d ying w hile b lack b alancing p atient – f amily r elations cheryl patrice derricotte adec 37 th...
TRANSCRIPT
DYING WHILE BLACKBALANCING PATIENT – FAMILY RELATIONS
Cheryl Patrice DerricotteADEC 37th Annual Conference, 4/11/15
Issue Lens:
• Immediate challenges w/terminal diagnosis;• Tools to share info with family & friends;• In-Home Support; • Difficult Topics;• Money Matters;• Affordable Document Prep, and• Culturally Competent Support.
Today’s Presentation Will:
• Identify generational differences that influence comfort levels in sharing health information;
• Analyze class and financial issues that may impact decision-making by terminally ill patients and caregivers;
• Summarize traditional burial rituals of Black Americans and,
• Reflect on cultural nuances to help us all be better caregivers, advocates and support professionals.
Resources
• National Cancer Institutehttp://progressreport.cancer.gov/introduction
• American Cancer Society (See 2013-14) http://www.cancer.org/research/cancerfactsstatistics/cancer-facts-figures-for-african-americans
Stay in Touch!
Cheryl Patrice Derricotte, Founder & Editor-in-Chief 30 Minute Managerhttp://[email protected]/30minutemanagerwww.twitter.com/30minutemanager
3rd Thurs of the Month “Ask Cheryl” (Noon PST)Free 30-minute Q & A on Legacy Planning http://www.30minutemanager.com/consultations/
BONUS! Post-Conference Notes
• Balancing relationships and privacy will need to be revisited as the patient’s illness progresses.
• Black patients who are old enough to have lived through segregation, may be more comfortable with Black professionals.
• Advocating for palliative care support immediately upon diagnosis will help the patient’s quality of life.
• Suggest that families use services like Freeconferencecall.com to update people in groups.
BONUS! Notes (Con’t)
• Social workers can also help families get counseling and therapy services to deal with things that fall into the categories of “secrets and shame.”
• We can all also help communicate that Medicaid is not a failure when you have been a working class person your whole life, but rather a strategy and a life support in the face of hundreds of thousands of dollars in hospital bills.
• Getting legal support to Black families is also critically important. RocketLawyer.com offers one free document to everyone.
• Be attuned to generational nuances in family structures.
Bonus! Notes (Con’t) Black Death Rituals• A traditional Black death ritual is Christian and has
four parts: • The wake. (The viewing of the body).• The funeral. (Service held at a church or the chapel
at the funeral home). • The interment. (The graveside service).• The repast. (The meal after the graveside service, at
the church or someone’s home).
AppendixCorresponding Book Chapters
• Coping with a terminal diagnosis (Chapter 1—Doctor Visits)• Mechanisms to share information with extended family and friends
(Chapter 11—Family & Friends)• Getting in-home support (Chapter 9 – Professional Help; Chapter 15-
Palliative Care)• Difficult topics (Chapter 13—Family Secrets)• The unexpected costs of terminal illness (Chapter 8 –Income & Health
Insurance; Chapters 18-20: Funeral,Cemetery & Cremation Costs).• Estate preparation tools (Chapters 4-7: Advance Directives, Power of
Attorney, Wills, &Trusts)• From my book: Being The Grown-Up, Taking Care of Someone With a
Terminal Illness (2013), ISBN 978-0989480307