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CAREGIVER BURNOUT AND FATIGUEPresented by:
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WHO ARE CAREGIVERS?
+ Individuals who provide care to chronically ill or disabled family members or friends
+ Caregiver goals:- Serve as advocates for the patient
- Understand the patient’s needs to socialize
- Become familiar with insurance and financial matters
Family caregivers provide, for“free”, an estimated
$257 billionper year in services.1
1. www.cdss.ca.gov/
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CAREGIVER ROLES & RESPONSIBILITIES
Grocery shopping and house work
Dressing, bathing, administering medications
Aiding with transferring the recipient in and out of bed
Assisting with physical therapy, injections, feeding tubes, etc.
Arranging the medical appointments and transportation to the doctor or clinic
Ordering and picking up medications at the drugstore
Discussing the care plan and needs with the doctors and care managers
Filling the designated “on-call” position for the family member
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WHAT IS CAREGIVER BURNOUT OR FATIGUE?
+ A state of physical, emotional, and mental exhaustion that may be accompanied by a change in attitude - from positive and caring to negative and unconcerned.- Can occur when caregivers do not get the help they need, or if they try to
do more than they are able to, physically or financially
- Emotionally and physically draining
- Fatigue, stress, anxiety, and depression
- Guilt
Studies show that an estimated 46% to 59% of caregivers are clinically depressed.1
1. www.cdss.ca.gov/
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WHAT ARE SYMPTOMS OF CAREGIVER BURNOUT?
Withdrawal from friends and family
Loss of interest in activities previously
enjoyed
Feeling blue, irritable, hopeless, and helpless
Changes in appetite, weight, or
both
Changes in sleep patterns
Getting sick more often
Feelings of wanting to hurt yourself or the
person for whom you are caring
Emotional and physical exhaustion
Excessive use of alcohol and/or sleep
medicationsIrritability
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WHAT ARE CAUSES OF CAREGIVER BURNOUT?
Role confusion
Unrealistic expectations
Lack of control
Unreasonable demands
Other factors
Caregivers often are so busy caring for others that they tend to neglect their own emotional, physical, and spiritual health.
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COMMUNICATING WITH DOCTORS
+ Educate yourself about your loved one’s disease.+ Write questions down before appointments so you will not
forget them.+ Make a habit of taking notes during appointments so you can
more easily remember what was discussed.+ If you have lots of things to talk about, make a consultation
appointment, so the doctor can allow enough time to meet with you.
+ Learn the routine at your doctor’s office and/or the hospital so you can make the system work for you, not against you.
+ Recognize that not all questions have answers – especially those beginning with “why.”
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MANAGING HOSPITALIZATIONS
Help provide information
Identify the hospital social worker or case manager
Identify the “attending physician”
Get to know the nurses who are caring for your loved one
Discharge planning
Legal issues – Advance Medical Directives, Living Will
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CAREGIVING AND SIBLING RELATIONSHIPS
+ Providing care for an aging or ill parent can bring out the best and the worst in sibling relationships.
+ Ideally, the experience of caregiving is a time for siblings to come together and provide mutual support to one another.
+ As a stressful transition, however, the pressure can also lead to strained connections and painful conflict.
- Legacy of family dynamics
- Denial over a parent’s condition
+ Ultimately, strained family relationships can impede a family’s capacity to provide the greatest quality of care to a parent.
+ Resolving these conflicts:- Never ignore the situation
- Try to forgive
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WHERE CAN A CAREGIVER TURN FOR HELP?
Home health or hospice
services
Adult day care
Nursing home or assisted
living facilities
Private care aides
Caregiver support services
Area Agency on Aging
National organizations
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HOW TO MANAGE CAREGIVER STRESS
Accept help
Focus on what you are able to provide
Set realistic goals
Get connected
Join a support group
Seek social support
Set personal health goals
Get a good night’s sleep
See your doctor
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MOVING FORWARD
Reduce and manage personal stress
Set goals and seek solutions
Communicate constructively
Ask for and accept help
Build a partnership with the physician
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REDUCING PERSONAL STRESS
Whether your caregiving is
voluntary
Your relationship
with the care recipient
Your coping abilities
Your caregiving situation
Whether support is available
Influencing factors on your level of stress:
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STEPS TO MANAGING STRESS
Identify source of stress
Identify what you can and cannot
change
Take action
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TAKING CARE OF YOU
First, care for yourself
Effect of caregiving on
health and wellbeing
Take responsibility for your own
care
Identify personal barriers
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BEST PRACTICES FOR SELF CARE
+ Learn and use stress-reduction techniques+ Attend to your own healthcare needs+ Get proper rest and nutrition+ Exercise regularly+ Take time off without feeling guilty+ Participate in pleasant, nurturing activities+ Seek and accept the support of others+ Seek supportive counseling when you need it, or talk to a trusted
counselor or friend+ Identify and acknowledge your feelings+ Change the negative ways you view situations+ Set goals+ It’s up to you!
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QUESTIONS
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REFERENCES
+ www.cdss.ca.gov/ - Caregiver: Taking Care of Yourself
+ https://www.nia.nih.gov/health/caregiving
+ https://www.hhs.gov/aging/long-term-care/index.html