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HIV/AIDS, Disability and Dignity: HIV/AIDS, Disability and Dignity: Community empowerment and Community empowerment and
microfinancemicrofinance
Rachel Thibeault, Ph.DRachel Thibeault, Ph.DOccupational Therapy ProgramOccupational Therapy Program
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Disability in a nutshellDisability in a nutshellBetween 8% and 12% of any given Between 8% and 12% of any given population.population.The percentage is growing. Why? The percentage is growing. Why? The disabilities carrying the most The disabilities carrying the most ostracism?ostracism?Leprosy, deafness, fistulas, albinism…Leprosy, deafness, fistulas, albinism…Mental disability : 450 M – without Mental disability : 450 M – without treatment, dignity and rights.treatment, dignity and rights.The poorest of the poorThe poorest of the poor
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Who has the “lived knowledge”:Who has the “lived knowledge”:The people with disabilities or The people with disabilities or
the experts?the experts?
What are their needs?What are their needs?
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The experts' unanimous position: The experts' unanimous position: ARVs.ARVs.
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The people's perspectiveThe people's perspective
Food securityFood security
EducationEducation
Employment -RehabilitationEmployment -Rehabilitation
TransportationTransportation
DrugsDrugs
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Tackling three core issuesTackling three core issues
1.1. Ensuring access to food, education Ensuring access to food, education and services for People with and services for People with Disabilities and their childrenDisabilities and their children
2.2. Addressing the disabilities brought on Addressing the disabilities brought on by HIV/AIDSby HIV/AIDS
3.3. Meeting the needs of the most Meeting the needs of the most vulnerable: How do you define and vulnerable: How do you define and AIDS victim?AIDS victim?
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1- Ensuring access to food,education 1- Ensuring access to food,education and services for People with Disabilities and services for People with Disabilities
and their childrenand their children
Community mobilizationCommunity mobilization
Leadership trainingLeadership training
Meeting basic needsMeeting basic needs
Political lobbyingPolitical lobbying
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2-Addressing the disabilities 2-Addressing the disabilities brought on by HIV/AIDS without ARTbrought on by HIV/AIDS without ART
TB and malariaTB and malariaCandidal infections (oesophagus – Candidal infections (oesophagus – painful swallowing)painful swallowing)Acute diarrheaAcute diarrheaNomaNomaEncephalitis – meningitis (TB or non-Encephalitis – meningitis (TB or non-TB, resulting often in deafness)TB, resulting often in deafness)
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2-Addressing the disabilities brought on 2-Addressing the disabilities brought on by HIV/AIDS without ARTby HIV/AIDS without ART
Stroke: in young children - infectious Stroke: in young children - infectious embolismsembolismsNeurosyphillisNeurosyphillis
DementiaDementia
DepressionDepression
Anxiety disordersAnxiety disorders
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2-Addressing the disabilities brought on 2-Addressing the disabilities brought on by HIV/AIDS with ARTby HIV/AIDS with ART
AnemiaAnemiaDizzinessDizzinessSleep disturbancesSleep disturbancesMemory lossMemory lossDifficulty concentratingDifficulty concentratingPeripheral neuropathyPeripheral neuropathyMyopathyMyopathy
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2- Addressing the disabilities brought 2- Addressing the disabilities brought on by HIV/AIDS with or without ARTon by HIV/AIDS with or without ART
«« Regular » protocols for the Regular » protocols for the conditions identifiedconditions identifiedNutritionNutritionHousing (crowded conditions)Housing (crowded conditions)SanitationSanitationTraining the familyTraining the family
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3- Meeting the needs of the most vulnerable: 3- Meeting the needs of the most vulnerable: Who are the AIDS victims?Who are the AIDS victims?
The young girls – specially young girls The young girls – specially young girls with disabilities – the virgin cure mythwith disabilities – the virgin cure myth
The orphansThe orphans
Women in generalWomen in general
The elderlyThe elderly
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Microfinance as one key toolMicrofinance as one key tool
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