dec. 2008 n&v- hlaa (pdf)
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Manhattan Chapter News & Views
December 2008 www.hearingloss-nyc.org E-mail: [email protected] Loss Association of America exists to open the world of communication to people with hearing loss
through information, education, advocacy, and support.
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HOLIDAY PARTY NO CHAPTER MEETING
When: Tuesday, December 16, 2008 6 PM
Where: The Olive Garden restaurant in
Chelsea [696 Avenue of the Americas, between
22 and 23 St.]
Why: ‘Tis the season to celebrate each other,
the Chapter’s successes, and the end of 2008!
How: Members will order off the full menu;
each guest is responsible for one’s own bill. Breadsticks and a choice of soup or salad come with
each entrée.
*RSVP to Barbara Dagen is necessary
([email protected] or 212‐213‐9830)!
Editor’s Corner – Elizabeth Stump
Welcome to the December 2008 issue of the HLAA ‐
Manhattan News & Views!
2008 is quickly drawing to a close, and in many
regards, it will go down as a memorable year. As we
enter the holiday season, a time for fellowship,
exchanging gifts, and acknowledging our loved ones,
I’d like to invite everyone to our Manhattan Chapter
holiday party on December 16. The festivities, to be
held at the Olive Garden restaurant in Chelsea at 6
PM, will be in lieu of our regular chapter meeting.
I’m particularly delighted we’re having the party
here because the restaurant offers such delicious,
moderately‐
priced
Italian
cuisine
in
a
comfortable
setting. See the box to the left for more details.
Speaking of fellowship and gifts, it’s only fitting for
me to share the fact that this Chapter has been a true
blessing in my life. I hope that it has had a positive
effect on your life, too.
It was just about this time last year that I first learned
of HLAA and decided to join the Manhattan Chapter.
Two things about the organization never cease to
amaze me: the kindness, determination, and
intelligence of its members; and all the wonderful
endeavors we have accomplished. (The first NYC
Walk4Hearing we just held in October — which
raised over $120,000! — is a sterling example of our
Chapter’s talents and commitment.) While I’m in no
rush to get through the holiday season, I am
definitely looking forward to furthering our
successful advocacy and education efforts in the
years ahead.
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No matter how you celebrate the holidays this
season, before you open up your home to relatives or
leave town for a vacation, don’t miss Web Chat
expert Dr. Sam Trychin’s tips online for surviving the
holidays with hearing loss (see pg. 6 for details). And
finally, don’t forget to join your friends in the
Manhattan Chapter on Dec. 16 for the last gathering
in 2008…
Warm wishes for a jolly holiday season and a happy
New Year’s Day! See you in 2009!
.
CHAPTER PLANNING COMMITTEE
Join us on the first Tuesday of each month to help plan
programs & events.
HLAA Manhattan Chapter Phone Number: (voice)
(212) 769‐ HEAR (4327)
Ellen Semel, Planning Committee Chair
and NYC Walk4Hearing Coordinator
(212) 989‐ 0624 [email protected]
Barbara Bryan
Barbara Dagen, Newsletter Committee
Mary Fredericks, Secretary
(212) 674‐ 9128 [email protected]
Joe Gordon, NYS Chapter Coordinator
Toni Iacolucci
Shera Katz, Web Site Coordinator
Anne Pope, Immediate Past President, HLAA Board
of Trustees
Susan Shapiro, Treasurer
Dana Simon
Elizabeth Stump, Newsletter Editor
Diane Sussman
Advisory Members
Amy McCarthy
Lois O’Neill
Robin Sacharoff
Professional Advisors:
Laurie Hanin, PhD, CCC ‐ A Exec. Director, League for
the Hard of Hearing
Joseph Montano, Ed.D. Director, Hearing & Speech,
Weill Cornell Medical College
Help the Chapter Go Green!
Would you like to receive N&V by e‐mail only rather than receive a mailed version to help us cut
down on paper consumption and save money? It
costs about $8 a year to provide one member with
10 issues — that’s more than half of one’s annual
dues. Please notify [email protected] if you’d
like to make this change. The Manhattan Chapter
thanks you!
Manhattan Chapter Annual Dues Reminder: You should have renewed your chapter
dues in September ! Mail or hand the completed
form on the back of the N&V, along with your
check for $15 payable to HLAA ‐Manhattan , to
Mary Fredericks. It covers your one ‐ year
membership for the period September 1, 2008, to
August 31, 2009.
National HLAA Dues Reminder We hope you will also join or renew your
membership in our national organization. Your
separate $35 check for annual dues (see back
page)
is
vitally
needed
to
help
support
the
educational and advocacy work we do at the
national level. Your membership also includes a
subscription to Hearing Loss Magazine.
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WHAT YOU MISSED IN NOVEMBER Mary Fredericks
We would like to apologize to our speaker and
our audience for the audiovisual difficulties we
had at this session. I guess this can be expected
in a new location, with new equipment — and it
has been a learning experience for the entire
Planning Committee!
Our
scheduled
speaker,
Mary
Beth
Mothersell,
was stranded in an upstate New York airport
due to a mechanical failure of the plane. Beth
Confino, the New York Relay Ambassador,
stepped in, and presented an explanation of the
Sprint CapTel phone and a newer development,
Sprint WebCapTel.
As we’ve explained in the past, the Sprint CapTel
phone is a great help to people who can speak
on the phone but have difficulty hearing and
understanding. The device provides, via voice
recognition technology, captions of the other
person’s conversation. While the technology is
not perfect, it is a tremendous advancement for
someone who has not been able to make their
own phone calls. Sprint CapTel allows you to
hear and read at the same time!
Sprint WebCapTel is somewhat similar, except
that it can be used with any type of telephone
(including cordless and cell) along with a
computer with Internet access. (It’s also free to
use — you just pay your normal phone usage
and Internet access usage.) The printed
conversation appears on the computer screen;
the print can be adjusted, e.g., made larger. An
added bonus is the ability to save or print the
conversation. To access this service, type
www.sprintcaptel.com in your Web browser.
There is also Sprint WebCapTel on the Go, which
allows you to listen to your caller with one
telephone device (wireless or standard) while
you read the captions of everything that is being
said on a second wireless device. Learn all about
it at www.sprintcaptel.com .
Some useful contact information:
Relay inquiry line : 1‐ 800‐ 664‐ 6349 (voice) or 1‐
800‐ 835‐ 5515 (TTY); NY Relay customer service :
1‐ 800‐ 676‐ 3777 (voice/TTY); CapTel customer
service : 1‐ 888‐ 269‐ 7477 (voice) or 1‐ 800‐ 482‐ 2424
(TTY); NY Relay Ambassador : 516‐ 248‐ 2266
(V/TTY) or [email protected] .
WALK4HEARING :
We have raised $123,000+ to date and have thanked
all our corporate sponsors, teams, and outside
volunteers as well as our chapter members. Special
thanks to member Elizabeth O ʹLeary for posting all
our Walk Day and post ‐ Walk Day checks on our
Walk Excel Spreadsheet, a tedious job at best.
And now special thanks to our Walk Organizing
Committee, without whom there wouldn’t have been
a Walk: Pete Fackler, Hollace Goodman, Joe Gordon,
Toni Iacolucci, Lenny Kleiman, Anne Pope, Marilyn
Ratner,
Susan
Shapiro,
Dana
Simon,
Elizabeth
Stump, Diane Sussman, Carolyn Tanen, and Bob
Young; and our Manhattan Chapter Planning
Committee Members who pitched in BIG TIME:
Barbara Bryan, Barbara Dagen, Mary Fredericks,
Amy McCarthy, and Shera Katz. Thanks to all!
Ellen Semel, NYC Walk4Hearing Coordinator
Special thanks to
Serafina Messina, Letty
Al‐Damaluji ,
Lucia
Morabito , Hilda Blyn, anGail Weiss for their kinddonations to the
Manhattan Chapter.
Mention of suppliers or devices in this newsletter does not
mean HLAA‐ Manhattan endorsement, nor does exclusion
suggest disapproval.
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New Frontiers: Online Video Captioning
In the Sept. N&V, I mentioned the 21st Century
Communications and Video Accessibility Act
and one of its goals: mandated Web video
captioning. Although the bill has not yet been
passed, more companies are making their
online material accessible to the hearing ‐impaired. The following site from About.com
has a good listing of instructions to add
captioning to videos:
http://deafness.about.com/cs/accessibility/a/webvideocc.htm . As also reported in that issue, YouTube now
provides captioning of its online videos; visit
http://www.youtube.com/watch?v=HSinxoFppCI for more information. And more YouTube
videos are also captioned thanks to this site,
TubeCaption: www.tubecaption.com . Also, see www.Hulu.com for a limited array of
TV shows with subtitles — unfortunately you
have to play the video first to determine if
closed captioning (CC) is available, but
hopefully the system will become more user ‐
friendly as the CC selection increases.
*Go to www.captionsON.com to learn about
captioning challenges and how to report them.
Tuesday, Dec. 16: No HLAA Chapter Meeting!
Holiday party at the Olive Garden in Chelsea at 6pm
[696 Avenue of the Americas, between 22 and 23 St.]
*Questions and RSVP to Barbara Dagen at [email protected] or 212‐213‐9830.
*Take advantage of the Early Bird Special for
next year’s annual national convention — which
is also HLAA’s 30th birthday — occurring June
18‐21, 2009, in Nashville, Tennessee. Register
for the Full Activity Package by December 31,
2008, to get discounted rates and to enter a
drawing for a Nintendo Wii™. Visit
www.hearingloss.org for further information.
*Logo image courtesy of The Olive Garden.
Thursday, December 25: Christmas Day
Wednesday, December 31: New Year’s Eve
Thursday, January 1, 2009:
New Year’s Day
Metropolitan Calendar
Cochlear Americas Celebration 2009
Cochlear Celebration, a four ‐ day event featuring social
and educational activities for the Cochlear community,
will be taking place in Anaheim, California, on March 26‐
29, 2009. In addition to meeting peers with cochlear
implants and experts in the field, highlights you’ll enjoy
include a private party at Disneyland ʹs Big Thunder
Festival Arena and a Twilight Pass to Disneyland. Go
here for agenda details and online registration:
www.cochlearamericas.com/celebration .
HLAA E‐news : Do you subscribe? It provides HLAA
latest news every other week electronically. To sign
up go to:
www.hearingloss.org/membership/Sen.asp .
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Access to the Arts in New York City
OPEN ‐CAPTIONED THEATER ‐ Find captioned theater listings nationwide on www.c2net.orgTheater Access Project (TAP) captions Broadway and Off ‐ Broadway productions each month. Tickets are discounted.
For listings & application www.tdf.org/tap or 212‐ 221‐ 1103, 212‐ 719‐ 45377 (TTY)
*Upcoming OPEN ‐CAPTIONED Shows : [See TAP for tickets]
The Lion King (12/03, 2 PM); Radio City Christmas Spectacular (12/10, 5 PM; 12/11, 8 PM); Equus (12/20, 2
PM); South Pacific (1/21/09, 2 PM)
OPEN ‐CAPTIONED MOVIES –
For updated listings, go to www.insightcinema.org or www.regalcinemas.com/movies/open_cap.htmlREGAL BATTERY PARK STADIUM 11,102 N. End Avenue–Vesey & West Streets (212) 945‐ 4370.
REGAL–UA KAUFMAN STUDIOS CINEMA 14, 35th Ave. & 38th St., Long Island City (718) 786‐ 1722
REGAL–UA SHEEPSHEAD BAY‐BROOKLYN, Knapp St & Harkness Ave (718) 615‐ 1053.
REAR‐WINDOW CAPTIONED MOVIES ‐ For listings go to www.FOMDI.com . Ask for a special window
when buying your ticket. The window reflects the text that’s shown on the rear of the theater
AMC Empire on 42nd Street. (212) 398‐ 2597, call Tues afternoon for next week’s schedule
Clearview Chelsea Cinemas, 260 W. 23rd St., Auditorium 4, 212‐ 691‐ 5519. www.clearviewcinemas.com/tripod.shtmlThe Bronx: AMC Cinema Bay Plaza, 718‐ 320‐ 1659.
MUSEUMS WITH CAPTIONED EVENTS & ASSISTIVE DEVICES MUSEUMS WITH CAPTIONED EVENTS & ASSISTIVE DEVICES ‐‐ The Metropolitan Museum of Art , 1000 Fifth Ave. 212‐ 879‐ 5500 Ext. 3561 (V), 212‐ 570‐ 3828 (TTY)
Real ‐ Time Captioning of lectures upon request – This service requires at least three weeks notice.
Gallery Talk with ALDs (meet at gallery talk station, Great Hall)
The Museum of Modern Art , 1 East 53rd St., Access Programs 212‐ 708‐ 9864, 212‐ 247‐ 1230 (TTY)
ALDs are available for lectures, gallery talks, & Family Programs. Infrared is available in Titus Theaters.
Online Young Adults Group:
From HLAA comes a new social community on
the Web specifically for hard ‐of ‐hearing young
adults (ages 18‐35) who want to meet other
hearing ‐impaired peers both locally and
around the U.S. It’s similar to the online
Facebook, and provides opportunities for
interaction with other HOH young adults that
don’t always exist in daily school or work. Go to: http://hearinglossnation.ning.com .
Don’t forget, the Manhattan Chapter has an
online group for HOH people of all ages on
Meetup.com. Go to: http://www.meetup.com/Hearing ‐Loss ‐Association ‐
of ‐America ‐Manhattan ‐Chapter/ .
Calling All Cochlear Implant Recipients…
The University of Iowa created an online survey for
people with one or two cochlear implants in an
effort to collect data on the benefits of bilateral
implants.
Participants must be at least 18 years old to
complete the 15‐ minute survey. Names will not be
collected to protect privacy. If you have any
questions about the survey, contact Camille at
Camille ‐[email protected] or call 319‐ 353‐ 8776.
The survey can be accessed at
https://survey.uiowa.edu/wsb.dll/127/cochlearimplant.htm .
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Next Month’s Meeting: Tues., Jan. 20, 5:30 PM,at the Muhlenberg Library
Title: What’s New in Cochlear Implants
Speaker: Dr. Anil Lalwani, NYU otolaryngologist
Ototoxic Drugs Tip Sheet
Have you heard of www.nowihear.com , the
consumer education Web site from AuDNet
(America’s Audiology Network, a network of
audiology professionals)? If not, there’s no
better time than now to check it out. The site is
devoted to promoting hearing health
awareness and boasts informational videos
and text on hearing conservation and
protection, the causes of hearing loss/deafness,
how to choose an audiology professional and
where to find care, hearing and balance tests,
and the best hearing aids and services.
And now, the site includes information on
ototoxic drugs — certain over ‐ the ‐ counter and
prescription drugs that are known to generate
temporary and permanent hearing loss or
deafness. Over 100 such drugs have been
identified; at times these drugs are necessary
for treating a life‐ threatening illness, and
sometimes the damage occurs because the
drugs were taken in excess over a period of
time. All patients should speak with their
physician before stopping or changing their
drug regimen.
Medications that can cause hearing damage or
deafness include: drugs for pain relief, such as
Hydracodone or Vicodin; drugs used in
chemotherapy, called cytotoxic drugs; and
strong antibiotics for bacterial infections, such
as Streptomycin and Gentamycin.
Visit www.nowihear.com/html/hearing ‐
loss.html#medications for the complete tip
sheet .
Here is another relevant online resource:
http://deafness.about.com/od/ototoxicity/a/ototoxic.htm .
HLAA Social Network and Web Chats :
Make new friends without leaving the house!
Check out the new online community from
HLAA at http://myhearingloss.org . Find hearing
loss resources, post messages for other members,
and join in the chat room.
Every Monday night: Cochlear Implant Chat at 9
PM; Every Wednesday night: Regular Chat at 9
PM.
Upcoming guest speaker chat: Dr. Sam Trychin,
December 11 at 7 PM, on “Surviving the
Holidays with Hearing Loss.” Go to the site to
submit questions for this expert!
Inspiration Corner
“An optimist stays up until midnight to see the New Year in. A pessimist stays up to make sure
the old year leaves!” —Bill Vaughn
Whenever you possibly can, do good to
everyone. Never tell your neighbor to wait until
tomorrow if you can help them now .
Support the HEARING AID TAX CREDIT
Hearing aids can treat about 95% of all hearing
losses, but most of those who could benefit can’t
afford them—Medicare and most insurance
policies exclude coverage. Enter H.R.2329 , which
would provide a $500 tax credit per hearing aid
for children and people age 55 and older.
Contact your congressional representative today
to urge their support for this legislation: visit
www.hearingaidtaxcredit.org .
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PHOTOS FROM THE 2008 NYC WALK4HEARING!
Top row, from left :
W4H
Chair
Ellen
Semel
and
W4H
Committee member Anne Pope; Anna
Bella D’Amico and teammate; Gayle
Greenstein (third from right, wearing
blue scarf) and her husband, Jeff (second
from right), with their Team MZG;
Middle row, from left : Ellen Semel and
W4H Committee member Lenny
Kleiman; W4H Committee member Joe
Gordon; Bottom row , from left : HLAA
Exec. Director Brenda Battat, Anne Pope,
& Ch. 11’s Mr. G cutting the ribbon;
Brenda Battat’s Team (Brenda 2nd from
left), including her 6‐ week ‐ old grandson.
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Manhattan Chapter
c/o Barbara Dagen,
141 E. 33rd St. (3B)
New York, NY 10016
FI RST CLASS MAI L( DATED MATERI AL)
Please check your address label for the date of your last dues payment and, if you are a National member, there will bean “NM” after the date. Report any discrepancies to Mary Fredericks. Thanks!
Manhattan Chapter Annual Dues Application
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Please complete and return this form, with yourchapter dues of $15 (payable to HLAA-Manhattan )for the period September 1, 2008, to August 31, 2009Send to: Mary Fredericks
520 East 20 th St. (8E)
New York, NY 10009
NAME (please print)_____________________ADDRESS/APT_____________________________CITY/STATE/ZIP________________________PHONE (Home or Work?)_________________E-MAIL ADDRESS_______________________
SEND A NEWSLETTER BY EMAIL YES NO MEMBER OF HLAA NATIONAL? YES NO HOW DID YOU HEAR ABOUT US?________________________
ADDITIONAL DONATION_$_______________TOTAL ENCLOSED_$____________________
HLAA Membership ApplicationPlease complete and return this form, with your duespayment of $35 for a one-year membership(including subscription to Hearing Loss Magazine)To: HLAA Membership , 7910 Woodmont Ave.
Suite 1200, Bethesda, MD 20814.
NAME (please print)ADDRESS/APT_________________________________________CITY/STATE/ZIP________________________PHONE (Home or Work)__________________E-MAIL ADDRESS_______________________ARE YOU NOW A MEMBER OF HLAA
NATIONAL? YES NO (receiving the Hearing Loss Magazine)?______IF YES, I.D. No.________________
ADDITIONAL DONATION_$_______________TOTAL ENCLOSED_$____________________
HLAA is a volunteer association of hard of hearing people, theirrelatives and friends. It is a nonprofit, non-sectarian educational
organization devoted to the welfare and interests of those whocannot hear well.Your contribution is tax deductible to the extentallowable by law. We are a 501(c)(3) organization.