A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
funded by the US Department of Health and
Human Services,Administration on Children and
Families, Administration on Developmental
Disabilities1AUCD Pre-Conference Workshop9 November 2008
A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
Introduction: National Training Initiative
GrantsJennifer Johnson
Administration on Developmental DisabilitiesAdministration for Children and Families
9 November 2008 AUCD Pre-Conference Workshop 2
A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesProcess for Identifying Priority
Areas Meeting of experts in February Major recommendations:
Primary topics Large-scale projects
A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesWhat do we mean by ‘scaling up
self-determination’
Developing tools for using self-determination knowledge: In multiple settings and contexts Across the age-spanBy various stakeholders
A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
Essential Features
Coordination of efforts through partnerships. UCEDDs National organizations representing individuals with developmental disabilities,
parents and guardians, siblings, and culturally and linguistically diverse populations. Integration with other efforts with other national initiatives
To promote coordination Identify other entities implementing projects related to self-determination
Sustainability. An expected outcome is the sustainability of efforts past the five-year grant period. Ensure continued use of the training resources, updates and modifications to the
materials, and continued access to the materials by members of the public. Have a sustainability plan
A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
Phase I: Research and Planning.
Gathering and analyzing information from current literature and on State and Federal initiatives
Identify promising models and practices; gaps and variance in information and potential areas for cross-collaboration with other national initiatives.
Planning for sustainability Products:
Summary of findings Final plan for Phases II and III, including the strategies that will be used to
sustain the project and the plan for integrating the project with other national initiatives.
A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesPhase II: Develop and Test a
National Training Program. Use evidence to develop and test a national training program Key features:
Be developed with input from individuals with developmental disabilities, including youth, young adults, and adults; and family members, including parents, siblings, guardians, and other relatives.
Use multiple traditional and non-traditional modalities to maximize accessibility and outreach, particularly to those who are hard to reach.
Be culturally competent in all aspects, including the modalities used. Promote the process of enhancing post-secondary education opportunities for
youth and young adults with developmental disabilities. Products:
The National Training Program Lessons learned from the pilot and strategies for adapting the National Training
Program to various contexts Follow principles of universal design
A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
Phase III: National Implementation and Transition
to Sustainability. Partnering with the ADD Technical Assistance Centers
and other national organizations for large scale, nationwide implementation of the National Training Program.
Utilize traditional and non-traditional marketing strategies to maximize outreach.
Transition to maintenance of the project over time.
A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesOverview of Gateway to Self-
Determination
Carl CalkinsAndy BaconTamar Heller
9 November 2008 AUCD Pre-Conference Workshop 9
A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesBeliefs
Key to this initiative are the beliefs upon which this
grant was developed – that development of self-
determination is:a lifelong process, a means to obtaining an improved quality of life, Viewed in a social-ecological framework,Guided by research to practice,and most importantly – that people with
developmental disabilities must be equal partners in the process.
10AUCD Pre-Conference Workshop9 November 2008
A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
Goal
The overall goal of this project is “to establish a
sustainable, evidence-based training system that enhances
self-determination training programs that lead to quality
of life outcomes for individuals with developmental
disabilities throughout the lifespan.”
11AUCD Pre-Conference Workshop9 November 2008
A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
AUCD Pre-Conference Workshop 12
A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
DD Act Definition of Self-Determination Activities
Activities that result in individuals with developmental disabilities, with appropriate assistance, having:
the ability and opportunity to communicate and make personal decisions; the ability and opportunity to communicate choices and exercise control over
the type and intensity of services, supports, and other assistance the individuals receive;
the authority to control resources to obtain needed services, supports, and other assistance;
opportunities to participate in, and contribute to, their communities; and support, including financial support, to advocate for themselves and
others, to develop leadership skills, through training in self-advocacy, to participate in coalitions, to educate policymakers, and to play a role in the development of public policies that affect individuals with developmental disabilities. AUCD Pre-Conference Workshop 13
A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
9 November 2008 AUCD Pre-Conference Workshop 14
Carl F. Calkins, Ph.D., Co-PIUniversity of Missouri Kansas City Institute for Human Development (UCEDD)
Michael Wehmeyer, Ph.D., Co-PIKansas University Center on Dev Disabilities (UCEDD) at the University of Kansas
UCEDD Leadership Consortium
Andy Bacon, Ph.D.Westchester Institute for Human Development (UCEDD) at New York Medical College
Tamar Heller, Ph.D.University of Illinois ChicagoDept of Disability and Human Development (UCEDD)
Hill Walker, Ph.D.University of Oregon Center on Human Development (UCEDD)
A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
AUCD Pre-Conference Workshop 15
A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesAlliance Members
Self-Advocates Becoming Empowered the Association of University Centers on Disability including the
Council on Community Advocacy the National Leadership Consortium College of Direct Support/Minnesota UCEDD National Association of Councils on Developmental Disabilities National Disability Rights Network National Association of State Directors of Developmental
Disabilities Services the National Sibling Network National Family Voices including Kids as Self-Advocates
9 November 2008 AUCD Pre-Conference Workshop 16
A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesSelf-Determination Across the Lifespan
Early Childhood School Age Adult Aging
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A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesSelf-Determination and Key
Players in an Individual’s Life
Families Siblings Direct Support Workers Educators
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A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesPhase I: Overview of Planned Activities
Approach to Literature Review Life Chances Planning Tool Mapping gaps in curricula and lack of access National Self Determination Guide
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A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
Phase I: Discussion and Feedback
What types of SD training are available for self-advocates, parents, sibling, providers, or others in your state/community? What’s working and what’s not?
Who are the people that are most in need of training that are not being reached and why?
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A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesPhase II: Overview of Planned Activities
Overview of planned specialty curricula to be developed
Examples: Abuse and Neglect, Siblings
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A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
State Demonstrations
Complete an SD Self-Assessment Identify Needed SD Curricula Develop Implementation Plan Form State SD Supporting Coalitions Evaluate Outcomes
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A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesGateway Web Portal
Dynamic Website History of Self-Determination movement and research SD Curricula Products Technical Assistance Resources Evidence-Based Practices Technology Supported Training Video Vignettes, Lectures SD Capacity Building Handbook Implementation Manuals Evaluation Frameworks
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A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesPlanning Training Delivery Methods
Innovative Uses of Technology
Self-Advocates as Trainers
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A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesPhase II: Discussion and Feedback
What is the best way (ideal methods) to provide SD training to self-advocates, parents, sibling, providers, or others (e.g. technology, self-advocates as trainers)? In your experience, what works and what doesn’t work?
Laura highlighted the planned components of a SD Gateway Online Portal, what features do you perceive to be the most beneficial and what else should be included?
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A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesPhase III: Overview of Planned Activities
Marketing Sustainability Implementation Diffusion
9 November 2008 AUCD Pre-Conference Workshop 26
A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesPhase III: Feedback and Discussion
Do you know of any projects providing self-determination training that we should contact and coordinate our efforts with?
If we were all to meet here again in 5 years to share the many successes of this project, what one outcome would be most important to you?
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A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
Thanks for attending.
We appreciate your interest and input.
9 November 2008 AUCD Pre-Conference Workshop 28
A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
This document was supported, in part, by a cooperative agreement from the
Administration on Developmental Disabilities, Administration for Children
and Families, Department of Health and Human Services. Grantees
undertaking projects under government sponsorship are encouraged to
express freely their findings and conclusions. Points of view or opinions do
not, therefore, necessarily represent official Administration onDevelopmental Disabilities policy.”
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