education of patients with primary hypogammaglobulinemia for s/c ig self-administration the...
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![Page 1: Education of patients with primary hypogammaglobulinemia for S/C Ig self-administration The Saint-Louis Hospital (Paris) Experience R. Laumond, J. Baron](https://reader035.vdocument.in/reader035/viewer/2022070323/56649d9f5503460f94a8a08b/html5/thumbnails/1.jpg)
Education of patients with primary
hypogammaglobulinemia for S/C Ig self-administration
The Saint-Louis Hospital (Paris) Experience
R. Laumond, J. Baron Lysio, M-L Doizé
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Aims of the approach
Allowing for autonomy of patients at home
Reducing the costs for the health system
Modifying the use of out-patient hospital
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The educational booklet
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Evaluation scaleHygiene and installation
Week 1, 2, …
Technical care
Hand washing, AsepsisWastePeremption of products…
Date, and validation:-Demonstration-Made « alone or with »-Acquired
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Inclusion S/C administration of Ig is a medical decision
Eligibility Criteria :
Voluntary contribution
Cognitive capacity
Subjective assessment of skilfulness
Rule approval
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Training period 3 steps for each patient
Demonstration (showing & handling by a
nurse)
Made « with » (handling with a nurse)
Made « alone » (validated by a nurse)
The step made « alone » can be carried on
for several weeks until autonomy is reached
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Practical course
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Hand washing Work surface organization Syringe manipulation
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Programming and connecting the ambulatory infusion pump
Draining the tubulure
after adjusting it on the
syringe
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Decontamination of the cutaneous surface
Installation and
occupation of the
patient during
infusion as wished
Subcutaneous injection
Made alone
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Following at home
Control session planned 3 months later in out-patient hospitalisation
Thereafter, hospitalisation or consultation every 6 months
Call center for questions or emergency
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Quantitative Results
• 48/58 substituted patients included
• 159 out-patient sessions (Median = 3 per
patient)
• 1 failure (patient decision)
• Few side effects (only local reactions)
• Treatment could be resumed in all patients
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Qualitative results
• Most patients (95%) were satisfied with Ig s/c administration :
– More comfortable and painless than Ig IV
– Less time consuming
– Satisfied with the process
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Conclusion