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Dignity and Incontinence Prof. Dr. Wilfried Schlüter, Prof. Dr. Katharina Oleksiw 1

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Dignity and Incontinence

Prof. Dr. Wilfried Schlüter, Prof. Dr. Katharina Oleksiw

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Contents

1. Objectives

2. Fundamental understanding of "Dignity"

3. Research design

4. Results

5. Conclusions

6. Courses of action

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Objectives

What significance does incontinence have on thepersonality of the person affected?

How do the persons affected feel about incontinence care?

What is the experience of the care givers in incontinencecare?

What is the need for change regarding the factors andconditions having an adverse effect on dignity?

What is the role of the expert standard “Encouragingurinary continence in care giving”?

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1. Objectives – 2. Fundamental understanding of „Dignity“ – 3. Research Design – 4. Results – 5. Conclusions – 6.Courses of action

Fundamental understanding of "Dignity"

Functions of Dignity

Determination of 'being'

Protective Funktion

Constructive role

Need for nursing care leads to reduced cognition of function

in the person

Compensation by care givers

Preconditions:

Knowledge, thoughtfulness and professional discretion of thecare givers regarding the individuality of the persons

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1. Objectives – 2. Fundamental understanding of „Dignity“ – 3. Research Design – 4. Results – 5. Conclusions – 6.Courses of action

Research design (1)

Method: Partly-structured qualitative interviews

Sample:

25 residents (57-95 years)

20 attending care givers

Setting: 7 different long-term care facilities

Ensuring voluntary participation and data protection

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1. Objectives – 2. Fundamental understanding of „Dignity“ – 3. Research Design – 4. Results – 5. Conclusions – 6.Courses of action

Research design (2)

Pre-test

Transcription of interviews + coding

Qualitative content analysis according to Mayring(Mayring,P. (2008): Qualitative Inhaltsanalyse. Grundlagen und Techniken. 10. Aufl. Weinheim; Basel: Beltz)

Analysis of the documentation using checklist

Research log for relevant observations

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1. Objectives – 2. Fundamental understanding of „Dignity“ – 3. Research Design – 4. Results – 5. Conclusions – 6.Courses of action

ResultsDignity

Factors and conditions supporting dignity

Residents

Psycho-social factors

Quality of care

Professional treatment

Communication

Structural

Basic conditions

Care givers

Psycho-social factors

Quality of care

Professional treatment

Communication

Structural

Basic conditions

Factors and conditions having an adverse effect on dignity

Residents

Psycho-social factors

Quality of care

Professional treatment

Tabooing

Structural

Basic conditions

Economic aspects

Care givers

Psycho-social factors

Quality of care

Professional treatment

Communication and tabooing

Structural

Basic conditions

Economic aspects

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1. Objectives – 2. Fundamental understanding of „Dignity“ – 3. Research Design – 4. Results – 5. Conclusions – 6.Courses of action

Factors supporting dignityPsycho-social factors

- Independence -

Residents (RS) Care givers (CG)

Use of existing self-helppotential

Encouraging independence in RS

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1. Objectives – 2. Fundamental understanding of „Dignity“ – 3. Research Design – 4. Results – 5. Conclusions – 6.Courses of action

Factors supporting dignityPsycho-social factors

- Participation -

Residents (RS) Care givers (CG)

Development of participationstrategies, e.g. Adequate incontinence

material Frequent visits to the toilet

Recognising the individual limiting factors

Enabling participation

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1. Objectives – 2. Fundamental understanding of „Dignity“ – 3. Research Design – 4. Results – 5. Conclusions – 6.Courses of action

Factors supporting dignityPsycho-social factors

- Emotional health -

Residents (RS) Care givers (CG)

Satisfaction Accepting incontinence

material (ICM) Influence of ICM on the

feeling of self-worth

Accepting the feeling of embarrassment

Recognition of adaption and acceptance of incontinence

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1. Objectives – 2. Fundamental understanding of „Dignity“ – 3. Research Design – 4. Results – 5. Conclusions – 6.Courses of action

Factors supporting dignityPsycho-social factors

- Handling desires/needs -

Residents (RS) Care givers (CG)

Acceptance of wishes andfreedom to decide Choice of incontinence

material Individual times for visits to

the toilet Care givers of the same

gender

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1. Objectives – 2. Fundamental understanding of „Dignity“ – 3. Research Design – 4. Results – 5. Conclusions – 6.Courses of action

Factors supporting dignity- Quality of care -

Residents (RS) Care givers (CG)

Need-based incontinence material

Self-care Gender-specific care Personal continuity Clothing that makes nursing

simpler

Personal continuity Mutual trust with RS

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1. Objectives – 2. Fundamental understanding of „Dignity“ – 3. Research Design – 4. Results – 5. Conclusions – 6.Courses of action

Factors supporting dignity- Professional treatment -

Residents (RS) Care givers (CG)

Acknowledging the private space of the RS

Empathy Toilet training is carried out Talk on the use of incontinence

material during nursing visits

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1. Objectives – 2. Fundamental understanding of „Dignity“ – 3. Research Design – 4. Results – 5. Conclusions – 6.Courses of action

Factors supporting dignityCommunication

- Communication between RS and CG -

Residents (RS) Care givers (CG)

Considering personal wishes Keeping in mind the feeling

of embarrassment

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1. Objectives – 2. Fundamental understanding of „Dignity“ – 3. Research Design – 4. Results – 5. Conclusions – 6.Courses of action

Factors supporting dignity- Structural basic conditions -

Residents (RS) Care givers (CG)

Keeping the incontinencematerial (ICM) in RS room

Separate room Own, separate toilet

Separate room ensures the safe-keeping of privacy

Mobile screen Keeping the ICM in RS room Occupancy signal Adapting the occupancy

structure

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1. Objectives – 2. Fundamental understanding of „Dignity“ – 3. Research Design – 4. Results – 5. Conclusions – 6.Courses of action

ResultsDignity

Factors and conditions supporting dignity

Residents

Psycho-social factors

Quality of care

Professional treatment

Communication

Structural

Basic conditions

Care givers

Psycho-social factors

Quality of care

Professional treatment

Communication

Structural

Basic conditions

Factors and conditions having an adverse effect on dignity

Residents

Psycho-social factors

Quality of care

Professional treatment

Tabooing

Structural

Basic conditions

Economic aspects

Care givers

Psycho-social factors

Quality of care

Professional treatment

Communication and tabooing

Structural

Basic conditions

Economic aspects

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1. Objectives – 2. Fundamental understanding of „Dignity“ – 3. Research Design – 4. Results – 5. Conclusions – 6.Courses of action

Factors having an adverse effect on dignityPsycho-social factors

- Independence -

Residents (RS) Care givers (CG)

Dependence on CG andhis/her help

Being under control ofanother person

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1. Objectives – 2. Fundamental understanding of „Dignity“ – 3. Research Design – 4. Results – 5. Conclusions – 6.Courses of action

Factors having an adverse effect on dignityPsycho-social factors

- Participation -

Residents (RS) Care givers (CG)

Individual factors for limitingparticipation, e.g. Inadequate material Frequent visits to the toilet Fear

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1. Objectives – 2. Fundamental understanding of „Dignity“ – 3. Research Design – 4. Results – 5. Conclusions – 6.Courses of action

Factors having an adverse effect on dignityPsycho-social factors

- Emotional health -

Residents (RS) Care givers (CG)

Resignation Embarrassment Fear Disregard Patronising behaviour Duress

Recognition of adaption toand acceptance ofincontinence

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1. Objectives – 2. Fundamental understanding of „Dignity“ – 3. Research Design – 4. Results – 5. Conclusions – 6.Courses of action

Factors having an adverse effect on dignityPsycho-social factors- Stresses on the residents -

Residents (RS) Care givers (CG)

Involuntary urination Inadequate incontinence

material Effects of shortage of staff

Involuntary urination Inadequate incontinence

material Nuisance caused by the smell

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1. Objectives – 2. Fundamental understanding of „Dignity“ – 3. Research Design – 4. Results – 5. Conclusions – 6.Courses of action

Factors having an adverse effect on dignityCommunication and tabooing

- Tabooing -

Residents (RS) Care givers (CG)

The topic of incontinence is often kept under wraps

Recognising the tabooing by RS

Tabooing through verbal customisation

Only functional communication in the team

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1. Objectives – 2. Fundamental understanding of „Dignity“ – 3. Research Design – 4. Results – 5. Conclusions – 6.Courses of action

Factors having an adverse effect on dignity- Structural basic conditions -

Residents (RS) Care givers (CG)

Dormitory RS rooms without separate

toilet

Lack of a mobile screen A mobile screen not used

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1. Objectives – 2. Fundamental understanding of „Dignity“ – 3. Research Design – 4. Results – 5. Conclusions – 6.Courses of action

Conclusions (1)

Tabooing of the topic among the affected and care givers

Simple functional view of incontinence, ICM plays a

significant role

High empathy among the care givers

Frequently inconsiderate treatment by care givers

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1. Objectives – 2. Fundamental understanding of „Dignity“ – 3. Research Design – 4. Results – 5. Conclusions – 6.Courses of action

Conclusions (2)

High financial loads on persons affected

Development of coping strategies for daily life, often

resignation and 'lumping' the situation

Not possible to always consider dignity

National expert standard is hardly used

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1. Objectives – 2. Fundamental understanding of „Dignity“ – 3. Research Design – 4. Results – 5. Conclusions – 6.Courses of action

Courses of action (1)

Sensitising management

Sensitising colleagues regarding dignified treatment

Breaking the mental block

Sensible use of language

Optimising structural basic conditions

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1. Objectives – 2. Fundamental understanding of „Dignity“ – 3. Research Design – 4. Results – 5. Conclusions – 6.Courses of action

Courses of action (2)

Using national expert standard

Concerted advanced training programmes and ensuring retention of acquired knowledge

Instructions for reflection/evaluation

Optimising communication within the team and with residents

Monitoring the colleagues directly during nursing activities

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1. Objectives – 2. Fundamental understanding of „Dignity“ – 3. Research Design – 4. Results – 5. Conclusions – 6.Courses of action

„When one dreams alone, it is only a

dream. When many dream together,

this is the beginning of a new

reality.”

(Friedensreich Hundertwasser)

Your contact for further advice and information

Prof. Dr. Wilfried Schlüter

Prof. Dr. Katharina Oleksiw

Konsul-Smidt-Str. 92

D-28217 Bremen

phone: +49-421-39879057

+49-171-3641521

e-mail: [email protected]

[email protected]

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