disability law annual report

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2012 Annual Report

EqitDiit

Respect

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KEVIN MURPHY, President of the Board of Trustees

W I Spprt te DLC

I am privileged to serve as president o the DLC Board o Trustees. I have been asupporter o underdogs since my childhood, having been a smaller, slower childusually picked last or any sporting team during school recess. My rst proessionalcareer was nursing, primarily in psychiatric and mental health settings. That experiencehelped teach me patience and compassion or individuals with mental illness and theiramilies. My second proessional career has been in law, both public and private practice.I admire the legal sta o the DLC or their dedication to their work, including theirproblem-solving approach on behal o individuals with physical, intellectual, and mentaldisabilities.

ADINA ZAHRADNIKOVA, DLC Execuve Director

Te Rit Mmet t Wr Teter

Since our inception 34 years ago, the Disability Law Center has been working to createa community that we can all be proud o -one where every Utahn, regardless o theirabilities, is able to live, work and thrive without ear that they will be discriminatedagainst, bullied in school, denied access to basic programs and services or be the victimso abuse or neglect.

While we eel privileged to serve Utahs citizens with disabilities and their amilies, werecognize that now is the right moment to really look at our work and the needs o ourconstituents to ensure that we remain a true catalyst or social justice in our communityOver the past several months, DLC sta, board members and key community partnersworked on an ambitious, dynamic strategic three year plan that will serve as a roadmap or the DLCs uture steps. I thank all o you or your unwavering support oour advocacy or those most oten overlooked and unheard. I we continue to worktogether, we will one day eliminate all physical and attitudinal barriers that people withdisabilities continue to encounter in their everyday lives.

FRoM ouR ChaIR anD DIRECToR

or Prters

and Jusce for All

Utah Developmental Disabilies Council

Center for Persons with Disabilies, Utah State University



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By ThE nuMBERS

Representaon at Hearings 87

Representaon at Meengs 804

Abuse & Neglect Allegaon 230

Ligaon 13

Technical Assistance 212

Total 1346

Number of People Served and Method of Advocacy

804

87

212230

13

Physical Disability

Mental Illness

Intellectual Disability

Brain Injury

Health Impairments

1677

1637

579

242

278

People Served By Disability Type

0 20 40 60 80 100

Education / Training Activities

54

Public Information Activities

Outreach

Educating Policy Makers

General Public Information

93

46

31



4/12

Ater Ron broke his back and his wie survived a brain tumor, theydecided to purchase a home in a Planned Unit Development.

The new home oered a simple liestyle. It was one level and on asmaller lot. They wouldnt have to worry about yard care or snowremoval. They looked orward to a more manageable way o lie.

Once settled into their new home, they discovered that instead o

relieving their burden, the new neighborhood turned out to be anightmare.

Ron and his neighbors couldnt saely navigate their own streetsbecause the sidewalks and driveways were not accessible. To makematters worse, the city reused to provide basic services such as trashand snow removal because the neighborhood wasnt compliant withthe Americans with Disabilities Act.

When the DLC attorney led a complaint and represented the home-owners with disabilities, the developer was held accountable. Heagreed to make the changes at a cost o $144,000.

Now Ron, his wie and their neighbors can look orward to living theliestyle they worked so hard or.

For more details about Rons story go to:http://www.disabilitylawcenter.org/successstories/#ron

Ron WaS STuCk In a houSIng MESS.

WE CLEaRED a PaTh FoR ThE nEIghBoRhooD.

Fair Housing

Ron Tollefson, Vernal



5/12

Ashley has multiple disabilities that make it dicult or her to cope with stress. As shegrew older, she became more violent at home. Her parents were concerned about keepingher sae. They talked to health proessionals who told them to admit her to Utahs insti-tutional acility or individuals with intellectual disabilities.

The plan was that Ashley would get short-term specialized treatment to help her stabilizeso that she could return to her amily and resume her lie. That was when she was our-teen. At age nineteen, she was still in the institution.

During her th year under institutional care, Ashleys inappropriate behaviors increased.The acility responded by isolating her rom her peers. She became even more shut downand withdrawn. Then the school reused to let her attend. Her educational services werecut rom a ull time schedule at school to two hours a week in her room.

Ashleys mom called the DLC or help.

The DLCs Abuse & Neglect and Education Advocates worked together. Months o per-sistent advocacy and negotiation paid o.

Ashley was moved rom the institution into a home o her own. Now she is enjoying newexperiences and learning to live in a world that aords her choices. She has also returnedto a classroom where she gets an appropriate education.

To learn more about Ashleys story go to:http://www.disabilitylawcenter.org/successstories/#ashley

aShLEyS TREaTMEnT PLan haD gonE STaLE.

WE CaME In To hELP CLEan houSE.

Community Integraon

asle t hme



6/12

A stroke robbed Patty o her voice but it couldnt take her ideas, her warmth orher sense o humor. Patty was determined to nd a way to express hersel. Allshe needed was technology like Stephen Hawking uses.

Unortunately, Medicaid only covers speech devices or children.

The DLC spoke up or Patty. We led suit arguing that Medicaids policyillegally treated people dierently. The Utah Court o Appeals agreed and

ordered Medicaid to provide Patty with the device.

As a result of the decision, many more devices and services that are available tochildren are now available for adults. From now on, Patty and other adults willbe able to share their voice with all o us.

To learn more about how the DLC attorneys helped Patty,visit: http://www.disabilitylawcenter.org/successstories/#patty

PaTTy LaBoRED To WhISPER.WE MaDE SuRE hER voICE WaS hEaRD.

Access to Services

Pay Olguin, Ogden



7/12

As advocates, we periodically refect on the people whose liveshave infuenced ours. We also consider who might be willing tolet us share their story or the benet o others. Sadly, this is notalways possible because our clients are requently unable to pro-tect themselves.

They languish in nursing homes, jails and prisons, public andprivate institutions, and in regular homes in neighborhoods likeyours and mine. They oten go unnoticed unable to expressthemselves in ways that are easily understood. Many depend onothers to care or their most basic needs.

All too oten, even basic needs go unmet. Many live in con-ned spaces, go hungry, and are ignored by those around them.Through our monitoring, investigation, legal advocacy, andcollaboration with other advocates, we are able to uncover someo the most serious cases.

Telling their stories is dicult because many times, we only cometo know them under unspeakable circumstances. However, to usthey are more than the trauma that has been inficted upon themThey are a brother or a sister, a parent, a riend. In an eort toprotect them, we dont share their name or ace. We honor theirlives each day by ensuring that their abuse, neglect and sueringis not ignored or orgotten..

To read about an advocates rst experience with monitoringwork, visit: http://www.disabilitylawcenter.org/successsto-ries/#nameless

ThEy aRE naMELESS anD FaCELESS.WE MakE SuRE ThEyRE noT FoRgoTTEn.

Abuse & Neglect



8/12

aLL kInDS oF MInDS

What do an Emmy winning lm director, a world-renownanimal behavior specialist, an exquisite jewelry company, theUtah Film Center, a marketing rm, the Utah DevelopmentalDisabilities Council and Utah State University have in com-mon?

They all partnered with the DLC to illuminate peoples viewso disability.

The message: diversity o minds and bodies enriches ourcommunity, while treating people dierently hurts us all.

The DLC sponsored events promoting this message through-out the year.

The DLC honored Dr. Temple Grandin with the rst annualPeek Award or Disability in Media. At ten venues overthree days, Dr. Grandin shared the message that all kinds ominds should work together. More than 3, 000 people heardher message in person.

See KSLs coverage o this event at:http://www.ksl.com/?nid=148&sid=17905546



9/12

Even minds we dont

understand grow beautiful things.

Let s rethink mental illness.

DISABILITY LAWCENTER.ORG

ShaPIng aTTITuDES

The Lets Re-Think Mental Illness cam-paign, initiated by the DLC was designed toreduce the stigma associated with mentalillness. The campaign ran or six weeksthrough the holiday season. This time periodwas chosen because research indicates thatthe general public tends to experience higherlevels o mental stress and emotional turmoilat that time o year. An estimated 1.3 millionpeople along the Wasatch Front, saw or heard

our radio, television, web, billboard andcinema messages.

The widespread use o media to educate thegeneral public was a new approach or theDLC with lasting positive outcomes.

The DLCs Community Justice Awards, and rst-evergala event, were held at The Leonardo. Stop Bully-ing Now was the theme o the evening. Paralympia

Muy Davis was the keynote speaker.The Community Justice Award recipients were cho-sen or their work to stem the tide o bullying. Tolearn more about the honorees, go to: http://disabilitylawcenter.org/2012-cja-honorees/

Even minds we dontunderstand createbrilliant things.

Lets rethinkmental illness.

DISABILITY LAWCENTER.ORG



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Kevin Murphy, PresidentBryce Field, Vice PresidentJe Burley

Tom BrownleeBarbara CampbellJoshua CannonMike ChidesterJared FieldsLeslie FrancisWilliam G. GibsonKelly Holt

Claire Mantonya, DD Council LiasonKen J MartinezPaul Newman

James ONeillAngela PeleschkaMike PerryJackie RendoRon RoskosMaria SchwartzSylvia Scott, PAIMI CouncilGrace Zuckerman

Sylvia Scott, ChairAlisha Giles, Vice ChairMichele Aimone

Marta BuriekRandy HuntingtonJackie RendoMary SarverVictor ScottEmily WaddoupsPaul Williams

Ficils

Brd f Trstees PaIMI Ccil

Te Disbilit Lw Ceter ts te members f te Brd f Trstees d te PaIMIAdvisory Council for their many contribuons.

2011 2012

REvEnuESFEDERAL AWARDS

US Dept of Educaon $351,647 $312,602

US Dept of Health and Human

Services $696,474 $853,503

US Social Security Administraon $108,858 $101,700

US Dept of Housing and Urban

Development - $143,548

OTHER GRANTS, FOUNDATIONS,

DONATIONS AND REVENUES $215,551 $254,184

ToTaL REvEnuES $1,372,530 $1,665,537

EXPEnDITuRESPROGRAM SERVICES $1,193,035 $1,404,036

GENERAL AND ADMINISTRATIVE COST $176,068 $158,834

FUND RAISING COST $9,462 $8,072

ToTaL EXPEnDITuRES $1,378,565 $1,570,942

ChangE In nET aSSETS $(6,035) $94,595



11/12

ThankS To ouR SuPPoRTERS

Corporations & FoundationsCorporations & Foundations

Individuals

Kenneth Allsop

Richard F. Armknecht

Robert Baird

Melissa J. Barbanell

Carl B. Boyd, Jr.

Charisma V. Buck

Doug & Barbera Campbell

Michael ChidesterJane Conard

Danielle Eyer

Dennis C. Ferguson

Leslie Francis

Dianna M. Gibson

Trevor E. Gordon

Kenneth B. Grimes, Jr.

Paul R. Haik

Kaylie Hardy

Jane F. Harrison

Joseph E. Hatch

Douglas & Robin Hough

Dixie S. Huefner

Krisne E. King

Jonathan C. Lambert

Claire Mantonya

Jery Mariani

Kim M. McGregor

Macoy A. McMurrayAmanda B. McPeck

Robert J. Moore

Renee Morita

Kevin Murphy

Trent D. Nelson

Mahew L. Nielson

Dawn S. Perry

Kenneth Rigtrup

David E. Rosenbloom

David E. Ross II

Richard K. Shimabukuro

Dr. Herbert & Patricia Shoemake

R. Kyle Treadway

George T. Waddoups

Jennifer Ward

Monica Whalen

Camille S. Williams

Kathryn L. Wyer

Adina Zahradnikova

Anonymous

Baird Foundaon

Epic Brewing

George & Dolores Dore Eccles Foundaon

Key Bank Foundaon

Kenneco Utah Copper, Corp.

Lagoon Corporaon

Locke, Lord, Bissell & Liddell

Prevent Child Abuse Utah

Snell Wilmer Law Firm

Utah State University Credit Union

Utah Bar Foundaon

Van Co Law Firm

Wild Willow, LLC

This publicaon is funded in part by the U. S. Department of Health and Human Services, the Center for Mental

Health Services, the U.S. Department of Educaon and the Social Security Administraon. The contents of this

publicaon arre the sole responsibility of the authors and do not represent the ocial views of these agencies.



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or MissiTo enforce and strengthen laws that protect the opportunies, choices and legal rights opeople with disabilies in Utah.

205 North 400 West, Salt Lake City, UT 84103

1.800.662.9080 1.801.363.1347 Fax: 1.801.363.1437

www.DisabilityLawCenter.org

facebook.com/disabilitylawcenter

disability law annual report

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