Download - TOF/OA Parents Reponse

16 responses

1. Do you find it difficult to explain to your child about the conditions?

Yes

8 53%

No

2 13%

Sometimes

5 33%

People may select more than one

checkbox, so percentages may add

up to more than 100%.

2. Do you find it hard to explain to your child about ongoing medical procedures?

Yes

9 60%

No

1 7%

Sometimes

5 33%




3. Do you find it hard to explain to others about the conditions & ongoing medical procedures?

Yes

8 53%

No

3 20%

Sometimes

4 27%




4. Does your child get anxious or fearful when attending hospital or Doctor's appointments?

Yes

12 80%

No

3 20%




5. Do you find it hard to explain reasons for ongoing therapy to your child?

Yes

5 33%

No

3 20%

Sometimes

7 47%




6. Your child receives multiple medicines daily. If a visual product was available to teach your

child about their medicines, by highlighting the importance and explaining what it does, would

you view / use it?

Yes

12 80%

No

0 0%

Maybe

3 20%




7. Do you find it hard to explain to your child about getting food stuck?

Yes

12 80%

No

3 20%




8. Does your child get self-conscious and embarrassed when suffering a choke or reflux in

public?

Yes

11 73%

No

4 27%




9. Does your child experience anxiety when having to eat in a social environment? (e.g. school,

parties, trips etc..)

Yes

9 60%

No

3 20%

Sometimes

4 27%




10. Would you be interested in a product aimed at young children with TOF/OA to not only help

them understand their condition but to help them cope with the emotional aspects also?

Yes

13 87%

No

0 0%

Maybe

2 13%



up to more than 100%

11. As your child grows older, do you think a product should be available to help them cope

with the emotional aspects of entering adolescence with TOF?

Yes

13 87%

No

0 0%

Maybe

2 13%




12. Do you think it would be helpful to have a product specifically to efficiently educate others

that may be responsible for your child's well-being about their condition? (e.g. teachers, family,

friends, other parents)

Yes

14 93%

No

0 0%

Maybe

1 7%




13. Are there any other points you'd like to add or highlight? your project sounds amazing, good luck.

Something simple they could share with their friends would be great too, so their friends could understand why they choke so much and have difficulty eating.

Hugo asks soo many questions about why he has to go to theatre and when will he be going down next etc, also why he has to go. So something specific to that experience would be good too Xx

There needs to be mire highlight on the dangers of getting food stuck as many people laugh at the idea. They are not able to under stand fullyI think a book or something for young children would be good.

Download - TOF/OA Parents Reponse

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