cyberNephrology & Internet ResourcescyberNephrology & Internet Resources

Michele L. Hales

University of Alberta

Edmonton, AB CANADA

Mexican Congress of Transplantation Mexican Congress of Transplantation

October 15, 2002October 15, 2002 Guadalajara, MexicoGuadalajara, Mexico

Presented atPresented at

Source: http://www.isc.org/

Host Count Graph 1991 – 2002 Host Count Graph 1991 – 2002 (From July 2002)(From July 2002)

Internet Users WorldwideInternet Users Worldwide

Source: http://www.nua.ie

2002 2000

World Total 580.78 million 377.65 million

Africa 6.31 million 3.11 million

Asia/Pacific 167.86 million 89.68 million

Europe 185.83 million 105.89 million

Middle East 5.12 million 2.40 million

Canada & USA 182.67 million 161.31 million

Latin America 32.99 million 15.26 million

May 2002 Nua Internet Surveys

Daily E-mail OutputDaily E-mail Output

Globally-31 billion e-mails sent daily in 2002>60 billion e-mails estimated to be

sent every day by 2006

Source: Sep. 26, 2002 IDC Research

Statistics Specific to MexicoStatistics Specific to Mexico

The number of Internet users in Latin America will reach 29.6 million by the end of 2003

Mexico accounts for 21 percent of these users

according to IDC (www.idc.com)

source: Global Reach  http://www.glreach.com/globstats/index.php3

A Brief History of cyberNephrologyA Brief History of cyberNephrology

Created in summer of 1997 Mission is to:

- bring cutting-edge electronic communication technology to nephrology professionals and patients worldwide, and to provide the technological support to all of the NKF's educational programs.

cyberNephrology’s Key ResourcescyberNephrology’s Key Resources

Nephrol (and all the offshoot groups)

Schrier’s Atlas of Diseases of the Kidney (to be distributed free to developing countries)

RenalTech

cyberNéphrologie site

NEPHROLNEPHROL

Created in October 1994

1st year membership was 355

Began as a moderated group

Legal problems/risk minimal

Birth to various offshoot groups

NEPH…NEPH… E-mail Discussion GroupsE-mail Discussion Groups

Patient E-mail Discussion GroupsPatient E-mail Discussion Groups

NEPHKIDS – for parents with children with renal disease

KIDNEYDISEASE – for adult children with renal disease

IGAN – IgA nephropathy

NEPHROL StatisticsNEPHROL Statistics

Membership Total: 1474 Average Total Posts per Week:

38(Approx. 5.4 posts per day)

Recent Top 5 Topics:1)IgA Pregnancy.2)High Ca PO4 product, low PTH.3)Secondary hyperparathyroidism.4)Dialysis frequency of HIV testing.5)Transplantation after colorectal carcinoma

as of Oct. 11, 2002

An Internet discussion group like NEPHROL is at its best when debating important questions in the field of nephrology, the answers to which cannot be found in existing journals or books, and discussing uniquely challenging patients, with the ability to instantly consult 1500 nephrology professionals.

NEPHROL in GeneralNEPHROL in General

Subscription To Our GroupsSubscription To Our Groups

To subscribe to NEPHROL or any of the other groups send e-mail to:

majordomo@ualberta.ca

with the message:subscribe nephrolsubscribe nephdevel etc.

http://www.kidneyatlas.org

Schrier’sSchrier’s

Renal-Tech Donation ProjectRenal-Tech Donation Project

Established by Zina Munoz to provide for computer education and linkage in developing countries

Cooperative program with the ISN Donate computer hardware and

software Provide computer/Internet training

to renal units in developing countries as well as to families of children with renal disease in the US

http://www.renal-tech.org

Pilot Program in Nepal - June, 1998Pilot Program in Nepal - June, 1998

In June of 1998, the Renal-Tech Project initiated its first on-site pilot program.

Eight computers, six laptops and two desktop units were donated to three hospitals in the greater Kathmandu area

The computers were donated by Toshiba Corporation of Japan, Compaq Corporation, and Lucky Computers.

Members on the team participated in various functions

- medical lectures

- lectures on internet’s use in medical settings

- training and demonstration of equipment

Renal-Tech Donations To DateRenal-Tech Donations To Date

Nepal (June 1998

& June 2002) Nigeria Cuba (Spring 1999) Argentina Kosovo (December 1999, May 2000 &

September 2002)

Renal-Tech’s MainRenal-Tech’s Main GoalGoal

To expand communication between Renal-Tech and the recipients so that there remains a sharing of knowledge and information to benefit the worldwide community of renal patients.

Addressing Language DifferencesAddressing Language Differences

http://www.nephrologie.org

Additional Programs of InterestAdditional Programs of Interest

Educational/Teaching Resources

- ISN Video Legacy CD-ROM- Banff Allograft Pathology Conference WWW site content placed on CD-ROM

- Educational Slides on Renal Parenchymal Diseases and Hypertension

K/DOQI Clinical Practice Guidelines

USRDS

HDCN

ISN Video Legacy ProjectISN Video Legacy Project

This project is headed by Drs. Stewart Cameron and Kim Solez

Twenty- three interviews with nephrologists of exceptional merit, have  been recorded to date

The first CD-ROM came out in 1997 5000 copies were made and distributed in North

America and Europe A new CD is currently in the works and should be

available later this year The Commission attempts to include both

Bibliography and CV in the CDs

Banff ConferenceBanff Conference on Allograft Pathologyon Allograft Pathology

CD-ROMS Produced: Third Banff Conference (1995) Fourth Banff Conference (1997) Fifth Banff Conference (1999) Seventh Banff Conference (2003, in the works)

Features: More than 400 full colour images Many of the presentations are accompanied by a full-text

abstract Full text search capabilities Links to World Wide Web Conference video segments Easy to use interface

www.kidney.orgwww.kidney.org

www.usrds.orgwww.usrds.org

www.hdcn.comwww.hdcn.com

Renal EducationRenal Education

Through the Internet, physicians can quickly consult experts anywhere in the world about local problems.

Part of the Renal-Tech mandate is to provide continued support for physicians and support personnel about dialysis, transplant issues and general nephrology or computer queries

CD-ROMs can be easily created and sent to developing countries

Keeping Physicians Updated:

Food for ThoughtFood for Thought

78% of physicians regularly use the Internet ⅔ of these physicians web daily; ↑ of 24% since 1997 Primary use of the Internet by physicians:

- claims processing (83%)- medical research information (74%)- CME for physicians (64%)- legal & regulatory updates/compliance information (53%)- patient scheduling (60%)- coding (58%)

2001 65% of physicians >60 years using Internet; ↑ of 50% since 2000

Source: 2002 AMA Study on Physicians’ Use of the WWW

AMA Study: Web Site DevelopmentAMA Study: Web Site Development

2000 2001

Obstetrics/Gynecology 32% 44%

Surgery 43% 42%

Pediatrics 36% 39%

Family Practice 29% 36%

Internal Medicine 20% 30%

Anesthesiology 10% 17%

Radiology 16% 13%

Psychiatry 9% 12%

Other 23% 23%Source: 2002 AMA Study on Physicians’ Use of the WWW

cyberNephrology’s Future GoalscyberNephrology’s Future Goals

Link all world countries together through a global nephrology e-mail system

Create an educational program that can either be transported to developing countries through the Internet or CD-ROM

Grow the Renal-Tech project

Create more on-line resource textbooks

Create viable projects that utilize IP based Videoconferencing to link participating institutions for the purpose of developing and exchanging knowledge in health, education and teaching

““If we cannot ensure that this global If we cannot ensure that this global revolution creates a world-wide revolution creates a world-wide information society in which everyone information society in which everyone has a stake and can play a part, then it has a stake and can play a part, then it will not have been a revolution at all.will not have been a revolution at all. ””

-- Nelson Mandela-- Nelson Mandela

FOR MORE INFO...

Michele.Hales@UAlberta.CA