family outcome principles and measurement approaches
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Family Outcome Principles and Measurement Approaches. Melissa Raspa Don Bailey ECO at RTI International. International Society on Early Intervention (ISEI) New York City, May 2011. Goals for Today. What are family outcomes of early intervention? How are family outcomes measured? - PowerPoint PPT PresentationTRANSCRIPT
Family Outcome Principles and Measurement Approaches
Melissa RaspaDon Bailey
ECO at RTI International
International Society on Early Intervention (ISEI)New York City, May 2011
Goals for Today
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• What are family outcomes of early intervention?
• How are family outcomes measured?• What practices lead to improved
family outcomes?
Early Childhood Outcomes Center
What is a Family Outcome?
• A benefit experienced by families as a result of services and supports received–An outcome is not the receipt of
services or satisfaction with services–An outcome is what happens as a result
of services provided to families
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Determining Family Outcomes
• Extensive stakeholder input – ECO Advisory Board– Family members– Researchers
• Iterative process – Posted online for comments
• Final set of outcomes recommended to OSEP
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Five Family Outcomes
ECO• Understand their child’s
strengths, abilities, and special needs
• Know their rights and advocate effectively for their children
• Help their children develop and learn
• Have support systems• Access desired services,
programs, activities in their community
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ECO Outcomes vs. OSEP Indicators
ECO• Understand their child’s
strengths, abilities, and special needs
• Know their rights and advocate effectively for their children
• Help their children develop and learn
• Have support systems• Access desired services,
programs, activities in their community
OSEP• Percent of families
participating in Part C who report that EI services have helped the family– Know their rights– Effectively communicate
their children’s needs– Help their children develop
and learn
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Measuring Family Outcomes
• Original Family Outcomes Survey – Three items for each of the five proposed
family outcomes– Each item rated on a scale from 1-7– Descriptive statements for ratings of 1, 3, 5, 7– Blanks left for “in between” ratings of 2, 4, 6– Three additional items for states to use in
responding to APR requirements (two versions, one for Part C, one for Part B
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UNDERSTANDING YOUR CHILD'S STRENGTHS, ABILITIES, AND SPECIAL NEEDS
1. Your child is growing and learning. How much does your family understand about your child’s development?
1 2 3 4 5 6 7
We are just beginning to understand our child's development
We understand some about our child's development
We understand a good amount about our child's development
We understand a great deal about our child's development
2. Some children have special health needs, a disability, or are delayed in their development. These are often referred to as “special needs.” How familiar is your family with your child's special needs?
1 2 3 4 5 6 7
We are just beginning to understand our child’s special needs
We understand some about our child’s special needs
We understand a good amount about our child’s special needs
We understand a great deal about our child’s special needs
3. Professionals who work with you and your child want to know if the things they do are working. How often is your family able to tell if your child is making progress?
1 2 3 4 5 6 7
We seldom can tell if our child is making progress
We sometimes can tell if our child is making progress
We usually can tell if our child is making progress
We almost always can tell if our child is making progress
Measuring Family Outcomes
• Feedback from states on format of original scale – 7 point scale was not always family-friendly– Multiple pages made it appear long and complicated
• Request for additional items– Other concepts related to outcomes not previously
measured – More info for program planning and improvement – Reporting to OSEP on helpfulness indicators
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Family-Centered Principles
Referral and intake Determining eligibility Child assessment Family assessment Team meetings and
decision-making Service provision and
coordination Parenting practices Community support
Understand child’s abilities and special needs
Know rights and advocate effectively
Help child develop and learn
Have support systems Access the community
Family-Centered Principles
Program Activities Family Outcomes Shared philosophy Families as partners Focus on strengths Family choice of goals and
services Collaboration and
coordination of service Effective communication Flexibility Community-based
Family Outcomes Survey – Revised (FOS-R)
• Outcome items– 24 family outcome items – Organized by 5 outcomes– 4 to 6 items per outcome
• Helpfulness Indicator items– 17 indicator items – Organized by 3 OSEP indicators– 5 or 6 items per indicator
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Response Options
• Outcome Items – “Which response best describes your family right now”– Not at all– A little– Somewhat – Almost – Completely
• Indicator Items – “How helpful has early intervention been in”– Not at all helpful– A little helpful – Somewhat helpful – Very helpful – Extremely helpful
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Linking Practices with Outcomes
• What do we do with families that leads to positive outcomes?– What is our program philosophy about
working with parents?– How do we involve families in assessments?– Are families involved in the decision-making
process?
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Referral and Intake
Family Centered Practice
We know our rights related to our child’s
special needs
Early Childhood Outcomes Center
Providing information and explaining your
rights in ways that are easy for you to
understand
Family Outcome
Child and Family Assessment
Family Centered Practice
We are able to work on our child’s goals
during everyday routines
Early Childhood Outcomes Center
Family Outcome
Sharing ideas on how to include your child in
daily activities
Service Provision and Coordination
Family Centered Practice
We are able to find and use the services
and programs available to us
Early Childhood Outcomes Center
Family Outcome
Connecting you with other services or
people who can help your child and family
For More Information
• Web site– www.the-eco-center.org
• Publications and measures– Available on the web site
• Email– [email protected]
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