Download - Centre for Independent Living In Toronto Planning Day Sandra Carpenter, Executive Director
Centre for Independent Living Centre for Independent Living In TorontoIn Toronto
Planning DayPlanning Day
Sandra Carpenter, Executive Sandra Carpenter, Executive Director Director
What is Independent Living ?What is Independent Living ?
Independent Living can be defined as:Independent Living can be defined as:
- An attitude- An attitude
- A set of organizational principles- A set of organizational principles
- A set of program methods and resources- A set of program methods and resources
Early Guiding Principles of Early Guiding Principles of Independent LivingIndependent Living
Those who know best the needs of disabled people Those who know best the needs of disabled people and how to meet those needs are the disabled and how to meet those needs are the disabled people themselvespeople themselves
The needs can be met most effectively by programs The needs can be met most effectively by programs which provide a variety of services, rather than which provide a variety of services, rather than having to go to several different agencies for having to go to several different agencies for servicesservices
Disabled people should be as integrated as possible Disabled people should be as integrated as possible into the communityinto the community
Looking Back…Looking Back…
A Brief History of I.L.A Brief History of I.L. 1962 – Ed Roberts living 1962 – Ed Roberts living
with post-polio respiratory with post-polio respiratory issues, quadriplegia and issues, quadriplegia and using an iron lung at using an iron lung at night, enters the Univ. of night, enters the Univ. of Calif. Berkeley, in the Calif. Berkeley, in the Cowell Students’ hospitalCowell Students’ hospital
1969 – Twelve “severely 1969 – Twelve “severely disabled” students in disabled” students in wheelchairs isolated in wheelchairs isolated in the Cowell Residence the Cowell Residence ($ from Calif. Dept. ($ from Calif. Dept. rehab)rehab)
Brief History of I.L.Brief History of I.L.
1969-70 Four block section of Berkely’s main 1969-70 Four block section of Berkely’s main shopping area south of campus made shopping area south of campus made accessible with ramps at urging of Cowell accessible with ramps at urging of Cowell ResidentsResidents
1969 – Time of civil and women’s rights, 1969 – Time of civil and women’s rights, students protest. Critical mass of people were students protest. Critical mass of people were formedformed
1969-72 Autumn – I.L. philosophy was 1969-72 Autumn – I.L. philosophy was developed. First Independent Living centre developed. First Independent Living centre established in Berkeleyestablished in Berkeley
Berkeley Berkeley Independent Living CentreIndependent Living Centre
""Helpless cripple attends Helpless cripple attends classes at UCclasses at UC," proclaimed a ," proclaimed a headline in the headline in the Berkeley Berkeley GazetteGazette in 1963. Time was to in 1963. Time was to prove the irony of the title, and prove the irony of the title, and the article became a treasure the article became a treasure in one of the Bancroft Library's in one of the Bancroft Library's newest collections. newest collections.
PHOTO: Don Galloway, PHOTO: Don Galloway, manager of blind services, and manager of blind services, and Ed Roberts, executive director Ed Roberts, executive director of the fledgling Center for of the fledgling Center for Independent Living, in 1974 on Independent Living, in 1974 on the Berkeley campus.the Berkeley campus.
History of CILTHistory of CILT No accessible transitNo accessible transit No curb cutsNo curb cuts No community servicesNo community services Low employment prospectsLow employment prospects Some support for educationSome support for education No attendant services in the No attendant services in the
community community
Children at Bloorview HospitalChildren at Bloorview Hospital
No acceptable destinationNo acceptable destination Medical model of serviceMedical model of service Alternatives were desperately neededAlternatives were desperately needed
Parent Work GroupParent Work Group
Families of disabled children and others Families of disabled children and others lobbied government for support for an lobbied government for support for an alternativealternative
Invited teenage residents to the tableInvited teenage residents to the table They outlined their vision of care/help and They outlined their vision of care/help and
housing for adults with disabilitieshousing for adults with disabilities
The DreamThe Dream
Self-determination, autonomy Self-determination, autonomy Decide what to do, what to wear, what to Decide what to do, what to wear, what to
eateat Apartments in a regular high-riseApartments in a regular high-rise
Come and go as you pleaseCome and go as you please Staff appeared when neededStaff appeared when needed
otherwise out of the apartmentotherwise out of the apartment Could be friends if desiredCould be friends if desired
Government to pay costs of staffingGovernment to pay costs of staffing Person with a disability pays ordinary Person with a disability pays ordinary
costs of rent, food, recreation, costs of rent, food, recreation, transportation, phone etc.transportation, phone etc.
ResponseResponse Parents were initially disappointed at our “ideal” Parents were initially disappointed at our “ideal”
and “unrealistic” proposaland “unrealistic” proposal Government bureaucrats like David Pitt heard Government bureaucrats like David Pitt heard
the messagethe message Policy staff at MCSS work behind the scenesPolicy staff at MCSS work behind the scenes
Creativity Creativity OptionsOptions
Alternatives…Alternatives…
Group Home Model option beganGroup Home Model option began Group Captain Leonard Cheshire, Group Captain Leonard Cheshire,
EnglandEngland BUT Fire Marshall vetoed people BUT Fire Marshall vetoed people
living there unless they could exit living there unless they could exit independently in case of fireindependently in case of fire
So 98% of Bloorview’s residents were So 98% of Bloorview’s residents were not eligible for any Cheshire Homenot eligible for any Cheshire Home
Cheshire: The Biography of Leonard Cheshire Vc, Om
Pilot ProjectsPilot Projects
Government funded 4 pilot projects around Ontario in Government funded 4 pilot projects around Ontario in 1975 for a 3 year-trial – HAGI in Thunder Bay, ALPHA in 1975 for a 3 year-trial – HAGI in Thunder Bay, ALPHA in Windsor, Ottawa Rehab Institute and Clarendon Windsor, Ottawa Rehab Institute and Clarendon Foundation for TorontoFoundation for Toronto
Ironically, policies closely reflected the Thompson-Carpenter Ironically, policies closely reflected the Thompson-Carpenter visionvision
ClarendonClarendon 9 adults on one floor (converted office space)9 adults on one floor (converted office space) 4 apartments (shared living), plus 1 bachelor apt.4 apartments (shared living), plus 1 bachelor apt. Non-medical attendants available from 6 am to 11 pm onlyNon-medical attendants available from 6 am to 11 pm only Huge emphasis on demonstrating how cheap it was compared Huge emphasis on demonstrating how cheap it was compared
to nursing homesto nursing homes
Alternatives…Alternatives… Judith Snow, through tenacity and an Judith Snow, through tenacity and an
alliance with MCSS Deputy Art alliance with MCSS Deputy Art Daniels, got attendant services Daniels, got attendant services privately funded through an Order-in-privately funded through an Order-in-Council so she could:Council so she could:
Live in the community andLive in the community and Hire her own attendantsHire her own attendants
See “From Behind the Piano” See “From Behind the Piano” available from Inclusion Press available from Inclusion Press http://www.inclusion.com/bkfrombehinhttp://www.inclusion.com/bkfrombehindthepiano.htmldthepiano.html Although not intended to set a precedent, requests for Although not intended to set a precedent, requests for Orders-in-Council increased exponentially!Orders-in-Council increased exponentially!
Brief History of I.L.Brief History of I.L.
1980-82 Gerben Dejong 1980-82 Gerben Dejong speaks in Canada – speaks in Canada – First Canadian I.L.C. First Canadian I.L.C. establishedestablished
Goals of Independent Living in Goals of Independent Living in CanadaCanada
To promote and enable the To promote and enable the
progressive process of progressive process of
citizens with disabilities citizens with disabilities
taking responsibility for the taking responsibility for the
development and development and
management of personal management of personal
and community resourcesand community resources
Current Guiding Principles ofCurrent Guiding Principles ofIndependent Living in CanadaIndependent Living in Canada
At an individual level, Independent Living is the right to:At an individual level, Independent Living is the right to: Examine choicesExamine choices Make decisions Make decisions Take risks Take risks Make mistakesMake mistakes Take responsibility for one’s own lifeTake responsibility for one’s own life
Current Guiding Principles ofCurrent Guiding Principles ofIndependent Living in CanadaIndependent Living in Canada
At an organizational level, Independent Living At an organizational level, Independent Living means:means: Consumer-controlledConsumer-controlled Community-based (grass roots)Community-based (grass roots) Cross-disability focusCross-disability focus Promotion of integration and participationPromotion of integration and participation
(housing, employment, education)(housing, employment, education)
Core ProgramsCore Programs
Information referralInformation referral
IL Skills TrainingIL Skills Training
Peer Support Peer Support
Research and Research and Demonstration Demonstration CapacityCapacity
ScopeScope
There are 12 ILRC’s in OntarioThere are 12 ILRC’s in Ontario There are 28 ILRC’s in CanadaThere are 28 ILRC’s in Canada
All have the core programs but because of All have the core programs but because of the research and demonstration capacity the research and demonstration capacity can be quite different from each othercan be quite different from each other
Centre for Independent Living In Centre for Independent Living In Toronto (CILT)Toronto (CILT)
HistoryHistory
History of CILTHistory of CILT
1982-851982-85 Formation and Incorporation; Formation and Incorporation; COTA was original trustee;COTA was original trustee; Office established; Office established; Needs survey designed; Needs survey designed; Participatory action based research conducted; Participatory action based research conducted; Results analysed; Results analysed; and service begins.and service begins.
History of CILT cont.History of CILT cont.
1987-891987-89 Projects begin: “Radio Connection”, Projects begin: “Radio Connection”,
“Access Connections”.“Access Connections”.
19901990 Woodeden Consumer Conference; Woodeden Consumer Conference;
Literacy Link Survey and Attendant Literacy Link Survey and Attendant Services Directory published; “Disability Services Directory published; “Disability Network” (CBC co-production) begins.Network” (CBC co-production) begins.
History of CILT cont.History of CILT cont.
19911991 Health and Welfare (Canada) funding cutbacks Health and Welfare (Canada) funding cutbacks
begin; MCSS funds Independent Living Skills begin; MCSS funds Independent Living Skills Program; CILT newsletter upgraded.Program; CILT newsletter upgraded.
19921992 I.L. and Participation in Research and The I.L. and Participation in Research and The
Literacy Book published; Youth Connection Literacy Book published; Youth Connection begins.begins.
DF development phase beginsDF development phase begins
History of CILT cont.History of CILT cont.
19931993 Directory of Accessible Restaurants Directory of Accessible Restaurants
developed; new 24 Hour Newsline established; developed; new 24 Hour Newsline established;
1994-51994-5 DF Pilot BeginsDF Pilot Begins United Way Membership Granted; award United Way Membership Granted; award
winning Abuse Prevention Video and Youthwinning Abuse Prevention Video and Youth and Disability Abuse Prevention project and Disability Abuse Prevention project completed.completed.
History of CILT cont.History of CILT cont.
19961996 CILT agrees to run the Project CILT agrees to run the Project
Information Centre (PIC) for MOH; CILT Information Centre (PIC) for MOH; CILT by-laws updated.by-laws updated.
19971997 DF Pilot evaluation from Roeher Institute; DF Pilot evaluation from Roeher Institute;
4th Edition of Attendant Service Directory 4th Edition of Attendant Service Directory and Annotated Abuse/Prevention and Annotated Abuse/Prevention Bibliography published.Bibliography published.
History of CILT cont.History of CILT cont.
19981998 DF gets full program status approved by MOH; DF gets full program status approved by MOH;
program expended to 700 over 3 years.program expended to 700 over 3 years. CILT UW project funding to expand the CILT UW project funding to expand the
Parenting with a Disability Network publish a Parenting with a Disability Network publish a resource Directory for Parents with a Disability.resource Directory for Parents with a Disability.
19991999 The Parenting Book for Persons with a The Parenting Book for Persons with a
Disability published; Disability published;
History of CILT cont.History of CILT cont.
20002000 Employment project (HRDC funded) Employment project (HRDC funded)
Navigating the Waters launched; UW Navigating the Waters launched; UW funding received to develop operational funding received to develop operational model for Nurturing Assistance.model for Nurturing Assistance.
20012001 Nurturing Assistance Guide Published; Nurturing Assistance Guide Published;
new statistics system introduced. new statistics system introduced.
History of CILT cont.History of CILT cont.
2002 2002 New website launched, New website launched, 2003 2003 New library software acquired and system implemented;New library software acquired and system implemented; 2004 2004 Anti-racism implementation plan developed; Anti-racism implementation plan developed; 2005 2005 Nurturing Assistance Guide published; Nurturing Assistance Guide published; 2006 2006 New data base system implemented;New data base system implemented;
History of CILT cont.History of CILT cont.
2007 2007 Gateway to Cancer Screening Project begins, Gateway to Cancer Screening Project begins,
Human Right Monitoring Project begins.Human Right Monitoring Project begins.
20082008 Safe Engaged Environment Disability begins, Safe Engaged Environment Disability begins,
new office location.new office location.
20092009 Partnership with A2E; 25Partnership with A2E; 25thth Anniversary, Rebel Anniversary, Rebel
WallWall
History of CILT cont.History of CILT cont.
2010 ?2010 ?
Current ContextCurrent Context
MISSIONMISSION
““To promote and enable the progressive To promote and enable the progressive process of citizens with disabilities taking process of citizens with disabilities taking the responsibility for the development and the responsibility for the development and management of their own personal and management of their own personal and community resources.”community resources.”
For people with disabilities by people with For people with disabilities by people with disabilitiesdisabilities
MandateMandate CILTCILT is a consumer-controlled, community-based is a consumer-controlled, community-based
resource organization. We help people with disabilities to resource organization. We help people with disabilities to learn Independent Living skills and integrate into the learn Independent Living skills and integrate into the community. community. CILT CILT operates on the philosophy of the Independent operates on the philosophy of the Independent Living movement which was developed in response to Living movement which was developed in response to traditional rehabilitation services models. CILT's aim is to traditional rehabilitation services models. CILT's aim is to develop and implement dignified social services that develop and implement dignified social services that empower individuals rather than create dependencies. empower individuals rather than create dependencies. We encourage people with disabilities to take control of We encourage people with disabilities to take control of their own lives by exercising their right to examine their own lives by exercising their right to examine options, make choices, take risks and even make options, make choices, take risks and even make mistakes. mistakes.
CILT PROGRAMSCILT PROGRAMS
Information and referral/networkingInformation and referral/networking Peer Support including volunteer Peer Support including volunteer
coordination and Parenting with a coordination and Parenting with a Disability NetworkDisability Network
Independent Living Skills TrainingIndependent Living Skills Training Service Development Capacity*Service Development Capacity*
PIC, DF, SASF, PDNPIC, DF, SASF, PDN Transfer Payment ProjectsTransfer Payment Projects
• CCIM, PSW Training FundCCIM, PSW Training Fund
CILT PARTNERSCILT PARTNERS
Citizens with Disabilties – OntarioCitizens with Disabilties – Ontario Ethno-racial Coalition for People with Ethno-racial Coalition for People with
Disabilities OntarioDisabilities Ontario Disability Rights Promotion InternationalDisability Rights Promotion International Abilities FoundationAbilities Foundation Independent Living CanadaIndependent Living Canada Ontario Network of Independent Living Ontario Network of Independent Living
CentresCentres
CILT Partners cont.CILT Partners cont.
Canadian Association of Muslims with Canadian Association of Muslims with DisabilitiesDisabilities
Access to EntertainmentAccess to Entertainment
CommitteesCommittees
Sexuality and AccessSexuality and Access Abuse PreventionAbuse Prevention International Day of Persons with International Day of Persons with
DisabilitiesDisabilities Provincial Liaison Committee for Persons Provincial Liaison Committee for Persons
with Physical Disabilitieswith Physical Disabilities
NetworksNetworks
Safe Engaged Environments – Safe Engaged Environments – DisabilityDisability
Gateways to Cancer Screening Gateways to Cancer Screening ProjectProject
Toronto Central LHIN Attendant Toronto Central LHIN Attendant Service NetworkService Network
CILT InitiativesCILT Initiatives
Town Hall in partnership with Scadding Town Hall in partnership with Scadding Court planned for the Fall of 2010Court planned for the Fall of 2010
People in Motion (annual event – this Year People in Motion (annual event – this Year we are sharing a booth with ERDCO and we are sharing a booth with ERDCO and CAMD)CAMD)
Joint Picnic (annual event with ERDCO, Joint Picnic (annual event with ERDCO, CSASIL)CSASIL)
RDSP workshops (ILC leadership)RDSP workshops (ILC leadership)
PIC BackgroundPIC Background Central clearinghouse for all applicants for Central clearinghouse for all applicants for
attendant services in Toronto both Outreach attendant services in Toronto both Outreach Attendant Services and Supportive HousingAttendant Services and Supportive Housing
Currently there are around 657 “active Currently there are around 657 “active applicants”applicants”
Of these we est. ¼ at some stage in processOf these we est. ¼ at some stage in process The rest are waiting for Supportive Housing The rest are waiting for Supportive Housing
UnitsUnits
In OntarioIn Ontario
CILT coordinates CILT coordinates the Direct the Direct Funding ProgramFunding Program
CILT Coordinates CILT Coordinates the Student the Student Attendant Service Attendant Service FundFund
Direct Funding Direct Funding
CILT coordinates all applicants to programCILT coordinates all applicants to program participants/self-managers manage their own participants/self-managers manage their own
attendant services & undertake all employer attendant services & undertake all employer responsibilities/functionsresponsibilities/functions
CILT sends funds monthly allotments to program CILT sends funds monthly allotments to program participants under contractparticipants under contract
Clients report expenditures quarterly to CILT or Clients report expenditures quarterly to CILT or through 3 satellite officesthrough 3 satellite offices
Currently “active applicants” number about 300Currently “active applicants” number about 300
What Is the Student Attendant What Is the Student Attendant Services Fund (SASF)?Services Fund (SASF)?
A Contingency FundA Contingency Fund
For students anywhere in Ontario who need attendant For students anywhere in Ontario who need attendant services to participate in post high school education or services to participate in post high school education or training programstraining programs
Attendant services are physical assistance with activities Attendant services are physical assistance with activities of daily living such as dressing, bathing, washing, of daily living such as dressing, bathing, washing, toileting, transferring, and assistance with eatingtoileting, transferring, and assistance with eating
Coordinated through Project Information CentreCoordinated through Project Information Centre
Looking Forward…Looking Forward…
No Barriers; No Limits!No Barriers; No Limits!