My first snow skiing experienceTransition to the NDIS VALid Our Choice Expo - Caulfield

12LEISURE10BLOG 17SPIRE NEWS

7AQA AGM & 2017 Celebration

NEWSLINK

Spire is a service division of AQA Victoria

DECEMBER 2017

AQA Victoria LtdABN 90 006 691 185

Address440 Heidelberg RoadFairfield Victoria 3078

T 03 9489 0777T 1800 999 128F 03 9482 4371E admin@aqavic.org.auW aqavic.org.au

Postal AddressPO Box 219Fairfield Victoria 3078

Board of DirectorsChairpersonColin Daws

TreasurerGreg Schinck

Company SecretaryDavid Schreude

DirectorMichelle O’Sullivan

DirectorJoshua Fisher

DirectorDave Jacka

DirectorAlexia Archbold

DirectorMaryann Jamieson

Spire NewsLink is the official newsletter of AQA Victoria Limited (AQA), and is published bimonthly.

Spire NewsLink seeks to publish material of interest to people experiencing issues in life arising from a spinal cord injury or other physical disability, their family and social networks, clinicians, professionals and other organisations with an interest in this community.

Spire NewsLink welcomes content for publication. Content will be published at the discretion of the Editor who retains the right to edit all submissions as they see fit.

Information in Spire NewsLink is furnished solely as a guide to the existence and availability of goods or services.

Any opinions expressed in Spire NewsLink are not necessarily those of AQA or the Editor. Original material in NewsLink can only be reproduced with permission from the editor. Donations towards production costs are greatly appreciated.

Copyright © Spire. All rights reserved.

/ CONTENTSINFORMATION

4 Disabled drivers vehicle registration concession

4 Mobility Allowance debate heats up

16 Apply for an Exemption, Reduction or Refund from Motor Vehicle Duty

SPIRE EVENTS

6 Upcoming Events

6 SCI Community Network Groups Round-up

7 AQA AGM & 2017 Celebration

17 VALid Our Choice Expo – Caulfield 2017

SPIRE NEWS

8 AQA NDIS Support Coordination Service 2018

9 Stephanie’s Melbourne Marathon Mission!

BLOG

10 Transition to the NDIS - Barbara’s story

LEISURE

12 My first snow skiing experience

14 RACV Total Care - Wheelchair and Scooter Assist

/ REGULAR FEATURESADVERTISEMENTS

5 Wheelability

5 Steps Neurological Therapy Services

15 Blue Badge Insurance

20 Coloplast

CLASSIFIEDS

19 Various items for sale and items for free

December 20172

Volume 31: Number 06 / December 2017

.org.au

HIGHLIGHTSWelcome to the final issue of NewsLink for 2017. We hope you enjoyed reading the wide range of articles we have had throughout the year.

In 2018, AQA will be launching our NDIS support coordination service to assist our SCI community in their transition over to NDIS. Please turn to page 8 to read about the service.

On pages 10–11, Barbara Simpson in her latest blog article shares her experience of transitioning over to

the NDIS.

Anthony Bartl’s latest adventure had him hitting the slopes for the first time at Falls Creek. Please turn to pages 12–13 to resad about his his skiing experience.

The entire team at Spire would like wish all our readers a Merry Christmas and a happy, healthy and prosperous New Year.

Please remember if you go away somewhere special or find out

about something useful, please let us know so we can share it with our community.

Finally, below are next year’s contribution deadlines for NewsLink:

February 1st February 2018

April 1st April 2018

June 1st June 2018

August 1st August 2018

October 1st October 2018

December 1st December 2018

FROM THE CEO \

December 2017 3.org.au

AQA held our Annual General Meeting (AGM) of members in November where directors presented the Annual Report and Audited Financials. For those interested in the detail, AQA posts both reports in full on our website at www.aqavic.org.au/publications.html.

Congratulations to Maryann Jamieson, Alexia Archbold and David Jacka who were elected as directors. A special tribute to Steve Mollison who retired as director at the AGM, having contributed to AQA’s good governance for over eight years. In that time Steve has contributed as chairman, deputy chairman, convenor of the Board’s Risk & Compliance Committee and as a member of the Board’s Development & Funding Committee. Steve has been a great support to me as CEO and to our operational staff. His input as director has been appreciated and respected by fellow directors and members of committees. Everyone at AQA wishes Steve the very best in his future endeavours and we look forward to staying connected with Steve as a significant member of the SCI community in Victoria.

At the AQA Celebration that followed the AGM we acknowledged the contributions of over 47 of our staff who were reaching employment milestones and the significant contribution of many of our volunteers. We celebrated a year that included delivering over 286,000 hours of personal care, providing over 1,200 peer support contacts, responding to over 400 requests for information and referral, our partnerships with community now extends to 6 Community Networks, our newsletter now reaches 1,300 people, we held 3 community expos, 3 personal development short courses, and our social media engagement includes over 770 Facebook followers. We have launched our NDIS Capacity Building Project and look forward to commencing our NDIS Support Coordination Service in 2018.

These outputs and outcomes all contribute to our ambition to connect and resource the spinal cord community of Victoria to deal with the challenges and maximise the opportunities of life; to be of value to our community above and beyond a service provider transaction. I thank all those involved in progressing our mission in 2017.

On behalf of our members, directors, committees, staff and volunteers I wish you a safe and fulfilling season and look forward to the opportunities of the new year.

Peter TretheweyChief Executive OfficerSpire, AQA Victoria Ltd, Qualcarepetertrethewey@aqavic.org.au

December 2017.org.au4

Disabled drivers vehicle registration concessionThe Victorian Government is cutting the cost of registration for wheelchair users who have had their vehicles significantly modified to allow them to drive.

Disabled drivers will now be able to apply for a 100% concession on their vehicle registration fee.

For many of the 2,500 Victorians that own vehicles modified to suit a wheelchair user, this will mean a saving of up to $290.40 each year.

To be eligible, a vehicle must be fitted with hand controls for accelerating and braking, and have undergone a Vehicle Assessment Signatory Scheme report (www.vicroads.vic.gov.au/registration/vehicle-modifications-and-defects/vehicle-modifications/vass-approval-certificate) stating the vehicle has been significantly modified.

Drivers seeking the registration concession will need to provide a Vehicle Assessment Signatory Scheme certification to VicRoads prior to registering their vehicle.

The Transport Accident Commission (TAC) charge will still apply.

Eligible disabled drivers will continue to be able to access the motor vehicle duty rebate available through the State Revenue Office at www.sro.vic.gov.au/node/1505.

Concessions already available for registered operators of vehicles modified to carry a passenger occupying a wheelchair will continue to apply.

INFORMATION

Mobility Allowance debate heats upIt’s been reported that The Federal Government is reviewing the Mobility Allowance to align eligibility with the NDIS. The Social Services Legislation Amendment (Transition Mobility Allowance to the National Disability Insurance Scheme) Bill is due to debated in the Senate and if passed, will mean people with a disability over the age of 65 years who volunteer will no longer be eligible for Mobility allowance for their travel costs to and from their volunteer role.

It has been discovered that there has been an anomaly in this regard which is going to negatively financially impact some people with a disability. The main issue is that those who are on a Disability Support Pension (DSP) or other Centrelink payment and not the Mobility Allowance who transition to the NDIS and successfully seek and maintain full time employment, may qualify for an NDIS Transport Package but no longer be eligible for a Healthcare Card (HCC) linked to the Mobility Allowance. This is important because the HCC provides access to Pharmaceutical Benefits Scheme (PBS) items at concessional rates.

It seems contradictory and indeed at odds with the NDIS- that the Federal Government is removing access to the HCC in this way. For many people with a disability this will be a major disincentive to seek and maintain full time employment. The policy and advocacy team have written to Christian Porter, MP, Minister for Social Services, to raise these concerns.

Qualcare is a division of AQA Victoria Limited and is an industry recognised provider of high quality personal care services. For over 20 years Qualcare has delivered personal care and support throughout the state of Victoria to people with a disability, injury or illness in their homes and communities.T 03 9482 4373F 03 9482 7933W www.qualcare.org.auE qualcare@aqavic.org.au

5.org.auDecember 2017

SUPPORTING SERVICES TO PEOPLE WITH A SPINAL CORD INJURYMaking a bequest...

Bequests provide a legacy to an organisation you already support or want to support in the future. Making a bequest to AQA in your will is a meaningful way of supporting people with spinal cord injury. All bequests help strengthen the services provided by AQA that promote independence, quality of life and inclusion of people with disabilities in the community.

If you have included AQA in your will, or you are considering making a bequest to AQA we would love to hear from you so that we can acknowledge your support.

We would also like to include you on our list of supporters who receive our bi-annual supporters newsletter that provides an update of our services, the year’s events and other activities that AQA is involved in that support people with spinal cord injury.

If you would like more information about making a bequest to AQA please contact Peter Trethewey CEO on 03 9489 0777.

INFORMATION

Steps Neurological Therapy ServicesHUGHESDALESteps Neurological Therapy Services

BLACKBURN SOUTHBellbird Sports and Spinal

MORNINGTONBeleura Health Solutions

Call Steps on 03 9568 5611 today to arrange an appointment

steps_inmotion_20151127_3_print.indd 1 27/11/2015 10:43 am

For all the latest at Steps, check out ourwebsite: www.stepstherapy.com.auBe your physical best with your Steps Physiotherapist

Live every day to the fullest with your steps Occupational Therapist

Get in shape and move well with your Steps Exercise Physiologist

Enjoy feeling fit and strong by joining a Steps Exercise Group

Get your new chair sorted at the Steps Wheelchair and Seating Clinic

Get behind the wheel with your Steps Driving Assessor (OT)

Heal your muscles with Steps Myotherapy

Steps is now fully registered and able to provide services for participants of the NDIS

SpinalHub is a community website for people with spinal cord injury in Victoria and throughout Australia

SpinalHub TV is a collection of ‘how to’ online videos that feature people from the spinal cord injury community in Victoria.

December 2017.org.au6

SPIRE EVENTS

SCI Community Network Groups Round-upIt’s been a fantastic year for our SCI Community Networks. In addition to the regular people who attend, we have also seen many new faces turn up.

Each of the network groups have begun to be self-sufficient in setting agendas and having special guest speakers and organisations giving presentations. The groups meet on a monthly basis.

The groups are not only there to share information and give each other advice, they’ve also been educational. Some of our presenters or presentations have

included; • council members; • financial advisors; • NDIS specialists; • Lawyers; • nurses; • pressure care; • pain management; • accessible travel; • leisure; • mental health.

Earlier in the year, we welcomed the Geelong SCI Community Network to the fold in joining Ballarat, Bendigo and Shepparton.

We hope to roll out into another area of Victoria in the next few months and welcome suggestions to where this could be introduced.

If you haven’t been to any of the networks yet, please come along to a meeting in the coming months. We welcome friends and family.

For further information on any of the SCI Community Network Groups, please visit www.spire.org.au/community/community-networks, or contact Spire by email info@spire.org.au or call 03 9489 0777.

Upcoming Events Date Time Location

Ballarat Regional Network 15th February 2018 11am – 3pm TBA

Spinal Cord Injury Network of Professionals (SCIP)

15th February 2018 4pm - 6pm Lonely Planet Offices551 Swanston St,, Carlton

Arnold Sports Festival 6th, 17th, 18th March 2018 9am - 6pm Melbourne Convention & ExhibitionCentre, South Wharf, Melbourne

What’s Out There day (WOT) 11th April 2018 11am – 4pm Royal Talbot Rehabilitation Unit 1 Yarra Boulevard, Kew

ATSA Independent Living Expo 16th, 17th May 2018 8.30am - 4pm Melbourne ShowgroundsEpsom Rd, Ascot Vale, Melbourne

Spinal Cord Injury Network of Professionals (SCIP)

17th May 2018 4pm - 6pm Lonely Planet Offices551 Swanston St,, Carlton

What’s Out There day (WOT) 15th August 2018 11am – 4pm Royal Talbot Rehabilitation Unit 1 Yarra Boulevard, Kew

Spinal Cord Injury Network of Professionals (SCIP)

16th August 2018 4pm - 6pm Lonely Planet Offices551 Swanston St,, Carlton

Spinal Cord Injury Network of Professionals (SCIP)

15th November 2018 4pm - 6pm Lonely Planet Offices551 Swanston St,, Carlton

What’s Out There day (WOT) 12th December 2018 11am – 4pm Royal Talbot Rehabilitation Unit 1 Yarra Boulevard, Kew

7.org.auDecember 2017

SPIRE EVENTS

AQA AGM & 2017 CelebrationOn Tuesday 14th November 2017, we held our AQA AGM and 2017 Celebration at the Darebin Arts & Entertainment Centre in Preston, with close to 80 guests & supporters attending.

We were delighted to welcome close to 80 guests, which included clients, members, volunteers, donors & employees.

Our annual event is designed to celebrate our achievements over the last 12 months, present a brief picture at what the future holds and more importantly, dedicate a time to show appreciation to everyone who is part of the 2017 success. The best part of inviting everyone to join us in celebrating 2017, is truly recognising that every single individual makes a difference in what we do and what we achieve as a community organisation!

This year we had 2 guest speakers.

First, we welcomed Stephen Callinan. He took us through his perspective of what we do at SPIRE and his experience of working as a volunteer with the SPIRE team at our Fairfield office.

We also welcomed Walter Mikac, patron of the Alannah & Madeline Foundation set up in memory of his daughters to help children who have experienced violence, reduce bullying & cyber bullying and advocate for the safety and wellbeing of children. Walter presented his reflections around resilience, hope, being open to help, support & new experiences and learning to ‘trust tomorrow’ following a significant event in your life whatever that event might be. I’m sure everyone was moved in some way by his words and wisdom.

39 Disability Support Workers and 8 office-based employees received recognition awards for 5, 10, 15, 20 & 25 years’ service.

We also had awards for our valuable Spire volunteers:

• Spire Video Journalist Volunteer Award: Richard Balsillie.

• Spire Volunteer of the Year Award: Stephen Callinan, Rafael Maralit.

• Spire Volunteer Mentor Award: Susana Valdes, Marty Korytowski, Georgina Fiorentino, Antonio Vecchio.

• Spire Supporter of the Year Award: Mario D’Cruz.

• Spire Community Support Award: Geoff Thomas, John Kenwright, Martin Heng.

Many laughs were had on the day and new connections formed. We would like to thank all who attended, and to all who make AQA Victoria, Qualcare and Spire a great success!

If you weren’t there this time, we encourage you to attend next year’s event so we can thank you in person!

If you’d like to know more about our achievements for the year, see our Annual Report at www.aqavic.org.au/pdf/governance/aqa-2016-2017-annual-report.pdf.

December 2017.org.au8

AQA NDIS Support Coordination Service 2018The National Disability Insurance Scheme (NDIS) is here. It is currently being rolled out across Victoria and our team are supporting many of our community in their transition. The aim is for the NDIS to be rolled out across Australia by 2019.

AQA is working hard to ensure that the NDIS roll out is as smooth as possible for the Spinal Cord Injury (SCI) community. AQA is a registered service provider in a broad range of categories including personal care and support coordination – we are playing an active role.

To assist our SCI community we are offering free pre-planning meetings – pre-planning is the key to creating a great plan. These sessions can be conducted over the phone or preferably face-to-face, either at your home or our office in Fairfield. Sessions are usually one to two hours long and will use both the lived experience and in-depth NDIS knowledge. These are an opportunity for our community to meet with the team and to discuss their goals and hopes before their official NDIS meeting with the Local Area Coordinator (LAC). We are hoping that this will enable our community to best maximise their meetings and to get the best possible plan. If you would like to find out more about these meetings please email the AQA NDIS Service Development Officer, Fiona Scoullar, at fionascoullar@aqavic.org.au.

We will be launching our support coordination service in the new year. Our support coordination will focus on capacity building

and will use a lived experience approach supported by over 30 years of industry experience. Support coordination is bigger than just putting you in touch with service providers. At AQA we use a team based approach. Our approach is driven by our peer mentors, our desire to build capacity in our community and our excellent knowledge of the SCI community. At the centre is the client. Peter Van Benthem will head up the peer support team. Peter has worked with AQA as a peer support worker and mentor for over 14 years. Support coordination is provided across the 12 month cycle of the plan. The aim of support coordination is to develop and build capacity in people with spinal cord injury so that our community are better equipped to choose their NDIS supports.

So how much support coordination do I need?Everyone is different and will need a different amount of support coordination. Following are examples of suggested time ranges:

• Peer support: 2–4 hours per month.

• Capacity building: this will vary considerably depending on the individual. We recommend that all participants complete

our capacity building program ‘Discover The Power in Me’, approx. 20 hours.

• Plan implementation: this will relate to the complexity of your plan and will vary between 2–4 hours a month. During this time participants will be taught how to navigate the NDIS portal and how to implement the services within their plan.

Using the above as a guide AQA recommends approximately 70–120 hours of support coordination, however, this is only a guide.

To stay up-to-date with AQA’s NDIS services please visit www.spire.org.au/resources/ndis-for-sci where AQA will continue to share the lived experience of the transition to the NDIS through personal stories. We will share the learnings and the tools people find useful in order to get the best outcome from this process and build the capacity of people to participate.

SPIRE NEWS

9.org.auDecember 2017

SPIRE NEWS

Stephanie’s Melbourne Marathon Mission!Since her spinal injury in 2008, Stephanie Jones has worked relentlessly to raise money for various spinal cord injury programs in the UK. Her 2017 project has been to raise money for Spire.

Inspired by her friendship with Spire volunteer and top Australian Para Equestrian rider, Emma Booth, Stephanie took part in the Melbourne Marathon on Sunday October 15. She ran a total of 42.2kms in just over four and half hours and raised over $7,000 for Spire!

After personally experiencing a crushed T12 vertebrae and becoming friends with Emma, she dedicated 2017 to raising money for Spire.

“I am motivated to support their peer-facilitated and peer-informed services, projects and supports that help others living with a SCI to deal with the issues of everyday life,” she says.

Her journey preparing for the Melbourne Marathon has been long and not without challenges. After a devastating netball injury, which resulted in a stretched joint and contortion fracture, Stephanie had to cease training for the marathon, but was eventually given the all clear from her doctor.

Stephanie’s motivation to raise funds for SCI programs stems from her appreciation and respect for the families of those in the SCI community, who remain supportive and dedicated to their loves ones in the toughest of times.

“When tragedy strikes, the families and loved ones of those affected also need support on their journey of living with SCI,” she says.

Stephanie is fortunate to have had the opportunity to recover from her spinal injury in 2008, and is now running for those who can’t. She says it’s important to keep moving forward, to make the best of what you’ve got, and enjoy the time you have.

“I’m so privileged and overwhelmingly grateful to be able to feel my legs aching and burning. I’m lucky I can run at all and today was for all those people who can’t,” she says.

Stephanie running for Spire in the Melbourne Marathon

After many months of training and overcoming injury Emma and Stephanie celebrate the completion of her

successful 42km run

December 2017.org.au10

Transition to the NDIS - Barbara’s storyBarbara Simpson was an Insurance Broker and Administration Manager prior to acquiring a T10 Spinal Cord Injury in 2005. Barbara lives with her cat in Daylesford and recently transitioned over to the NDIS. In her latest blog article she shares her experience with us.

On October 26, 2001, I was seriously injured after falling from the roof of my home. I was cleaning the guttering when I fell and broke my L1 vertebra. Rather than undergoing major surgery, doctors chose to prescribe a back brace for six months, but in July 2002, I fell again - this time at work.

The second fall caused additional damage to my spine and I was in considerable pain. My psychiatrist at the time advised I speak to a surgeon, and they recommended spinal surgery. After receiving a second opinion from another surgeon, I discussed my options with family and friends before agreeing to reconstructive surgery.

I underwent reconstructive surgery on February 14, 2005. After waking up in intensive care, my right leg began to spasm and I couldn’t feel or move it. When I awoke the next morning, I also couldn’t move or feel my left leg. Doctors initially assumed the loss of feeling and control was due to trauma from the surgery. However, an MRI later revealed I was a complete paraplegic from the T10 vertebra. Despite this, I do not regret having the surgery as I experienced a lot less pain afterwards.

I received a letter from the National Disability Insurance

Agency (NDIA) in December 2016, advising me that my name had been forwarded as a person eligible for the National Disability Insurance Scheme (NDIS). After providing proof of age and proving my Australian Citizenship, I was accepted as a participant in the NDIS in January 2017. I was advised someone from the NDIA would contact me to organise my plan and decide on the correct amount of funding. I was contacted in April by a Local Area Coordinator (LAC) from Ballarat, who organised a phone appointment to discuss my plan.

Living in Daylesford, a rural area in Victoria, my main concern in transitioning to the NDIS was finding personal and home care assistance. My local council had provided these services for 12 years, but they had decided not to

transition to the NDIS. The NDIA failed to consider the remoteness of my location or the fact that some services are unavailable or not within the 50-km radius given to me. For example, my incontinence supplies, not covered under the State-wide Equipment Program (SWEP), come from Melbourne, which is over 50-kms from Daylesford.

Among other things, your LAC is there to assist you in finding suitable service providers to transition to. My LAC gave me the contact details of potential service providers, but was not very helpful in finding service providers for daily personal assistance, so I requested a face to face meeting with her at my house.

My plan was approved on May 3 and I met with my LAC on May 27. At this stage, I was still receiving personal and home care assistance through my local council. My LAC was unable to answer my questions but decided my current plan was not suited to my needs, so requested a plan

BLOG

■ continued on next pageBarbara talking about her NDIS experience

11.org.auDecember 2017

review. She also gave me the name of an advocacy agency, independent from the NDIS, who work on behalf of those transitioning, to remedy any issues that arise.

After my LAC left I received a phone call from my council to inform me my Individual Support Package funding (ISP), which paid for my personal care, had been withdrawn, as I was now an NDIS participant. I still hadn’t managed to find an NDIS service provider for my personal and home care that was willing to come to Daylesford, and to top it all off, my ISP funding was backdated to May 3, the date of my NDIS plan approval.

As my council is not an NDIS service provider, they are unable to recoup their costs and on-going costs from my ISP funder. I estimate from May 2, 2017, until July 10, 2017 (new service providers commenced July 11), I owe the council some $5,000 for services received, and I am awaiting their account.

This is just one of many issues that can arise while transitioning to the NDIS. I recommended the NDIA adjust NDIS plans to acknowledge the time it takes to find new service providers, especially personal and home care providers. I requested the NDIA pay the council for the above personal care services. If they and my original funder refuse, I must incur the costs. I have also submitted a complaint regarding my LAC, who is no longer in the role. I have no LAC at present.

Transitioning to the NDIS will lead to greater financial freedom. Prior to the transition, I had to pay for home care, as my funding package provides insufficient funding. I also pay for district nursing, wheelchair repairs, and incontinence supplies not covered under SWEP. Additionally, there will be reduced waiting times for things like occupational therapy, garden and yard maintenance, transport costs, home modifications and new equipment. Previously, it could take up to a year to receive funding approval. Under the NDIS, these will all be covered and provided much more rapidly.

There is a high volume of information provided by the NDIA and your LAC, and it is not in plain language or easy to understand. It’s important to record notes, dates and names for every conversation you have, and keep all emails and correspondence received.

Avoid making your NDIS plan over the phone, and insist your LAC visits you in your home

instead. When you receive your plan, ensure budgets (for example, assistive technology) are adjusted immediately to meet your needs. It can be difficult and time consuming to have figures increased, so ensure this is attended to as soon as possible.

Ensure, in writing, that whoever funds you at present will continue to pay for those services until you sign up with an NDIS service provider. If you choose to remain with the same service provider, ensure your funding won’t cease during change over and signing of the agreement.

And lastly, organise an occupational therapy assessment, regardless of how recently you had one. An occupational therapist can organise things like new wheelchairs and equipment, home improvements and home maintenance.

BLOG

■ continued from previous page

Barbara packing her car ready for the road ahead

December 2017.org.au12

My first snow skiing experienceAnthony Bartl’s latest adventure had him hitting the slopes for the first time at Victoria’s largest alpine resort, Falls Creek. With assistance from Disabled WinterSport Australia (DWA), Anthony thoroughly enjoyed his skiing experience.

Life can be challenging at the best of times. But when it incorporates a high level spinal injury, an inability to feel or move from my neck down, add the shortcomings of being unable to breathe unassisted or maintain a consistent body temperature, well then I’ve got my work cut out to fulfill my dream of snow skiing.

Falls Creek, is 1,400 metres above sea level and it’s my first time to the snow and what I have disconcertingly heard will be icy, cold air. I travel to the Slopes not really knowing what to expect. Driving in, outside my van’s window, people amble around in t-shirts and shorts. It can’t be too cold I gladly think.

Then like being hit with a sledge-hammer I experience incredible chest tightness! It is as if an enormous, invisible

force is bearing down on me. I can’t work it out! Thankfully my chalet sits close by to ease my anxiety. Night one sees my lungs constraining struggling to breath and with my oxygen levels plummeting, I try to sleep but its’ a scary dark! I am feeling distressed, I think this can’t get any worse!

Amazingly with a new dawn, a new world is re-born.

Bright sunshine, blue skies, no wind, a balmy 1 degree and snow everywhere! Seemingly, something magical has happened! Through my window shoveled snow towers metres above my head. Up high from afar, the entire mountain is a complete brilliant, ghostly white! Its peaks resemble majestic, perfectly formed macaroons. With the sun’s ray’s reflecting off a

blinding, white, glistening warmth - against a deep blue sky - it’s a surreal contrast! It’s Victoria’s best snow season in years! I am spellbound by the sight now and desperately pining for some slope action. And I can!

To make it all doable, and take advantage of the perfect conditions, I am assisted by Disabled WinterSport Australia (DWA).

An organization existing every winter to improve the snow experience of people with disabilities. They bring with them a futuristic contraption, known as a sit-ski, it is designed for people with Quadriplegia/Paraplegia. Made up of a bucket seat neatly affixing to a body contoured frame, skis attach underneath, while sturdy straps secure me.

LEISURE

■ continued on next page Falls Creek is Victoria’s premier winter wonderland Anthony with his trusty air-viva

13.org.auDecember 2017

LEISURE

Having such adaptive equipment and human resource support on hand is an awesome thing!

Now for the real adventure!

Wrangling my body into the novel sit-ski, I am positioned in its middle. At the helm, and pushing the apparatus with gusto from behind is Peter Hull. As DWA’s Falls Creek Resort Services Coordinator, he has a heart as big as Phar Lap!

But first I have to be comfortable.

Compensating for the thin air I earn extra air from my trusty air-viva. As a result of feeling strangulated from so many clothing layers - together with a sit-ski helmet that locks my head into a forward position. With all this paraphernalia any chance of easy breathing is snuffed out! But there’s no backing out...and I’m off!

Sledding down Australia’s longest beginner green run, the 2.2km Wombat Run.

It’s a mixture of bumpy and smoothly-graded downhill and flat terrains, I feel the whole euphoric, and thrilling skiing experience. All of a sudden any uncomfortableness becomes a distant memory.

I hurtle down the Creek’s slopes at breakneck speed, dodging, weaving and leaving fellow skiers in my wake. On the flat it’s a gentle, serene, take-it-all-in kind of pace. Once on the chairlift, being seated high above the snow’s slopes, it’s a privilege and awe-inspiring. It turns the tables on disability and it sometimes feels like I’m not incapacitated. I feel uplifted and exhilarated!

■ continued from previous page

Anthony sledding down Wombat Run with the support of DWA’s

Falls Creek Resort Services Coordinator Peter Hull

COME AND BE PART OF SCIP!SCIP (Spinal Cord Injury Network of Professionals) is looking for like-minded individuals who are interested in addressing the issues facing professionals with SCI, as well as to increase respect for and recognition of the value, influence and abilities that they offer.

SCIP is dedicated to maximizing the inclusion, job-retention and advancement of current and future professionals with SCI, and provides the opportunity to collaborate with others to discover and develop resources around career development and progression.

The group is solely and permanently committed to meeting the complex and emerging concerns and needs of professionals living with SCI and to support all professionals regardless of their career field, title, employment status or degree of success they have had in their careers. They may be beginning their career, undergoing rehabilitation, volunteering, unemployed, employed full-time, part-time or casually, self-employed, unable to work, on a pension, on welfare or retired.

If you are or aspire to be a professional living with SCI and interested in joining SCIP, please contact us at emmabloom@spire.org.au.

For further information please visit the SCIP website at www.scip.net.au.

December 2017.org.au14

RACV Total Care - Wheelchair and Scooter AssistAfter witnessing his beloved Tigers win the 2017 AFL Premiership, Wayne Bradshaw hit a road block that required the services of RACV emergency roadside assistance to fix a puncture on his manual wheelchair.

What a wonderful service RACV provide. I’d like to share my story about their Total Care emergency roadside assistance package. After having one of the best days of my life in personally witnessing my beloved Tigers win the 2017 AFL premiership at the iconic MCG, my son Ben calls to pass on his congratulations. In between passionately singing the Richmond FC theme song we organise to meet at the Spread Eagle Hotel on Bridge Rd to continue the celebrations into the wee hours of the morning.

After fighting through a sea of delirious Richmond supporters to finally make my way out of Yarra Park, it’s becoming more and more difficult to push my wheelchair. The feeling of despair just hit me, it’s a dreaded puncture! My plans are thrown

into turmoil, but I have a lifeline. I call RACV and speak to a consultant who tells me to fear not and sit tight, help is on its way. A van comes out in no time, I transfer into the passenger seat of the RACV vehicle while the RACV mobile technician fixes my puncture.

Before too long I’m back on my way to meet my son, who squeezes the air out of me, gives me a big kiss and buys me a drink so we continue the celebrations long into the night.

For those who like to get out and about and want peace of mind, you’re always covered with RACV Total Care.

The top-of-the-range emergency roadside assistance Total Care package provides cover for not only your vehicle, but also your wheelchair or scooter.

Other benefits include: • Unlimited service calls • Metro towing to 100km’s • Regional towing to 100 km’s • Free fuel if you run out • Minor parts allowance Vic only $33

• Locksmith $300 • Benefits within 100km of home up to $300

• Benefits over 100km’s from home up to $2,400

• Bike Asist • Wheelchair and Scooter Assist

For further details on the product please visit www.racv.com.au/on-the-road/roadside-assistance/total-care.html.

The Total Care package only costs $212 annually for a Silver RACV member.

LEISURE

HAVE YOU GOT A STORY TO TELL?At Spire, we’re always on the lookout for interesting, inspiring or unusual stories from our community. We are currently seeking volunteer contributors to share their lived experiences of SCI on our online community blog at www.spire.org.au/community/blog.

No blogging experience is necessary and if needed, one of Spire’s skilled volunteers can help shape or edit your story.

For further information please contact Spire:T 03 9489 0777E info@spire.org.au

15.org.auDecember 2017

As Australia’s first mobility and independence insurance specialist we know that Disability Parking Permit Users are safer drivers who deserve lower prices. Our Comprehensive Car Insurance policy provides up to 25% off^ for both disability converted vehicles and standard cars while also offering tailored benefits that have been developed with you in mind.

Do ordinary insurers cover your conversions? We do!Discounted car insurance for disability parking permit users

www.BlueBadgeInsurance.com.au

Lets Talk: 1300 304 802

^ Discounts for the Blue Badge Insurance Comprehensive Motor Vehicle Insurance will be applied to the base vehicle rates subject to the customer holding a permanent Disability Parking Permit and/or the vehicle has been converted for use by a driver or passengers that have a disability. The discounts do not apply to the Blue Badge Roadside Assistance Optional Benefit. Underwriting criteria will be applied to the consideration of the risk. Additional excesses will apply to drivers under 25 or those drivers who have held a full Australian drivers licence for less than 2 years. This offer may be withdrawn at any time. Consider the PDS at www.BlueBadgeInsurance.com.au to decide if the product is right for you. Blue Badge Insurance Australia Pty Ltd ABN 59 162 783 306 (A.R. No. 438547) is an Authorised Representative of Insurance Logic. Pty Ltd ABN 44 002 859 252 (AFS Licence No 237633) and The Hollard Insurance Company Pty Ltd ABN 78 090 584 473 (AFS Licence No 241436).

December 2017.org.au16

Apply for an Exemption, Reduction or Refund from Motor Vehicle DutyA person with a physical disability who has had a vehicle modified may be entitled to an exemption from, or reduction in motor vehicle duty on the registration or transfer of registration of a motor vehicle. Below outlines each exemption or reduction, how they can be claimed and the documents required to support the application.

A person with a physical disability may be entitled to an exemption from, or reduction in motor vehicle duty on the registration or transfer of registration of a motor vehicle. The entitlement depends on what the vehicle is to be used for.

You may need to write to the State Revenue Office Victoria (SRO) requesting the particular exemption. Some exemptions are available directly through VicRoads, which collects motor vehicle duty as part of the registration process. You don’t need to write to the SRO to receive those exemptions.

If you’re entitled to an exemption or reduction but have already paid the duty, you will be eligible for a refund. You must apply to the SRO for a refund. The information and documents you must supply in your refund application are outlined in relation to each exemption.

Identify the exemption or reduction

A vehicle is modified to enable a person with a disability to drive it – S218(2)A person must have a physical disability and the vehicle must be

modified to enable that person to drive. The amount of duty will only be reduced by the reasonable costs of the modification.

You must write to the SRO with: • A letter requesting the exemption or if duty has already been paid, a refund, stating the vehicle registration number,

• A copy of the signed contract of sale for the purchase of the vehicle,

• Copies of invoices/receipts showing the costs of the modification, and

• A statutory declaration from www.sro.vic.gov.au/ckfinder/userfiles/files/218%20Vehicle%20Modifications%20Statutory%20Declaration.DOC outlining that the application is being made by the person who has a physical disability and the vehicle has been modified to enable them to be able to drive it.

A vehicle is used to transport an incapacitated person – S233BThe vehicle must be designed solely for the conveyance of one incapacitated person whose mobility is seriously impaired,

and not be used to convey any other person. The vehicle must be registered in the incapacitated person’s name.

You must write to the SRO with: • A letter requesting the exemption or if duty has already been paid, a refund, stating the vehicle registration number,

• A copy of the signed contract of sale for the purchase of the vehicle, and

• A statutory declaration from www.sro.vic.gov.au/ckfinder/userfiles/files/233B%20Incapacitated%20Persons%20Vehicle%20Statutory%20Declaration.DOC confirming the vehicle is designed solely for the conveyance of one incapacitated person whose mobility is seriously impaired and the vehicle will not be used to convey any other person.

A private vehicle is used to convey an incapacitated person – S233CThe vehicle must be registered in the name of an incapacitated person or the parent/legal guardian of an incapacitated person who is a minor, or a person who is a relative of or a carer for an incapacitated person.

You must write to SRO with: • A letter requesting the exemption or if duty has already been paid, a refund, stating the registration, reason and amount of refund,

INFORMATION

■ continued on next page

17.org.auDecember 2017

INFORMATION

• A copy of the signed contract of sale for the purchase of the vehicle,

• A copy of the VASS (Vehicle Assessment Signatory Scheme) certificate, and

• A statutory declaration from www.sro.vic.gov.au/ckfinder/userfiles/files/233C%20Private%20vehicle%20used%20to%20convey%20incapacitated%20person%20Statutory%20Declaration.DOC confirming the vehicle is specially converted to provide

wheelchair access, capable of carrying at least one occupied wheelchair, used for conveying an incapacitated person whose mobility is seriously impaired and is not a taxi-cab.

Lodge your applicationYou can lodge your application for an exemption, reduction or refund (and supporting documents) using one of the methods below. However, if you have completed a statutory declaration, you must lodge the original declaration to

the SRO by mail.

Email all your documentation to contact@sro.vic.gov.au and refer to “Motor Vehicle Duty Exemption/Refund” in the subject line.

Mail all your documentation to:State Revenue OfficeGPO Box 1641MELBOURNE VIC 3001If you have any enquiries please contact the State Revenue Office on 13 21 61 or visit their website at www.sro.vic.gov.au/node/1505.

■ continued from previous page

VALid Our Choice Expo – Caulfield 2017On the 21st November 2017, Spire was proud to participate for the second time in the VALid ‘Our Choice Expo’ at Caulfield Racecourse.

VALid (The Victorian Advocacy League for Individuals with Disability) has a great deal of expertise in networking and providing information to people with a disability and their families, Victoria-wide.

Spire held an exhibit that was manned by volunteers and staff, some of whom have lived experience with a spinal cord injury. It was a wonderful opportunity

to better understand the ways in which Spire could connect and complement other services that are out there.

There was a wealth of varied exhibits that showcased recreation activities, employment support and mobility solutions amongst others! We felt encouraged and inspired as an organisation to continue providing the highest level of support available to those living with a spinal cord injury.

We look forward to being part of the Our Choice Expo again in future!

December 2017.org.au18

FOR SALE

2015 Kia Rio Sports with Hand Controls

Registered in January 2016. 3 door hatch, 4,600 kms, Still has 5 years new car warranty. Bright yellow zippy sports model, Very good condition, Extremely low kms. Owner no longer able to drive. Great buy. Hand Controls from Frank’s Engineering.Price $14,900 ono Phone 0429 968 305 (Georgia) (11/17#a)

2016 Kakadu Chameleo Campervan - Wheelchair Accessible

Wheelchair ramp and platform with large custom entry door; Full length awning and annex; Roof Top Reverse-cycle Air Conditioner; 12” Electric brakes; Front boot storage; Outside power point; Double internal power points; Full rear internal ensuite with large open custom shower; Hot water service; 12v Cassette toilet; Hand basin; Glass lid sink; Microwave; 3 Way fridge 90 litre; 3 Burner stove; Front double bed with innerspring mattress on a Hydra-lift hydraulic slide out; Remote control Hydra-lift hydraulic roof lift; Inner spring mattress; 12v LED bed lights; LED lights throughout ; Roof hatch; Fire extinguisher; Smoke alarm; Café wall; 1 x 9Kg gas bottles; 60 litre water tanks x 2; Step light LED; Overhead LED lights (over door); 15” Alloy wheels; Electric pump 12v; Battery: 2 x100amp hour 10amp charger, bumper bar/ spare wheel; Drop leg stabilisers; Fully block out curtains; High density foam (cushions) & quality fabrics; 1 Piece fibreglass roof composite wall panelling.Price $55,000Phone 0404 033 425 (Valerie) (11/17#a)

2003 Toyota Noah Van Wagon

6st 5door; Auto 4sp 2.0i (Wheelchair) X Disabled Rear Access (Sloper); Located in Melbourne VIC. Owned for 3 years and only selling since I have modified another car to drive for myself instead of being just a passenger. Very compact and easy to drive and park. Cosy spacious interior with beige velour. Recently serviced. Very clean and well looked after vehicle. Previous non-smoker owner. Ramp unfolds and car lowers down within seconds. It will come with a roadworthy certificate so you don’t have to do the running around. The vehicle registration is paid for the next 9 months until June 2018. It represents great value at $19,900. Details: Travelled 129,537 kms; Rear Access (Sloper) Vehicle; Auto Transmission; 5 Seats + Wheelchair; Rear Seats can lift up (3rd Row); (5th Seat not shown in pics as it was removed for fastener/easier access but will re-attach before sold); Electric Rear Ramp - Fully Operate By Button: Up / Down; Rear Air Suspension; Auto Climate Control; Economical 2.0lt - 4 Cylinder 1AZ Engine Bonus!!!!; Aftermarket Built In Eonon M1 Head Unit; Features: - 6.2″ Digital Touchscreen, GPS Navigation (Included Maps on 4GB Micro SD Card), AM/FM Radio/ CD/DVD Player, Micro SD Slot, Bluetooth For MP3/Calls (Never used), Mobile Screen Mirroring - (Never used); Automatic Reverse Camera - (Displays when car is put into R Gear); Proximity Sensors; Registration Nos: 1EV 5WP; Registration Expires: 19/06/18; VIN: 6U900AZR600232480; Engine Nos: 1AZ4644660; Serial Nos: 1878673; Tare: 1,530kg; Length: 4560mm; Width: 1690mm; Height: 1850mm.Price $19,900Phone 0402 676 983 (Steven) (09/17#a)

Wheelchair Ramp

120cmx80cm; Folds to 23cm ONLY 12kgs; Will take up to 300kgs in weight; Brand new - never usedPrice $250 onoPhone 0419 342 015 (Judi) (09/17#a)

FOR SALE

V6 Compact 40 Powered Wheelchair

ROHO Cushion QS 910; Solid 12” drive wheels; Solid castor wheels; Power tilt; Neoprene covers; Curved MPS Back, lumbar roll; Double memory foam Dartex cover; Dynamics control system; Attendant control, right side; Flat board seat, pan & seat belt; Whitmyre Cobra headrest, 6” pad; Forehead strap, flip mount system; Very little use, in nursing home; Purchased in 2015 for $14,000.Price $7,750Phone 0421 331 955 (Jill) or 0408 003 536 (Rod) (11/17#a)

Mobility Scooter – Invacare Comet - 4 Wheel Electric

Onyx Blue; Modified Seat; Suit Larger Person; Minor Cosmetic DamagePrice $800 onoPhone 0403 021 822 (Judy) (11/17#a)

Mobility Plus Wedge Wheelchair

Comes with Spinergy rims and soft grip push rims.Price $450 onoPhone 0406 103 490 (Peter) (09/17#a)

Quickie Manual Wheelchair 2 Lite

Frame Width 19”; Seat depth 15”; Frame length regular; 24” Lite spoke wheel; Backrest tension adjust Ballistic; Brand new - never used; Cost $4,500. Include -Roho Cushion 48cmx41cm; 10x9 cells.Price $2,700 onoPhone 0419 342 015 (Judi) (09/17#a)

Top End Crossfire T6 Lightweight Alloy Wheelchair

Year 2007 low kilometres - only used at work; 19” x 16”; Quick release Spinergy 24” black spoked wheels; ROHO cushion to match chair dimensions; Location - SheppartonPrice $1,400 plus freightPhone 0428 292 421 (Geoff) (09/17#a)

Karma KP-25 Foldable Power Wheelchair

Over $3,000 new. Great for holidays. A bit of rust as it’s been outside, but it works fine. No cushion. Price $ 350.00 - very negotiable – all offers consideredPhone 0413 474 525 (Peter) (09/17#a)

TiLite 2GX Folding Manual Wheelchair

Titanium frame; Seat 17” x 18”Price 4,500Email jsheard@optusnet.com.au (John) (03/17#a)

Alternating Air Mattress ARJOHUNTLEIGH Auto Logic 110

Recently fully sterilised, wash, serviced and inspected by Arjohuntleigh; Only used it twice; New approximately $7000; 1 x Auto Logic ArjoHuntleigh Air Pump - Model 630009AU; 1 x Auto Logic 110 Air Mattress; Height 12cm x Length 203cm x Width 86cmwww.arjohuntleigh.com.au/products/therapeutic-support-systems/acute-care/active-therapy-range/auto-logic/specifications/Price $3,500 or Best Offer Phone 0403 072 102 (Bruno) (11/17#a)

CLASSIFIEDS

19.org.auDecember 2017

CLASSIFIEDS

FOR SALE

Jomor - Electric Single Bed

Adjustable height; min/max height 250mm-720mm; Bed head and knee section in perfect condition; Mattress included. Removable foot and head panels; Mattress size 900x2030mm. Pupps compliant; High density foam; 2 years warranty left. Cost $2,900.

Price $1,200 ono

Phone 0419 342 015 (Judi) (09/17#a)

Air Mattress

Sweden CuroCell S.A.M; Single 850mm x 2000mm Air mattress. User weight to 200kg; Hygienic cover; Anti-shear inner cover; Washable and tumble dry; Only used for 2 months; Cost $1,950.

Price $900 ono

Phone 0419 342 015 (Judi) (09/17#a)

Roho Cushion

Large size, Original box; 62(cm) x 56(cm) x 11(cm); 24.5’ x 22’ x 4.25’; Includes Repair Kit; 1 x Black Cover; 1 x Blue Waterproof Cover; Also have a Gel Cushion; All in Good Condition

Price: $450 ono

Phone: 0403 021 822 (Judy) (11/17#a)

MORE CLASSIFIEDSFor a full list of classifieds and items for free, please visit www.spire.org.au/community/classifieds or contact us on 03 9489 0777 or info@spire.org.au.

ITEMS FOR FREELIFT - BRUNS AMF HUBMATIK LinearliftLift from a van requires a new home.Phone 0411 222 592 (Lachie) (11/17#a)

Quickie Manual Wheelchair - Updated 8/12/1718” Seat width X 18” Seat height 16”-20” adjustable... Also footplates adjust to suit Comes with 22” X1 3/8 solid with Mag wheels. Phone 03 9408 4642 or 0424 710 446 (Michael) (11/16#a)

SUPPORTING SERVICES TO PEOPLE WITH SPINAL CORD INJURYMaking a donation… (Donations of $2 or more are tax deductible)With community support Spire continues to make a difference in the lives of people who sustain spinal cord injury and for the family that support them. You can provide support with a donation. By Phone – please ring Spire on 03 9489 0777 and have your credit card details available. (Mastercard, Visa, American Express)By Mail (cheque or credit card) – fill in the slip below and send with your cheque to:AQA Victoria LtdP.O. Box 219Fairfield VICTORIA 3078Name: (Mr/Mrs/Miss/Ms) Address: Suburb: P/Code: Phone Number: Mobile: Email: I’d like to donate: $

Card Type: Visa Mastercard Amex

Card Number: Expiry Date:Name on Card:Signature:

December 2017.org.au20

The Coloplast logo is a registered trademark of Coloplast A/S. © 2017-12 CON629. All rights reserved Coloplast A/S.

Are you getting enough continence funding?Funding for bladder and bowel products is changing and you may be entitledto more.

Coloplast Pty Ltd PO Box 240

Mount Waverley VIC 3149 Australia

www.coloplast.com.au

Call Coloplast today to find out

1800 316 650

aucare@coloplast.com

CON629-V2.indd 1 6/12/2017 4:54:27 PM

A mixed-methods study of the psychological and emotional experiences of people with spinal cord damage

Dr Peter New and colleagues from Caulfield Hospital and Monash University in Melbourne are conducting a world-first study into the psychological and emotional issues facing people with spinal cord damage from any cause, including trauma, diseases and medical or surgical problems. In particular, we are interested in how people with spinal cord damage cope and the influence of different factors on coping after spinal cord damage. We hope to use this information to develop strategies to help people with spinal cord damage. There are two separate parts to the study. Adults over 18 years can take part in one or both parts of the study.

One part of the study involves a questionnaire. No identifying personal details need to be provided and it takes about 60-90 minutes. You don’t have to complete it all at once, as long as you complete it within 1 week of starting it. Participants will be offered a $20 shopping voucher for completing the questionnaire. The questionnaire can be completed online by: a) Clicking the following: questionnaire

OR b) At the following URL: https://monashmnhs.qualtrics.com/SE/?SID=SV_etBe3uvTdFxf0WN OR c) Scanning this QR code

A paper copy can be posted by contacting by phoning Diana Hernandez on 0468 325 633 or email diana.ramirezhernandez@monash.edu.

The other part of the study involves an interview with a researcher. The interview can be conducted either face-face when and where it suits you or over the phone. It will take about 60 minutes to complete. At this stage we are just collecting names of people who may be interested. If you are interested in this part of the project please call Diana Hernandez or email using her above details. Participants will also be offered a $20 shopping voucher for participating in an interview.

Outdoor Adventure

Weekend Camp

The Outdoor Adventure Camp is an opportunity for you and your camping companion to re connect with the great outdoors in a supported environment. The aim of the program is to build your confidence and skills to be active in the great outdoors again and meet other likeminded people who share a passion for camping and the outdoors. The pilot camp program is hosted and facilitated by the YMCA at Camp Manyung and fully funded by the Department of Health and Human Services. The camp will be based at an accessible accommodation lodge at Camp Manyung and will be an introduction or re-introduction to camping with a spinal cord injury, it is open to people of all levels of experience and all levels of injury. The camp program will enable you to test your mobility skills in varying outdoor terrains and also to participate in an optional overnight camp out (in tents), view equipment demonstrations, have a go at hand cycling and other adventure activities including: Giant Swing, Universal High Ropes Course (with specially designed wheelchair provided).