d9.5 final plan for the dissemination and use of project ... 288408... · d1.2 collated chronic...

Semantic Interoperability for Health Network

Deliverable 9.5 Final plan for the dissemination and use of project results

[Version 1.0, May 29, 2015]

Call: FP7-ICT-2011-7 Grant agreement for: Network of Excellence (NoE) Project acronym: SemanticHealthNet Project full title: Semantic Interoperability for Health Network Grant agreement no.: 288408 Budget: 3.222.380 EURO Funding: 2.945.364 EURO Start: 01.12.2011 - End: 31.05.2015 Website: www.semantichealthnet.eu Coordinators:

The SemanticHealthNet project is partially funded by the European Commission.

SemanticHealthNet

D9.5 Final plan for the dissemination and use of project results of 31

Document description

Deliverable: D9.5 Final plan for the dissemination and use of project results Publishable summary:

Deliverable 9.5 describes the method for the dissemination and use of the SemanticHealthNet project results after the project life-time (May 2015). First section of this deliverable lists the results while the second section describes the dissemination channels and media being used. The final section deals with the exploitation.

Status: Final Version: 1.0 Public: □ No Yes Deadline: May 31 2015 Contact: Geert Thienpont [email protected] Editors: Geert Thienpont [email protected]

Dipak Kalra [email protected] Inge Lamote [email protected]

SemanticHealthNet


1 Table of Contents

1 Table of Contents ............................................................................................................................ 3

2 Introduction ..................................................................................................................................... 4

2.1 The SemanticHealthNet Project .............................................................................................. 4

2.2 Executive Summary of the Deliverable ................................................................................... 5

3 Project Results ................................................................................................................................. 6

3.1 Deliverables ............................................................................................................................. 6

3.2 Publications, Conference Presentations ................................................................................. 7

3.3 SHN Videos ............................................................................................................................ 22

3.4 i~HD ....................................................................................................................................... 23

4 Plan for dissemination ................................................................................................................... 24

4.1 Communication Matrix .......................................................................................................... 24

4.2 Website and social media...................................................................................................... 27

4.3 Events and partners’ networks.............................................................................................. 28

5 Exploitation of results .................................................................................................................... 29

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2 Introduction

2.1 The SemanticHealthNet Project

Semantic interoperability of EHR systems is a vital prerequisite for enabling patient-centred care and

advanced clinical and biomedical research. SemanticHealthNet will develop a scalable and

sustainable pan-European organisational and governance process to achieve this objective across

healthcare systems and institutions.

A clinical focus on chronic heart failure and cardiovascular prevention in the workplan will drive the

semantic resources to be developed. The exemplars in cardiology and public health are specific

enough to permit comprehensive development and validation of these resources, and yet typical

enough for wider generalisation of the methodology and its governance. SemanticHealthNet will

capture the needs articulated by clinicians and public health experts for evidence-based, patient-

centred integrated care in these domains. Existing European consensus in the management of

chronic heart failure and cardiovascular prevention will then be integrated in EHR architectures,

clinical data structures, terminologies and ontology by leading technical experts.

Clinical and Industrial Advisory Boards will provide links with other domains in which these results

can be used beneficially. The project will investigate how best to combine and adapt informatics

resources to support semantic interoperability, and how these can be developed and supported at

scale. Results of this investigation will be generalised and formalised. The involvement of health

authorities, clinical professionals, insurers, ministries of health, vendors, and purchasers will ensure

that the project approach and results are realistically adoptable and viable. This work will also build

on the SemanticHEALTH and CALLIOPE roadmaps for eHealth interoperability.

A business model to justify strategic investments, including the opportunity costs for key

stakeholders such as Standards Development Organisations and industry, will be defined. Links with

the epSOS large scale pilot and the eHealth Governance Initiative, will inform the shape of the Virtual

Organisation that this Network will establish to sustain semantic interoperability developments and

their adoption.

The consortium comprises 17 Partners and more than 40 internationally recognised experts,

including from USA and Canada, ensuring a global impact.

Partners

1. Research in Advanced Medical Informatics and Telematics

(RAMIT) – BE (Admin Coordinator)

2. Imperial College London (Imperial) – UK

3. University of Hull (UHULL) – UK

4. University Hospitals of Geneva (HUG) – CH

5. World Health Organization (WHO) – CH

6. The University of Manchester (UoM) – UK

7. Medical University of Graz (MUG) – AT

8. International Health Terminology Standards Development Organisation (IHTSDO) – DK

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9. Institut National de la Santé et la Recherche Médicale (INSERM) – FR

10. Ocean Informatics (Ocean) – UK

11. Health Level 7 International Foundation (HL7 International) – BE

12. EN13606 Association (EN13606) – NL

13. Empirica Gesellschaft für Kommunikations- und Technologieforschung mbH (EMPIRICA) – DE

14. European Coordination Committee of the Radiological, Electromedical and Healthcare IT

Industry (COCIR) – BE

15. Whittington NHS Trust (WHIT) – UK

16. European Institute for Health Records (EuroRec) – FR (NoE Coordinator)

17. Data Mining International (DMI) - CH

Project Plan

Workstream I:

WP1: Patient care exemplar (heart failure)

WP2: Public health exemplar (coronary prevention)

WP3: Stakeholder validation

Workstream II:

WP4: Harmonised resources

WP5: Infostructure and tools

WP6: Industrial engagement

Workstream III:

WP7: Adoption and sustainability

WP8: European Virtual Organisation

WP9: Project management, dissemination, promotion

2.2 Executive Summary of the Deliverable

Deliverable D9.5 describes the plan for how the project consortium will disseminate and promote the

project results after the project life-time (May 2015). This activity also includes the public awareness

of the importance of the Semantic Interoperability of EHR systems.

In the first section, the deliverable focuses on the publishable projects results, while the second

section describes the methods to be applied for dissemination and exploitation.

The consortium will make use of the network(s) of stakeholders that have been enlarged and

strengthened during the project.

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3 Project Results

3.1 Deliverables

No Title WP Deadline

D1.1 Specification of scenarios and information flows for chronic heart failure WP1 May 2012 PU

D1.2 Collated chronic heart failure data sets, value sets and guidelines WP1 Nov 2012 PU

D1.3 Evaluation framework for semantically interoperable resources WP1 Feb 2014 PU

D2.1 Summarising Health Records for Populations Cardiovascular Use-cases WP2 Nov 2012 PU

D2.2 Review of semantic resources for supporting cardiovascular prevention across PHRs and EHRs WP2 Feb 2014 PU

D3.1 Initial methodology for developing semantic interoperability resources WP3 Nov 2012 PU

D3.2 Generalised methodology and analysis framework for semantic interoperability resources WP3 Feb 2014 PU

D3.3 Clinical stakeholders report on adoption and acceptance strategies WP3 Oct 2014 PU

D4.1 Initial models covering the heart failure use case WP4 Nov 2012 RE

D4.2 Ontology / Information models covering the heart failure use case WP4 May 2013 RE

D4.3 Ontology / Information models covering the public health use cases WP4 Feb 2014 RE

D4.4 Report on interface specifications between semantic artefacts WP4 Oct 2014 PU

D4.5 Publication of design guides / roadmap WP4 May 2015 PU

D5.1 Quality criteria & proposals for certification FW for semantically interoperable resources & systems WP5 Feb 2014 PU

D5.2 Design for a semantic interoperability infostructure and roadmap for its delivery WP5 Oct 2014 PU

D6.1 Recommendations to industry and to health ministries on the scaling up and widespread deployment ... WP6 Oct 2014 PU

D7.1 Identification of stakeholders WP7 Aug 2012 PU

D7.2 Analysis of stakeholder group value propositions and adoption strategies WP7 Feb 2014 PU

D7.3 Business models underpinning adoption & sustainability strategies WP7 Oct 2014 PU

D8.1 Business plan and roadmap WP8 May 2015 PU

D9.1 Project Website WP9 Jan 2012 PU

D9.2 Dissemination and promotion plan WP9 May 2012 PU

D9.3 Periodic Progress Report including financial report WP9 April 2014 PU

D9.4 Final Project Report including financial report WP9 May 2015 PU

D9.5 Final plan for the dissemination and use of project results WP9 May 2015 PU

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3.2 Publications, Conference Presentations

First Reporting Period

List of Dissemination activities

29 November 2011

Title: SemanticHealthNet

Event: Clinical Information Modelling Initiative workshop, London

Contributor: Dipak Kalra

Audience: international informatics experts

13 December 2011

Title: EHR Interoperability and ISO EN 13606

Event: Ministry of Health workshop, Singapore


Audience: Singaporean informatics experts

15 December 2011

Title: ISO EN 13606 and archetypes

Event: HL7 Singapore workshop, Singapore


Audience: Singaporean informatics experts and industry

24 January 2012

Title: Towards global standards for EHRs -for shared care and clinical research

Event: Intelligent use of national mental health data sets to drive improvements in quality of

care: A UCL Partners expert workshop, London


Audience: London clinicians and CIOs

16 February 2012

Title: Improving ISO EN 13606

Event: EN 13606 Association annual conference, Seville, Spain


Audience: European informatics experts and industry

17 February 2012

Title: ISO EN 13606 and Data Types

Event: EN 13606 Association annual conference, Seville, Spain


Audience: European informatics experts and industry

28 February 2012

Title: Promoting the use of high quality EHR systems in Europe

Event: EMBL-EBI Industry Workshop on the growing role of Electronic Medical Records in

translational bioinformatics, Cambridge, UK

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Audience: European bio-informatics experts and industry

7 May 2012

Title: Sustainable infostructure for semantic assets

Event: EU-US Cooperation on eHealth, Copenhagen, Denmark


Audience: European health informatics experts, clinicians, industry, academics

8 May 2012

Title: A multi-stakeholder view of the Semantic Interoperability Challenge

Event: World of Health IT conference 2012, Copenhagen, Denmark



9 May 2012

Title: Towards semantic interoperability solutions

Event: EC eHealth workshop on “When the patient goes abroad”, Copenhagen, Denmark



27 August 2012

Title: Trusting Clinical Information

Event: Medical Informatics Europe conference, Pisa, Italy


Audience: European health informatics experts, academics

28 August 2012

Title: Data quality challenges

Event: Medical Informatics Europe conference, Pisa, Italy


Audience: European health informatics experts, academics

18 September 2012

Title: The cross border interoperability of EHRs in Europe

Event: HIMSS Asia Pacific conference, Singapore


Audience: Asian, Australian, US health informatics experts, clinicians, industry, academics

5 October 2012

Title: ICT in Healthcare by 2050

Event: 15th European Health Forum Gastein, Bad Hofgastein, Salzburg, Austria


Audience: European health policy makers and other decision makers

15 January 2013

Title: Standardising the representation of clinical information: for patient care and for

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research

Event: Symposium - Mining electronic health records: towards better research applications

and clinical care, London, UK


Audience: London academics and clinicians

Type of activity: Discussion

Title: Data Stewardship Consensus Meeting

Date(s): 16th January 2012

Target Audience: Peers in field

Authors/presenters: Iain Buchan (UoM)

City, Country: Brussels, Belgium

Description: Discussion at the Data Stewardship Consensus Meeting Steering Committee

relating to Semantic interoperability

Type of activity: Presentation: Plenary Session

Title: Why doing nothing is not an option

Date(s):14-15th May 2012

Target Audience: European healthcare leaders from academia, public health, industry, users,

and government.

Author/presenters: Iain Buchan (UoM)

City, Country: Brussels, Belgium

Description: Presentation of Health Data Re-use

Type of activity: Conference Talk

Title: COCPIT: A Tool for Integrated Care Pathway Variance Analysis

Date(s): August 27th 2012

Target Audience: Academics working in Biomedical Informatics

Authors/presenters: John Ainsworth (UoM)

City, Country: Pisa, Italy

Description: Electronic Health Record (EHR) data has the potential to track patients’ journeys

through healthcare systems. Many of those journeys are supposed to follow Integrated Care

Pathways (ICPs) built on evidence based guidelines. An ICP for a particular condition sets out

“what should happen”, whereas the EHR records “what did happen”. Variance analysis is the

process by which the difference between expected and actual care is identified. By

performing variance analysis over multiple patients, patterns of deviation from idealised care

are revealed. The use of ICP variance analysis, however, is not as widespread as it could be in

healthcare quality improvement processes – we argue that this is due to the difficulty of

combining the required specialist knowledge

Type of activity: Conference

Title: Ontology-based convergence of medical terminologies: SNOMED CT and ICD 11

Conference: eHealth 2012 - Health Informatics meets eHealth

Date(s): 10 – 12 May 2012

Target audience: Scientists and implementers

Authors/presenters: Schulz, S (MUG); Rector, A; Rodrigues, JM (INSERM); Chute, C; Üstün, B

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(WHO); Spackman, K

City, Country: Vienna, Austria

Description: Health Informatics conference


Title: Towards the Harmonization of Clinical Information and Terminologies by Formal

Representation

Conference: 13th International HL7 Interoperability Conference (IHIC 2012). Science for Real

World Applications

Journal: European Journal for Biomedical Informatics (EJBI)

Date(s): 27 - 28 September 2012


Authors/presenters: Catalina Martínez-Costa, André Queiroz de Andrade, Daniel Karlsson,

Dipak Kalra, Stefan Schulz

City, Country: Vienna, Austria

Description: The IHIC is a forum for scientists and implementers to present and discuss

concepts, models and implementations for innovative interoperable e-Health solutions. The

conference provides an interface between science, research and real world.


Title: Semantic Interoperability for Health Network (SemanticHealthNet)

Conference: SNOMED CT Implementation Showcase 2012

Date(s): 25 – 26 October 2012

Target audience: Scientists and implementers. European projects session.

Authors/presenters: Catalina Martínez-Costa, Stefan Schulz

City, Country: Stockholm, Sweden

Description: Organised by IHTSDO, the Showcase allow attendees to interact with SNOMED

CT implementers from around the world who will share their first-hand knowledge about the

benefits, challenges and lessons learned from a variety of implementations.


Title: Competing Interpretations of Disorder Codes in SNOMED CT and ICD

Conference: AMIA 2012 Annual meeting

Date(s): 3 – 7 November 2012


Authors/presenters: Stefan Schulz; Alan Rector; Jean Marie Rodrigues; Kent Spackman

City, Country: Chicago, United States

Description: Health Informatics conference

Type of activity: Conference (submitted, not accepted yet)

Title: Isosemantic rendering of clinical information using formal ontologies and RDF

Conference: Medinfo 2013

Date(s): 20 – 23 August 2013


Authors/presenters: Catalina Martínez-Costa, Diego Bosca, Mari Carmen Legaz-García, Cui

Tao, Jesualdo Tomás Fernández Breis, Stefan Schulz, Christopher G. Chute

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City, Country: Copenhagen, Denmark

Description: World Congress on Medical and Health Informatics

Type of activity: Journal (submitted, not accepted yet)

Title: The Ontology of Clinical Situations

Journal: Journal of the American Medical Informatics Association (JAMIA)

Authors/presenters: André Q Andrade, Catalina Martínez-Costa, Mathias Brochhausen, Kent

Spackman, Stefan Schulz

Description: AMIA's premier peer-reviewed journal for biomedical and health informatics.

Covering the full spectrum of activities in the field, JAMIA includes informatics articles in the

areas of clinical care, clinical research, translational science, implementation science,

imaging, education, consumer health, public health, and policy.

22nd June 2012

eHealth Business Modelling Workshop, organized by SHN jointly with epSOS, EHGI, ePractice,

EC

Target audience: eHealth stakeholders from policy, payers and industry

Contributors/presenters: Veli Stroetmann (empirica), Karl Stroetmann (empirica), Jörg

Artmann (empirica) and others

October 12th 2012

ePrescription interoperability workshop in Copenhagen: expert meeting to discuss

interoperability challenges on the semantic level regarding the exchange of medication

information across borders.

Contributors: Jörg Artmann

Target audience: national epSOS semantic experts

Nov 8, 2012

eHealth European Interoperability Framework Workshop 2 – Brussels, Belgium

Contribution on semantic interoperability aspects – Veli Stroetmann; Karl Stroetmann

Target audience: policy (EC), SDOs, eHealth experts, eHGI

6th March 2012

Workshop on Promoting engagement and partnerships for the Actions of the 'European

Innovation Partnership on Active and Healthy Ageing'

Pre-conference event prior to the International Congress on Telehealth and Telecare 2012,

King’s Fund, London, UK

Contributor: Veli Stroetmann

Target audience: authorities representatives, researchers

20th April 2012

WS on integrated care with special focus on heart failure management, Brussels

Contributor: Veli Stroetmann

Target audience: autorities representatives, researchers, health professionals

24th of May 2012

Enables or inhibits government policy the implementation of eHealth? Are changes in the

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health system a prerequisite or a consequence of eHealth?Invited panel contribution at

Europe Meets Swiss eHealth Conference, Bern, Switzerland,

Contributor: Dr. Karl Stroetmann

Target audience: Swiss government and health IT decision makers

19th of June 2012

The need for a global Cyberinfrastructure

Invited key note at the Simulation in Cardiology Workshop, American College of Cardiology

(ACC), Washington, DC, USA, 19 June 2012

Contributor: Dr. Karl Stroetmann

Target audience: American College of Cardiology

Title: Business modelling for semantic interoperability Audience: Members of the epSOS Consortium, eHealth Industry, eHealth experts, European Commission Type of activity: workshop Name: ePractice.eu Workshop Date: 22-06-12, Brussels, Belgium Description: In the context of ongoing discussions around the Connecting Europe Facility, the

European Commission has held a stakeholder workshop on the long-term sustainability of its

eHealth pilot projects, see eHealth Business Modelling. Key to this sustainability is a

reflection on possible business models of eHealth projects beyond their pilot stage. The

workshop, supported by ePractice gathered stakeholders from the large scale pilot project

epSOS, SemanticHealthNet as well as other projects and representatives from the health

informatics standardization community, public policy and industry. After presentations on

the theory of business modeling and the ongoing sustainability discussion within epSOS, the

experts used an interactive business modeling appraoch to brainstorm and seek consensus

on important features of eHealth business models. SemanticHealthNet scientific coordinator,

Dipak Kalra (EuroRec) and empirica actively supported this workshop in its conceptual

preparation and execution. Results will feed into the deliverables of the SemanticHealthNet

project, to which empirica is a beneficiary. All workshop presentations are available through

the above eHealth Business Modelling website on ePractice.eu:

http://www.epractice.eu/node/5363901 The video that was taken during the eHealth

Business Modelling workshop is now available and may be accessed at

http://www.epractice.eu/en/tv/537694.

Convergence Round Table Basel, November 7, 2012

SemanticHealthNet participated in the Convergence Round Table organised by EuroRec (together with EHR4CR and SALUS) with the support of Roche (http://www.eurorec.org/ECprojects_convergenceRoundTable_Basel2012/). A limited number of projects addressing mainly “re-use of clinical care data in clinical research” were invited. Dipak Kalra has been nominated as lead for the Topic 1: Semantic Interoperability / Metadata / Glossaries. SemanticHealthNet, through EuroRec, will play the main role in organising the next workshop in collaboration with the European Commission (Benoît Abeloos), to be held in Brussels on the 20th and 21st of March 2013. More projects and delegates will be invited for this workshop. A report on this Convergence Round Table (Basel,

SemanticHealthNet


November 7, 2012) is included as an annex to this report.

EU-US eHealth Marketplace On October 24 2012, during the EU-US eHealth Marketplace summit, Prof. Dipak Kalra elaborated on the SemanticHealthNet Project http://www.b2match.eu/eu-us-ehealth-marketplace/pages/agendas

Second Reporting Period

Date: 15 January 2013

Title (presentation): Standardising the representation of clinical information: for patient care

and for research

Event: Symposium - Mining electronic health records: towards better research applications

and clinical care (London, UK)

Contributor: Dipak Kalra (EuroRec)

Date: 17 March 2013

Title (presentation): The art of the possible

Event: Healthcare Computing 2013 (Birmingham,UK)


Date: 20 March 2013

Title (presentation): Convergence on semantic interoperability

Event: Convergence workshop (EC, Brussels)


Date: 16 April 2013

Title (presentation): A European Perspective on eHealth

Event: Launch conference for the Farr Institute for Health Informatics Research in

Manchester (Manchester, UK)


Date: 23 April 2013

Title (presentation): Revision of the EN ISO 13606 EHR Communications standard

Event: ISO Technical Committee for Health Informatics (Mexico City, Mexico)


Date: 13 May 2013

Title (presentation): A Convergence Initiative to maximise the value

from European research

Event: World of Health IT Congress (Dublin, Ireland)


Date: 15 May 2013

http://www.b2match.eu/eu-us-ehealth-marketplace/pages/agendas

SemanticHealthNet


Title (presentation): Semantic interoperability

Event: World of Health IT Congress (Dublin, Ireland)


Date: 24 June 2013

Title (presentation): EHR interoperability

Event: Invitation only workshop at the Ministry of Health (Riyadh, Saudi Arabia)


Date: 5 July 2013

Title (presentation): The vision for health ICT in 2030

Event: University celebration of Medical Informatics (Munster, Germany)


Date: 8 July 2013

Title (presentation): Requirements for electronic health records

Event: Workshop on HL7 version 3 standards (Leeds, UK)


Date: 9 July 2013

Title (presentation): Clinical Document Architecture

Event: Workshop on HL7 version 3 standards (Leeds, UK)


Date: 21 August 2013

Title (presentation): Seamless re-use and Semantic Interoperability

Event: Medinfo 2013 (Copenhagen, Denmark)



Title (presentation): Interoperability for person centred care




Title (presentation): An interoperable heart failure summary:

transatlantic policy alignment and future sustainability



Date: 3 September 2013

Title (presentation): Interoperability in heart failure records

Event: European Society of Cardiology Annual Congress (Amsterdam, The Netherlands)



Title (presentation): Clinical perspectives on data quality

SemanticHealthNet


Event: CPRD Workshop on data quality (London , UK)



Title (presentation): Opportunities, Challenges and Approaches to Scaling Up Person-

Centered Care

Event: AAL Forum Joint Programme (Norkopping, Sweden)


Date: 24 October 2013

Title (presentation): Vendor adoption survey results for ISO EN 13606

Event: ISO Technical Committee for Health Informatics (Sydney, Australia)


Date: 7 November 2013

Title (presentation): Promoting high quality electronic health records across Europe

Event : ISHEP 2013 conference (Dubrovnik, Croatia)


Date: 22 November 2013

Title (presentation): A sustainable European roadmap for semantic interoperability

Event: MIC Conference 2013 (Veldhoven, The Netherlands)


Date: 2012

Title (article,): The Use of Metadata Objects in the Analysis and Representation of Clinical

Knowledge: Metadata and Semantics Research

Event/Journal/ Communications in Computer and Information Science

Contributor: P. Balatsoukas, R. Williams, E. Carruthers, J. Ainsworth, I. Buchan

Audience: Public domain

Date: 14th February 2013

Title (presentation): WP2: Prevention & Population Summaries

Event: SemanticHealthNet Review (Brussels

Contributor: Iain Buchan

Audience: Semantic HealthNet Colleagues

Date: 19th April 2013

Title (presentation): The IMIA initiatives on Trusthworthy Reuse of Health Data: a report

Event.2013 European Summit on Trustworthy Reuse of Health Data


Audience: International Healthcare providers and academic health science organisations

Date: 20th-23rd August 2013

Title (presentation): The IMIA initiatives on Trusthworthy Reuse of Health Data: a report

Event/Journal: MEDINFO 2013


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Audience: International academic and Industry Peers


Title (presentation): Using Semantic Similarity to reduce Dimensionality

Event/Journal: MEDINFO 2013




Title (presentation): e-Labs and the Stock of Health Method for Simulating Health Policies

Event/Journal/ MEDINFO 2013 & published in Stud Health Technol Inform

Contributor: Philip Couch



Title (presentation): Missed opportunities mapping: computable healthcare quality

improvement.

Event/Journal/MEDINFO 2013 & published in Stud Health Technol Inform

Contributor: Ben Brown


Date: 30th September 2013

Title (presentation): Does the EU Benefit our Health

Event/Journal/…2020 Health Party Conference Fringe Event


Audience: Policy Makers

Date: 17th October 2013

Title (presentation): Challenges and promises of big data for health research

Event/Journal/Keynote speaker at the Scoping Meeting of Science Europe’s Medical

Committee


Audience: Policy Makers, academic and industry peers

Date: 23rd-24thMay 2013

Title (presentation): Big Data Panel

Event: Medicine 2.0


Audience: Scientific community, industry, policy makers

Date: 23-24 May, 2013

Title (presention, article, …): Semantic Interoperability by ontology-based representation of

clinical information

Event/Journal/…: In Proceedings eHealth 2013 conference (Oral presentation)

http://www.ehealth20xx.at/eHealth2013/

Contributor: Martínez Costa C, Karlsson D, Schulz S

SemanticHealthNet


Audience: Scientists and implementers

Date: 8-9 July, 2013

Title (presention, article, …): Ontology-based reinterpretation of the SNOMED CT context

model

Event/Journal/…: In Proceedings ICBO 2013 conference (Oral presentation) Best paper

award

http://www2.unb.ca/csas/data/ws/icbo2013/accepted.html

Contributor: Martínez Costa C, Schulz S


Date: May,29-June,1, 2013

Title (presention, article, …): Ontology-based reinterpretation of the SNOMED CT context

model

Event/Journal/…: In Proceedings AIME 2013 conference (Poster) Lecture Notes in Computer

Science, Volume 7885, 2013, pp 216-220, ISBN: 978-3-642-38325-0

http://link.springer.com/chapter/10.1007/978-3-642-38326-7_32

Contributor: Martínez Costa C, Schulz S


Date: June,1, 2013

Title (presention, article, …): How Ontologies Can Improve Semantic Interoperability in

Health Care

Event/Journal/…: In Proceedings KR4HC 2013 (Keynote) . Lecture Notes in Computer Science

Volume 8268, 2013, pp 1-10

Contributor: Schulz S, Martínez Costa C


Date: Aug,20-23,2013

Title (presention, article, …): Isosemantic rendering of clinical information using formal

ontologies and RDF

Event/Journal/…: In Proceedings MEDINFO 2013 conference (Poster). Stud Health Technol

Inform. 2013;192:1085.

Contributor: Martínez Costa C, Bosca D, Legaz-García MC, Tao C, Fernández-Breis JT, Schulz S,

Chute CG.

http://www.medinfo2013.dk/program/ios-proceedings


Third Reporting Period

Nature of Communication

Title Responsible Participant

Date Location Target audience

1 Workshop Joint SHN meeting with Clinical Information Modelling Initiative (CIMI)

EuroRec, RAMIT 13th

– 15th

March 2014

Brussels Global health informatics experts and industry

http://www2.unb.ca/csas/data/ws/icbo2013/accepted.html

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2 Liaison meeting CDISC Board meeting EuroRec 7th

April 2014

Paris Clinical research standards experts

3 Standards meeting CEN TC 251 meeting EuroRec 23rd

April 2014

London Standards developers across Europe

4 eHealth Conference

Semantic interoperability presentation at eHealth Week

EuroRec, empirica

12th

April 2014

Athens EU and US eHealth community

5 eHealth Conference

Heart failure summary presentation at eHealth Week

EuroRec 14th

April 2014

Athens Rare Disease registry community

6 Standards meeting ISO TC 215 meeting EuroRec 19th

– 22nd

May 2014

Karuizawa, Japan

International health informatics standards developers

7 Liaison meeting Joint meeting with CIMI chairman

EuroRec 20th

May 2014

Karuizawa, Japan


8 Seminar Semantic interoperability

EuroRec 23rd

May 2014

Kyoto, Japan

Health informatics academics and industry

9 Summer School EHR requirements, clinical modelling

EuroRec 14th

– 15th

July 2014

London HL7 developers, industry

10 Workshop Joint SHN meeting with CEN TC 251

EuroRec 4th

September 2014

Berlin Standards developers across Europe

11 Standards meeting ISO TC 215 EuroRec 5th

– 7th

September 2014

Berlin International health informatics standards developers

12 Workshop eHealth workforce strategy meeting

EuroRec 1st

December 2014

Brussels European experts on workforce skills, EC officials

13 Workshop Danish workshop on implementation of solutions in European health systems

EuroRec 9th

December 2014

Brussels eHealth and health experts across Europe, EC officials

14 Conference SHN Industry Forum EuroRec, RAMIT, many other SHN partners and experts

26th

– 27th

January 2015

Brussels Multiple stakeholders in eHealth across Europe

15 Conference Antilope handover conference

EuroRec 29th

January 2015

Gent Many EC project participants, EC officials

16 Conference Digital Health Assembly EuroRec 10th

– 12th

February 2015

Cardiff Health informatics and industry experts from across Europe

17 Standards meeting ISO TC 215 EuroRec 19th

– 23th

April 2014

San Francisco


18 Liaison meeting CDISC Board meeting EuroRec 30th

April 2015

Paris Clinical research standards experts

19 Conference The European Institute for Innovation through Health Data

EuroRec 12th

May 2015

Riga EU and US eHealth community

20 Workshop Parent guidelines workshop

EuroRec 19th

May 2015

Brussels Registry experts from across Europe

21 Workshop Electronic Health Record approaches as a core component of health interoperability environments

EuroRec 28th

May 2015

Madrid Health informatics experts from across Europe (MIE 2015)

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Nature of Communication

Title Responsible Participant


22 Journal Article

Combining Health Data Uses to Ignite Health System Learning

Iain Buchan May 15 Journal: Meth Inform Med

23 Journal Article

Adoption of clinical decision support in multimorbidity: a systematic review

Iain Buchan Jan 2015 Journal: JMIR Med Inform

24 Journal Article

A review of the international Burn Injury Database (iBID) for England and Wales: descriptive analysis of burn injuries

Iain Buchan Feb 2015 Journal: BMJ

25 Journal Article

Investigating the relationship between quality of primary care and premature mortality in England: a spatial whole-population study

Iain Buchan March 2015 Journal: BMJ

26 Journal Breast cancer risk in young women in the national breast screening programme: implications for applying NICE guidelines for additional screening and chemoprevention

Iain Buchan October 2014 Journal: Cancer Prev Res

27 Journal Slowing down of adult body mass index trend increases in England: a latent class analysis of cross-sectional surveys (1992-2010).

Iain Buchan June 2014 Journal: Int J Obes (Lond)

28 Presentation/Article

Using String Metrics to Identify Patient Journeys through Care Pathways

Iain Buchan November 2014 AMIA Annu Symp Proc

29 Journal The impact of excess body weight at the hospital frontline

Iain Buchan April 2014 JournalBMC Med

30 Journal British Cardiovascular Intervention Society; National Institute for Cardiovascular Outcomes Research. Baseline bleeding risk and arterial access site practice in relation to procedural outcomes after percutaneous coronary intervention

Iain Buchan October 2014 Journal: J Am Coll Cardiol

31 Journal British Cardiovascular Intervention Society and the National Institute for Cardiovascular Outcomes Research. Impact of age on the prognostic value of left ventricular function in relation to procedural outcomes following percutaneous coronary intervention: Insights from the British cardiovascular intervention society

Iain Buchan May 2015 Journal: Catheter Cardiovasc Interv

SemanticHealthNet


32 Journal Calculating when elective abdominal aortic aneurysm repair improves survival for individual patients: development of the Aneurysm Repair Decision Aid and economic evaluation

Iain Buchan April 2015 Journal: Health Technol Assess

33 Journal Quantifying the contribution of statins to the decline in population mean cholesterol by socioeconomic group in England 1991 - 2012: a modelling study.

Iain Buchan April Journal: PLoS One

34 Presentation Enriching and sustaining semantic interoperability across Europe

Veli Stroetmann

12 May 2014 Athens, EuroRec workshop, eHealth Forum 2014

Policy makers, scientific community, national and regional eHealth strategists and implementers

35 Presentation Cost benefit assessment for investments in interoperable HF representations At SHN session “Towards interoperable electronic health record”

Veli Stroetmann

31 Oct 2014 eCardiology Congress, Bern

Clinicians, researchers, eHealth / telemedicine experts

36 Presentation Sustaining the European Efforts towards Semantic, Human, Health System Interoperability

Veli Stroetmann

29 May 2015 MIE2015, Medical Informatics Europe conference, Madrid

Bio-medical informatics community

37 Book chapter

The eHealth Contribution to Person-Centred Care

D Kalra, V Stroetmann

2014 In: Managing eHealth: From Vision to Reality. Edited By Magdalene Rosenmöller, Diane Whitehouse and Petra Wilson. Palgrave Macmillan, 2014, pp. 174-189

Policy makers, scientific community, national and regional eHealth strategists and implementers

38 Paper Health System Efficiency and eHealth Interoperability – How Much Interoperability do we Need?

Karl A Stroetmann

2014 In: A. Roca et al. (ed.) New Perspectives in Information Systems and Technologies - Volume 2. Advances in Intelligent Systems and Computing – Volume 276, Heidelberg: Springer, 2014

ICT researchers

39 Workshop Paper

Human aspects of eHealth Interoperability in the Transatlantic Setting

C. Chronaki, V Stroetmann

2015 MIE2015 Proceedings (forthcoming)

Bio-medical informatics community

SemanticHealthNet


Nature of Communication Title Responsible Participant


40 Conference (Oral communication) & Journal eHealth 2014, Applied Clinical Informatics, 2014, 5(3):660-669

Ontology Content Patterns as Bridge for the Semantic Representation of Clinical Information

Martínez-Costa, C; Schulz, S.

22-23 May 2014

Vienna, Austria

Scientists and Implementers

41 Conference (Oral communication) MIE 2014

Improving EHR Semantic Interoperability: Future Vision and Challenges.

Martínez-Costa, C; Kalra, D; Schulz, S

31-03 Sept 2014

Istanbul, Turkey


42 Conference (Oral communication) MIE 2014 Workshop on Interoperability Challenges for enabling secondary use of Electronic Health Records

Semantic Interoperability in SemanticHealthNet


02 Sept 2014

Istanbul, Turkey


43 Conference (Oral communication) MIE 2014

Ontology patterns-based transformation of clinical information.

Legaz-García, M.C.;Martínez-Costa, C; Miñarro-Giménez, J.A.;Fernández-Breis,J.T.;Schulz, S; Menárguez-Tortosa, M.

31-03 Sept 2014

Istanbul, Turkey


44 Conference (Poster and Oral communication) WOP 2014

Ontology Patterns for Clinical Information Modelling

Martínez-Costa, C; Karlsson, D; Schulz, S.

19 Oct 2014

Riva del Garda, Italy


45 Conference (Poster) OWLED 2014

An example of approximating DL reasoning by ontology-aware RDF querying


17-18 Oct 2014

Riva del Garda, Italy


46 Conference (Oral communication) SNOMED CT Implementation Showcase. 2014

SemanticHealthNet. A Semantic Infrastructure Towards Semantic Interoperability

Martínez-Costa,C; Schulz, S; Kalra, D.

30 Oct, 2014

Amsterdam, Netherlands


47 Conference (Oral communication) FOIS 2014

An Ontological Analysis of Reference in Health Record Statements

Schulz, S; Martínez-Costa, C; Karlsson, D; Cornet, R; Brochhausen, M; Rector, A.

22-25 Sept, 2014

Rio de Janeiro, Brazil


SemanticHealthNet


48 Journal paper Semantic enrichment of clinical models towards semantic interoperability. The heart failure summary use case

Martínez-Costa, C; Cornet, R; Karlsson, D; Schulz, S; Kalra, D

February 2015

Journal of the American Medical Informatics Association, ocu013


3.3 SHN Videos

Perspective of Standards Development Organisations

Catherine Chronaki

Health ITC industry perspective

Tomaz Gornik

Luc Maes

Miroslav Koncar

Patient viewpoint

Paul Rastall

Clinical viewpoint

Bob Vander Stichele

Suzanne Hardman

Multi stakeholder perspective

Zoi Kolikski

Marc Lange

Annike Sonne Hansen

Clinical research and pharma and EMIF

Bart Vannieuwenhuyse

https://www.youtube.com/watch?v=HqjlkT9dMEI


SemanticHealthNet


Ministry viewpoint

Jeremy Thorp

The EHR4CR network: role of the governing institute (Dipak Kalra)

Industry Forum on Semantic Interoperability January 26th – 27th , 2015, Brussels

3.4 i~HD

One of the main results is the establishment of a new institute: the European Institute for

Innovation through Health Data (i~HD). This is the result of a close collaboration with the IMI-JU

funded project EHR4CR (Electronic Health Records for Clinical Research).

More details about i~HD are given in chapter 5 of this report.

SemanticHealthNet


4 Plan for dissemination

4.1 Communication Matrix

The matrix as defined in D9.2 and adapted at the end of the project remains an important part of the

methodology for dissemination. The matrix is a representation of how communication between the

consortium and the stakeholders may be used after the project life time.

Stakeholders Communication Vehicle

Message Objective Responsible partner

Standards Development Organisations (SDO)

Website & Social media; SDO partners; SDOs network; EuroRec; Related ongoing EU projects (see chapter 5); i~HD (see chapter 5).

Awareness of SHN and its results; requirements for semantic interoperability, critique of existing standards

Next generation standards provide better support for semantic interoperability, and work better together (e.g. structural and terminology standards)

SDO partners EuroRec All partners

Clinical knowledge curators

Website & Social media; Clinical partners; EuroRec; Related ongoing EU projects (see chapter 5); i~HD (see chapter 5).

Awareness of SHN and its results; sources of existing development and curation practice

Definition and dissemination of international best practice in knowledge authorship and curation

Clinical partners EuroRec All partners

Industry, Vendors

Website & Social media; COCIR; EuroRec; Related ongoing EU projects (see chapter 5); i~HD (see chapter 5).

Awareness of SHN and its results;

To understand the existing approaches to meeting user driven semantic requirements, their needs for semantic assets and infostructures; practical implementation issues and business justifications for investments in supporting semantic interoperability

COCIR EuroRec All partners




SemanticHealthNet


Insurers

Website & Social media; Related ongoing EU projects (see chapter 5); i~HD (see chapter 5).

Awareness of SHN and its results

To understand the importance they place on interoperability and learning of their initiatives to incentivise interoperability investments (e.g. new reimbursement models)

All partners

Ministries of health / Policy actors / Government agencies


Awareness of SHN and its results; understand drivers, priorities and incentives for interoperability, commitment to standards

To understand and helpfully influence: drivers, priorities and incentives for interoperability; commitment to standards; funding streams for clinical engagement; innovative healthcare service and financing models that promote interoperability

Empirica EuroRec All partners

Professional organisations

Website & Social media; Professional networks; Related ongoing EU projects (see chapter 5); i~HD (see chapter 5).

Awareness of SHN and its results; clinical priorities for interoperability, present barriers, importance of their engagement; collect existing clinical data sets etc.

To help co-define semantic interoperability priorities; to validate good practice in authorship and quality assurance; to foster clinical communities to engage in the development of semantic assets; to co-develop educational resources for clinicians

Empirica EuroRec All partners

SemanticHealthNet


Patient organisations

Website & Social media; Patient organisations; Related ongoing EU projects (see chapter 5); i~HD (see chapter 5).

Awareness of SHN and its results; To begin to explore semantic needs for patients to understand and contribute to their EHRs

To ensure that semantic assets and good practice methods developed by SHN are suitable to support the expansion of patient engagement in health care and wellness; to explore the extent to which PHR and EHR semantics can be aligned

All partners

Academics


Awareness of SHN and its results

To identify future research needs, to co-develop educational resources

All academic consortium partners

SemanticHealthNet


4.2 Website and social media

Website

URL: http://www.semantichealthnet.eu/

LinkedIn

http://www.semantichealthnet.eu/

SemanticHealthNet


SemanticHealthNet YouTube Channel

4.3 Events and partners’ networks

Partners will continue to disseminate the results of the projects through future domain related

workshops and conferences. At the end of 2015 a conference will take place to promote the

establishment of the i~HD Institute and its Centre of Excellences (CoE).

SemanticHealthNet


5 Exploitation of results

SemanticHealthNet is a Network of Excellence on semantic interoperability. One of its core functions has therefore been to interface with many other projects, initiatives and organisations to promote the importance of semantic interoperability, to discover and to share emergent best practices and to provide advice where needed to other European endeavours. A second important function has been to explore options for how best to sustain the Network and expand on its work after this funded period. SHN has established relationships with many other European R & D projects, including the following non-exhaustive list: EXPAND on the quality processes for the development of semantic interoperability assets, and the criteria by which the quality of an asset may be assessed;

TRILLIUM BRIDGE on areas of future standardisation that would be needed to develop an international patient summary standard and to scale up its adoption;

ANTILOPE on the semantic interoperability aspects of its use cases;

PARENT through being a member of its external stakeholders advisory board, learning about the interoperability challenges and opportunities for registries, developing specific clinical models for example areas of registry content, and offering a sustainability avenue for some of its endpoint assets;

EHR4CR by understanding its approaches to interfacing eHealth and clinical research standards, and its experience and methodologies for business modelling and use of the business modelling canvas; Dipak Kalra was invited to join the board of CDISC in order to promote and advise on the interfacing between clinical research and healthcare semantic standards;

TRANSFoRM in relation to the sustainability of its semantic interoperability assets, and as an invited member of its advisory board;

SALUS in relation to its metadata registry, the sustainability of this, and as a member of its advisory board. Although most of these projects are coming to a close, by linking our network to these consortia we have help to ensure that the importance of semantic interoperability, the approaches adopted in the project and the lessons learned, our disseminated through these other partners into new projects and initiatives. For example, SHN experts were invited to join all four successful consortia in the recent PHC-34 call on interoperability.

1. To co-ordinate VALUeEHALTH and in particular to advance the business modelling methodology developed in SHN WP7 and to apply this to new prioritised use cases.

2. In eStandards to lead the development of good practice guidelines for semantic interoperability assets such as clinical models, to contribute to the roadmap for future standardisation and to co-ordinate the engagement of external stakeholders.

3. In ASSESS CT to be its co-lead, to lead WPs on the content coverage of SNOMED CT and on the development of the final policy recommendations, and to contribute the SHN heart failure summary into the empirical terminology evaluations.

4. To co-ordinate openMedicine.

SemanticHealthNet


At a European strategic level SHN has contributed to the transatlantic co-operation roadmap, attending meetings and teleconferences, presenting at events (e.g. in Boston) and helping with successive drafts of the roadmap document itself. SHN provided specific written input to the drafting of the eHealth EIF, as well as attending consultation meetings organised by the EC and Deloitte during its development. SHN met regularly with representatives from the eHealth Governance Initiative, and was occasionally invited to present at its meetings. SHN experts were unofficially invited to critique drafts of various strategy documents on semantic interoperability. In support of future European and international standardisation, SHN experts have contributed as experts in the revision of the EN ISO 13606 standard for electronic health record communication. This input has focused on the requirements and model for communicating archetypes, design guidance and practical examples of reference archetypes for key areas of semantics. SHN held a specific joint workshop with CEN on the 13606 revision, and provided regular input to a CEN Concurrent Use initiative on the aligned use of a portfolio of European standards. SHN hosted a joint meeting with the international clinical information modelling initiative (CIMI) in Brussels, in 2014, with global representation. SHN experts have continued to provide input to that initiative since that meeting. SHN has throughout engaged with clinicians, and participated in events organised by the eHealth group of the European Society of Cardiology. It has engaged with industry - selected SMEs and larger EHR system vendors, and with COCIR and its members (as reported in D6.1). Other stakeholders have been invited to our Task Forces, workshops and other events including representatives from health ministries, health insurers and patient representatives. It has held specific engagement events with clinicians (through the European Society of Cardiology), patient representatives (through patient networks of the UK Royal College of Physicians) and industry (through COCIR), as reported in Deliverables 1.3, 3.3, 6.1 respectively. Since the consortium itself comprises many international Standards Development Organisations, inevitably the project network has included these organisations, usually globally. Through the project work plan these organisations have gained a better understanding of the importance to end users and therefore to industry that multiple standards developed by different SDOs can work together and be adopted in combination. This message is penetrating back into these organisations and a greater willingness to collaborate on future standards alignment is emerging. EuroRec is reviewing the quality processes for interoperability assets defined in Deliverables 3.2, 3.3, 5.1 and 5.2, and will extract semantic interoperability quality criteria that could in future be incorporated within its quality labelling process for EHR systems. Overall, SHN has been successful at raising the visibility and perceived importance of tackling semantic interoperability in order to enable the meaningful sharing of health data, and of deriving value from interpreting accurately the data that have been meaningfully shared. Semantic interoperability is now a recognised priority area across many stakeholder groups and initiatives, and many of the SHN network experts have become involved in multiple new projects and organisations that will benefit from and extend the learning. However, although much has been achieved so much remains to be done, that the project has joined forces with other European projects to establish a new European not-for-profit Institute as the permanent approach to its sustainability: the European Institute for Innovation through Health Data (i~HD). This new Institute has emerged as the most appropriate and welcomed solution to the challenges of sustaining the momentum and community developing solutions for semantic

SemanticHealthNet


interoperability. Multiple stakeholders from across Europe were involved in workshops and business modelling sessions in order to arrive at this conclusion. i~HD will initially focus its efforts on developing further semantic interoperability resources through an Alliance of relevant stakeholders and experts (including SDOs and industry), establishing a register of interoperability assets and developing an evidence base of benefits from richer interoperability. More details of the i~HD structure and intended work plan activities is given in D8.1.

d9.5 final plan for the dissemination and use of project ... 288408... · d1.2 collated chronic...

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