"do you want to be here?" listening to our long-term care residents

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Do you want to live here? Listening to our Residents in Long Term Care www.seniorsadvocatebc.ca 1-877-952-3181 British Columbia Patient-Centred Measurement Working Group

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Page 1: "Do You Want to Be Here?" Listening to Our Long-Term Care Residents

Do you want to live here? Listening to our Residents in Long Term Care

www.seniorsadvocatebc.ca 1-877-952-3181

British Columbia

Patient-Centred Measurement Working Group

Page 2: "Do You Want to Be Here?" Listening to Our Long-Term Care Residents

The Office of the Seniors Advocate

5 mandated areas:

• Health care

• Housing

• Income support

• Personal support

• Transportation

First Seniors Advocate appointed March 31, 2014

Role and Responsibilities:

Monitor & Analyze seniors’ services

Provide information and referral

Report to the Minister and the public

Page 3: "Do You Want to Be Here?" Listening to Our Long-Term Care Residents

Residential Care Survey: Objectives

To survey every resident about their experience of care and health related quality of life. Every long term care facility that receives public funding will be included.

To survey the most frequent visitor of residents about their perceptions of their loved one’s care and their own experience of care

To publicly report the survey results in a way that permits comparisons of the characteristics of facilities

To identify systemic issues in long term care

Page 4: "Do You Want to Be Here?" Listening to Our Long-Term Care Residents

Methodology

Resident Most Frequent Visitor

Sampling Census Matched Sample

Mode In-person interview

Mailed (paper-based or online)

# of Respondents Approx. 27,000 Approx. 27,000

Page 5: "Do You Want to Be Here?" Listening to Our Long-Term Care Residents

The Survey Instruments The interRAI Resident and Family experience of care tools were selected by a Consultation Group, following an extensive review of the literature:

• Strong psychometric properties

• Opportunities for benchmarking nationally and internationally

• Parallel tools allow comparison resident and family/frequent visitor ratings

The VR-12, a Patient Reported Outcomes tool, is being adapted for residential care

Page 6: "Do You Want to Be Here?" Listening to Our Long-Term Care Residents

Survey Dimensions

Privacy

Food

Safety and Security

Comfort

Daily Decisions

Respect

Responsive Staff

Staff-Resident Bonding

Activities

Personal Relationships

Medications

Overall Ratings

The survey will include items evaluating the resident’s experience of:

Includes additional made and tested-in-BC questions

Page 7: "Do You Want to Be Here?" Listening to Our Long-Term Care Residents

The Resident Interview Will be conducted as:

In-person structured interviews hosted by trained volunteer interviewers, who are independent from the facility

Conducted as an interview; quantitative and qualitative data will be recorded

Conducted in the language in which the resident is most comfortable communicating

Page 8: "Do You Want to Be Here?" Listening to Our Long-Term Care Residents

Every resident has a voice

All residents will be approached to participate in the survey

Interviewers will use numerous strategies to maximize inclusion, including:

• use of visual analogue boards

• standardized prompts

• soft skill communication strategies

• up to three approaches to participate

Example of an interview item:

“I get my favourite foods here. How often would you say this statement is true for you? Never, Rarely, Sometimes, Most of the time, or Always?”

Page 9: "Do You Want to Be Here?" Listening to Our Long-Term Care Residents

The Volunteer Model

Model developed together with leaders of volunteer resources across BC

Centralized and standardized recruitment, application, screening, including criminal record check, and deployment to be done externally to existing volunteer resources

Projected need of 900 to 1,500 volunteers (range will depend on response rate) across BC

Minimum of a 30 hour commitment from each volunteer, which includes:

• Mandatory 1-day training session

• Completion of 10 resident interviews

Page 10: "Do You Want to Be Here?" Listening to Our Long-Term Care Residents

How will the survey results be used?

To provide information about the quality of residential care in BC from the perspective of residents and their most frequent visitors/families

• at a system level

• for local quality improvement

To understand resident self-reported experiences of care and quality of life in relationship to other indicators from the RAI-MDS

To learn how well residents’ most frequent visitors and residents’ own self assessments compare

Page 11: "Do You Want to Be Here?" Listening to Our Long-Term Care Residents

Next Steps

Late April/May 2016: • Begin recruitment, training, and

deploying volunteer interviewers • Onsite administration of the surveys

begins

May to October 2016: • Rolling administration of the surveys on

a predetermined site by site schedule • Ongoing recruitment and training of

volunteer interviewers • Reporting of results within 30 days of the

completion of surveying at each facility

December 2016: • Public release of provincial results • Evaluation of project

Page 12: "Do You Want to Be Here?" Listening to Our Long-Term Care Residents

Contact

www.seniorsadvocatebc.ca

Toll-free: 1-877-952-3181

[email protected]

facebook.com/SeniorsAdvocateBC

@SrsAdvocateBC

Lena Cuthbertson Provincial Director, BC Ministry of Health

[email protected]

Lillian Parsons Project Manager, BC Patient Centred Measurement Working Group [email protected]