eurobioforum 2013 - day 2 | jami taylor
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EuroBioForum 2013 2nd Annual Conference 27-28 May 2013 - Hilton Munich City, Munich, Germany http://www.eurobioforum.eu/2013 ======================================= # KEYNOTE PRESENTATION # Personalised medicine education & training Macro challenges and the path forward Jami Taylor Senior Director, Global Access Policy at Janssen, the Pharmaceutical Companies of Johnson & Johnson Vice-chair of the Education Committee of EPEMED ======================================= http://www.eurobioforum.euTRANSCRIPT
Personalised medicine education & training
Macro challenges and the path forward
Jami Taylor EuroBioForum Annual Conference Munich, Germany ▪ May 2013
www.janssendiagnostics.com
www.epemed.org
Macro challenges: An overview
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Knowledge gaps are not clearly identified
The guiding lexicon is not yet standardised
The technology is advancing rapidly
Three challenges that complicate personalised medicine education & training today
Identifying stakeholder knowledge gaps
Meeting the challenges of personalised medicine education and training in Europe will first require a clearer understanding of where the gaps in knowledge lie, the extent of those gaps and their associated implications.
The evolving lexicon
Personalised medicine
Precision medicine
P4 medicine
Individualized medicine
Stratified medicine
Targeted therapy
Terms used to describe this trend in medicine have yet to be standardised or fully clarified
Personalised medicine confounds familiar categories, and as such will continue to drive a new vocabulary in medicine aiming to capture the phenomena it enables
therapeutics diagnostics theranostics? +
e.g.,
Rapidly advancing technology
“One could argue that these technologies are advancing so rapidly that what we teach today will be obsolete by the time personalised medicine is in common practice.” - Kenneth Cornetta, MD & Candy Gunther Brown, PhD
Academic Medicine. 2013;88(3):309-313.
The path forward
Starting options for consideration
Assessing the knowledge gaps
• Using a range of tools, conduct a series of personalised medicine knowledge audits among key stakeholders
• Analyze information collected, identify needs
• Develop personalised medicine education strategy according to the audit’s findings; refine continually based on built-in feedback mechanisms, new information and insights
Recommendations for managing knowledge gaps:
Personalised medicine knowledge audits among key stakeholders
Patients & patient advocacy groups
.
Medical school students
Medical societies & guideline committees
Practicing clinicians
Surveys
Interviews
focus groups
social listening
Managing a lexicon in flux
• Allow for a multiplicity of terms while striving for some standardisation
• Be open to introducing new terms as the technology evolves and as older terms prove inadequate
• As a community, push for clarity as new terms are introduced; test new terms vigorously within and beyond the community to determine which best illuminate the concepts at hand
Recommendations for managing the lexicon:
Keeping pace with the technology
Recommendations for educating amid rapid change:
• More powerfully and consistently convey the larger vision of personalised medicine and its transformative potential
• Create resources to help stakeholders keep pace with advances in personalised medicine technology
And more fundamentally:
• Draw from best practices used in other high-tech fields
Creating resources to inform stakeholders of new advances in real-time
Drawing on best practices in other high-tech fields
- Steve Jobs Co-founder, Apple 1955-2011
Simple can be harder than complex: You have to work hard to get your thinking clean to make it simple. But it’s worth it in the end because once you get there, you can move mountains.
Conveying the larger vision
A vision for all patients, everywhere…
Thank you