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NHS England Publication Gateway Reference Number: 00076

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National Voices is a large group ofhealth and social care charities inEngland.

We work together to make sure thethings people say are heard by peoplein power.

We work with:

· patients

· people who use services

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· carers

· their families and the voluntaryorganisations that work for them.

This talk is about Person-Centred Care,which means the right care for whateach different person needs.

We also use the word co-ordinated,this is also about all the different partsof care working well together.

National Voices and TLAP both haveweb sites and you can follow them ontwitter.

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The NHS has paid us to do this work fora group called the NationalCollaboration for Integrated Care andSupport.

We decided how to do the work withlots of others including health andsocial care charities.

We wrote a draft report.

A draft is a report that isn’t finishedyet, people can read it and ask forchanges.

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The report was on:

· what matters most to patients andservice users

· we asked questions that we hadtested on patients

· and we talked to our members.

We changed some things after weasked people at a meeting lastSeptember.

We wrote a second draft in January2013 and asked people what theythought about it.

We heard from:

· people who buy services

· care services

·· service user organisations

· and others.

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We looked at what everyone said andtalked about it at another meeting inMarch 2013.

We then wrote this final version.

It fits in with the Think Local ActPersonal work on ‘Making it Real’.

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This slide shows the different partsthat need to work together to helpplan my care.

We will give you more details abouteach part in a moment. They are:

· what I want to happen

· talking and listening

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· information

· being in control

· making a plan for me

· moving from one service toanother.

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There are several different names thatare being used to talk about thechanges that are happening in healthand social care.

One of them is Integrated Care itmeans the same thing as person-centred coordinated care, whichmeans planning the right care for whateach different person needs.

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To plan my care I need people who:

· work together

· understand me and my carers

· make sure I'm in control

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· bring different services together

· make the things I want happen.

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To help me decide what I want tohappen, I need:

· people who find out what all myneeds are

· people to think about my needs inwhat they do, my carers and familyto get support with their needs sothey can carry on supporting me

· to understand what choices I haveand how to get what I want

· my care and support helping melive the life I want, as well as I can.

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Making my care plan, I need:

· to work with my team to agree mycare and support plan

· to know what is in my plan

· to know what to do if thingschange or go wrong

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· to have as much control as I wantover my plan

· to decide what kind of support Ineed, when and how I get it

· my care plan to be in my notes

· to review my plan often to check itis still right for me

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· to review my medicines

· to know when something isplanned it happens

· to be able to plan ahead and stayin control in any emergency

· to be able to get help early so itstops anything getting worse.

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Talking to each other, what I need:

· to just tell my story once to oneperson

· people listening to what thingswork well for me

· I am always told what is happeningnext

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· everyone to work as a team talkingto each other and including me

· always knowing who is in charge oforganising my care

· only having one person to contact

· people understanding me andknowing about my disability

· having someone to go to withquestions at any time.

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The information I need:

· having all the information I need tomake choices about my care andsupport in a way I can understand

· having help so I can use theinformation to help myself

· being able to see my health andsocial care records

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· being able to decide who else cansee them

· being able to change any mistakesin them

· having the right information at theright time and in a way I canunderstand

· being told about any other servicesand support that might be useful tome

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· having the right support tounderstand what any informationmeans for me

· not being left alone withinformation that I do notunderstand

· having someone I can talk to andask questions.

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The things I might want to makedecisions:

· being involved in talks anddecisions about my care, supportand treatment

· having my family or carer involvedas well

· having help to make choices that Iunderstand and know about

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· knowing how much money is therefor my care and support

· having choices on what to spendthat money on

· having good support andinformation to help me spendmoney in the best way

· getting the money quickly withoutlots of paperwork.

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Moving to a new service

When I use a new service:

· they need to know all about meand my care plan and want to dowhat it says

· there needs to be a plan for whathappens next when I move to adifferent service or place

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· I need to know where I am going,what I will be getting and who themain person is I should talk to,before I move

· I need to have information aboutmy medicines to take with me, Ineed to know how to take themand any problems they can cause

· I need to be able to contact my oldservices if I need to

· I need to have the same level ofcare and support even if I move toa new area.

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This slide is nearly the same asSlide 1 at the start.

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Credits

This paper has been designed andproduced by the EasyRead service atInspired Services Publishing Ltd.Ref ISL 014/13. April 2013.

www.inspiredservices.org.uk

NHS England Publication Gateway Reference Number: 00076