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Eczema Signs and Symptoms:what is important to patients?
Laura von Kobyletzki, Åke Svensson,Jochen Schmitt, Joanne Chalmers,
Kim Thomas
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USA
National Eczema Association (CA, USA),
and University of California SF.Asked members of the HOME working groups to distribute the
survey amongst patients
March 12th
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Recruitment of study populationUK
• E-mail: to patients with eczema - Centre ofEvidence Based Dermatology
• Websites: Centre of Evidence BasedDermatology, UK Dermatology ClinicalTrials Network, National Eczema Society,Trials Network, National Eczema Society,Nottingham Support Group for Carers ofChildren with Eczema
• Tweeted: by Nottingham Support Groupfor Carers of Children with Eczema and theJames Lind Alliance
March 8th -12th
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Sweden
Distributed per e-mail via theSwedish Asthma and Allergy
Association
March 8th -11th
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Asked HOME members todistribute the survey
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Participantsfrom
>500>100>50<50
• What country do you currently live in?
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Participants31.03.2013
831 complete surveys
Answered for
“Myself” 54.1%, n= 450
“My child” 42.4%, n= 351
“Another person” 3.6%, n= 30
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Sex n %
Female 520 65.5
Male 274 34.5
Age
<5 years 148 18.6
6 to 15 years 187 23.5
16 to 25 years 121 15.2
Participants
16 to 25 years 121 15.2
26 to 45 years 194 24.3
46 to 65 years 128 16.1
66+ years 22 2.8
Skin colour
Light 537 67.3
Slightly coloured 190 23.8
Dark 62 7.8
Very dark 9 1.1
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Onset ofeczema
n %
0 to 2 years 559 70.4
3 to 6 years 85 10.7
7 to 15 years 54 6.8
Aspects of eczema
16+ years 105 13.2
Severity
No eczema 39 4.9
Mild eczema 242 30.4
Moderateeczema
310 38.9
Severe eczema 206 25.8
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Itch and pain are most important to patientsHow important are these features in deciding whether or not a treatment is working?
500
600
700
800
900
Veryimportant
Quiteimportant
Somewhatimportant
Not
✓✓ ✓✓✓✓✓✓✓ ✓✓
0
100
200
300
400
500
Ski
nfe
els
…
Ble
ed
ing
Vis
ible
site
s…
Blis
ters
Cra
cks
Cru
sts…
Scr
atc
h…
Se
nsi
tive
…
Itch
Th
icke
nin
g
Re
dn
ess
Dry
fla
kysk
in
Sle
ep
…
Pa
in
Sw
elli
ng
Am
ou
nt…
Tig
htn
ess
We
ep
ing
Notimportant
80%importantor veryimportant
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Other important itemsespecially in children:
Scratch marksScratch marks
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Scale and their content validity from thepatient`s perspective
>50% to 80% of items important or veryimportant in the best scalesimportant in the best scales
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Other resultsHow often is information needed for an eczema diary
(in a research study lasting more than 6 months)?
Daily 481 55.9%Weekly 318 38.9%Monthly 36 4.4%
Every few months 1.1%
How often would you be willing to complete an eczemadiary (in a research study lasting more than 6 months)?
Daily 427 52.2%
Weekly 377 46.1%
Monthly 46 5.6%
Every few months 18 2.2%
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Time to complete thesurvey
n %
< 5 minutes 737 92.1
Time to complete the survey
5 to 10 minutes 62 7.8
> 10 minutes 2 0.3
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Conclusions
Symptoms are important for patients
Signs can be useful for clinical assessment
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The colleagues who contributed
Thank you!
Patients
HOME members for attention and further support