david praill chief executive, help the hospices hospice and palliative care an introduction and...
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David PraillChief Executive, Help the Hospices
Hospice and Palliative Care
An Introduction and Overview
Hospice Care
• Freedom from pain and to give peace, dignity and calm
• Tailored care for each individual to meet physical, emotional, social and spiritual needs
• Not just a building, care can be provided at home, in day centres and also on specialist hospital wards
• Specialist skills of staff and the need for access to ongoing support
A Dying Patient is a Living Person
The UK Hospice Movement
• Pioneered in the voluntary sector with around 80% of hospice care now provided by local charities rooted in their communities
• Patients referred to hospice via primary health care sector – GP, hospital consultant, and maybe district nurse
• Nearly half of those admitted to a hospice return home – the average length of stay is just 13 days
• 250,000 patients given care free of charge
• total voluntary contribution is £522m – average 34% contribution from Government to running costs of adult services and 5% to children’s
In-patient Units Units Beds
Independent charitable hospices* 173 2,397
Marie Curie hospices 10 236
Sue Ryder Care homes 6 111
Total voluntary sector services 189 2,744
NHS Managed Units 64 667
Total 253 3,411
*includes 33 units for children with 255 beds and 3 exclusively for patients with HIV/AIDS with 50 beds. One charity may have a number of units
Hospice and Palliative Care Services UK – 2005
Services for adults Total
Community Palliative Care services 358
Hospice at home 104
Day Hospices / Centres 263
Hospital Support Nursing Services 68
Hospital Support Teams 293
In-patient Units Other Services
NHS AdultVoluntary
AdultTotal Adult Children’s Home
CareDayCare
HospitalBased
Hospiceat
Home
Units Beds
Units Beds Units Beds Units
Beds
1977
11 218 27 784 381,00
2- - - - - -
1987
33 458 84 1,743 1172,20
11 8 166 60 18 -
1997
56 595 147 2,458 2033,05
312 100 375 227 304 55
2005
64 667 156 2,489 2203,15
633 255 358 263 361 104
Hospice and Palliative care Provision
1977 - 2005
The UK Hospice Movement
• Around 90,000 volunteers
• By 2020 21% of UK population will be over the age of 65 many more people will live and die from long-term chronic conditions rather than sudden acute disease
• Death is still taboo
Help the Hospices
A world in which the best possible care is available to all people at the
end of life what ever their circumstances
Help the Hospices
• The national charity for the hospice movement in the UK
• Support 200+ local hospices through:– Education and Training– Grant-Aid– Information– Advice– Advocating the cause of hospice care and the
issues being faced to the government and general public
– National Fundraising initiatives– Raise awareness and understanding of hospice
care internationally
International Hospice Care
• 56million people die every year around the world – 40m in the developing world
• 60% of those dying in the developing world would benefit from hospice care to alleviate pain and suffering in their final days
• Yet only 1% in countries such as India are able to access such care
• Barriers to providing hospice and palliative care – non-availability of morphine and fear of drug prescription and lack of resources for professional education and to sustain any services developed
Help the Hospices Help the Hospices support for support for
international international hospice carehospice care
Twinning
Education & Training Grants
($250 000 since 2002) Policy
informationFunding
Advocacy Skills Share
World Hospice and Palliative Care Day
October 8th 2005
The first World Hospice and Palliative Care Day - October 8th 2005
• Open to any organisation or individual who cares about and is involved in hospice and palliative care anywhere in the world
• Voices for Hospices – events in 58 countries
• Help the Hospices’ launch of “Suffering at the end of life: the state of the world”
• Increase understanding of the nature and value of hospice care and destroy some of the myths