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BODIES IN BETWEENEthical Openings on Eating Disorder Recovery
Andrea LaMarre, MSc.Vanier Doctoral Scholar (CIHR)PhD StudentDepartment of Family Relations & Applied NutritionUniversity of Guelph
Dr. Carla RiceCanada Research Chair, Care, Gender, and Relationships (Tier II)Associate Professor, Department of Family Relations & Applied NutritionUniversity of Guelph
Presented by: Advisor:
@andrealala89
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INTRODUCTION
Who am I? Who am I to do this
work? {What am I doing
here?}
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WHICH ETHICS? Personal Professional Clinical Institutional Disciplinary
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WHOSE ETHICS?
Research ethics processes: helpful or burdensome?
Or somewhere in between?
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AN ETHIC OF CARE?
Digital storytelling: an opportunity to revisit researcher/researched divide?
An ethic of care in research?
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AN ETHIC OF CARE?
Role of: Austerity “Evidence-based practice” Large sample sizes Replicability
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FEMINIST ETHICS
“Openness should not be interpreted as weakness, nor as indecision, but rather as the courage to refuse the comforting refuge of broad categories and fixed unidirectional vision” (Shildrick, 1997, p. 3)
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FEMINIST ETHICS
Embodied meanings Enacting feminist ethics of care &
embodiment in bureaucratic systems
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EMBODIED ETHIC OF CARE
“The body’s role in calling us to respond ethically to one another has continued to be egregiously neglected” (Weiss, 1994, p. 5)
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COMMUNITY-ENGAGED ETHIC, +? Community expertise Ongoing, dynamic Reciprocity Reflexivity
+ Embodiment?
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SITUATING MY WORK
Digital Storytelling Collaborative, arts-based 2-3 minute films
Eating Disorder Recovery Clinical Lived Experience
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EATING DISORDERS & ACCESSIBILITY Participants’ embodied experiences of
digital storytelling E.g., food
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WHOSE DATA?
Navigating institutional REB “The participant owns their story”
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HOW DO YOU KNOW?
Centralizing participants’ definitions of recovery “But how do you know if they are really
recovered?”
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EXPERIENCE & EXPERTISE
“What is your experience in the subject area and in this kind of research?” Is there room for lived experience?
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PRIVILEGE & LIVED EXPERIENCE Privileging of recoveries Intersecting subjectivities:
Body size Ethnicity Socioeconomic status
“Recovery” as privilege
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REFLEXIVITY
I don’t know I can’t know Meeting of embodiments of recovery
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KNOWING VS. BEING
What does it mean to know a participant? What does it mean to work with
participants?
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ETHICS COMPOUND
How to be a vulnerable expert without imposing a particular version of recovery?
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DIGITAL STORYTELLING
A meeting of bodies A meeting of needs A meeting of subjectivities Whose research is it?
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ETHICS
More, not less Dynamic, not passive Messy, not linear Interwoven, not parsed out
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EMBODIMENT BETWEEN & WITHIN “To act as a daughter, a mother, a sister,
is not to deny my individuality or to diminish my moral agency; it is to affirm my own embodiment as well as the embodiment of others” (Weiss, 1994, p. 158)
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QUESTIONS, COMMENTS, REFLECTION Thank you! [email protected]