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FAIR and Responsible Data Sharing Mercè Crosas, Ph.D., Harvard University’s Research Data Management Officer, OVPR Chief Data Science and Technology Officer, IQSS @mercecrosas

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Page 1: FAIR and Responsible Data Sharing - Harvard …...FAIR and Responsible Data Sharing MercèCrosas, Ph.D., Harvard University’s Research Data Management Officer, OVPR Chief Data Science

FAIR and Responsible Data SharingMercè Crosas, Ph.D.,Harvard University’s Research Data Management Officer, OVPRChief Data Science and Technology Officer, IQSS @mercecrosas

Page 2: FAIR and Responsible Data Sharing - Harvard …...FAIR and Responsible Data Sharing MercèCrosas, Ph.D., Harvard University’s Research Data Management Officer, OVPR Chief Data Science

Access to data is critical for building AI solutions

Page 3: FAIR and Responsible Data Sharing - Harvard …...FAIR and Responsible Data Sharing MercèCrosas, Ph.D., Harvard University’s Research Data Management Officer, OVPR Chief Data Science

Access to good quality reusable data is critical for building AI solutions

Page 4: FAIR and Responsible Data Sharing - Harvard …...FAIR and Responsible Data Sharing MercèCrosas, Ph.D., Harvard University’s Research Data Management Officer, OVPR Chief Data Science

Responsible access to good quality reusable data is critical for building AI solutions

Page 5: FAIR and Responsible Data Sharing - Harvard …...FAIR and Responsible Data Sharing MercèCrosas, Ph.D., Harvard University’s Research Data Management Officer, OVPR Chief Data Science

Data Sharing with Data Reuse in mind:FAIR Data Principles (simplified)Findable:• Described with rich metadata • Assigned globally unique identifier

Accessible:• Retrievable through standard protocol • Authentication and authorization procedure, where necessary• Metadata are accessible, even when the data are no longer available

Interoperable:• Commonly-used formats, schemas, and ontologies

Reusable:• Richly described, with detailed provenance• Released with a clear and accessible data usage license• Domain-relevant community standards

Wilkinson et al. 2016, The FAIR Guiding Principles of Scientific Data Management and Stewardship, Nature Scientific Data

Page 6: FAIR and Responsible Data Sharing - Harvard …...FAIR and Responsible Data Sharing MercèCrosas, Ph.D., Harvard University’s Research Data Management Officer, OVPR Chief Data Science

Responsible Data Sharing:Standardized Tiered Access with DataTagsBlue Public

Green Public + Register

Yellow Restricted + Approval Needed

+ Click-thru DUA + Encrypted transmit

Orange Restricted + Approval Needed

+ Signed DUA + Encrypted transmit + Encrypted storage

Red Restricted + Approval Needed

+ Signed DUA+ Two-factor Auth

+ Encrypted transmit+ Encrypted storage

Crimson Restricted + Approval Needed

+ Signed DUA+ Two-factor Auth

+ Encrypted transmit+ Multi-encrypted storage

Sweeney, Crosas, Bar-Sinai, 2015. Sharing Sensitive Data with Confidence: The DataTags System, Technology Science

Page 7: FAIR and Responsible Data Sharing - Harvard …...FAIR and Responsible Data Sharing MercèCrosas, Ph.D., Harvard University’s Research Data Management Officer, OVPR Chief Data Science

Technology can help:Dataverse+ DataTags

• An open-source data repository platform

• Aligned with FAIR Data Principles

• Tiered Access to Data with custom Data Use Agreements

• Credit for data sharing through data citation

https://dataverse.harvard.eduhttps://dataverse.org

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