American Diabetes AssociationUpdate

Sue GlassExecutive Director

American Diabetes Association

American Diabetes Association

Vision & Mission

Vision: Life of free of diabetes and all its burdens.

Mission: To prevent and cure diabetes and to improve the lives of all people affected by diabetes.

Research Advocacy Resources and programs to enable/support quality care

2012-2015 Strategic Plan Focus Areas

• Improving outcomes for people with diabetes and pre-diabetes

• Expanding the field of diabetes research

• Giving voice to those denied their rights because of diabetes

• Heightening our nation’s sense of urgency for the growing diabetes epidemic

• Building our capacity for sucess

The American Diabetes Association

Living With Type 2 Diabetes Program

2011

Problem

• “You have diabetes” is a statement that 1.9 million Americans will be stunned by this year alone. – Approximately 25.8 million children and adults in the United

States—8.3% of the population—have diabetes. – The majority have type 2 diabetes. More than a quarter of

all people age 65 and older have diabetes. – More and more people in their 20s, 30s, 40s and 50s are

being diagnosed.– Minorities are disproportionately affected, especially African

Americans, Latinos, Native Americans, Asian Americans, Native Hawaiians and Pacific Islanders.

• The cost of diabetes could cripple the United States economy in the years to come as more and more people suffer serious complications from the disease. – In 2007, the total cost of diagnosed diabetes was $174 billion – $116 billion in direct medical costs and – $58 billion in indirect costs such as disability, work loss or

premature mortality. – After adjusting for population age and sex differences,

average medical expenditures among people with diagnosed diabetes are more than 2 times higher than what expenditures for people without diabetes.

The Cost

Market Research

• In 2009, market research conducted found several factors that guided the development of the Living With Type 2 Diabetes Program.

1. Doctors prefer to give their patients information from the Association but often do not because our materials are not free.

2. Patients want information about diabetes given to them by their doctor on the day of diagnosis.

3. Patients want the information to be on paper.

THE SOLUTIONLiving With Type 2 Diabetes Program

Program Mission

Reaching patients newly diagnosed with type 2 diabetes and providing the information and support they need to manage and live well with diabetes.

The Living With Type 2 Diabetes Program offers patients an opportunity to start their journey with diabetes with sound information and support so they can start to prevent the devastating complications of diabetes on day 1.

1. To provide newly diagnosed patients with the information they need when they need it most – at diagnosis.

2. To provide more detailed information and tools to help people with diabetes manage diabetes and improve health behaviors and prevent or delay onset of complications.

3. To offer personal support that keeps people with diabetes motivated and empowered to Stop Diabetes® from affecting the quality of their lives.

4. To build a relationship with people with diabetes so they look to the Association as a source of information and support.

5. To be a resource for primary care providers.

Living With Type 2 Diabetes Program Goals

Where Do I Begin? Living With Type 2 Diabetes

• A booklet providers can hand to their patients upon diagnosis.

• Designed to provide a high-level introduction to diabetes.

• Answers many of the questions patients have at diagnosis.

• Available in English or bilingual Spanish

Health Care Providers Make the RIGHT TIME Possible

• On the day of diagnosis, the health care professional is the trusted source of information and has the opportunity to provide the Where Do I Begin? booklet to the newly diagnosed patient.

• Providers can give the patient the Where Do I Begin? Living with Type 2 Diabetes booklet and encourage them to enroll in the Living With Type 2 Diabetes Program.

Program Design – First Contact

diabetes.org/atdx

• Providers can order free copies of Where Do I Begin? booklet at diabetes.org/atdx

• Reorder as often as necessary

Three ways patients can enroll into the Program 

• By mailing back the postage paid reply card found in the Where Do I Begin? booklet

• By going online at www.diabetes.org/living • By calling 1-800-DIABETES – the Association’s Center

for Information and Community Support

Program Design - Enrollment

The Living with Type 2 Diabetes Program Begins • Upon enrollment, the person with diabetes starts to receive

INFORMATION and SUPPORT through the American Diabetes Association’s Living With Type 2 Diabetes Program.

 • Over the next 12 month, the Living with Type 2 Diabetes program

provides– Information packets (online or via mail)

– Monthly e-newsletters

– Online peer support

– Local engagement opportunities

Program Design – Support Begins

Mail or email five themed diabetes self-management packets at Months 1, 3, 6, 9 and 12, that contain information and tools on the following topics:

• Eating• Coping with stress and emotions• Controlling blood glucose• Exercising• Preventing heart, foot, kidney, eye and oral complications • Tools and resources that help relieve the financial burden of

diabetes • Three free, consecutive issues of Diabetes Forecast magazine to

start after enrollment (English only)

Communication and Educational Strategy #1

Communication and Educational Strategy #2

Provide additional online tools and resources• Monthly e-newsletters with new recipes, tips, and resources

• Personal messages of hope and perseverance from people with diabetes and celebrities who have joined the STOP DIABETES® movement

• Access to MyFoodAdvisor™ for day-to-day meal planning and nutrition guidance

• Access to Diabetes PhD to help reduce risk of complications

• Access to Diabetes 24/7 to help manage diabetes and create a personal health record.

Communication and Educational Strategy #3

Provide opportunity for personal support

• Local outreach as determined by the market staff and volunteers

• ADA Connect, an interactive, online community of people living with diabetes.

– Discussion Forums – join in ongoing dialogue on “Recently Diagnosed” and “Adults Living with Type 2” Forums

– Seasonal Groups – join a “Group” of others diagnosed in the same season/time period to share concerns or challenges that may be going on at the same time, i.e. Spring 2011 Group.

One Year Later

Tools and resources focused on,

• Building and maintaining a support system

• Being your own self advocate – a summary of questions to ask your Diabetes Care Team every year

• Understanding your insurance

• Your rights as a person with diabetes

• Ways to start again (i.e., when you find yourself reverting to old habits, how do you re-motivate and re-motivate again?)

Expected Reach

In 2011, the American Diabetes Association expects to,

• Enroll 150,000 people into the Living With Type 2 Diabetes Program (online and mailed program)

• Distribute 400,000 copies of the Where Do I Begin? booklet

Evaluation

HCP Survey• Disseminated twice a year to get feedback about the booklet,

distribution, HCP perspective of the LWT2D program, areas of improvement, etc.

Consumer Survey• Survey 1 at Month 3 of program• Survey 2 at Month 12 of program• Surveys will collect self-reported data

• Increased knowledge about diabetes and how to care for themselves.

• Increased self-efficacy (confidence) in their ability to manage diabetes, especially improving nutrition, increasing physical activity and adhering to medical advice.

• Increased number of healthy behaviors related to managing diabetes and preventing its complications, especially: diet, physical activity levels, and adherence to medical advice.

• Feedback on areas of improvement for the program.

Expected Results

Other Patient Resources

Diabetes 24/7

• Proper diabetes management requires daily decisions about treating blood glucose, physical activity and healthy eating, and the data that needs to be tracked can be overwhelming.

• Diabetes 24/7 is an online program designed to provide people living with diabetes tools to properly monitor their health.

• It provides individuals the opportunity to create personal health

records to help in diabetes self-management, while allowing them to share valuable health information with others, including their providers and family members.

Diabetes 24/7

• Diabetes 24/7 integrates

with Microsoft’s HealthVault

Platform and utilizes its

data-sharing capability.

• It helps users organize and monitor their diabetes by tracking important data including blood glucose patterns, laboratory results and physical activity.

• After inputting the data, either manually or by download, users

can generate printable reports to share with their care team,

allowing for better coordination.

Diabetes 24/7

• Users can transmit

and share data from

devices such as

pedometers, blood

pressure monitors and

blood glucose meters

as well as seamlessly

integrate information

from pharmacies,

laboratories and from

other HealthVault

applications.

Save the Date

• Step Out Walk to Stop Diabetes: Saturday, October 22 at the Denver Aquarium

• Thriving with Diabetes Retreat: Saturday, November 5 at the Cheyenne Mountain Resort, Colorado Springs

• Type 1 Diabetes Retreat: Friday, November 11 through Sunday, November 13, Vail Marriott Resort

• Expo: Saturday, March 10, 2012

American Diabetes Month

Overall Theme – I Raise My Hand to Stop Diabetes®

Each week, a different focus in the Stop Diabetes

Movement will be featured. • Week 1: Fighting for the Future – Giving a voice to those denied their

rights because of diabetes and fighting for diabetes funding.• Week 2: Impacting Communities – Building relationships around the

country to empower people to take control of their health.• Week 3: Celebrating Health – Recognizing courageous people who have

overcome the obstacles of living with diabetes and the places that have helped them.

• Weeks 4 & 5: Commitment to a Cure – Spotlighting the important research taking place that will lead us toward an eventual cure.

By sharing the program details with your peers, you are helping to:

• Join the millions to Stop Diabetes complications and its burdens

• Help people with diabetes in your community beyond your practice

• Spread the important message about supporting the newly diagnosed in the healthcare community

• Assist the American Diabetes Association reach its goals to reach people with diabetes and their caregivers when they need it the most

Share this Program with Your Peers

www.diabetes.org/coloradowww.diabetes.org

www.stopdiabetes.com

Thank You