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Thesis
» Modern health care need a patient centered information architecture to know what is working well for the patient
» This entails a completely new service model - turn it upside down
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The decision space
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The decision space
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The concept of learning health care
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Planning measures
with the group
level in mind
Personalised
health care
Aggregating results
for the group
level - unit level
Knowledge
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Can informatics help?
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Patient centric
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When professions and information systems are
aligned with the patient trajectory and needs
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Patient centric process
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Where we were
- Manual medicine
- Free text documentation
- Self estimated quality
- No common terms
- No patient voice
Where we are
- Guidelines
- Manual quality registers
- No structure support
- Few standard terms
- Limited Patient Voice
Where we are going
- Nationally agreed processes
- Structure for multipurpose data
- Structural process support
- Full interoperability
- PROMS and co-decisions
EMR EMR QReg EMR QReg CRF CRF
FAIR-PHT
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The concept of learning health care
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Planning measures
with the group
level in mind
Personalised
health care
Aggregating results
for the group
level - unit level
Knowledge
Process
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Collaboration based on care plans
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Symptom Diagnose
intervention Control 1 Rehab Control 2 Adjustment
Q
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The concept of learning health care
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Planning measures
with the group
level in mind
Personalised
health care
Aggregating results
for the group
level - unit level
Knowledge
Process
Outcomes
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Outcomes
» Outcome measurements should be done routinely
» International standards should be used
» Standard terminologies should be applied
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Multimorbidity
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Harmonization
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Harmonization
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Organise for multi use of data
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Setting the semantics Healthcare Use of data
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Organise for multi use of data
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Terms
Point in space
EMR data
What? When
Term standards
Standard process
Vector properties
Process data
Rel When? Why?
PlanDef
"me Tarzan you Jane" "We do this for reason"
Individualised process
"This is my needs in
combination with the
common PlanDef"
Vector properties
Process data
Rel When? Why?
CarePlan
Common model across ontological domains
Data
EMRdata
( )
CRF
( )
Qualityreg
RWD, Bi
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Organise for multi use of data
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Metadata is location specific
Data reachable only by PID/time stamp
Metadata is co-stored
Data reachable by multiple keys
GDPR compliant
by design
GDPR
compliance
difficult
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Information model
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What How
Why When
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Results: COPD
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Results: Cardiac Congestion
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Results: Reumatology
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Conclusion: Where we are going
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