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Empowering HIV positive people:
A Case Study Ashley Innes
Project CONNECT Program Director AIDS Arms Inc.
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Living with HIV/AIDS
Picture This…
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The HIVE: An HIVE Empowerment Project
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Principles of Community Mobilization
Community mobilization: a capacity building process through which community
individuals, groups, or organizations plan, carry out and evaluate activities on a participatory and sustained basis to improve health and other needs on their own initiative or stimulated by others.
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Principles of Community Mobilization
Goals Increase community, individual, and group capacity to identify
and satisfy needs Increase community level decision-making Increase community ownership of programs Bring additional resources to the community Build on social networks to spread support, commitment and
changes in social norms and behaviors
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The Mpowerment Project
A community-level HIV prevention program for young gay/ bisexual men.
Created by Dr. Susan Kegeles and Dr. Robert Hays in 1990.
Provides social interaction and activities
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Adaptation of the Mpowerment Project for PLWHA
The HIVE allows PLWHA to creatively build their own community and supportive network through engaging social interaction and activities away from clinical/service settings.
Community-level prevention program for PLWHA Provides social interaction and activities
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Adaptation of the Mpowerment Model for PLWHA
Important steps in adaptation Community Assessment Creating materials specifically for PLWHA Maintain guiding principles and core elements
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Community Assessment
The purpose of the community assessment was to gather information that would provide us with a comprehensive understanding of the HIV+ community.
We wanted to develop a better understanding of the local PLWHA community : Who makes up the various groups of PLWHA and how to reach
them. The needs and challenges faced by different groups. Social and personal activities and interests.
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Community Assessment
The purpose of the community assessment for community leaders was to: Learn more about the challenges facing PLWHA. Identify stakeholders and leaders who could provide us with
guidance and wisdom. Promote engagement and let other agencies know about the
HIVE.
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Guiding Principles
Social Focus Empowerment Philosophy Peer Influence and Safer Sex Messages Multi-Level Approach Fostering Pride through positive messages Community Building Diffusion of Innovations
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Core Elements
Coordinators Core Group and Other Volunteers Project Space Formal Outreach M-Groups (Buzz Groups) Informal Outreach Publicity Campaign Community Advisory Board
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Coordinators
Understand HIV prevention and community-building
Knowledgeable about people living with HIV/AIDS (PLWHA) in the local community
Promote diverse racial/ethnic/socioeconomic involvement
Begin the diffusion process Engage in reflective analysis of all parts of Project,
and issues facing PLWHA
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Core Group
The Core Group is the decision-making body of the HIVE that designs and carries out all project activities.
Made up of HIV+ volunteers Diversity is essential Qualifications (In medical care, drug-free, willing to commit)
Developed the Project Identity (Name, location, logo, events, etc.)
Address issues facing PLWHA Provide support and encourage each other
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HIVE Core Group
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Project Space
Convenient and appealing location Versatile Discreet Promote safe sex and overall positive behavior Referral information available
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The HIVE
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Lobby
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Cyber Center
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Community Center
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Conference Setting
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Kitchen
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Formal Outreach
Planned activities to promote the program Helps build community Recruit for M-Groups and other program activities Occurs regularly
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Informal Outreach
Word of mouth Peer to peer interaction Uses peer influence to change behavior
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M-Groups
Educational group facilitated by trained staff and volunteers
Renamed to fit program identity (Buzz Groups) Address issues important to PLWHA Promote further involvement and volunteerism Teach and motivate informal outreach Scheduled regularly
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Buzz Groups
What’s the BUZZ? The BUZZ is a peer-led, one-time meeting of 8-10 HIV+ individuals that
give participants an opportunity to talk openly about HIV and other issues that they may encounter. These BUZZ groups make it possible for PLWHA to meet and get to know one another in a relaxed, supportive, and enjoyable setting. The groups help PLWHA to confront issues and feelings that they may not ordinarily face, and relate to other PLWHA in a deep and profound way. Some of the issues discussed are:
taking a holistic approach to living healthy overcoming stigma and shame disclosing HIV status to friends, family and sexual partners interpersonal issues
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Publicity Campaign
Focuses on creating attractive and informative materials
Seeks to reach all PLWHA in the community Materials specifically for PLWHA, not general
community
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Palm Card
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Palm Card Spanish
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Dallas Voice Ad
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Facebook Posts
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Calendar of Events
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Community Advisory Board
Resource for Core Group Does not have day to day decision-making power Uses available local expertise Not a required Core Element
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HIVE Events
Past Events: Bowling State Fair Haunted House Picnic Zumba
Monthly Events: Movie Night Game Night Core Group Positive Voices
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Impact on the Community
The HIVE opened its doors in October 2013 Conducted 81 events to date. 731 individuals have come to the HIVE. Average attendance
17 people at small events 70 or more at large events Up to 12 people drop in daily
In 2014 162 people have visited the HIVE for the first time.
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Impact on the Community
Before coming to the HIVE participants reported: Feelings of isolation due to lack of contact with other PLWHA Fear discussing HIV status with others. Didn’t know other people living with HIV.
Since coming to the HIVE participants have reported:
Higher self-confidence, self-esteem, and fewer feelings of being a victim.
Appreciation of having a safe place to come, meet people, and have fun.
Less concern about their safety or the stigma of HIV. Increase in healthier living practices (quit smoking, eating better,
safer sex, etc.) as a result of peer to peer interaction.
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Testimonials
Video will go here
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QUESTIONS???
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Contact Us
Nat Reasor – HIVE Coordinator [email protected] 972.807.7375 Ashley Innes- Project CONNECT Director [email protected] 214.521.5191 ext. 3377