What Do We Do?
Cancer Genetics Service for Wales
An All Wales Service
July ‘98 - June ‘99 inclusive July ‘99 - June ‘00 inclusive July ‘01 - June ‘02 inclusiveJuly ‘00 - June ‘01 inclusiveJuly ‘98 - June ‘99 inclusive July ‘99 - June ‘00 inclusive July ‘01 - June ‘02 inclusiveJuly ‘00 - June ‘01 inclusive
THE SCOPE OF THE SERVICE
Genetics Centre
Locally-based nurse specialists & Clinics
Key
Clinics only
Cancer Centre
The All-Wales Cancer Genetics Service
There are geographical difficulties in delivering an
All-Wales service
Referral Guidelines
Referral Guidelines
GP
Surgeon
Oncologist
Gynaecologist
Other
Genetic Specialist
High
Moderate
Average
Specialist surgical clinic
Genetics
Clinic
screening mammography
Back to Primary care
N Wales
SW Wales
SE Wales
Exam
EvaluationService Pathways
What do we offer?
Information
Risk assessment
Genetic counselling
Education
Genetic testing
Filtering to other
services
Laboratory
Laboratory staff Hunting for
genes that cause cancer
Testing family members to see if they carry the genetic mutation
Research
Evaluating decision aids for familial breast cancer Developing a distraction-based coping intervention for
women undergoing cancer genetic risk assessment Attitudes of men with breast cancer Information and support needs of those at high risk Comparison of brief versus extended genetic counselling
protocols prior to predictive genetic testing for HNPCC The role of rurality in referrals to genetics services Geographical analysis of referrals to CGSW Psychological implications of ovarian cancer screening
What do patients want?
Ongoing contact (not necessarily a clinic appointment)
Newsletter Website
Hence – the Patient Panel