www.england.nhs.uk

Enhancing Care by Sharing

Data and Information

Dr Masood Nazir ( CCIO of the Year 2016)

General Medical Practitioner

CCIO & SRO – Your Care Connected Programme

Clinical Information & Assurance Lead and Senior Information Risk Owner,

Birmingham CrossCity CCG

National Clinical Lead NHS England

www.england.nhs.uk 2

Your Care Connected

The first local patient record sharing

service for Birmingham, Sandwell &

Solihull

Sharing information to improve the care you

receive

Your Care Connected programme

A simple, yet quite ambitious aim:

To provide a more joined-up NHS service in Birmingham,

Sandwell and Solihull

• To support direct patient care

• To give those treating patients the

information they need when they need it

The record will be:

• Viewed via “lookup” method – no data

warehouse or extraction involved

• Accessed only with the permission of the

patient at the point of care, unless they’ve

opted out

• Completely auditable

Why are we doing this? / Who does this help?

Saving lives• Most accurate patient information available

• The right information when it’s needed

• Reduces duplication of tests

Saving time• Vastly reduces calls from secondary care

• Frees up practice resource

• Improves patient experience

Protecting information• More secure than sending patient information by fax

• Completely auditable

• No data extraction or warehousing involved

318

GP Practices

11

Secondary Care

Organisations

1.8m

Patients

It can be a long road …

“If you stand up and be counted, from time to

time you may get yourself knocked down. But

remember this: A man flattened by an opponent

can get up again. A man flattened by

conformity stays down for good”

(Thomas J. Watson)

January 2014

October 2014

January 2015

Workshops

Data controllers - CCG SIRO’s, IG leads, LMC, CCG Clinical Leads, Practice Managers………….

What are the regulations and how do they impact you on the changes that you are proposing?

Collaboration is key - A complex second city

STP

Clinical Engagement with Local Professional and National Bodies

Clinical & Patient Collaboration

A Patient Viewpoint

Vic

How I have been able to support my Patients and Practice

• 27,000 patients

• 20 Doctors

• 10 Nurses

• 60 Admin Staff

Practice Projects

• System Migration

• Implementation of EPS

• Patient Online

• Online Test Requesting

• Increase eReferral usage

CCG Projects

• Your Care Connected Programme

• Virtualisation (VDI)

• IP Telephony / Video

• City-wide WiFi (WiMax)

• Clinical Decision Support

But don’t just take our word for it…what we have heard and learnt

“Patients assume we have full

access to their medical history and

therefore they may not reveal

medical conditions which might

impact their treatment”

“The fact that I could view my

patient’s blood results meant I didn’t

need to repeat the blood test”

“YCC was extremely easy to use,

being accessed intuitively through the

existing Clinical Portal”

“On accessing the patient’s record, I

became aware of a range of

medical conditions and past

illnesses I didn’t previously know

about. Without this information there

could have been a serious impact

on the care of my patient“

“Very useful - means we don't have

to wait ages on the phone to GP

practices”

Public information programme1 Preparation development - engagement

with patients and stakeholders in creating

information and campaign so we know its

clear

2 GP Practices awareness raising,

engagement events and toolkit to help

support practices

3 For patients - awareness raising advertising

and PR campaign so patients know they

should receive information by post – buses,

radio, events

4 Opt out - Letter and leaflet to patients

informing them of what is happening and how

to opt out

5 Ongoing support through helpline for

practices and patients through process

GP Record node – Only available if data is present on the

MIG – access controlled by Active Directory group

• NB – in development awaiting wording from the CCG

Learning by listening – the road to better practice

IG as the primary driver: the YCC DSA has become a national

exemplar of best practice, assured by two independent expert

barristers, the BMA ethics committee & signed off by Birmingham &

Solihull LMC

Communications & Engagement: using all available channels

to explaining, educating, championing, promoting the initiative

amid many competing priorities

Programme & Governance: designed with strong stakeholder and

partner contribution, based on DSA blueprint recently noted by the ICO

Solution design: DSA driven, a two factor consent model – implied

consent to share, explicit consent at the point of sharing

From proof of concept to operation

A comprehensive & successful proof of concept: building

the interoperability solution, testing the delivery method

Strong focus on data quality: providing testing,

remediation advice and supporting QOF and CQC

Our Change & Direct Mail Campaign: providing patients with

the opportunity to opt out, maximizing patient touch-points

Supporting Practices & Providers: expert central team support

at each step in the process from DSA sign-off to service activation

Current Position: Over 1 million patients have been mailed

and live with 950,000 patients

Additional providers being enabled this year

SystemOne/TPP GP

Social Care SystemTeleHealth/TeleCareMonitoring Platform

Summary Care Record

Clinician Social Care Worker Patient

Electroni

c Master

Patient

Index

EMISWebGP

CommunityHealth

Mental Health EPR

Acute

DepartmentalSystems

Anonymise

d Clinical

Data

Repository

Note: the

systems

detailed

are for

illustration.

Authentication Security Audit Logs

CompleteRecord

Charts DocumentViewer

Professional View

Authentication Security Audit Logs

Appointments Messages

Patient View

CompleteRecord Health

Links

Integrated Care RecordAggregated on demandConsent Management

Real Time AnalyticsPopulation Health

ResearchReporting

Care PlansEnd of Life

Long Term Conditions

Future

Notifications

Ambulance

Further work

&

consultation

needed

What are we trying to achieve?

INPS

GP

I cannot do this alone………