development of multidisciplinary innovative strategies for...
TRANSCRIPT
Development of multidisciplinary innovative strategies for the care of the Romanian
individual with cleft lip and/or palate
Bucharest, September 22nd – 24th, 2014
Bucharest, September 22-24, 2014
Meeting schedule Monday 22.09.2014 08.30 - 09.00 Registration Session 1 Moderators: Bill Shaw, Gunvor Semb, representative of UMF Carol Davila 09.00 – 09.15 Radu Spataru: Introductory speech 09.15 – 09.30 UMF Carol Davila: Speech from the University representative 09.30 – 10.30 Bill Shaw: The challenge of improving standards of cleft care. Evidence based care 10.30 – 11.00 Gunvor Semb: International collaboration in cleft care 11.00 – 11.10 Lidia Boboc: Eurocleft in Romania 11.10 -11.30 Coffee break Session 2 Moderators: Elisabeth Rønning, Nina Lindberg, Ragnhild Aukner 11.30 - 11.50 Lidia Boboc: Brief terminology of clefts 11.50 – 12.00 Gunvor Semb: History and development of the Oslo Cleft Team 12.00 – 12.30 Nina Lindberg: The nurse’s role in cleft care; Feeding babies, follow-ups in pregnancy, pre- and postoperative care 12.30 – 13.00 Michael Matzen: Primary surgery: lip and palate closure 13.00 – 13.15 Discussions. 13.15 - 14.15 Lunch Session 3 Moderators: Jorunn Lemvik, På l Skaare, Kristin Billaud Feragen 14.15 - 14.35 Michael Matzen: Alveolar bone grafting 14.35 - 15.25 Ragnhild Aukner and Jorunn Lemvik: CLP: Influences and consequences for speech and
language. Assessment and interventions 15.25 – 15.55 Kristin Billaud Feragen: The psychologist’s role in the cleft team 15.55 – 16.45 Elisabeth Rønning and På l Skaare: Orthodontic protocol and treatment 16.45 – 17.05 Gunvor Semb: Factors that influence the outcome of alveolar bone grafting. A
study of 825 patients. 17.05 – 17.30 Discussions. 20.00 Gala dinner
Tuesday 23.09.14 Session 4 Moderators: Charles Filip, Gunvor Semb, Dan Enescu 09.00 – 09.30 Charles Filip: Surgical treatment of velopharyngeal insufficiency 09.30 – 10.00 Michael Matzen: Secondary Surgery of the cleft lip 10.00 – 10.30 Elisabeth Rønning and På l Skaare: Orthodognathic surgery. Prosthodontic treatment 10.30 – 11.00 Gunvor Semb: 20 years follow-up of patients born with unilateral- and bilateral cleft
lip and palate. Burden of care. 11.00 – 11.20 Coffee break Session 5 Moderators: Michael Matzen, Catalin Carstoveanu, Ion Nicolescu 11.20 – 11.40 Catalin Carstoveanu. "Pierre Robin sequence - neonatal management" 11.40 – 12.05 Charles Filip: Pierre Robin - Sequence 12.05 – 12.25 Radu-Iulian Spataru: Challenges and dilemmas in oral surgery 12.25 – 12.40 Radu Spataru: Surgical approach in our cleft surgery unit 12.40 – 12.55 Ion Nicolescu: Maxillofacial surgery aspects in patients with clefts 12.55 – 13.10 Lidia Boboc: Frequent problems encountered by the orthodontists when treating patients with clefts 13.10 – 13.20 Ionela Ghiozdavu: Speech therapy for children with clefts 13.15 – 13.30 Discussions. 13.30 – 14.30 Lunch Session 6 Moderators: Emil Urtila, Ileana Ionescu, Marcel Albean, Sidonia Susanu 14.30 – 15.50 10 min presentation of Romanian Cleft Centres 15.50 – 16.00 Lidia Boboc: Romanian Cleft Register Proposal 16.00 - 16.20 Coffee break Session 7 Moderators: Lidia Boboc, Radu-Iulian Spataru, Mariana Pacurar, Irina Zetu 16.20 – 16.50 Discussion Romanian Cleft Register Form 16.50 – 17.10 Radu Spataru: Presentation of Good principles in cleft care and Parents leaflet 17.10 – 17.30 Discussions
Wednesday 24.09.2014 Session 8 Moderators: Gunvor Semb, Radu-Iulian Spataru, Ionela Ghiozdavu 09.00 – 09.30 Gunvor Semb: The Scandcleft trials of primary surgery in patients born with
unilateral cleft lip and palate 09.30 - 10.00 Ragnhild Aukner and Jorunn Lemvik: Speech pathologists’ experience from participating in the Scandcleft and Tops trials 10.00 - 10.20 Kristin Billaud Feragen: Coping with visible difference and the burden of treatment 10.20 – 10.40 Radu-Iulian Spataru: Romania Cleft perspectives 10.40 – 12.00 Break down into specialities groups + Cofee break in the mean time End of meeting
The OSLO CLP TEAM
Dr. Michael Matzen Cleft Plastic Surgeon
Dr. Charles Filip Cleft Plastic Surgeon
Nina Lindberg Specialist Cleft Nurse
dr. Kristin Billaud Feragen Cleft Psychologist
Ragnhild Aukner Speech Pathologist
Jorunn Lemvik Speech Pathologist
Dr. Elisabeth Rønning Cleft Orthodontist
Dr. Pål Skaare Cleft Orthodontist
Prof. Dr. Gunvor Semb Cleft Orthodontist Eurocleft steering group
Prof. Dr. Bill Shaw Cleft Orthodontist Eurocleft steering group Special guest Manchester