dyads in palliative care: the art and science of what we do
DESCRIPTION
This was the keynote presentation I gave at the New Hampshire Hospice and Palliative Care annual meeting.TRANSCRIPT
Dyads in Palliative Care:
Balancing the Art & Science of what we do
Dyads in Palliative Care:
Balancing the Art & Science of what we do
Suzana Makowski, MD MMM FACPDirector of Palliative Care
Service & Education – Cancer CenterUniversity of Massachusetts
School of Medicine
Suzana Makowski, MD MMM FACPDirector of Palliative Care
Service & Education – Cancer CenterUniversity of Massachusetts
School of Medicine
Basho
We shouldn’t abuse God’s creatures. You
must reverse your haiku, not:
A dragonflyremove its wings -
pepper tree,
BUT
A pepper treeadd wings to it -
dragonfly.
DyadsDyads
Life
DEATH
HopeDespairCuring
healing
Art
Science
Morning Report: The training ground
1st: How to elicit complaints/symptoms/concerns2nd: How to create a differential diagnosis3rd: How to test/evaluate to narrow down the diagnosis4th: How to treat the disease…
But…
What is next? What happens when this problem can’t be
fixed?Science, knowledge is missing…
Bill SarnoffBoard member
Bravewell Collaborative
Bill SarnoffBoard member
Bravewell Collaborative
“Nobody treated my wife, but as anything but a disease to be cured...
there was no one looking at her as an individual, a
person...”
“Nobody treated my wife, but as anything but a disease to be cured...
there was no one looking at her as an individual, a
person...”
Dr. Robert Martensen
• “But when you look at Medicare overall half the money that we spend in this country on Medicare is spent on patients in the last six months of their lives.
• And if we were providing some kind of wonderful existence, then one could make the case but as I have written about and as I certainly experienced, and I gathered you’ve experience and many others, these last six months are not, they’re often agonizing and very unsatisfying for all concerned.”
Mr. & Mrs. Adams
Asphodel, That greeny flowerby William Carlos Williams
Asphodel, That greeny flowerby William Carlos Williams
It is difficultTo get the news from poems
Yet men die miserably everydayFor lack
Of what is found there
Negative Capacity – Dyads - Dissonance
Keats:The ability to hold and cherish opposites in one’s mind at the same time.The ability to live in uncertainties, mysteries, doubts, without any irritable reaching after fact and reason.
Coulihan:If we postpone or ignore care in order to irritably search for additional data, or avoid the patient when we experience uncertainties, then we don’t practice effective medicine.
DissonanceLet me explain dissonance. Dissonance can be described
as notes whose frequencies are less than "harmonious” to our ears.
However, dissonance is a requisite part of most music that we hear, providing it with "tension" that leads to "release. "Without it, we end up with music that tends to command little attention.”
- Mark Hanson
Michael Kerney: “Being connected... A key to my Survival”
JAMA - March 2009
• Exquisite empathy
• Self-awareness practices Mindfulness Reflective writing Humanities (music)
• Momentary Surprises
(video clip 4)
Windows of the Heart: Science as Art
Otago Daily Times
Windows of the Heart: Science as Art
Otago Daily Times
Dame Cicely Saunders
Dame Cicely Saunders
“You matter because you are you, and you matter to the end of
your life. We will do all we can not only to help you die peacefully, but
also to live until you die.”
“You matter because you are you, and you matter to the end of
your life. We will do all we can not only to help you die peacefully, but
also to live until you die.”
So we are called to dive into the Dissonance of the dyad,
The irritable uncertaintiesOf life – deathScience – art
Patient – clinicianI – Thou
But into the dyad we bring to it a thirdWe call that Colleague
SpiritPresence
Love
Wisdom of community
Giving permission
On Breaking Bad Newsafter William Carlos Williams
By Emily FerraraNourish the subtle body between
“I” doctor, and “Thou” patient.
Tend not to the news—for lackof what is found there (men die
every day)—but to what is found between. The unarticulated
fear, sadness palpable in the deepening dark, broken by touch, eyes brimming
hollyhocks, double-blossomed whiteand multiple magentas take breath
give life, subtle body, what is foundis nourished, is all we have. Lean in.
Video clip 1