Teno J, Weitzen S, Wetle T, Mor V. Persistent Pain in Nursing Home Residents (letter to the editor).

Journal of the American Medical Association. April 25, 2001; 285(16):2081. 6. Lynn J, Teno JM, Wu A. Perceptions by Family Members of the Dying Experience of Older and

Seriously Ill Patients (response to letters to the editor). Annals of Intern Med. August 1, 1997; 127(3):243. 7. Lynn J, Teno JM. Death and Dignity: The Case of Diane (letter to the editor). New England Journal of

Medicine. August 29, 1991; 325(9):658-60. 8. Teno JM, Lynn J. VAE Versus Assisted Suicide (letter to the editor). Journal of the American Geriatrics

Society. May 1993; 41(5):584. 9. Teno JM, Mor V, Fleishman J. Preferences of HIV-Infected Patients for Aggressive Versus Palliative

Care (letter to the editor). New England Journal of Medicine. April 18, 1991; 324(16):1140. Book Chapters: 1. Teno, JM. Gerontology: Speaking with the Older Patient. In Communication and Professionalism

Competencies: A Guide for Surgeons. Edited by Rowland, Pamela and Lang, Nicholas P., Ciné-Med, Inc., Woodbury, CT. November 2007.

2. Teno, JM. Outcome Assessment in Palliative Care. In Principles and Practice of Palliative Care and Supportive

Oncology. Edited by Berger, Ann M., R.N., M.S.N., M.D., Von Roenn, Jamie, M.D., and Shuster, John L., M.D., Lippincott Williams & Wilkins, Philadelphia, PA. 3rd Edition, 2006.

3. Teno, JM. Outcomes Measurement in Palliative Care Research. In Textbook of Palliative Medicine. Edited by

Bruera, Eduardo, Higginson, Irene J, Ripamonti, Carla and von Gunten, Charles. Edward Arnold Publishers Ltd, London. 2006.

4. Teno, JM. Advance Care Planning for Frail, Older Persons. In Geriatric Palliative Care. Edited by Morrison, R.

Sean, M.D., Meier, Diane E., M.D. and Deputy Editor, Capello, Carol F., Oxford University Press, New York, NY, 2003.

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5. Teno, JM. Outcomes Assessment in Palliative Care. In Principles and Practice of Palliative Care and Supportive Oncology. Edited by Berger, Ann M., R.N., M.S.N., M.D., Portenoy, Russell K., M.D. and Weissman, David E., M.D., Lippincott Williams & Wilkins, Philadelphia, PA. 2nd Edition, 2002.

6. Teno, JM. End-of-Life Decision Making: From Whether to When. In Clinical and Epidemiological Aspects of

End-of-Life Decision-Making. Edited by van der Heide A, Onwuteaka-Philipsen B, Emanuel ZJ, van der Maas PJ, and van der Wal G. Royal Netherlands Academy of Arts and Sciences, Amsterdam, the Netherlands. 2001: 55-64.

7. Teno, JM. Quality of Care and Quality Indicators for End-of-Life Cancer Care: Hope for the Best, Yet Prepare for the Worst. Chapter 3 in National Cancer Policy Board’s publication Improving Palliative Care for Cancer. Edited by Foley KM and Gelband H. National Academy Press, Washington, DC, June 2001: 96-131.

8. Teno, JM. Advance Care Planning in the Outpatient and ICU Setting. In Managing Death in the ICU: The

Transition from Cure to Comfort. Edited by Curtis JR and Rubenfeld GD. Oxford University Press, New York, NY. 2001: 75-82.

9. Teno JM, McNiff K, Lynn, J. Measuring Quality of Medical Care for Dying Persons and Their Families:

Preliminary Suggestions for Accountability. In Annual Review of Gerontology and Geriatrics. Edited by Lawton P. Springer Publishing Company, New York, NY. Volume 20, 2000: 97-119.

10. Teno JM, Lynn J. Advance Care Planning. In Practical Ambulatory Geriatrics. Edited by Yoshikawa TT,

Cobbs EL, Brummel-Smith K. Mosby-Year Book, Inc., St. Louis, Missouri. 1998:57-64. 11. Lynn J, Teno JM. Advance Directives. In Encyclopedia of Bioethics. Edited by Reichel W. Simon and

Schuster Macmillan, New York, NY. 1995:572–577. 12. Teno JM, Lynn J. Advance Directives and Surrogate Decision-Makers. In Ambulatory Geriatric Care. Edited

by Yoshikawa TT, Cobbs EL, Brummel-Smith K. Mosby-Year Book, Inc., St. Louis, Missouri. 1993: 72-80. Final Reports: 1. Wetle T, Teno J, Shield R, Welch L, Miller SC. End of Life in Nursing Homes: Experiences and Policy

Recommendations. Final Report submitted to the AARP. 2003.

2. Teno, JM. Creating a Toolkit of Instruments to Measure End of Life Care. Final Report submitted to the Robert Wood Johnson Foundation. 2001.

3. Teno JM. Measuring Quality of Care and Quality of Life for Dying Persons and Their Families. Final Report submitted to the Robert Wood Johnson Foundation. 2001.

4. Teno JM. Understanding Regional Variation in ICU Use: Perspectives from Medicare National Claims Data and the SUPPORT Narrative and Quantitative Database. Final Report submitted to the Robert Wood Johnson Foundation. 2000.

5. Teno JM. Implementing Excellent Care at the End of Life Through Rapidly Improving Audit Tools, Standards Development, and Team Work. Final Report submitted to the Robert Wood Johnson Foundation. 1998.

6. Teno JM, Landrum KL. Toolkit of Instruments to Measure Care at the End of Life. Final Report submitted to

the Robert Wood Johnson Foundation and the Nathan Cummings Foundation. 1996. 7. Teno JM, Lynn J. Advance Directives: Effectiveness of Mandatory Notice. Final Report to Agency for Health

Care Policy Research (AHCPR). 1993. 8. Teno JM, Lynn J. Advance Directives: Conference on Research Methods and Priorities. Final report to Agency

for Health Care Research and Policy (AHCPR) 1993.

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Monographs:

1. Teno JM, Bird C, Mor V. The Prevalence and Treatment of Pain in US Nursing Homes. 1999. Other Publications: 1. Teno JM. The wrongful resuscitation. AHRQ WebM&M [serial online]. April 2008. Available at:

http://www.webmm.ahrq.gov/case.aspx?caseID=175 2. Henderson ML, Hanson LC, Reynolds KS. Improving Nursing Home Care of the Dying, A Training Manual

for Nursing Home Staff. Springer Publishing Company, 2003. Foreword by Teno JM. 3. Teno JM, Neylan Okun S, Casey V, Welch LC. Toolkit of Instruments to Measure End of Life Care - Resource

Guide: Achieving Quality of Care at Life’s End. 2001; Toolkit of Instruments to Measure End-of-Life Care (TIME)Web site. Publication available at http://www.chcr.brown.edu/pcoc/resourceguide.htm.

4. Teno JM. Consumer Reports and Ratings of Medical Care: Will We Ever Get Satisfaction? Report prepared for Institute of Medicine Conference: Evaluating Health Outcomes for Elderly People in a Changing Health Care Marketplace. June 5, 1996.

5. Teno JM, Hill TP, O'Connor MA. Squam Lake Consensus Conference on Research Priorities for Advance

Directives. Hastings Center Reports. 1994; Nov.- Dec. Special Supplement:S1. 6. Teno JM, Nelson HL, Lynn J. Squam Lake consensus conference: Advance care planning: priorities for ethical

and empirical research. Hastings Center Reports. 1994; Nov.- Dec. Special Supplement: S32-S36. 7. Teno JM. Patient Self-Determination Act: Opportunities for dialogue. The Brown University Long-Term Care

Letter. 1990; 2:7-8. 8. Teno JM, Silliman RA. Management of disruptive behavior in cognitively impaired patients. Clinical Report

on Aging. 1988; 2(6):16-17. Web Sites: 1. Teno, J. Facts on Dying: Policy relevant data on care at the end of life. 2001. Web homepage available at:

http://www.chcr.brown.edu/dying/factsondying.htm

2. Teno, J. Rhode Island Partnership to Improve End-of-Life Care: Improving the Quality of Care for Our Most Vulnerable Population.. 2000. Web homepage available at: http://www.chcr.brown.edu/commstate/homepagewithframes.htm

3. Teno, J. Toolkit of Instruments to Measure End-of-Life Care (TIME). 2000. Web homepage available at: http://www.chcr.brown.edu/pcoc/toolkit.htm

ABSTRACTS: 1. Block EM, Casarett DJ, Spence C, Gozalo P, Connor SR, Teno JM. Got Volunteers?: Association of Hospice

Use of Volunteers with Bereaved Family Members Overall Satisfaction with End of Life Care. 2009 American Academy of Hospice and Palliative Medicine, Hospice and Palliative Nurses Association Annual Assembly. Austin, TX, March 25-28, 2009.

2. Teno JM, Lima J, Lyon K. Are Bereaved Family Members Perceptions of the Quality of Care Stable During

Bereavement. 2009 American Academy of Hospice and Palliative Medicine, Hospice and Palliative Nurses Association Annual Assembly. Austin, TX, March 25-28, 2009.

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3. Teno JM, Lima J, Lyons K. Cancer Patient Assessment and Reports of Excellence (CARE): Development and

Initial Validation of New Measure of Consumer Perceptions of the Quality of Cancer Care. Poster presentation at 2008 American Geriatrics Society Annual Scientific Meeting. Washington, DC, May 2, 2008.

4. Farrell TW, Gozalo PL, Casarett D, Connor S, Spence C, Rhodes R, Teno JM. It’s Too Late?: Examining the

Role of Hospice and Market Factors in Late Hospice Referrals. Oral Paper presentation at 2008 American Geriatrics Society Annual Scientific Meeting. Washington, DC, May 1, 2008.

5. Dosa D, Teno JM. The Development of Feeding Tube Insertion Quality Indicator for Acute Care Hospitals

Amongst Nursing Home Residents with Advanced Dementia. Oral Paper presentation at 2008 American Geriatrics Society Annual Scientific Meeting. Washington, DC, May 1, 2008.

6. Hsu A, Teno JM, Dosa D, Mitchell S, Intrator O, Gozalo P. Do Hospitals with High Volume of Geriatric

Consultations Have Lower Feeding Tube Insertion Rates? Poster presentation at 2008 American Geriatrics Society Annual Scientific Meeting. Washington, DC, May 1, 2008.

7. Feldstein DT, Teno JM. Is There Anything Else That You Would Like to Tell Us About End of Life Care?

Poster presentation at 2008 American Geriatrics Society Annual Scientific Meeting. Washington, DC, May 1, 2008.

8. Teno JM, Mitchell S, Gozalo P, Hsu A, Intrator O, Mor V. Go to the Hospital, Get a Feeding Tube: Which

Hospitals and Regions are More Likely to Insert a Feeding Tube in Advanced Dementia Patients? Oral Paper presentation at 2008 American Geriatrics Society Annual Scientific Meeting. Washington, DC, May 1, 2008.

9. Teno JM, Kuo S, Skinner J, Fisher E, Intrator O, Mitchell S, Rhodes R, Mor V. Churning: Association of

Geographic Variation of Transitions with Incidence of Feeding Tube Insertion. Poster presentation at Academy Health 2007 Annual Research Meeting. Orlando, FL, June 3, 2007.

10. Rhodes R, Intrator O, Mitchell S, Mor V, Teno J. Feeding Tube Insertion Among Persons with Advanced

Cognitive Impairment: Race Matters. Poster presentation at Academy Health 2007 Annual Research Meeting. Orlando, FL, June 3, 2007.

11. Rhodes R, Teno JM. Bereaved Family Members? Evaluation of Hospice Care: What Factors Influence Overall

Satisfaction with Services? Poster presentation at 2007 American Geriatrics Society Annual Scientific Meeting. Seattle, WA, May 4, 2007.

12. Shu J, Teno JM, Dosa D. Timing of Referral to Hospice and Quality of Care: Length of Stay and Bereaved

Family Members’ Perceptions of the Timing of Hospice Referral. Poster presentation at 2007 American Geriatrics Society Annual Scientific Meeting. Seattle, WA, May 4, 2007.

13. Turner J, Teno JM. Inappropriate Use of Transdermal Fentanyl in the Nursing Home Setting. Poster

presentation at 2007 American Geriatrics Society Annual Scientific Meeting. Seattle, WA, May 4, 2007. 14. Teno JM, Mitchell S, Rhodes R, Intrator O, Rhodes R, Brostrup-Jensen C, Mor V. Health Care Transitions and

Incident Feeding Tube Insertion Among Persons with Advanced Cognitive Impairment: Lost in Transition. Paper Session: Ethics and Quality of Life at 2007 American Geriatrics Society Annual Scientific Meeting. Seattle, WA, May 3, 2007.

15. Brazil K, Froggatt K, Parker D, Teno J. Palliative Care for Older People in Long-Term Care Settings: An

International Comparison of Challenges and Solutions. 16th International Congress on Care of the Terminally Ill. Montreal, Canada, September 27, 2006.

16. Mitchell SL, Teno JM, Intrator O, Feng Z, Mor V. Hospitalization Decisions for Nursing Home Residents with

Advanced Dementia: A Nationwide Study. 2006 American Geriatrics Society Annual Scientific Meeting. Chicago, IL, May 5, 2006.

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17. Teno JM, Feng Z, Intrator O, Mitchell S, Cang Y, Mor V. Did Financial Incentives of Case Mix Introduction

Increase Feeding Tube Use in US Nursing Homes? 2006 American Geriatrics Society Annual Scientific Meeting. Chicago, IL, May 4, 2006.

18. Teno JM, Rhodes R. Access Delayed is Access Denied: An Evidence-based Approach to Improving Hospice

Access for Ethnic Minorities. 2005 American Academy of Hospice and Palliative Medicine, Hospice and Palliative Nurses Association Annual Assembly. Nashville, TN, February 11, 2006.

19. Shield R, Wetle T, Teno J, Welch L, Miller SC. Family Perspectives on Physician and Staffing Problems in

End-of-Life Care in Nursing Homes. GSA Annual 2005 Meeting. Orlando, FL, November 21, 2005. 20. Gerardo MP, Feng Z, Teno JM, Fennell M, Mor V. CM: Ethnic Disparities in the Use of Skilled Nursing Home

Care (SNF). GSA Annual 2005 Meeting. Orlando, FL, November 21, 2005. 21. Teno JM, Intrator O, Fisher E, Gozalo P, Bynum JPW, Mor V. Churning: State Variation in Transitions at End

of Life and Per-Capita Medicare Spending. GSA Annual 2005 Meeting. Orlando, FL, November 20, 2005. 22. Teno JM. Meeting the Challenge of Providing End of Life Care in Nursing Homes. 2005 Annual American

Geriatrics Society Meeting. Orlando, FL, May 13, 2005.

23. Rhodes R, Teno JM. His Care at the End of Life Was Ok, but It Was a Physician’s Mistake that Ended His Life. Poster presentation at 2005 Annual American Geriatrics Society Meeting. Orlando, FL, May 13, 2005.

24. Teno J, Spencer T, Mitchell S, Mor V. DNR Orders Among NH Residents with Severe Cognitive Impairment:

A National Study. 2005 Annual American Geriatrics Society Meeting. Orlando, FL, May 12, 2005. 25. Shockett ER, Teno JM, Miller SC, Stuart B. Late Referral to Hospice and Bereaved Family Member Perception

of Quality of End of Life Care. Poster presentation at 2005 Annual American Geriatrics Society Meeting. Orlando, FL, May 12, 2005.

26. Shield R, Wetle T, Teno JM, Welch LC, Miller SC. Vigilant in the Nursing Home: Family Advocacy at the

End of Life. Poster presentation at the Brown University’s Public Health Day. Providence, RI, April 5, 2005.

27. Teno J, Wetle T, Mor V, Gruneir A. Association of Advance Directives with Quality of End of Life Care: A National Study. GSA Annual 2004 Meeting. Washington, DC, November 19-23, 2004.

28. Welch, L, Teno, J, Casey V, Moorhead J. Does Mode of Administration Impact End-of-Life Care Assessment

Using the NHPCO Family Evaluation of Hospice Care Survey? GSA Annual 2004 Meeting. Washington, DC, November 19-23, 2004.

29. Teno J, Casey V, Rochon T, Wright R, Mor V. Resident Assessment of Pain Management: A New Tool to

Examine Pain Management in NH. GSA Annual 2004 Meeting. Washington, DC, November 19-23, 2004. 30. Miller SC, Teno J. The Barriers and Facilitators to Hospice Care in Nursing Homes: Are There Feasible and

Affordable Policy Fixes? Gerontologist. 2004; 44(Special Issue I):589. 31. Allen R, Blevins D, Haley W, Tilden V, Meier D, Teno J. Improving Mental Health in End-of-Life Care. GSA

Annual 2004 Meeting. Washington, DC, November 19-23, 2004. 32. Teno J. Embracing Nursing Homes as Partners in Improvement. 15th Annual Meeting of the American

Alliance of Cancer Pain Initiatives. June 18, 2004. 33. Trask P, Teno J, Nash J. Transitions of Care and Changes in Distressing Pain. American Society of Clinical

Oncology Annual Meeting. New Orleans, LA. June 5-8, 2004.

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34. Brandoff D, Schiffman F, Bourbonniere M, Wetle T, Teno JM. Quality of Care at Last Place of Cancer Care. American Society of Clinical Oncology Annual Meeting. New Orleans, LA. June 5-8, 2004.

35. Brandoff D, Wetle T, Bourbonniere M, Mor V, Schiffman F, Teno J. Bereaved family members’ perceptions of

end-of-life cancer care in nursing homes, hospices with home care, and acute care hospitals. American Society of Clinical Oncology Annual Meeting. New Orleans, LA. June 5-8, 2004.

36. Matthew D, Martin E, Teno J. Too Much or Too Little Life Sustaining Treatment: Views of Bereaved Family

Members. 2004 Annual American Geriatrics Society Meeting. May 19, 2004. 37. Nanda A, Bourbonniere M, Wetle T, Teno J. Perception of Not Receiving Enough Home Care in the Last Year

of Life: Association with Last Place of Care. 2004 Annual American Geriatrics Society Meeting. May 19, 2004.

38. Rochon T, Evans B, Dexter C, Teno JM. Initial Development and Evaluation of Nurse Practitioner Palliative

Care Consult Services. 2004 Annual American Geriatrics Society Meeting. May 18, 2004. 39. Wright RM, Teno JM, Casey V, Mor V. Can Proxies Validly Report on the Quality of Pain Management for

Nursing Home Residents? 2004 Annual American Geriatrics Society Meeting. May 18, 2004. 40. Teno J, Rochon T, Casey V, Wright R, Clarridge B, Mor V. Validation of Survey for Nursing Home Residents

Assessment of Pain Management. 2004 Annual American Geriatrics Society Meeting. May 2004. 41. Mitchell S, Teno J, Miller S. A National Study of Family Perception of the Quality of End-of-Life Care

Provided to Persons Dying with Dementia. Journal of American Geriatrics Society. 2004; 52(4 Supplement):S178.

42. Rhodes R, Teno J, Miller S. Racial Differences in Hospice: Are African Americans Informed about Hospice?

Journal of the American Geriatrics Society. 2004; 52(4 Supplement):S178. 43. Kutner JS, Lorenz KA, Teno JM, Rosenfeld K. Practice-based Research Networks (PBRNs) as Laboratories for

End-of-Life Care Studies. Journal of Palliative Medicine. February 2004; 7(1):154. 44. Teno JM, Clarridge B, Casey V, Welch L, Wetle T, Mor, V. The Institutionalization of Dying: Family

Perspectives on End-of-Life Care. Journal of Palliative Medicine. February 2004; 7(1):157. 45. Teno JM, Fisher ES, Mor V, Clarridge B, Roy J. Dying in Hospital Service Areas with Higher End of Life ICU

Utilization: Is More Better? Journal of Palliative Medicine. February 2004; 7(1):161. 46. Mitchell SL, Teno JM, Roy J, Kabumoto G, Mor, V. Tube-Feeding in Older Persons with Advanced Cognitive

Impairment: A Nation-Wide Study. Journal of the American Geriatrics Society. April 2003; 51(S4):S189. 47. Bourbonniere M, Teno JM, Roy J, Mor, V. Transitions at the End of Life: Quality of Care and Information

Continuity. Journal of the American Geriatrics Society. April 2003; 51(S4): S40-S41. 48. Teno JM, Fisher ES, Mor V, Roy J, Clarridge B, Wennberg JE. Dying in HSA with Higher ICU Utilization: Is

More Better? Journal of the American Geriatrics Society. April 2003; 51(S4):S39-S40. 49. Lederer P, Teno J. Bereaved Family Satisfaction and Prolonged Time Without Fluids While Dying. Journal of

Palliative Medicine. February 2003; 6(1):146. 50. Schonwetter RS, McMillan SC, Weitzner MA, Teno J (Respondent). Evidence of Validity and Reliability of

the Palliative Performance Scale Among Hospice Patients. Journal of Palliative Medicine. February 2003; 6(1):132.

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51. Teno JM, Welch L, Casey V, Mor V. Using Savings to Pay for Care at Life’s End. Journal of Palliative Medicine. February 2003; 6(1):135.

52. Wetle T, Teno J, Shield R, Miller S, Welch L, Ciambrone D. End of Life Care in Nursing Homes: Experiences

of Decedents and their Families. Gerontologist. 2003; 43(1):483. 53. Mor V, Zinn, J, Teno J, Miller S, Angelleli J, Gifford D. Quality Implications of the Two Tiered Nursing Home

System. Academy for Health Services Research and Health Policy Annual Research Meeting. Washington, DC June 23-25, 2002.

54. Johnson V, Teno JM, Mor V. Cancer Patients in US Nursing Homes: Quality of End of Life Care. The

American Society of Clinical Oncology Annual Meeting. Orlando, FL May 18-21, 2002. 55. Gifford D, Teno J, Patry G, Bank S, DeSilva D, Banks S. Improving Pain Management in Nursing Homes.

Journal of the American Geriatrics Society. April 2002; 50(S4): S10. 56. Teno JM, Mor V, Kabumoto GT, Wetle, T. Every Numerator Needs a Denominator: Measuring Weight Loss

as a Quality Indicator. Journal of the American Geriatrics Society. April 2002; 50(S4): S11. 57. Flack N., Teno JM. Pain and End of Life – Excruciating Pain: Prevalence, Characteristics, and Consequences.

The Gerontological Society of America. Chicago, IL, November 16-18, 2001. 58. Welch LC, Teno JM, Casey V, Clarridge B. What Predicts Family’s Ratings of End-of-Life Care? 2001

Annual Scientific Meeting of the American Geriatrics Society. Chicago, IL, May 10-12,2001.

59. Teno JM. Excruciating Pain in Rhode Island Nursing Homes: Prevalence, Characteristics, and Outcomes. Poster presentation at the Brown University’s Barnes Lectureship in Public Health. Providence, RI, April 19, 2001.

60. Teno JM. Functional Trajectory: Does Cancer Trajectory Fit Other Diseases? 13th International Congress on Care of the Terminally Ill. Montreal, Quebec, Canada, September 25 – 29, 2000.

61. Teno JM. Functional Trajectory: Does Cancer Trajectory Fit Other Diseases? American Academy of Hospice

and Palliative Medicine. Atlanta, GA, June 30, 2000. 62. Casey VA, Teno JM. How Do Bereaved Family Members Define Quality Medical Care at the End of Life.

Association for Health Services Research Annual Meeting. Los Angeles, CA , June 26, 2000. 63. Teno JM. Patient Centered Reports and Rankings of the Quality of End-of-Life Care: The Toolkit Project.

2000 Annual Scientific Meeting of the American Geriatrics Society and the American Federation for Aging Research. Nashville, TN, May 17-21, 2000.

64. Dillon J, Teno JM. Last Month of Life Among Persons Dying in RI Nursing Homes. 2000 Annual Scientific

Meeting of the American Geriatrics Society and the American Federation for Aging Research. Nashville, TN, 17-21, 2000.

65. Powell E, Teno JM. Do Nursing Homes Address Spiritual Concerns? 2000 Annual Scientific Meeting of the

American Geriatrics Society and the American Federation for Aging Research. Nashville, TN, May 17-21, 2000.

66. Miller SC, Mor V, Teno J, Laliberte L. Nursing home hospice beneficiaries: Differences by nursing homes

with varying concentrations of hospice beneficiaries. Annual Meeting of American Public Health Association. 1998.

67. Hamel MB, Davis RB, Teno JM, Harrell FE, Lynn J, Galanos A, Wu AW, Wenger N, Phillips RS. Patient Age

and Survival from Serious Illness. Journal of General Internal Medicine. 1997; 12:121

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68. Landrum KK, Teno JM, Kreling BA, Lynn J. Breaking Through the Glass Ceiling of Hospice Referrals for

Patients: Is It Enough? Journal of General Internal Medicine. 1997; 12:83. 69. Teno JM, Lynn J, Wenger N, Desbiens N, Alzola C, Connors AF, Phillips RS, Knaus WA. The Illusion of

Resource Savings with Advance Directives. Journal of American Geriatric Society. 1995; 43:SA 57. 70. Lynn J, DuLac J, O’Connor MA, Ross CS, Kreling B, Roach MJ, Wasson JH, Teno JM. MediCaring:

Developing Comprehensive Supportive Services as a Medicare Option. Journal of American Geriatrics Society. 1995; 43:SA 50.

71. Patterson JA, Teno JM, Lynn J, Connors AF, Desbiens N, Wenger N, Galanos A, Phillips RS, Knaus WA.

Who Gets CPR As They Die?: Variation by Disease, Race, and Hospital. Journal of American Geriatrics Society. 1995; 43:SA 54.

72. Teno JM, Mor V, Branco K. Impact of the Patient Self-Determination Act in Long Term Care Facilities.

Journal of American Geriatrics Society. 1994; 42:A4. 73. Teno JM, Phillips RS, Wenger N, Bellamy P, Murphy D, Desbiens N, Vidaillet H, Connors AF, Youngner S,

Knaus W. Federal Interventions Regarding End of Life Decision-Making: Lessons from the PSDA. Journal of General Internal Medicine. 1994; 9(2):99.

74. Pritchard R, Teno JM, Fisher E, Lynn J, Phillips RS, Reding D, Fulkerson W, Wenger N, for the SUPPORT

Investigators. Regional Variation in the Place of Death. Journal of General Internal Medicine. 1994; 9:146a. 75. Teno JM, Murphy D, Lynn J, Tosteson A, Wenger N, Hamel MB, Phillips RS, Layde P, Fulkerson W, Wu AW,

Desbiens N, Connors AF, Harrell FE, Knaus W. Potential Impact of Futility Guidelines in Seriously Ill Adults. Journal of the American Geriatrics Society. 1994; 42:A6.

76. Teno JM, Lynn J, Phillips RS, Youngner S, Connors A, Oye B, Desbiens N, Fulkerson W, Knaus W, and the

SUPPORT Investigators. Do Advance Directives Save Resources? Clinical Research. 1993; 41:551a. 77. Teno JM, Lynn J, Wenger N, Connors A, Phillips RS, Youngner S, Kussin P, Reding DJ and the SUPPORT

Investigators. Management of Seriously Ill Dying Patients. Clinical Research. 1993; 41:582a. 78. Hamel M, Phillips RS, Lynn J, Teno JM, Cook EF, Harrell F, Kussin P, Califf R, Vidaillet H, Bellamy P,

Connors A, Goldman L and the SUPPORT Investigators. Identification of Comatose Patients at High Risk for Death or Severe Disability. Clinical Research 1993; 41:518a.

79. Wenger NS, Greengold NL, Oye RK, Liu H, Phillips RS, Kussin P, Teno JM, Hiatt JR, Kryda MJ, Connors AF

and the SUPPORT Investigators. Surgical Treatment, Preferences, and Survival of Patients with Do Not Resuscitate Orders. Clinical Research. 1993; 41:583a.

80. Teno JM, Branco K, Mor V. Advance Directives Among Nursing Home Residents: Report of a National

Survey. Journal of the American Geriatrics Society. 1992; 40:SA14. 81. Teno JM, Parisier LA, Sabatino C, Rouse F, Lynn J. Impact of the Patient Self-Determination Act: Evaluation

of State Efforts to Write Law. Journal of the American Geriatrics Society. 1992; 40:SA73. 82. Murphy D, Burrow D, West S, Tennor S, Kreling B, Kemp A, Teno JM, Jayes B. Older Patients' Preferences

for CPR: The Effect of Likelihood of Survival. Journal of the American Geriatrics Society. 1992;40: SA16. 83. Lynn J, Teno JM, Wenger N, Phillips R, Wu A, Connors A, Youngner S, Layde P. "Do Not Resuscitate

Orders" in Seriously Ill Patients: Expressed Preferences or Last Rites? Clinical Research. 1992; 40(2):347a.

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84. Teno JM, Lynn J, Phillips RS, Wu AW, Wenger N, Connors A, Youngner, Layde P, Vidaillet H. The Impact of Age, Disease Severity, Preferences on Do Not Resuscitate Orders. Clinical Research. 1992; 40(2):574a.

85. Wenger NS, Oye RK, Teno JM, Phillips RS, Layde PM, Lynn J, Califf RM, Dawson NV. Physicians Often Do

Not Know Patients' Goals for Care: Factors Associated with Misunderstanding. Clinical Research. 1992; 40(2):620a.

86. Wenger NS, Oye RK, Teno JM, Lynn J, Layde PM, Phillips RS, Mayer-Oakes SA, Connors AF, Califf RM.

Patient Age, Race and Perceived Health Status Are Associated with Preferences for Comfort Care. Clinical Research. 1992;40(2):620a.

87. Phillips RS, Teno JM, Wenger N, Layde P, Lynn J, Youngner S, Califf R, Bergner M. Physicians'

Understanding of Seriously Ill Patients' Preferences for Cardiopulmonary Resuscitation: Accuracy and Correlates of Discordance. Clinical Research. 1992; 40(2):617a.

88. Teno JM, Lynn J, Murphy DJ, Phillips RS, Bellamy P, Youngner S, Jayes, B. The Impact of Advance

Directives on Decision-Making. Gerontologist. 1991; 31:41. 89. Teno JM, Mor V, Fleishman J. Communications Regarding Formal Advance Directives. Clinical Research.

1991; 39(2):632A. 90. Teno JM, Mor V, Fleishman J. Stability of Patient Preferences Among Patients with HIV-Related Diseases.

Clinical Research. 1991; 39(2):532A. 91. Teno JM, Lynn J, Kreling B, Bergner M. Satisfaction with Activities of Daily Living: Scale Development.

Clinical Research. 1991; 39(2):594A. 92. Phillips RS, Lynn J, Teno JM, Oye RK, Youngner S, Califf R, Desbiens N, Bergner M. Preferences for

Cardiopulmonary Resuscitation in Seriously Ill Adults. Clinical Research. 1991; 39(2):584A. 93. McHorney C, Teno JM, Lu JF, Sherbourne C, Ware J. The Use of Standardized Measures of Functional Status

and Well-Being Among Cognitively Impaired and Intact Elders: Results from the Medical Outcomes Study. The Gerontologist. 1990; 39:A.

94. Teno JM, Kiel D. Gait Speed and Computerized Balance Measurements Among Subjects With and Without

Fear of Falling. Journal of the American Geriatrics Society. 1990; 38:A26. 95. Kiel DP, Teno JM, O'Sullivan P. Does a Computerized Balance Platform Validly and Reliably Measure

Balance in a Manner Acceptable to Older Persons? Journal of the American Geriatrics Society. 1990; 38:A46. 96. Teno JM, Fleishman J, Mor V, Piette J, Kellog R. Use of Prior Directives in Patients with AIDS. Clinical

Research. 1989; 37(2):823A. 97. Kiel D, O'Sullivan P, Teno JM, Mor V. What Happens After a Fall? Clinical Research. 1989; 37(2):786A. 98. Teno JM, Rice C, McHorney CA. Fear of Falling: Prevalence, Characteristics, and Social Participation. The

Gerontologist. 1989; 29:160A. INVITED PRESENTATIONS: 1. Teno JM. End of life care. Rhode Island Chapter of the American College of Physicians (ACP) Meeting,

Radisson Airport Hotel, Warwick, RI, June 4, 2009.

2. Teno JM. Using the Family Evaluation of Hospice Care Survey to Jump Start your QAPI Program. National Hospice and Palliative Care Organization (NHPCO) 24th Management and Leadership Conference, Washington, DC, April 24, 2009.

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3. Teno JM, Embracing Nursing Homes as the Final Locus of Care: Managing Pain, Dementia as a Terminal

Illness and Choosing a High Quality Hospice. New England Branch of the Long Term Care Group Purchasing Organization-UHF of New England, Best Western/Royal Plaza, Marlboro, MA, April 8, 2009

4. Teno JM. How do you recognize a high quality hospice program? Rhode Island Health Information Management Association (RIHIMA) Meeting, Providence, RI, April 3, 2009.

5. Teno J., Lima J, Lyon K Are Bereaved Family Members Perceptions Stable During Bereavement? Annual Assembly American Academy of Hospice and Palliative Medicine (AAHPM) and the Hospice and Palliative Nurses Association, Austin, TX, March 26, 2009.

6. Teno J. When Personal Healthcare Decision Making Worlds Collide: Resuscitation Status vs. Advance

Directive. Newport Hospital Ethics Committee, Newport Hospital, Newport, RI, March 18, 2009.

7. Sasser C, Ferrell B, Otis-Green S, Teno J, Puchalski C. Redefining Evidence-Based Research for Palliative Care. Annual Assembly American Academy of Hospice and Palliative Medicine (AAHPM) and the Hospice and Palliative Nurses Association, Austin, TX, March 26, 2009.

8. Teno JM. Improving End of Life Care for Clients with Dementia. Village at Waterman Lake presentation series, Village at Waterman Lake, Greenville, RI, November 20, 2008.

9. Teno JM. Dementia as a Terminal Diagnosis. First Annual Regional Palliative Care Conference, William F.

Connell School of Nursing at Boston College, Chestnut Hill, MA, October 3, 2008. 10. Teno J. Honoring Final Wishes: How to Respect Americans’ Choices at the End of Life, Testimony to Senate

Special Subcommittee on Aging, Senate Subcommittee on Aging, Washington DC, September 24, 2008. 11. Teno JM. Ethical Implications of a Non-DNR Status for the Hospice Patient. 2008 American Geriatrics Society

Annual Scientific Meeting, Washington, DC, May 2, 2008. 12. Teno J. Evaluating Quality End of Life Care. Nova Scotia Hospice Palliative Care Conference Grand Rounds,

Halifax, Nova Scotia, April 26, 2008. 13. Teno J. Advanced Care Planning. Nova Scotia Hospice Palliative Care Conference Grand Rounds, Halifax,

Nova Scotia, April 25, 2008. 14. Teno J. Dementia as a Terminal Illness. Nova Scotia Hospice Palliative Care Conference Grand Rounds,

Halifax, Nova Scotia, April 24, 2008. 15. Teno J. Oscar the Cat: Lessons Learned. Aronson Spring Symposium at Home and Hospice Care of Rhode

Island, Pawtucket, RI, April 16, 2008. 16. Teno J. Dementia as a Terminal Illness. Department of Medicine Grand Rounds at Einstein, New York City,

NY, January 2, 2008. 17. Teno JM. Embracing Nursing Home as Place of Care and Site of Death for Older Americans. Closing Plenary

at 8th Clinical Team Conference Scientific Symposium and Facility-Based Hospice Forum. New Orleans, LA, November 28, 2007.

18. Teno JM, Casarett D, Spence C, Connor S. Hospices Organized to Promote Excellence. Poster presentation at

First Annual National Palliative Care Research Center Retreat and Research Symposium. Park City, UT, September 17, 2007.

19. Teno, J. Dementia as a Terminal Illness. Geriatric Medicine Grand Rounds-University of Louisville,

Louisville, KY, August 10, 2007.

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20. Teno J. End of Life Care and the Policy Issues Related to Achieving Quality in Various Settings,

Congressional Briefing on Quality Care and Comfort at the End of Life: Changes Needed?, Alliance for Health Reform and the Robert Wood Johnson Foundation, Washington DC, Senate Russell Building, June 8, 2007.

21. Teno JM. Using Policy and Regulatory Requirements to Improve Pain Management in Long-Term Care.

Palliative Care Grand Rounds organized by the Temmy Letner Centre for Palliative Care and HPCNet Project, Toronto, Ontario (Videoconference), May 24, 2007.

22. Teno JM. Facilitating Surrogate Decision-Making for Older Patients (Summary and Relevance). 2007

American Geriatrics Society Annual Scientific Meeting, Seattle, WA, May 3, 2007. 23. Teno JM. Intervening to Improve Pain Management in the Long Term Care Setting. 2007 American Geriatrics

Society Annual Scientific Meeting, Seattle, WA, May 2007. 24. Teno J. Proposed Quality of End of Life Care Objectives. American Cancer Subcomittee on Measuring

Quality of Care at End of Life, Atlanta, GA, April 23, 2007. 25. Maxwell TL, Teno J, Miller SC. Successful Strategies to Improve End-of-Life Care in Nursing Homes. Annual

Assembly American Academy of Hospice and Palliative Medicine (AAHPM) and the Hospice and Palliative Nurses Association, Salt Lake City, UT, February 17, 2007.

26. Casarett D, Teno J. Auditing and Improving the Quality of End of Life Care: Measurement 101. Annual

Assembly American Academy of Hospice and Palliative Medicine (AAHPM) and the Hospice and Palliative Nurses Association, Salt Lake City, UT, February 16, 2007.

27. Goldstein NE, Carlson M, Lorenz K, Teno J. Use of Large National Datasets in Palliative Care Research.

Annual Assembly American Academy of Hospice and Palliative Medicine (AAHPM) and the Hospice and Palliative Nurses Association, Salt Lake City, UT, February 15, 2007.

28. Kapo JM, Morrison LJ, Teno J. Making Palliative Care Work: Benefits and Challenges of Assisted Living

Facilities and the Program of All-Inclusive Care for the Elderly (PACE) Model. Annual Assembly American Academy of Hospice and Palliative Medicine (AAHPM) and the Hospice and Palliative Nurses Association, Salt Lake City, UT, February 15, 2007.

29. Casarett D, Foley KM, Kutner J, Tulsky J, Steinhauser K, Meier D, Curtis JR, Weissman D, Teno J, Furman

CD, Ritchie CS, Bailey FA, Bakos A. Career Development Bootcamp: Intensive Skill Development for Academic Clinicians, Clinician Educators, and Researchers. Annual Assembly American Academy of Hospice and Palliative Medicine (AAHPM) and the Hospice and Palliative Nurses Association, Salt Lake City, UT, February 14, 2007.

30. Bereaved Family Member Perspectives on the Last Place of Care in the USA. 2nd National Cancer Research

Institute (NCRI) Cancer Conference (Supportive and Palliative Care), International Convention Centre, Birmingham, UK, October 8-11, 2006.

31. Teno JM. Use of the Mortality Followback Survey to Evaluate the Quality of End-of-Life Care. 16th

International Congress on Care of the Terminally Ill. Montreal, Canada, September 27, 2006. 32. Teno JM. Improving End of Life Care in Nursing Homes. 16th International Congress on Care of the

Terminally Ill. Montreal, Canada, September 26, 2006. 33. Connor SR, Teno JM. From Outcomes to Public Policy: Using NHPCO Outcome Data to Inform and Promote.

NHPCO 21st Management and Leadership Conference. New York City, NY, September 12, 2006. 34. Teno JM. Evaluating Palliative Care in the USA: using Nationwide Data of the National Hospice and Palliative

Care Organization. Public Health at End of Life. Amsterdam, The Netherlands, June 22, 2006.

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35. Teno JM. The Case for Dementia as a Terminal Illness. 2006 American Geriatrics Society Annual Scientific

Meeting. Chicago, IL, May 5, 2006. 36. End-of-Life and Nursing Homes: Experiences and Policy Recommendations. 15th Annual Conference of the

Pennsylvania Cancer Pain Initiative (PCPI), Holiday Inn Harrisburg/Hershey, Grantville, PA, April 7, 2006. 37. Changing the Culture in an Institution (Panel Discussion). 15th Annual Conference of the Pennsylvania Cancer

Pain Initiative (PCPI), Holiday Inn Harrisburg/Hershey, Grantville, PA, April 7, 2006. 38. Who Decides? The Implications of the Terry Schiavo Case. First Unitarian Church Meeting Hall, Providence,

RI, April 26, 2005. 39. Now is the Time to Embrace Nursing Homes. American College of Health Care Administrators 2005 Annual

Conference & Exposition, Rhode Island Convention Center, Providence, RI, April 16, 2005. 40. Validation of Brief Survey Tool to Examine NH Pain Management: Resident Assessment of Pain Management

(RAPM). American Academy of Hospice and Palliative Medicine (AAHPM). Hilton New Orleans Riverside, New Orleans, LA, January 23, 2005.

41. Award for Excellence in Scientific Research. American Academy of Hospice and Palliative Medicine

(AAHPM). Hilton New Orleans Riverside, New Orleans, LA, January 20, 2005. 42. Now is the Time to Embrace NH as a Place of Care for Dying Persons. University of Mexico School of

Medicine Grand Rounds, Albuquerque, NM, January 13, 2005. 43. Measuring Outcomes Retrospectively: Opportunities for Expanding Knowledge and Improving End of Life

Care. NIH State of the Science Conference on Improving End-of-Life Care, Washington, DC, December 6, 2004.

44. Pain Management at the End of Life. Sponsored by Aging Interest Group, the Office of Curriculum Affairs,

and BIO 262 Neuro Pathophysiology, Brown University, October 25, 2004. 45. Addressing the Unique Needs of Residents and Families in Long Term Care (Panel Discussion). 15th Annual

Meeting of the American Alliance of Cancer Pain Initiatives, Accessing Pain Management: Effective Policy, Practice and Action, New Brunswick, NJ, June 18, 2004.

46. Embracing Nursing Homes as Partners in Improvement. 15th Annual Meeting of the American Alliance of

Cancer Pain Initiatives, Accessing Pain Management: Effective Policy, Practice and Action, New Brunswick, NJ, June 18, 2004.

47. Hospice in the SNF Setting: Effectively Addressing Residents’ End of Life Issues. The Rhode Island Chapter

of the American College of Health Care Administrators Breakfast Meeting, Warwick, RI, May 12, 2004. 48. Dying in America: The Case for Bring Back the Mortality Followback Survey. Institute for Health, Health Care

Policy & Aging Research (IHHCPAR) at Rutgers University, New Brunswick, NJ, April 29, 2004. 49. The Benefits of Hospice Care. Panelist with J. Donald Schumacher, NHPCO for SG Cowen 24th Annual Health

Care Conference, Boston, MA, March 10, 2004. 50. Howard Hughes Science Writing Internship Program with interns. Brown University, Providence, RI, March 3,

2004. 51. Where We Die: Role of Individual, Care Processes, and Health System Factors. Sasakawa Health Science

Foundation, Tokyo, Japan, February 2, 2004.

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52. Grantsmanship: How to Write (and Fund) a Medical Research Grant. Faculty development workshop on grantsmanship for junior faculty, post-docs, and advanced graduate students, Brown Medical School, Providence, RI, January 14, 2004.

53. Advocating for Quality End of Life Care for Your Love One. Faculty Forum for Parents Weekend at Brown

University, Providence, RI, October 18, 2003. 54. The Ethics of Aging and Palliative Care. George Randolph and Patricia Scott Named Visiting Professor on the

Physiology of Aging at the Mayo School of Continuing Education, Siebens Medical Education Building, Rochester, MN, October 9, 2003.

55. The New Family Evaluation of Hospice Care: Web-Based Benchmarking. NHPCO 18th Management and

Leadership Conference on Hospice and Palliative Care, Sheraton Wild Horse Pass Hotel, Phoenix, AZ, September 7, 2003.

56. Advance Care Planning. Ethics Education Program, Providence Department of Veterans Affairs Medical

Center, Providence, RI, July 23, 2003. 57. Update on measurement issues in end of life care, where field is at and new directions. Project on Death in

America, Social Work Leadership Development Awards Program Retreat, Ocean Edge Resort, Brewster, MA, July 9, 2003.

58. Teaching Pain Management to Nursing Home Teams-'Train the Trainer'. Corporate Nursing Home

Improvement Collaborative: Pain Management, Marriott Hotel BWI Airport, Baltimore, MD, June 17, 2003. 59. Embracing Nursing Homes as the Place of Care and Site of Death for Frail Older Persons. American Geriatrics

Society, Hyatt Regency, Baltimore, MD, May 16, 2003. 60. Will I Receive Competent Care? Panel for the National Association of Attorney General’s Listening Conference

on Improving End-of-Life Care. Baltimore, MD. May 16, 2003. 61. Health Care Screening and Older Adults For How Long and On Whom? Prognosticating in Older Adults: The

Tightrope Walker and Sudden Gusts of Wind. American Geriatrics Society, Hyatt Regency, Baltimore, MD, May 15, 2003.

62. Educating Providers in End-of-Life Care in Geriatrics Challenges and Opportunities of End-of-Life Care in

Long-Term Care Facilities. American Geriatrics Society, Hyatt Regency, Baltimore, MD, May 14, 2003. 63. Advance Directives. Panel Discussion with Maureen Glynn, Assistant Attorney General for the State of RI.

Brown University. March 31, 2003. 64. Evidence of Validity and Reliability of the Palliative Performance Scale Among Hospice Patients. American

Academy of Hospice and Palliative Medicine (AAHPM). Royal Pacific Resort at Universal Orlando, FL. February 7, 2003.

65. Paper Session I: Using Savings to Pay for Care at Life’s End. American Academy of Hospice and Palliative

Medicine (AAHPM). Royal Pacific Resort at Universal Orlando, FL. February 6, 2003. 66. Pain Assessment Act Workshop. Attorney General Task Force. Providence, RI. November 6, 2002. 67. Research in the Field of Cancer Pain Management. Rhode Island Cancer Pain Initiative. Warwick, RI.

October 29, 2002. 68. Last Years in the US and Nursing Home Issues and Dementia. Solid Facts/Palliative Care for Older People

Expert Meeting Hotel San Rocco in Orta San Giulio, Italy sponsored by the World Health Organization. October 18-20, 2002.

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69. Using Bereaved Family Member Surveys to Audit and Improve the Quality of End of Life Care and Proxy

Opinion of Palliative Care & Symptom Control: Valid Research Outcomes?. 14th International Congress on Care of the Terminally Ill. Montreal, Canada. October 5-10, 2002.

70. Measurement of Outcomes in Palliative Care & Advanced Heart Failure. Consensus Conference on Supportive

and Palliative Care in Advanced Heart Failure. Salt Lake City, UT. September 5-6, 2002. 71. Advance Care Planning. Miriam Hospital for Noon Conference Lecture Series presented to Internal Medicine

residents and Brown University medical students. Providence, RI. July 10, 2002. 72. Management of Agitation and Aggression in Dementia. Long Term Care Psychiatry, Inc. Spain Restaurant,

Cranston, RI. June 5, 2002. 73. To Force Feed the Patient with Dementia or Not to Feed: Preferences, Evidence Base, and Regulation.

American Geriatrics Society Annual Meeting, Washington, DC. May 8-12, 2002 74. End of Life Care: A Timeless Model. Roundtable Discussion Duke Institute on Care at the End of Life and

National Hospice and Palliative Care Organization, Washington, DC. May 1, 2002 75. Management of Pain in the Elderly. URI College of Pharmacy 17th Annual Seminar by the Sea, Newport, RI.

March 22, 2002 76. Heart Failure in SUPPORT: Where Now?. British Heart Foundation, London, England. March 8, 2002 77. Living with Care and Dignity. Jewish Ethics Forum at Miriam Hospital. Providence, RI. January 13, 2002. 78. Communication and Advance Care Planning in Amyotrophic Lateral Schlerosis. ALS Symposium, Warwick,

RI. October 28, 2001 79. Meeting the Needs of Long Term Care. The Second Joint Clinical Conference of NHPCO, HPNA, and

AAHPM. Orlando, FL. March 22-26, 2001.

80. Measuring Quality of Care. Guy’s King’s and St. Thomas’ School of Medicine, Kings College, London, England. October 16, 2000.

81. End-of-Life Decision Making: From Whether to When. Royal Netherlands Academy of Arts and Sciences, Amsterdam, the Netherlands. October 7, 1999.

82. End of Life Care: New Guidelines, Research, and Implications for Staffing. National Citizens’ Coalition for Nursing Home Reform, Washington, DC. October 29, 2000.

83. Conducting an Audit of the Quality of Care of the Dying: From Data to Action. American Academy of Hospice and Palliative Medicine, Atlanta, GA. June 29, 2000.

84. Pain Assessment in Nursing Facilities. Rhode Island Association of Facilities and Services for the Aging 9th

Annual Conference and Trade Exhibit, Warwick, RI. February 24, 2000. 85. Measuring Quality of Care for the Dying: Achieving Patient-Centered, Family Focused Outcomes. 19th Annual

Interdisciplinary Meeting and Seminar, Saratoga Springs, NY. September 23-24, 1999. 86. Should There Be an MDS for Hospice and Palliative Care? American Academy of Hospice and Palliative

Medicine. June 24, 1999. 87. A Good Death: Navigating Your Way Through the Health Care System to Get It, Brown University, Staff

Development Day, Providence, RI. June 8, 1999.

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88. Putting Data Into Action. Outcomes Institute, Arlington, VA. May 15, 1999. 89. Putting Advance Care Planning Into Action. Hospice of the Upper Valley, Norwich VT. April 13, 1999. 90. Management of Severe Dyspnea in Dying Patients. National Congress on End of Life Care Institute of Health

Care Improvement. St. Louis, MO. July 29, 1998. 91. Measuring Quality of Care at the End of Life. Faculty Scholars Retreat. Lake Tahoe, CA. July 17, 1998. 92. Conducting an Audit to Improve Care of the Dying and Their Loved Ones: The Toolkit of Instruments to

Measure End of Life Care Project. Workshop presented at the 10th Annual Assembly of the American Academy of Hospice and Palliative Medicine. New Orleans, LA. June 25, 1998.

93. Improving the Quality of Care at the End of Life. Keynote speaker, Delta Upsilon Chapter-at-Large 1998

Mergener Lecture, University of Rhode Island, Kingston, RI. March 26, 1998. 94. What are the Unmet Needs in End of Life Care? Invited presentation to the American Cancer Society Board of

Directors, June 10, 1997. 95. Measuring Quality of Care for Persons Diagnosed with Life Limiting Illness. Invited presentation to the

Agency for Health Care Policy Research, June 9, 1997. 96. Spirituality and Medicine. Workshop presentation at the 20th Annual Meeting of the Society of General Internal

Medicine, May 2, 1997. 97. Quality of Care: Role for Ethics Committees? Invited presentation Kaiser Permante Southern California ethics

committee retreat, April 30, 1997. 98. From the Classroom to Clinical Practice. Invited presentation for Spirituality and Medical Education

Curricular, Development, April 25, 1997. 99. Putting Advance Care Planning Into Action. Invited presentation for the conference “When Cure is Not an

Option”, April 11, 1997. 100. The Dying Experience in George Washington University Health Plan. Grand round for Department of Health

Care Sciences, February 14, 1997. 101. Consumer Reports and Ratings of Medical Care: When Will We Get Satisfaction? Paper presented at the

Annual Meeting of the Gerontological Society of America, Washington, D.C. November 1997. 102. Managed Care at the End of Life: Initial Insights and Suggestions for Reform. Paper presented at Ethics at the

End of Life, Minneapolis, MN. October 1996. 103. Defining and Measuring Outcomes in Dementia—But What About the Family? Paper presented at the

Alzheimer’s Association Conference “Defining and Measuring Outcomes in Alzheimer’s Research: Do We Agree?” Washington, D.C. September 1996.

104. Consumer Reports and Ratings of Medical Care: Will We Ever Get Satisfaction? Invited presentation to the

Institute of Medicine Conference: Evaluating Health Outcomes for Elderly People in a Changing Health Care Marketplace, June 1996.

105. Changing the Culture of Dying in America. Invited presentation at Extreme Care Humane Options (ECHO): A

project of Sacramento Healthcare Decisions, “Seeking Common Ground: Medical Treatment of the Margins of Life,” June 12, 1996.

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106. The SUPPORT Study. Invited presentation at The Susquehanna Health System’s Ethics Symposium, Williamsport, PA. May 31, 1996.

107. Managed Care at the End of Life. Invited presentation at the University of Maryland and American Society of

Law and Medicine conference on Medicare, Medicaid, and Managed Care: A Forum on Corporate Responsibility, Law, Ethics, and Public Policy, April 20, 1996.

108. Time for a New Paradigm in Advance Directives. Invited presentation for the conference: Quinlan 20 Years

Later, Princeton University, Princeton, NJ. April 13, 1996. 109. Putting Advance Care Planning Into Action. Washington Hospital Center Grand Rounds, March 26, 1996. 110. Commentary on AMA Board of Trustee Report on Quality of Care at the End of Life. American Medical

Association, Chicago, IL. November 19, 1995. 111. Sustaining Life: Goals, Gate Keeping, and Resource Allocation. Invited keynote address for the American

Society of Law, Medicine, and Ethics Annual Meeting, Pittsburgh, PA. October 8, 1994. 112. Ethical Dilemmas for the 90's. Invited presentation for the VA National Center for Clinical Ethics Conference,

White River Junction, VT. September 13, 1994. 113. The Mumbo Jumbo of Modern Day Dying. First Annual George B. Davis Lecture, Edwardville, PA. May

1994. 114. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment: Initial Findings and

Description of Intervention. Institute of Medicine Workshop on Dying, Decision Making, and Appropriate Care, Washington, DC. December 2–3, 1993.

115. Choices and conversations: The PSDA's First Year. Pacific Center for Health Policy and Ethics, USC Law

Center, Los Angeles, CA. January 8, 1993. 116. The Patient Self-Determination Act and the Older Individual. Grand rounds for the University of Pennsylvania,

Philadelphia, PA. September 23, 1992. 117. Lesson from SUPPORT: Four Steps to Improving Quality of Care for Dying Patients and Their Families.

Invited keynote address to the 25th Anniversary of Norris Cancer Center, November 19, 1992. 118. Advance Directive Research and Policy After the Patient Self-Determination Act. Symposium presentation for

the 49th annual meeting of the American Geriatric Society, November 1992. 119. Impact of Patient Self-Determination Act: Evaluation of State Efforts to Write Law Descriptions. Plenary

poster presentation at the annual meeting of the American Geriatric Society, Washington, D.C. November 1992.

120. Impact of the Patient Self-Determination Act: State Response to Write Description of State Law. Oral paper

presented at the annual meeting of the Gerontological Society of America, Washington, D.C. November 1992. 121. Advance Directives Among Nursing Home Residents: Report of a National Survey. Oral paper presented at the

annual meeting of the American Geriatric Society, Washington, D.C. November 1992. 122. "Do Not Resuscitate Orders" in Seriously Ill Patients: Expressed Preferences or Last Rites?" Oral paper

presented at the American Federation of Clinical Research Annual Meeting, Baltimore, Md. May 1992. 123. The Future of Advance Directives After the Patient Self-Determination Act. Nesbith Community Hospital,

Forty-fort, PA. April 19, 1992.

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124. The Impact of Age, Disease Severity, Preferences on "Do Not Resuscitate Orders". Oral paper presented at the Society of General Internal Medicine Annual Meeting, Washington, D.C. May 1992.

125. Medical Decision-Making After Cruzan. Provider Council for Community Services, Rockville, MD.

September 1991. 126. Preferences for Life-Sustaining Care of Seriously Ill Functionally Impaired Patients. Oral paper presented at

the Gerontological Society of America's Annual Meeting, San Francisco, CA. November 1991. 127. Impact of Advance Directives on Decision Making. Oral paper presented at the Gerontological Society of

America's Annual Meeting, San Francisco, CA. November 1991. 128. How Do the Elderly Perceive the Risks and Benefits of Antihypertensive Medication? Poster presentation at the

Society for Medical Decision-Making Annual Meeting, Rochester, NY. October 1991. 129. The Use of Standardized Measures of Functional Status and Well-Being Among Cognitively Impaired and

Intact Elders: Results from the Medical Outcomes Study. Oral paper presented at the Gerontological Society of America's Annual Meeting, Boston, MA. November 1990.

130. Does a Computerized Balance Platform Validly and Reliably Measure Balance in a Manner Acceptable to

Older Persons? Poster presented at American Geriatric Society Annual Meeting, Atlanta, GA. May 1990. 131. Gait Speed and Computerized Balance Measurements Among Subjects With and Without Fear of Falling.

Poster presented at American Geriatric Society Annual Meeting, Atlanta, GA. May 1990. 132. Fear of Falling: Prevalence, Characteristics, and Social Participation. Oral paper presented at the

Gerontological Society of America's Annual Meeting, Minneapolis, MN. November 1989. 133. Patients' Preferences for Active Treatment and Locus of Care. Poster presented at Fifth International

Conference on AIDS, Montreal, Quebec, Canada. June 1989. 134. A Prospective Study of Risk Factors for Falls and Outcomes of Falls and Stumbles in Community-Dwelling

Elderly. Poster presented at the American Geriatrics Society Annual Meeting, Boston, MA. May 1989. 135. The Use of Prior Directives Among Patients with AIDS. Abstract presented at the Annual Meeting of the

Society of General Internal Medicine, Washington, D.C. April 1989. 136. So You Want to Teach Geriatrics: Defining Goals and Identifying Needed Resources. Workshop presented at

Annual Meeting of the Society of General Internal Medicine, Washington, D.C. April 1989 MEDIA PRESENTATIONS: 1. Not Your Classroom. Interview on Brown Student Radio on work on hospice care and pain medication,

October 17, 2005. 2. Means to a Better End: A Report on Dying in America Today. Live radio interview on Wisconsin Public

Radio’s Hour-Long Call-In Show, November 21, 2002.

3. Means to a Better End: A Report on Dying in America Today. Last Acts News Conference Release from the Mayflower Hotel in Washington, DC, November 18, 2002.

4. Not Just a Failing Heart. Video produced by Patricia Barey and Therese Burson. This is a 20 minute video presentation is based on the research conducted by Dr. Teno's conceptual model of patient focused, family centered medical care. Dr. Teno served as the technical advisor to the video. 2001.

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5. Persistent Pain in Nursing Homes. Live radio interview The Connection, a broadcast of National Public Radio affiliate WRNI, Providence, RI, April 25, 2001.

6. Hospice Care. Live radio interview Dame Cicely Saunders on One Union Station, a broadcast of National Public Radio affiliate WRNI, Providence, RI, April 19, 2001.

7. Towards a Tolerable Death. Live radio interview for WPRO, Providence, RI, September 21, 2000. 8. Forever Young: Advance Directives. Live television interview for the Today Show, NBC News, New York,

NY, April 13, 1997 9. Research Findings Regarding Advance Directives. Radio interview on All Things Considered, National Public

Radio, April 7, 1997. 10. Commentary on Final Exit. Live television interview on Fox Morning News, Washington, DC, May, 1990. GRANTS AWARDED AND COMPLETED: 1. Hospices Organized to Promote Excellence (HOPE). American Cancer Society, $60,000. Current. Principal

Investigator. 2. Shaping Long Term Care in America. DHHS. $1,286,694. Current. Investigator. 3. Causes and Consequences of Health Care Efficiency. Subcontract with Dartmouth, $32,701. Current.

Principal Investigator. 4. Development of the Patient Evaluation of Hospice and Palliative Care Measure. RRF/NHF, $28,774. Current.

Principal Investigator. 5. Cancer Assessments and Reports of End-of-Life Treatment. NIH/NCI, $390,102. Current. Principal

Investigator. 6. The CASCADE Study: End-of-Life in Advanced Dementia. Subcontract with HRCA, $23,583. Current.

Principal Investigator. 7. The ADEPT Study: Estimating Prognosis in Advanced Dementia. Subcontract with HRCA, $$75,832.

Current. Investigator. 8. Feeding Tube Use Among Persons with Advanced Dementia. DHHS, $408,909. Current. Principal

Investigator. 9. Evaluation of the “Reducing Potentially Preventable Transfers at End of Life” Project. California Healthcare

Foundation. $130,000. Current. Principal Investigator. 10. Evaluation of Data Linkage Methodology to Improve Estimates of Elder Mistreatment. DHHS. $118,581.

Current. Investigator. 11. Transdisciplinary Cancer Control Research Training Grant. Subcontract with Miriam Hospital, $26,826.

Current. Investigator. 12. Multifaceted Interventions to Ameliorate Pain/Symptoms. DHHS/NIH, $120,000. September 15, 2004 – May

31, 2009. Principal Investigator. 13. Improving Hospice Care for Dementia. Subcontract with HRCA to Alzheimer’s Association, $32,969.

November 1, 2005 – October 31, 2007. Principal Investigator.

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14. Intelligent and Practical Geriatric Prescribing Systems. DHHS/Carelink. July 2006 – January 2007. Principal

Investigator. 15. Web Based Resources to Aide Nursing Homes in Improving Pain Management. Mayday, $71,133. January

2005 – December 2006. Principal Investigator. 16. Academic Partner to Support National Commission for Quality Long Term Care. The National Quality Forum

(NQF), $129,186. February 2005 – February 2006. Co-Principal Investigator. 17. Best Practices for Nursing Home End-of-Life Care. Robert Wood Johnson Foundation, $182,771. December

2003 – November 2005. Co-Principal Investigator. 18. Improving Nursing Home Culture: Two Pronged Pilot Special Study. Subcontract with Rhode Island Quality

Partners, $36,056. June 2004 – October 2005. Principal Investigator. 19. National Survey on Rationing of Medical Therapies in Intensive Care Units. Rhode Island Hospital, $. July

2003 – June 2004. Principal Investigator. 20. Place of Care in and Site of Death: A Cross National Study Comparing USA to Japan. Sasakawa Health

Science Foundation, $20,000. April 2003 – February 2004. Principal Investigator. 21. Pain Expert Advice. Subcontract with Rhode Island Quality Partners, $57,749. April 2003 – December 2004.

Principal Investigator. 22. Proxy Expert Advice. NCI, $38,942. September 2002 – June 2003. Principal Investigator.

23. World Wide Web Interface and Further Refinement for the Toolkit of Instruments. Robert Wood Johnson

Foundation, $328,597. April 2001 – March 2004. Principal Investigator.

24. Residential Assessment of Pain Management. Agency for Healthcare Research and Quality, $727,800. September 2000 – August 2003. Principal Investigator.

25. National, State and Local Indicators of End-of-Life Care. Robert Wood Johnson Foundation, $2,000,000. October 1999 – September 2004. Principal Investigator.

26. Auditing Pain Management Among Palliative and Pain Management Services. Mayday Fund, $42,363. .

January 2003 – June 30, 2003, Principal Investigator. 27. Improving Quality of Care of our Most Vulnerable Population: Community-State Partnerships to Improve End

of Life Care. Robert Wood Johnson Foundation, $380,000. February 2000 – January 2003. Principal Investigator.

28. Tracking Changes in EOL Care: Charting Our Way. Robert Wood Johnson Foundation, $53,580. April 2002 –

December 2002. Principal Investigator. 29. End of Life Issues in Nursing Homes. AARP, $50,000. July 2002 – December 2002. Co-Principal

Investigator. 30. Comparison of the U.K. versus U.S. Dying Experience. Commonwealth Fund, $24,900. July 2000 – June

2002. Principal Investigator.

31. Measuring Quality of Care and Quality of Life for Dying Persons and Their Families. Robert Wood Johnson Foundation, $200,000. February 2000 - January 2001. Principal Investigator

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32. Creating a Toolkit of Instruments to Measure End of Life Care, Robert Wood Johnson Foundation, $498,000. July 1998 – June 2000. Principal Investigator.

33. Nurses’ Voice: Caring for the Seriously Ill. Robert Wood Johnson Foundation, $180,000. (Co-principal

Investigator). 34. Hospice in Nursing Homes An Empirical Examination of its Scope and Quality Outcomes. Retirement

Research Foundation, $350,000. January 1998 – June 2000. Co-investigator. 35. Development and Validation of Measures and indicators in Post-Acute and Long Term Care Settings (HCFA

500-95-0062) HCFA/Sub from Abt Associates. October 1998 – September 2003. Investigator. 36. Multimethod Research to Understand the Experience of Dying in Seriously Ill Adults, Project on Death in

America, $100,000. (Co-principal Investigator). April 1998 - July 1999. 37. Improving Quality of Care for Our Most Vulnerable Populations. Robert Wood Johnson Foundation, $380,161.

(Principal Investigator). January 1999 – June 1999. 38. Understanding Regional Variation in ICU Use: Perspectives from Medicare National Claims Data and the

SUPPORT Narrative and Quantitative Database. Robert Wood Johnson Foundation, $244,985. (Principal Investigator). September 1997 – August 2000.

39. Excellent Care at the End of Life: Fast-Tracking Audits, Standards, and Teamwork, Robert Wood Johnson

Foundation, $60,000. Ended March 1998. (Principal Investigator). 40. Resource Use in Seriously Ill Medicare Patients. Funded by the Agency for Health Care Policy and Research

(AHCPR). AHCPR is part of the Public Health Services similar to the National Institute of Health, $420,757. Ended 1998. (Principal Investigator).

41. Advance Care Planning for Improved Care at the End of Life in Managed Care. Funded by the Open Society

Institute, Project on Death in America, $118,732. Ended July 1997. (Principal Investigator). 42. Establishing a Consensus on a “Toolkit” for Measuring Quality of Care at the End of Life. Funded by Robert

Wood Johnson Foundation, $ 50,924. Ended July 1997. (Principal Investigator). 43. Establishing a Consensus on a “Toolkit” for Measuring Quality of Care at the End of Life. Funded by Nathan

Cummings Foundation, $ 55,893. Ended July 1997. (Principal Investigator). 44. Integrating Faith and Medicine Throughout Medical School Training: An Integrated Curriculum. Funded by

John Templeton Foundation, $10,000. Ended July 1997. (Co-principal Investigator). 45. Hospitalized Elderly Longitudinal Project. Funded by the Robert Wood Johnson Foundation, December, 1992–

March, 1996, $900,000 (Co-principal Investigator). 46. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments, 1990–1996,

$28,000,000. (Investigator at the National Coordinating Center). 47. Advance Directives: Effectiveness of Mandatory Notice. Funded by Agency for Health Care Research and

Policy (AHCPR), 1991–1994, $325,000. AHCPR is part of the Public Health Services similar to the National Institute of Health, (Co-principal Investigator).

48. Advance Directives: Conference on Research Methods and Priorities. Funded by Agency for Health Care

Research and Policy (AHCPR), $42,000, 1993–1994. AHCPR is part of the Public Health Services similar to the National Institute of Health (Principal Investigator).

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49. Advance Directives: Conference on Research Methods and Priorities. Funded by the Greenwall Foundation, $37,000, 1993–1994. (Principal Investigator).

50. Advance Directives: Conference on Research Methods and Priorities. Funded by the Kornfeld Foundation,

1993–1994, $25,000. (Principal Investigator). 51. A Project to Evaluate and Improve State Articulation of Law Regarding Medical Decision-Making under the

Patient Self Determination Act. Funded by Retirement Research Foundation, 1991–1992, $25,000. (Co-principal Investigator).

52. Empirical Testing of a Model for Medical Decision-Making. BRSG research proposal 1991–1992, $10,000.

(Principal Investigator). UNIVERSITY TEACHING ROLES: Undergraduate Education: 1. “Advance Care Planning”. Lecture to Brown University Undergraduates, March 14, 2007. 2. “Advanced Directives and End of Life Care.” Lecture to Brown Learning in Retirement Seminar on Aging,

October 25, 2006. 3. “Bearing Witness to Cancer”. Lecture to Brown University Undergraduates, April 3, 2003, April 20, 2004,

April 14, 2005, April 13, 2006, April 12, 2007. Graduate Education: 1. “Legal Rights to Withdraw and Withhold Life Sustaining Treatment”. Lecture to the George Washington Law

School, Spring, 1996. 4. “Public Policy and Advance Directives”. Lecture to the George Washington University Master of Public Health

Program, Spring, 1996. 5. Survey Research Methods and Health Status Assessment. Course developed and co-taught with Dr. Floyd

Fowler for Dartmouth Medical School Master of Science in the Evaluative Clinical Sciences, Winter term, 1995.

Medical School Education: 1. Community Health Clerkship on Hospice and Palliative Medicine, 2002 to present. 2. Public Health from Bedside to Public Policy. Course Leader, Spring 1998 and 1999. 3. Death and Dying. Course leader, Brown University Medical School, 1997 -1998 4. Integrating Faith and Medicine. With colleagues, I developed a four-year curriculum to integrate faith and

palliative care medicine into the George Washington University Medical School, 1996 to 1997. This curriculum received a prize from the John Templeton Foundation.

5. Epidemiology and Medicine. Small group leader, Dartmouth Medical School, Spring term, 1995. 6. The Public Policy Debate Over Physician Assisted Suicide. Lecture to George Washington University Medical

School, Spring, 1991. Residency and Fellow Education:

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1. Course leader for Evidence Base Medicine and the Use of Continuous Quality Improvement, 2001 to present. 2. Coordinator, Research and Hospice Month, Geriatric Fellows, 2001 to present. 3. Faculty Promotion at Brown: All You Need to Know. Faculty Development Workshop, Brown Medical

School, April 2, 2003. 4. “Planning for a Career in Academic Medicine”. Lecture to geriatrics fellows, Spring 1995 – present. 5. The George Washington University primary care residency program curriculum in geriatric medicine.

Designed and coordinated curriculum, 1990 to 1992. 6. “Putting Advance Care Planning Into Action”. Lecture for primary care residents, George Washington

University, 1992. 7. Teaching Faculty, Primary Care Internal Medicine Residency Training Program, Rhode Island Hospital, 1987 to

1990. In this position, I prepared weekly lectures on a variety of topics in general internal medicine, geriatrics, and medical ethics.

8. Medical Ethics for Primary Care Residents. Faculty coordinator for this 3 year course, which provided

residents with both the cognitive and behavior skills to address common ethical issues in medicine. This curriculum was recognized by the American Board of Internal Medicine as an exemplary curriculum in medical ethics. I developed core lectures, prepared the course syllabus, and co-taught medical ethics seminars. 1986 to 1990.

HOSPITAL, NURSING HOME, AND HOSPICE TEACHING ROLES: 1. Pulmonary Research Seminar presentation “Dementia as a Terminal Diagnosis” at Rhode Island Hospital,

December 11, 2006. 2. Teno JM. Pain 101. Family Support Meeting at Steere House, Providence, RI, October 17, 2006. 3. 2006 Geriatrics Update, Medical Grand Rounds presentation “Dementia as a Terminal Diagnosis” at Rhode

Island Hospital, July 18, 2006. 4. Cancer Grand Rounds presentation “The Role of the Nursing Home in Care of Cancer Patients” to the Division

of Medical Oncology/Hematology at Rhode Island Hospital and Miriam Hospital, April 17, 2003. 5. Preceptor for medical students and residents at Steere House Nursing & Rehabilitation Center and Hospice Care

of Rhode Island, 1998 to 2002. 6. Grand Rounds presentations to the Department of Health Care Sciences and Medicine 1995-1997 on Advance

Care Planning, Quality of Care Measurement, and Pain Management. 7. Preceptor for geriatrics fellows on the inpatient service and outpatient geriatric assessment team, George

Washington University, 1990 to 92 and 1995 to 1997. 8. Teaching general medical attending, White River Junction, VT, 1994. 9. Teaching general internal medicine attending, Rhode Island Hospital, 1985 to 1987.

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