epilepsy foundation iowa quarterly newsletter, …...epilepsy foundation – iowa quarterly...

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Epilepsy Foundation – Iowa Quarterly Newsletter, Winter 2017 Greetings! We have wrapped up 2016 and are now approaching a year with our own website, which has been a great way to market our programs, services, advocacy efforts and upcoming events. You can keep up to date on what is going on at www.epilepsyiowa.org or on our Epilepsy Foundation Iowa Facebook page. A couple new programs for 2017 include the expansion of epilepsy education through webinars and the Bounce Out the Stigma epilepsy youth basketball camp, which will be held on July 21 at UNI! Our next youth council outing for teens with epilepsy will be at Courage League Sports in Urbandale on January 14. We will be running Studio E Art Therapy for adults with epilepsy starting in March/April in Des Moines and Iowa City. We will be holding a spring epilepsy education seminar on May 11 in Council Bluffs. Our Iowa Walks for Epilepsy Committees are underway planning for the walks on April 22 at Jordan Creek Mall in West Des Moines, May 13 at Kennedy Mall in Dubuque and June 10 at the City Park in Iowa City, which includes a chip timed 5K. The University of Iowa is holding their 2 nd Annual Epilepsy Symposium on May 20 in Coralville. There is much going on, so please contact myself at the main office at 515-238-7660 or Sloane in our Eastern Iowa office at 319-359-8682 to sign up for one of these programs, line up a seizure training program in your area, or to find resources to help overcome those challenges that often come along living with epilepsy.

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Page 1: Epilepsy Foundation Iowa Quarterly Newsletter, …...Epilepsy Foundation – Iowa Quarterly Newsletter, Winter 2017 Greetings! We have wrapped up 2016 and are now approaching a year

Epilepsy Foundation – Iowa Quarterly Newsletter, Winter 2017

Greetings!

We have wrapped up 2016 and are now approaching a year with our own website, which

has been a great way to market our programs, services, advocacy efforts and upcoming

events. You can keep up to date on what is going on at www.epilepsyiowa.org or on our

Epilepsy Foundation Iowa Facebook page. A couple new programs for 2017 include the

expansion of epilepsy education through webinars and the Bounce Out the Stigma

epilepsy youth basketball camp, which will be held on July 21 at UNI! Our next youth

council outing for teens with epilepsy will be at Courage League Sports in Urbandale on

January 14. We will be running Studio E Art Therapy for adults with epilepsy starting in

March/April in Des Moines and Iowa City. We will be holding a spring epilepsy education

seminar on May 11 in Council Bluffs. Our Iowa Walks for Epilepsy Committees are

underway planning for the walks on April 22 at Jordan Creek Mall in West Des Moines,

May 13 at Kennedy Mall in Dubuque and June 10 at the City Park in Iowa City, which

includes a chip timed 5K. The University of Iowa is holding their 2nd Annual Epilepsy

Symposium on May 20 in Coralville. There is much going on, so please contact myself at

the main office at 515-238-7660 or Sloane in our Eastern Iowa office at 319-359-8682

to sign up for one of these programs, line up a seizure training program in your area, or

to find resources to help overcome those challenges that often come along living with

epilepsy.

Page 2: Epilepsy Foundation Iowa Quarterly Newsletter, …...Epilepsy Foundation – Iowa Quarterly Newsletter, Winter 2017 Greetings! We have wrapped up 2016 and are now approaching a year

Iowa Seizure Smart Annual Conference

Every year, we kick off National Epilepsy Awareness Month by holding our Iowa Seizure Smart Conference.

We had 207 attendees attend our conference on

November 5th. The conference kicked off with a welcome

by EF Iowa Community Council President Darrell

Chiavetta, which included sharing how epilepsy impacts

his family. Roxanne Cogil, Director of Iowa Epilepsy Services for the Epilepsy Foundation, presented an

Overview of the Epilepsy Foundation’s Programs and

Services in Iowa. There were six medical professionals

who presented lectures: Dr. Andrew Peterson “Seizures

& Epilepsy: What Does Sleep Have to Do with it?”, Dr.

Gordon Buchanan “Sudden Unexpected Death in Epilepsy: Insights from Animal Models”, Dr. Rup Sainju “Seizure Medicines: Are They Better?”, Stephanie Borst “Dietary Therapies in Epilepsy”,

Dr. Michael Ciliberto “Cannabinoids in Epilepsy” and Dr. Colleen Campbell “Precision Medicine in

Epilepsy”. We had two patient testimonials: a mother who shared about the loss of her 23 year

old daughter from Sudden Unexpected Death in Epilepsy and a 16 year old girl who shared

about the success of the Ketogenic Diet therapy for helping manage her seizures. We had both

of our 2016 Iowa Teens Speak Up delegates (Simon Clark and Kendall Maslak) share their year

of service projects for teen advocacy for epilepsy.

The last round of sessions at the conference were “Connection Groups”, in which the attendees

were broken down into three groups: Parents of Children with Epilepsy, Adults with Epilepsy and

Professionals who work with those with epilepsy. There was a facilitator for each group who helped guide conversations to help attendees connect with each other. The purpose of each

group was for attendees to share about their journey with epilepsy and to build connections with

each other.

The Iowa Seizure Smart Conference was live streamed this year for the very first time to help extend our educational outreach across the state of Iowa. The lectures were also audio/video

recorded. We had 19 children participate in our Studio E Art Therapy and Music Therapy

sessions during the conference. We had 19 exhibitors at the Community Resource Fair and we

awarded 10 families travel/lodging stipends. We also had 29 attendees at our pre-conference

session which included advocacy information and a seizure training.

New Faces at EF Iowa

The Foundation is growing! As we increase our outreach, programs and

services, we need more support . . . and staff. We are excited about the

additions to our team!

Jessica Hunnell (top, right) recently started her part-time role as Administrative

Assistant supporting the EF Iowa staff, Iowa Community Council members and

Committee Chairs. Welcome, Jessica!

Madisen Smith (bottom, right) has also recently started as our 2017 spring

intern and will be helping out with marketing, communication, social media

updates, website additions, as well as youth council projects. She is a recent

ISU grad, works in a research lab and has worked with the Brain Injury Alliance

of Iowa. Welcome, Maddie!

Page 3: Epilepsy Foundation Iowa Quarterly Newsletter, …...Epilepsy Foundation – Iowa Quarterly Newsletter, Winter 2017 Greetings! We have wrapped up 2016 and are now approaching a year

Iowa Medicaid Managed Care

The Iowa DHS website has information for Iowa Medicaid

Managed Care, including non-emergency medical

transportation and frequently asked questions:

http://dhs.iowa.gov/iahealthlink.

Are you having issues accessing medical care?

1.) Please contact your MCO (Managed Care

Organization) member services first.

Members have a right to file an appeal with their

respective MCO, before filing an appeal with Iowa

Medicaid. MCOs are required to acknowledge receipt of your grievance within three business days and are

allowed up to 30 calendar days to provide you a written

notice of how the MCO resolved your grievance or 45 calendar days to provide you a written

notice of how the MCO resolved your appeal and the date that it was resolved. MCOs may

extend the resolution time from 30 days up to 44 calendar days. If an Iowa Medicaid member is

dissatisfied with the MCO’s decision, the member can access the State Fair Hearing appeal process through the Department of Human Services.

2.) State Fair Hearing Appeal Process through Iowa DHS

From Page 17 of the Iowa Health Link Member Handbook on the appeal process:

“Appeals and Grievances

What is an appeal? An appeal is asking for a hearing because you do not like a decision the

Department of Human Services (DHS) makes. You have the right to file an appeal if you

disagree with a decision. You do not have to pay to file an appeal. [441 Iowa Administrative

Code Chapter 7].

How do I appeal? Filing an appeal is easy. You can appeal in person, by telephone or in writing for Food Assistance or Medicaid. You must appeal in writing for all other programs. To appeal in

writing, do one of the following: • Complete an appeal electronically at https://dhssecure.dhs.state.ia.us/forms/, or

• Write a letter telling us why you think a decision is wrong, or

• Fill out an Appeal and Request for Hearing form. You can get this form at your county DHS office.”

3.) For those who are a long-term care member, such as in a healthcare facility or on

one of the state HCBS (Home & Community Based Services) Waivers, managed care

members may file a complaint with the Managed Care Ombudsman Program.

Office of the State Long-Term Care Ombudsman

Attn: Managed Care Ombudsman Jessie M. Parker Building

510 E 12th Street, Suite 2

Des Moines, IA 50313-9025

Phone: 866-236-1430

Fax: 515-725-3313

Email: [email protected] Website: https://www.iowaaging.gov/long-term-care-ombudsman/managed-care-ombudsman

Page 4: Epilepsy Foundation Iowa Quarterly Newsletter, …...Epilepsy Foundation – Iowa Quarterly Newsletter, Winter 2017 Greetings! We have wrapped up 2016 and are now approaching a year

University of Iowa Epilepsy Symposium

The 2nd Annual Comprehensive Epilepsy

Management Program at the University of Iowa: A

Program for Patients, Families and Community is

scheduled for Saturday, May 20th from 8:30 -

noon. This free event will be open to the public at

the Coralville Marriott Hotel and Conference Center

and will include a continental breakfast along with

an impressive line-up of topics and speakers. Find

all the information on their website:

www.medicine.uiowa.edu/neurology/epilepsy-

event.

A recorded podcast of the 2016 Symposium is available online at http://bit.ly/2hHsT49.

Tentative topics:

What is a Level 4 Epilepsy Center & what is its role?

Treatment of refractory epilepsy: Options for seizure

control

Selection & evaluation of patients for surgical treatment

Epilepsy surgery in pediatric and adult patients

Research in epilepsy at the University of Iowa

SUDEP: Risk factors and prevention

SUDEP: Animal models used to study mechanisms

Effect of seizures on breathing

Medical marijuana & cannabidiol for treatment of

epilepsy

Tentative speakers:

Mark Granner, MD. Department of Neurology.

Rup Sainju, MBBS. Department of Neurology.

Gena Ghearing, MD. Department of Neurology

George Richerson, MD, PhD. Department of Neurology.

Brian Gehlbach, MD. Department of Internal Medicine.

Gordon Buchanan, MD, PhD. Department of Neurology.

Brian Dlouhy, MD. Department of Neurosurgery.

Michael Ciliberto, MD. Department of Pediatrics

Epilepsy Advocacy

We encourage you to sign up for the Epilepsy Foundation of America’s Advocacy Network on this

link: http://www.cqrcengage.com/efa/app/register?1&m=86046. They send out the monthly

newsletter – Highlights from the Hill – and other targeted advocacy initiatives to the members of

this list. We hope you sign up!

Also, you can access all their advocacy materials from the EFA advocacy home page:

http://cqrcengage.com/efa/. Key sections include the policy priorities pages

(http://cqrcengage.com/efa/PolicyPriorities) and the state advocacy pages

(http://cqrcengage.com/efa/States). They will continue to update these pages as we enter the

new legislative sessions.

Congratulations to Tanner Kahler of Pleasant Hill who was approved as our 2017 Iowa teen

delegate to attend the Teens Speak Up and Public Policy Institute in Washington D.C. in late

March! Jessica Hunnell will attend as the parent delegate and Sally Gaer of West Des Moines will

serve as the EF Iowa advocate.

Iowa’s own advocacy page with legislative priorities as we enter the 2017 legislative session can

be found on our website: http://www.epilepsyiowa.org/advocacy/. Mark your calendar for

March 16 to join us at the Iowa Epilepsy Advocacy Day at the Iowa State Capitol to advocate on

behalf of individuals impacted by epilepsy. Register to join us at http://conta.cc/2gYZfDT!

Page 5: Epilepsy Foundation Iowa Quarterly Newsletter, …...Epilepsy Foundation – Iowa Quarterly Newsletter, Winter 2017 Greetings! We have wrapped up 2016 and are now approaching a year

EF Iowa Walks

It’s an exciting time of year. With so much planned already

for the first half of 2017, the walks take the cake! People

come together, families connect, children paint their faces and

get selfies with mascots, auction items come in with flair and

fanfare! All that and the proceeds go to help raise awareness

and support statewide programs that educate, connect and

empower people impacted by epilepsy. 100% of funds raised

are used to support programs and services being provided to

individuals, families & professionals in Iowa that are impacted

by epilepsy.

The Walk Committees are already in gear to get planning

under way for another successful walk season! That means

THREE committees are developing plans for our three

locations and events. No matter where you are in the state,

we have a walk a short jaunt away for you to join us! If you

would like to join one of the walk committees to help with the

planning process, please contact us! Details for each event

are still being developed, so stay up to date with our social

media posts and the information page on our site:

www.epilepsyiowa.org/efwalks.

April 22, 2017

Jordan Creek Mall, West Des Moines (Indoor Walk)

Register at http://bit.ly/1H4DbBw.

May 13, 2017

Kennedy Mall, Dubuque, Iowa (Indoor Walk)

Register at http://bit.ly/2i8zfrf.

June 10, 2017 City Park, Shelter #6, Iowa City (Walk and 5K)

Register at http://bit.ly/1TYw4Qx.

Interested in being a corporate sponsor for our 2017 Iowa

Walks for Epilepsy? Find out more:

http://www.epilepsyiowa.org/efwalks/walksponsorship/.

Side Effects is a special feature

recognizing individuals who go

above and beyond as a side to

their day job or other roles in

positively impacting inidividuals

with Epilepsy. This edition’s Side

Effects recognizes Amanda

Weichers & Sarah Corkery!

These women, both in Cedar

Falls, Iowa are working on a very

special project. They have been actively planning, fundraising and

awaiting an inclusive playground

for the area. “Our goal is to help create an experience where

children of all abilities can play

together.” The project will be an expensive one but they are

ralying community support and

finding buy-in from the city.

Their initial fundraising goal was

$100k by Christmas. They met it

early with a #GivingTuesday campaign! Community members,

families near and far and friends

have been actively supporting their efforts to get the Place To

Play Park breaking ground.

Want to know more? Check out

their promotional video to learn

more about the park: https://vimeo.com/191299155

Funds for the park are run through the non-profit: Beau’s

Beautiful Blessings; a previous

feature of our Side Effects series.

Learn more about the park, the plans, the possibilities!

www.yourplacetoplay.org

Page 6: Epilepsy Foundation Iowa Quarterly Newsletter, …...Epilepsy Foundation – Iowa Quarterly Newsletter, Winter 2017 Greetings! We have wrapped up 2016 and are now approaching a year

#TalkAboutIt An Iowan’s Story

Discovering My Life’s Purpose: From Tragedy to Triumph

(Liz Zabel, The Gazette, Cedar Rapids. December 2nd, 2016)

From the top of a steep hill in Coralville, Bridgid Ruden had no idea her life was about to drastically

change. In a matter of moments, she’d no longer be training for a triathlon. She wouldn’t return to work

as a pediatric nurse practitioner or go home to cook dinner for her family for quite some time.

At the bottom of the hill was a patch of thick, slippery mud that would ensnare her bike, causing her to

lose control and fall, landing head first onto the pavement. “When she was going through the mud, she

was screaming,” said Angie Cookman, Ruden’s friend who accompanied her on the bike ride that day.

“Then she lost consciousness. ... I knew it was beyond a simple concussion.”

Despite wearing a helmet, Ruden would come-to in an ambulance, blood dripping from her ear, nose and

mouth. Her right clavicle was broken, one of her lungs had collapsed and she’d fractured her sixth cervical

vertebra. She had no idea who she was, where she was or what had happened. She slipped in and out of

consciousness, eventually landing in a coma for eight days. The ambulance rushed her to the University of

Iowa Hospital for emergency brain surgery. Even then, continued bleeding on her brain required a second

surgery that same day.

Things didn’t look good — her vitals worsened and cerebral spinal fluid regularly drained from her ear.

Then, an MRI revealed she needed immediate surgery again. Finally, she began to improve. But when she

woke up, she wouldn’t remember much of anything — not even the names of her three children. She

could recognize people’s faces, she said, but often couldn’t remember their name or how she knew them.

“There was a lot of confusion,” Ruden said. “Every day I was in and out of shock.”

On June 16, 2008, almost a month after the accident, Ruden was transferred to UnityPoint-St. Luke’s

Hospital for rehabilitation. She needed physical, speech and occupational therapy to relearn basic life skills

such as reading, writing, speaking and walking. Feeding, bathing and dressing herself were once again

new. The injury set her 44-year-old brain back to that of a three-year-old’s, she said. “The loss of those

things were really a punch in her self-confidence,” said Marcia Akeson, a speech language pathologist who

worked with Ruden in her recovery.

“At that time, she was looking at things as glass half empty instead of full,” Akeson continued. “She

always had a good attitude, but she was kind of down, thinking about what she was missing. ... She was

really shaken emotionally because everything she knew had been swept out from under her.”

In addition to mental rehabilitation, Ruden also needed physical rehab for her broken clavicle and

vertebrae. She had severe vertigo that made it extremely difficult to balance and caused horrible nausea,

making recovery all the more difficult. Perhaps even more challenging was having three young children —

one 8-year-old, one 12 and one 15 — whose adult mother could no longer drive, cook or clean. Her

Page 7: Epilepsy Foundation Iowa Quarterly Newsletter, …...Epilepsy Foundation – Iowa Quarterly Newsletter, Winter 2017 Greetings! We have wrapped up 2016 and are now approaching a year

youngest daughter, for example, had to teach her how to use the microwave again and remind her to

wear her helmet to cover her exposed brain — her skull had been removed due to infection. In August,

she received her final brain surgery and a titanium plate replaced her missing left skull.

“I had to relearn to be a mother again, that was the hardest thing,” Ruden said.

Ruden also has epilepsy as a result of the injury and has had severe seizures around her children on

multiple occasions. In fact, her son once saved her life after a seizure by flipping her on her side and

making sure she could breathe. “There were a couple years there where it was stressful for the whole

family,” said Todd Ruden, her husband. “But we’re stronger because of it.” Slowly but surely, Ruden

recovered many of the skills she’d lost. Doctors called her a miracle.

Nine months after the accident, she was able to jog on the treadmill. In 10 months, she was able to get

back on her bike. She relearned to play the piano, dance, cook meals for her family and even drive again.

“So many people couldn’t believe how rapidly I was healing,” Ruden said. “It’s because I never gave up.

... I’m a person who gives 200 percent.”

She’d hoped things would return to the way they were before the accident, but some symptoms would

never disappear — including epilepsy, speech aphasia and memory issues. She’s also easily fatigued and

must get plenty of rest to avoid seizures, dizziness, confusion and other symptoms. “My brain just gets

fried,” she said. “I get confused and dizzy within five hours of being awake.”

Unfortunately, Ruden will never be able to return to work as a pediatric nurse practitioner — a career she

deeply loved. “Not being able to return to her job has been very frustrating for her,” Cookman said. “She

loved children and loved to deal with patients.” “Realizing what she’s lost has been hard on her,” Todd

Ruden agreed. “But she’s found another path. She found her life’s purpose and that’s what’s important.”

Today, Ruden is an inspirational speaker and recently published her first book,

“Discovering My Life’s Purpose: From Tragedy to Triumph.”

“She found a way to not let what she couldn’t do interfere with what she wanted to do,” Akeson said. “She

knew she couldn’t go back to work, but she wanted to help others and realized she could help others by

telling her story.”

Sharing her story has not only helped her heal, but she hopes will helps others heal, too, as well as

educate health care professionals to give their patient’s hope — although most doctors remained positive

during her recovery, some were not. In fact, one nurse told her she’d end up in a nursing home, she said.

“You’ve got to give people hope,” Ruden said. “Don’t pull every piece of them away. Healing takes baby

steps and it has it’s ups and downs. Never tell a patient they can’t. Affirm them. Give them little goals and

praise them. Never criticize.”

Upon meeting Ruden, it’s unlikely you’d know she ever had a severe brain injury.

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“She’s very lucky to be where she’s at. It could have ended a lot

differently,” Cookman said. “She really has turned this event over. ... Now

she inspires others who may be going through this. She shows others you

can overcome.”

“She’s an incredible woman,” Todd Ruden said. “She’s still driven, very

ambitious. Her heart’s in the right spot, always looking to help people.”

What: Speaking event featuring Bridgid Ruden

When: March 9, 2017

Where: Inspire Cafe, 955 Washington St. #105, Dubuque

Where to find her book: Amazon, Barnes & Noble, Prairie Lights, Iowa

Memorial Union Bookstore, University of Iowa Hospital Bookstore and the

Book Warehouse in Williamsburg

#ThankYOU Thank you to all who engaged with our numerous social media campaigns last quarter! The

#PurplePumpkinProject was a hit and a fun experience taken into homes, clinics and the Youth

Council made it an event as well! Also in October, the #AimForZero SUDEP Awareness campaign

was extremely enlightening. We hope you felt educated and empowered through the information

we shared from the National Foundation. #GivingTuesday was a fundraising effort we brought to

Iowa for the first time and thank you to those who sent donations in with the campaign.

#NationalEpilepsyAwarenessMonth was full of information sharing and we enjoyed seeing that

many of you shared our posts and used the toolkit we shared for raising #EpilepsyAwareness! As

always, we are consistently running the #TalkAboutIt campaign and were thrilled to see it come

to Iowa with a tree display (pictured below) and fundraiser in Cedar Falls. In fact, 2016 Teens

Speak Up! Delegate, Kendall Maslak,(pictured below with her parents) raised almost $2000 she

will use to support the Bounce Out the Stigma Basketball day camp coming this summer. There

will be more campaigns to come especially with #GlobalPurpleDay coming before you know it!

Your likes, shares, re-tweets and engagement are important to us. Thank you!

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Join us at the Hilton Garden Inn in Council Bluffs on May 11th for an evening seminar! There is

no cost to attend, but we would like attendees to register online at: www.epilepsyiowa.org.

Learn about new discoveries that will lead to a new era of epilepsy care!

Epilepsy – Recent Advances

Agenda

5:30 PM Check in/Dinner

6:00 PM Welcome

6:15 PM EF Iowa Programs & Services Overview

6:30 PM Presentation by Dr. Sanjay P. Singh

7:30 PM Question/Answer Session and Community Needs Assessment

Keynote Speaker

Sanjay P. Singh, MD is the Chairman & Professor of the Department of Neurology at Creighton

University School of Medicine. He is also the Medical Director of Neurological Services at

Creighton University Medical Center. Earlier he was the Vice Chairman (Education) of

Neurological Sciences Department at University of Nebraska Medical Center (UNMC). He was

also the founder Director of The Nebraska Epilepsy Center at UNMC. He has also served as the

Program Director of the Creighton-Nebraska Joint Neurology Residency Program.

Dr. Singh received his medical degree from M.L.N. Medical College in India, where he was the

Valedictorian of his class. He completed a neurology residency at George Washington University

Medical Center; he was the Chief Resident of Neurology in his PGY-4 year. He then did a two

year fellowship in Epilepsy and Clinical Neurophysiology, as the Gilbert Glaser fellow, at Yale

University School of Medicine. He is Board certified in Neurology and is a member of

the American Academy of Neurology and the American Epilepsy Society.

He is the author of the ‘Locatelli & Singh’s Handbook of Neurology’. He is the author of

numerous articles and also of Book Chapters. He has been the recipient of numerous awards and

honors including the A.B. Baker Teacher recognition award by the American Academy of

Neurology, The UNMC Chancellor’s Gold U Award & Kudos award of the Board of Regents award

for University of Nebraska.

He has been invited to lecture at many national and international institutions and conferences.

He has also given talks to the community in ‘Science Cafes & Simply Science’ programs.

There will be another Epilepsy Education Seminar held in Eastern Iowa and we will share details

as soon as plans are set!

Page 10: Epilepsy Foundation Iowa Quarterly Newsletter, …...Epilepsy Foundation – Iowa Quarterly Newsletter, Winter 2017 Greetings! We have wrapped up 2016 and are now approaching a year

The Epilepsy Foundation of North/Central Illinois, Iowa, Nebraska is excited to bring you the

opportunity to express yourself through art as part of a multi-week art therapy program. You’ll

work with an art therapist and other people with epilepsy in a group setting to create artistic

pieces using a variety of mediums, strengthen your artistic voice and learn from others in an

open, welcoming environment. Your artwork may also help raise awareness about the realities of life with epilepsy. Studio E is a national program in collaboration with Epilepsy Foundation of

America and Lundbeck. * No cost to attendees participating in program. Limited number of participants. Please note that

this program is offered exclusively to adults living with epilepsy.

Iowa City Studio E Art Therapy

Dates: February 21, 28 March 7, 21, 28 & April 4,

2017

Time: 6-8 PM

Location: UIHC Activities/Therapy Room,

200 Hawkins Drive, Iowa City, Iowa

Contact: To sign up for Studio E in Iowa City,

please contact Sloane Henry at 319-359-8682

or [email protected].

Des Moines Studio E Art Therapy

Dates: March 7, 14, 21, 28 and April 4 & 11, 2017

Time: 9-11 AM

Location: United Way of Central Iowa,

1111 9th Street, Des Moines, Iowa

Contact: To sign up for Studio E in Des Moines,

please contact Roxanne Cogil at 515-238-7660 or [email protected].

Save the Dates for 2017

January 14: Iowa Epilepsy Youth Council Courage League Team Building Event, Urbandale 11-1 Register

at http://conta.cc/2hFCsCt.

February 21, 28 March 7, 21, 28 & April 4: Studio E: Art Therapy, Iowa City 6-8pm

March 7, 14, 21, 28 and April 4 & 11: Studio E: Art Therapy, Des Moines 9-11am

March 16: Iowa Epilepsy Advocacy Day Register online at http://conta.cc/2gYZfDT.

April 21: Studio E Gallery Show and Walk Check-In/T-Shirt pick up, West Des Moines

April 22: Epilepsy Walk, West Des Moines

May 11: Epilepsy Education Seminar, Council Bluffs Register online at http://conta.cc/2iBCsAl.

May 13: Epilepsy Walk, Dubuque

May 20: UI Epilepsy Symposium, Coralville

June 1-4: Camp You Can, Omaha

June 4 - 10: CamPossible, New Liberty

June 10: Epilepsy Walk/5K, Iowa City

July 21: Bounce Out the Stigma Basketball Day Camp, UNI Wellness & Recreation Center, Cedar Falls

September 9: Dash to Bash Epilepsy 5K, Cedar Rapids

November 4: Iowa Seizure Smart Conference, Des Moines

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Community-organized meetings for people connected to epilepsy

looking to empower themselves through resources and relationships. Join us!

Cedar Rapids Meets the 2nd Wednesday every other month on the EVEN months at 6:30 PM.

Dates: Feb. 8, Apr. 12, Jun. 14, Aug. 9, Oct. 11, Dec. 13, 2017

Location: Mercy Medical Center, Katz Conference Room, 701 10th St. SE, Cedar Rapids, IA

Contact: Dale Todd 319-389-6071

Cedar Valley Meets the 1st Thursday every other month on the ODD months at 6:30 PM.

Dates: Jan. 5, Mar. 2, May 4, July 6, Sept. 7, Nov. 2, 2017

Location: Sartori Memorial Hospital, West Dining Room, 515 College Street, Cedar Falls, IA Contact: Sloane Henry 319-359-8682

Council Bluffs/Omaha Meets the 3rd Tuesday every month (except December) at 7:00 PM.

Dates: Jan. 17, Feb. 21, Mar. 21, Apr. 18, May 16, Jun. 20, Jul. 18, Aug. 15, Sep. 19, Oct. 17, Nov. TBA

Location: Creighton University Medical Center, Suite 5300, Room 5303, 601 North 30th Street, Omaha, NE Contact: Mary Overton 402-680-8026 and Kristine Kaiser 402-319-1015

Des Moines Meets the 4th Thursday of every month (skip Nov. & meet earlier in Dec.) at 6:00 PM.

Dates: Jan. 26, Feb. 23, Mar. 23, Apr. 27, May 25, Jun. 22, Jul. 27, Aug. 24, Sep. 28, Oct. 26, Dec. 7, 2017

Location: Mercy Medical Center, East Tower, Level A, Conf. Room 3, 1111 6th Ave., Des Moines, IA

Contact: Roxanne Cogil 515-238-7660

Iowa City **Now Meets the 3rd Friday of every other month on ODD months at 6:30 PM. **

Dates: Jan. 20, Mar. 17, May 19, Jul. 21, Sep. 15, Nov. 17, 2017

Location: Iowa City Public Library, Room D, 123 South Linn Street, Iowa City, IA

Contact: Sloane Henry 319-359-8682

Quad Cities Meets the 1st Thursday of every month at 6:30 PM.

Dates: Jan. 5, Feb. 2, Mar. 2, Apr. 6, May 4, Jun. 1, Jul. 6, Aug. 3, Sep. 7, Oct. 5, Nov. 2, Dec. 7, 2017

Location: UnityPoint - Trinity Hospital, Education Center, 500 John Deere Road, Moline, IL

Contact: Monta Ponsetto 309-373-0377

Quad Cities Parent Group Meets the 3rd Thursday of every month at 7:00 PM.

Dates: Jan. 19, Feb. 16, Mar. 16, Apr. 20, May 18, Jun. 15, Jul. 20, Aug. 17, Sep. 21, Oct. 19, Nov. 16,

Dec. 21, 2017 Location: Howell Chiropractic, 2440 Tech Drive #3, Bettendorf, IA

Contact: Monta Ponsetto 309-373-0377

Thank you for your connection to & support of the Epilepsy Foundation-Iowa!

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1111 9th Street, Suite 370 Des Moines, Iowa 50314 Phone: 515-238-7660

E-mail: [email protected] Website: www.epilepsyiowa.org