Download - Jornadas #PatientInHTA · Nicholas Brooke
Zaragoza, 27-28 April 2017
A Systematic Approach to Patient Engagement WITH Patients
Nicholas Brooke Founder The Synergist & PFMD Executive Director
PUBLIC HEALTH CONFERENCE 10th anniversary of the Spanish Network of Health Technology Assessment (HTA) Agencies:
Insights for collaborative networking
Towards Patient and public engagement in HTA
...Progress toward a universal framework for patient involvement requires a joint, pre-competitive, and international approach by all stakeholders, working in true partnership to consolidate outputs from existing initiatives, identify gaps, and develop a comprehensive framework. It is essential that all stakeholders participate to drive adoption and implementation of the framework and to ensure that patients and their needs are embedded at the heart of medicines development and lifecycle management. ...
Collective impact is based on the idea that social problems arise from and persist because of a complex combination of actions and omissions by players in all sectors—and therefore can be solved only by the coordinated efforts of those players, from businesses to government agencies, charitable organizations, and members of affected populations.
Collective Impact
Harvard Business Review: The Ecosystem of Shared Value
About PFMD
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Goal is to advance a consistent approach to meaningful patient engagement, through co-creation and implementation of an efficient, measurable and reliable meta-framework that integrates the voice of the patient across the medicines lifecycle.
Established in October 2015 as an open, independent global coalition of stakeholders managed by a not-for-profit organization.
•“Co-creation” is about encouraging fair and open participation and quality input based on experience and personal insights of all stakeholders (researchers, clinical developers, regulators, healthcare professionals and patients) to ensure we deliver significant and desired outcomes where the voice of each stakeholder is equally embedded in final outputs”
Understanding the landscape PFMD Mapping and Networking Tool
Enter your initiatives and find partners https://involvement-mapping.patientfocusedmedicine.org/
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Searchable and interactive repository Detailed reports of initiatives Internal reports
(Pre) Discovery Phase
Early development
Explore literature Existing PE Initiatives
Frameworks
Clinical Development Phase
I – III
Explore literature Existing PE Initiatives
Frameworks
(Post) Marketing Phase
Launch / lifecycle
Explore literature Existing PE Initiatives
Frameworks
Integrate and streamline
Defining key criteria for patient engagement 3 Task Forces to Co-Create a PE Meta-Framework
Defining key criteria for PE
ACTION PLAN
Tailored organisational reports
Organization / System Development subdivision
Patient engagement initiative
Contribution to advocacy goals