enca 2016 - genoa - glenda dalton
TRANSCRIPT
Children’s Chronic Arthritis Association
KIDS WITH ARTHRITIS
Unfortunately about one in a thousand children in the UK suffer from Juvenile Idiopathic Arthritis
(JIA)
• Founded in 1985, the CCAA provides a support network for children with Arthritis and their families
• The executive committee has a representation of parents and professionals
More about us…
• We aim to give practical help and support through our network and area family contacts
• We provide various educational and recreational opportunities for children with Juvenile Idiopathic Arthritis (JIA)
KIDS WITH ARTHRITIS
The annual Family Support Weekend
KIDS WITH ARTHRITIS
• Our weekends are organised for the children and families that are dealing with the effects of JIA
• Over the course of the weekend there are fun activities for the kids including Archery, Raft Building, Zip lining and so much more!
• The families also have access to informative support sessions, run by medical professionals
• The weekend is the perfect opportunity to meet other families that are experiencing the demands of JIA
What’s it all about? KIDS WITH ARTHRITIS
2013 was our 21st Weekend Anniversary
We had a barn Dance to celebrate!
KIDS WITH ARTHRITIS
Each weekend
costs approx.
£14,000 - £16,000
• This year, for the first time ever, we will be holding 2 weekends
• One in our usual location, the New Forest, and a new one in the Peak District to help families in the North
“We first attended the CCAA weekend when my daughter was 8. At the weekend you will meet lots of other families going through exactly the same, which helps you get support from each other. The best thing to come out of the weekend is watching the children make new friends and having so much fun doing ‘normal’ kids stuff!"
Mother & Committee Member, Sue Wescott
The CCAA Family Support Weekends are pivotal to the support that the charity provides for families
dealing with the effects of JIA
KIDS WITH ARTHRITIS
Fundraising & Donations
KIDS WITH ARTHRITIS
• Every donation is gratefully received because without them we can't continue the work we do to support the children and families affected by JIA
• All money donated or raised is spent directly on the children who suffer from JIA
• Donations help us to fund our projects, particularly the Family Support Weekend and;
• The Small Grant Awards, which help children and young people in education, sport and leisure activities
Thank You from all at CCAA KIDS WITH ARTHRITIS
To support children and young people in their sporting or leisure activities outside of the educational system as many children with arthritis miss out on these activities.
The Small Grant Awards To support children and young people in their education. The grant is not used to supplement failed support through the educational system, but has been designed to give support in areas that these young people may be disadvantaged in due to their Arthritis.
The Barba
ra Ansell Awar
d
The James Herso
n Awar
d
To be given to older children and young people going into further education/college/university, towards books, equipment, additional courses etc
The Vicky Cox
Award
KIDS WITH ARTHRITIS
How have the Awards helped…Barbara Ansell Award“Thank you so much for your help with this Award that you gave to our daughter. We have seen a very sick little girl, who is always sad and feels useless, turn into a bright spark all due to your Grant to pay for a private tutor, who has brought out so much positive feelings for our daughter”.
James Herson Award“Thank you very much for the grant for membership to 360 Play. I am going at least twice a week and I love it there! I can have lots of fun and it keeps me active, which I know is very important for my joints. The CCAA has really helped me and my family”.Vicky Cox Award“Thank you so much for this Grant which I will put towards purchasing some books and a microscope to enable me to learn more for my A Levels and then onto University in my chosen career in Pathology”.
KIDS WITH ARTHRITIS
Like us on Facebook: www.facebook.com/ChildrensChronicArthritisAssociation
Lets spread the word…
Follow us on Twitter @CCAA_Org
Visit our website www.ccaa.org.uk
You can donate at…
www.justgiving.com/ccaa
Help us raise awareness!
Kids Get Arthritis Too
Thank you