dementia action alliance quarterly meeting 12 th february 2014 by peter ashley © peter j s ashley...
TRANSCRIPT
DEMENTIA ACTION ALLIANCEQuarterly meeting 12th February 2014
byPeter Ashley
© Peter J S Ashley 2014 1
* With great respect for the gentleman after whom he was named
And don’t forget me!
Boris*
A personal experience of living with co-morbidities
The devil is in the detailor
What living with a dementia is all about------------
The facts in my caseand
Others have similar problems!
© Peter J S Ashley 2014 2
© Peter J S Ashley 2014 3
ComorbidityFrom Wikipedia, the free encyclopediaIn medicine, comorbidity is the presence of one or more additional disorders (or diseases) co-occurring with a primary disease or disorder; or the effect of such additional disorders or diseases.In medicine, the term "comorbid" can be either medical condition(s) existing simultaneously but independently with another condition; or it can indicate a related medical condition or conditions.
The 3 D’s
1. Dementia
2. Depression
3. Delirium
© Peter J S Ashley 2014 4
© Peter J S Ashley 2014 5
Dementia (taken from Latin, originally meaning "madness", from de- "without" + ment, the root of mens "mind") is a serious loss of global cognitive ability in a previously unimpaired person, beyond what might be expected from normal aging. It may be static, the result of a unique global brain injury, or progressive, resulting in long-term decline due to damage or disease in the body. Although dementia is far more common in the geriatric population (about 5% of those over 65 are said to be involved),[1] it can occur before the age of 65, in which case it is termed "early onset dementia".[2]
Dementia is not a single disease, but a non-specific syndrome (i.e., set of signs and symptoms). Affected cognitive areas can be memory, attention, language, and problem solving. Normally, symptoms must be present for at least six months to support a diagnosis.[3] Cognitive dysfunction of shorter duration is called delirium.
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Depression is a state of low mood and aversion to activity that can affect a person's thoughts, behavior, feelings and sense of well-being.[1] Depressed people feel sad, anxious, empty, hopeless, worried, helpless, worthless, guilty, irritable, hurt, or restless. They may lose interest in activities that once were pleasurable, experience loss of appetite or overeating, have problems concentrating, remembering details, or making decisions, and may contemplate, attempt, or commit suicide. Insomnia,excessive sleeping, fatigue, loss of energy, or aches, pains, or digestive problems may also be present.[2]
Depressed mood is also a primary or associated feature of certain psychiatric syndromes such as clinical depression.
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Delirium, or acute confusional state, is a syndrome that presents as severe confusion and disorientation, developing with relatively rapid onset and fluctuating in intensity. It is a syndrome which occurs more frequently in people in their later years. Delirium represents an organically caused decline from a previously attained baseline level of cognitive function. It is typified by fluctuating course, attentional deficits and generalized severe disorganization of behavior. It typically involves other cognitive deficits, changes in arousal (hyperactive, hypoactive, or mixed), perceptual deficits, altered sleep-wake cycle, and psychotic features such as hallucinations and delusions.
Facts as they relate to me.
My primary disease
A dementia
Subtype - Dementia with Lewy Bodies (DLB)
My additional disorders/diseases
Let’s look at the timeline both pre and post DLB
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My timeline.
1997 ‘98 ‘99 ‘00 ‘01 ‘02 ‘03 ‘04 ‘05 ‘06 ‘07 ‘08 ‘09 ‘10 ‘11 ‘12 ‘13 2014
CHRONIC DEPRESSION – HIGHLY CYCLICD Day
DEMENTIA WITH LEWY BODIES
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LEGIONAIRRES DESEASE
MAJOR HEART ATTACK
UTIs
TYPE II DIABETIES
2ND HEART ATTACKANGINA
MOOD SWINGS
MEINPATIENT MENTAL HOSPITAL
7 SESSIONS ECTTWO SUICIDE ATTEMPTS
TWIN CATERACT OPERATION
CHRONICALLY DEAF (HIGH FREQUENCY)
SLEEP APNOEA
DYSLEXIAATAXIA
DYSGRAPHIA
OEDEMA
LEG ULCERS
PERIODS OF SEASONAL AFFECTIVE DISORDER
TO COMBAT
MY
PROBLEMS
I NEED
EXERCISE© Peter J S Ashley 2014 10
© Peter J S Ashley 2014 11
PROBLEMS???SO DOES SHE!“WHAT ME?”
“AGE IS JUST A NUMBER.”“YOU’VE GOT TO MAKE
THE BEST OF IT.”“I NEVER LET THINGS GET
ME DOWN!”
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Peter and Boris