dec 2013 redacted congressional testimony .pdf

8/14/2019 Dec 2013 Redacted congressional testimony .pdf

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Heather WhiteRedacted

Redacted

T Redacted

RedactedAutismRawData.net

November 9, 2013

RE: Support The Inquiry Into The National Vaccine Injury Compensation Program (NVICP)

Members of the Committee,

I am a health care professional and mother of a vaccine injured son. Our journey began in the spring of

2004 when I gave birth to my only son, Luke who was born well connected, hitting all of his

developmental milestones (95th+ percentiles) and appropriately communicated by the age of one. August

5th, 2005 Luke was injected with 9 vaccines during one well visit; Tripedias Diphtheria Tetanus Pertussis

(DTaP) (3mcgs of thimerosal, 170 mcgs of aluminum), Haemophilus Influenzae Type B (HIB), Measles

Mumps Rubella (MMR), Vericella, and Pneumococcal PCV 7 (125 mcgs of aluminum). Later Luke ran a

fever and in the morning had a raised migrating rash. The following day Luke became hypothermic, blue

lips, lethargic, and non-communicative. Our developmental pediatrician was not concerned and thought

this episode was simply a virus that would pass. 2 weeks later Lukes fever and rash subsided but he

became disconnected and still would not respond to verbal or visual cues. The response from our

developmental pediatrician described Lukes new behaviors were a phase. January 10th, 2006 I

consented to another round of vaccinations. Luke began to self injure, not sleep, constantly scream, cry,

and still did not communicate. Now our developmental pediatrician thought something acute was

occurring and this began a yearlong chase of dead end diagnosis, procedures and surgeries with specialty

consults devoid of answers. After a year of inadequate care, our pediatrician surmised that Luke had

autism and we should start Applied Behavior Analysis (ABA), which in his opinion was the only option of

treatment, completely ignoring his biological condition. I was told my sons prognosis would be to never

speak again, never be out of diapers, and never live independently.

The next three years I classify as the dark ages. My son was severely constipated, with bouts of post

obstructive diarrhea. Luke would roll through periods of fever, rash and hypothermia consistently during

this time, and even today he will have an occasional episode but they are now less frequent. Every

mainstream medical professional ignored that my son was in pain, and my husband (M.D.) and I were not

given answers how a well-connected child could become sick and acutely autistic without an exploration

of cause. So we, his parents pulled his medical records in 2006 and began our own investigation with the

hopes of helping our son. After reading Lukes medical records, which plainly stated by his developmental

pediatrician he was having developmental regression all the while telling me this was in a phase, clearly

showed the acute regression occurred after his August 5th well visit. This was the first time I even thought

of a vaccine connection between my son and his mystery illness that was now being classified as autism. I

then pulled the vaccine manufacture inserts and read the ingredients of known adverse events and

realized the plausibility of vaccine induced autism or encephalopathy that resulted in a catastrophic

chronic disability in our son, which was handled by incompetent developmental professionals.

November 27th, 2006 Lukes developmental assessment report showed 4th percentile in cognitive skills,

5th percentile in expressive language, and 7th percentile in personal/social skills to name the lowest 3

categories. December 4th, 2006 Luke began early intervention on an IEFP with supplemental home

therapies that added up to 30 hours/week.


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During the dark ages of severe autism, I left my career and became a full time student in rehabilitating

vaccine injury. We turned our garage into an occupational therapy center, and our family room into a

special education room. Our journey started with conventional protocols, which is the widely accepted

approach of cognitive behavioral therapies. My son was in pain, and would not sleep so I knew in order to

make gains we would have to get to the bottom of his biological disease processes. 75% of ASD patients

also have sensory processing disorders, which interferes with the childs ability to have a clear

understanding of pain, temperature, spacial recognition, auditory, visual, and self awareness (Summit

Professional Education, 2013). Couple that with deficits in communication the process of discovery ofLukes co-morbid chronic conditions became problematic, even today.

May 3rd, 2007 occupational therapy summary sensory profile (39 months of age) concluded; sensory

processing, behavior and emotional responses, factor clusters: sensory seeking, low endurance/tone and

oral sensory sensitivity. Also, in 2007 I began exclusionary diets mainly dairy and my sons GI distress

began to normalize. On May 21st, 2007 I officially fired Lukes developmental pediatrician who once again

consulted me to another specialists stating in his chart; speech regression (true), conductive hearing loss

(false), eustachian tube dysfunction (false), with the recommendation of bilateral myringotomy

tympanostomy (unnecessary), which I did not consent to. August 2007, Luke began taking supplements

(multivitamin, probiotics, vitamin C, and MB12), and with the implementation of vitamin MB12 Luke for

the first time in three years answered appropriately to the question What is your name?. Luke was

almost 5 when he began speaking again and I still cry with joy that he found his expressive voice.

March 5th, 2008 Lukes language assessment; auditory 19th percentile, expressive 12th percentile, total

language 13th percentile, Goldman Fristoe test of articulation 49th percentile.

March 10th, 2008 Lukes personal/social adaptive and cognitive skills (49 months of age); personal/social -1

Z-Score, adaptive skills -1.6 Z-Score, cognitive skills -2.13 Z-Score. His sensory profile was also

representative of poor functioning. But Luke was making progress, and we were making gains healing his

biological pathology mainly in his gastrointestinal system, and sensory integration.

August 2009 to May 2010 we hired a retired elementary school teacher to home school Luke during these

pre-school years. In my area of residence there is not a facility that would accept Luke and his disability at

his age (in diapers) so this was our only option. While my son was in school I began to read the research

from both sides of the argument regarding vaccines and autism. In December of 2009 I filed with the

Vaccine Adverse Event Reporting System (VAERS) documenting Lukes 2005 injury.

March 2010, Lukes words started to come back, but the syllables were backwards, and eventually so were

his 2 to 3 word sentences. So, in my research I found this was a symptom of damage to the central

auditory nervous system. I successfully gained a referral to test Lukes brain, which confirmed a 90%

deficient in this area of neurological circuitry. Injury to the auditory nervous system occurs in patients

who have suffered from a traumatic brain injury or from heavy metal toxicity (encephalopathy). My sons

medical history charts well visits, so that was my confirmation that the neurotoxic ingredients mainly

thimerosal and aluminum mixed with live viruses overloaded my sons system(s) creating a vaccine induced

encephalopathy, resulting in the diagnosis of autism. After this confirmation I contacted a National

Vaccine Injury Compensation Attorney, then quickly discovered Luke was well outside the statute of

limitations (3 years) to file, yet another injustice to this system.

I could write pages and pages of assessments, and therapies that could bring you to present day. But this

snapshot of our journey leads into my experience with the NVICP. We have spent tens of thousands of

dollars each year for Lukes care because autism therapies, treatments, and testing are rarely if ever

covered by insurance providers. My son dropped his autism diagnosis early this year (2013), and has defied

all the conventional prognosis of his earlier developmental pediatricians and specialists. He is in recovery

and like an alcoholic or a patient with hypertension if he is not managed or if he is exposed to certain

environmental toxins he will regress. This means an adherence to a strict protocol in schedule,


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supplementation, diet and therapies. Luke is now 9 and has not lived a normal life, neither has my

husband and I since his acute regression after vaccine injury.

Too many children and too much suffering has long been well understood but neglected by our health

authority all in the name of the collective greater good deliverance of the theory (myth) of vaccine induced

immunity. Our children, my son is collateral damage to this agenda, which has wiped clean the ability of

so many families to live a peaceful existence here in the United States. We have functioned with little

support and no guidance by the CDC, HHS and other health agencies during our journey of vaccineinjury recovery, which does exist. In spite of all these obstacles our children are getting better due to the

diligence of a few doctors and a large parental body that tirelessly shares their knowledge with other

victims.

Now is the time to stand for our children and demand that the documents be made public, not just in the

circles of vaccine injured communities but a complete unveiling of the crimes of concealment so good and

productive scientific, and medical protocols can be put in place to protect preceding vulnerable children

and the ones who are injured can finally receive adequate care that is covered by insurance providers. To

continue to deny these criminal acts, and adequate care to so many children, now 1:50 is a moral erosion

of this nation and further disintegration of trust for the government health authority.

Thank you for this opportunity to testify in support of an inquiry regarding the injustice of the National

Vaccine Injury Compensation Program (NVICP).

Sincerely yours,

Heather White

Reference

Summit Professional Education. (2013). Autism and Sensory Processing Disorder. Retrieved from

http://summit-education.com/general/autism-and-sensory-processing-disorder/

dec 2013 redacted congressional testimony .pdf

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