Family Support & Resource Center Annual Report 2016

101 NOB HILL ROAD, SUITE 201 MADISON, WI 53713 FSRC@FSRCDANE.ORG ▪ WWW.FSRCDANE.ORG

Our Mission:

The mission of Family Support & Resource Center is to

make it possible for Dane County children and youth

with disabilities to live at home with their families as

valued and participating members of the community.

Disability affects families from all walks of life. The families we serve vary greatly in their circumstances, in their resources, and in their ability to cope with the extra responsibilities placed on them.

What families do have in common is the need for flexible and individualized assistance that will help keep them connected to their community, hopeful about the future, and supported in managing the extra stresses and expenses. Because disabilities are not typically cured and their impact often increases over time, most families we serve need long-term supports.

80% of staff have worked at FSRC over 3 years

“We love Family Support—Thanks for everything!!”

- Parent of child served by FSRC

Administrative Staff

Heidi Rossiter

Executive Director

Karin Finken

Business Manager

Jennifer Babb

Office Manager

Kari Mork / Becky Ogiba

FSP Assistant Director

Katie Janik / Molly Rossiter

Administrative Assistant

Liz Fok

Administrative Support

Family Support

Program

Josh Davidson

Sara Frazier

Ginger Ganser

Jarrid Heim

Glenda Industrious

Ann Junkin

Kaela Lapp Winter

Lauren Meyers

Kari Mork

Kathryn (Katy) Nichols

Amy Polka

Kristi Ratley

Tracee Rockow-Vivier

Celsa Rodriguez

Kari Schadler

Jessica Swan

MaiSee Thao

Kim Walling

Heather Wittwer

Kevin Yanke

Megan Miller, Intern

Board of Directors

Joe Herr

President

Paola Perez

Vice President

Teri Smith

Secretary

Isabel Agasie

Lisa Hoeme

Alicia Stay

Dan Woodson

FSRC is guided by these principles

All children, including children with disabilities, benefit by

growing up as a secure member of a family and sharing in

positive, long-term relationships with other family members.

Families have great capacity to care for children who have

disabilities when they receive support from friends, neighbors,

human service professionals, and other community members.

Parents are generally in the best position to define their own

needs, to find solutions, and to choose the kinds of services that

will help them to care for their child with a disability.

A sense of trust and confidence in the continuity of support is

important to establish and preserve with each family.

Communities are enriched when all people, including those with

disabilities, are valued and included as full contributing

members.

Tom & Nancy Alar Peter Cavi Molly & Christopher Cooney Thomas Cooney Heather & Jason Cooper Dreamweavers Diane Fett Pamela Garman Joseph Mathers & Meredith Green Helen Hartman Ben Sims & Michelle Havron Sims Jay Hazen, Dentistry for Madison George & Melinda Heathcote Scott Simmons & Elizabeth Hecht Cecelia Hempel Bob Kann & Caroline Hoffman Rita & Ernest Hohlstein Robin & Scott Hubbard-Van Stelle InControl-Wisconsin Lyle Updike & Wendy Kaplan James Gill & Susan Latton Mary & Ronald Locast Samuel Savage & Nora Manheim Sally Mather & Associates Marla & Kenneth McKenzie Cora Lee Mooney Colleen Moss Arie & Beth Moszkowicz Stacy Opsal Mary & Edward Peters Carrie Pomije Michael & Lisa Pugh Deborah Rathermel Celeste Robins Joseph Krebs & Erin Rodell Lynn Roethe Heidi & Dan Rossiter Lynn & Thomas Sankey Heidi Sonnenburg Jeffrey & Sheryl Spitzer-Resnick Elizabeth & Fred Swanson Beth Swedeen Alan Ginsberg & Linda Tuchman-

Ginsberg Christine Williamson Witt Beth-May & Michael Wroblewski

Achieving Collaborative Treatment

AFCH Pediatric Complex Care Clinic

Bob & Isabel Agasie Cathy & Michael Baer Raymond Boerke Jason Bongle Charlene Breunig Amanda Brezenski Benjamin Buscher Meredith & Tom Degen Nathan & Louise Elbaum Janet Estervig Grace Frudden Skye Gamble Kenneth & Mary Gehring Ken & Jeannette Golden Bill Schwab & Leslie Grant Dianne Greenley Eugene Grunewald Jr. Cheryl Hanson Harry Zook Charitable Trust Lisa & Thomas Hay Dr. Kenneth Herrmann Peter Huettl Bernice Hughes Dave Benton & Pat Kelly John Hensey & Jo Ellen Kilkenny Doris Knaack Ron & Deborah Konkol Doris Kontos Joe Schmitt & Rena Kornblum Eric & Molly Linn-Miller Kevin Menningen Tara & Brian Meunier Ward & Peg Olsen Debra Peterson Phoebe R & John D Lewis

Foundation Karen & Steele Schilling Eliana Schwab Ken & Gail Simmons Mary Sykes MaiSee Thao Amelia & Trent Thompson Unity Church of Madison West Bend Mutual Insurance

Company, Recognition of Rob Maksimuk

Terry Geurkink & Sally Wilmeth David Witte

Alliant Energy Bryan & Kendra Atkinson William, Evelyn & Patti Becker Sarah Bennett Deb Biechler Tami Jackson & Nathan Brazy Marcie Brost Capitol Lakes CapSpecialty Hilary Carroll Emmie Coan Bailey Fedler Kari & Andy Fortune Joni Goldman Megan Henze Terri Johnson Jeanine & Mark Krueger Angie Maniaci Sharon McHugh Debbie & Joe Nichols Katy & Paul Nichols Pam Staab Chris & Randy Steeno Roberta Stolt MaiSee Thao Emily Leibold & Jacob Trowbridge Unity Church of Madison Andrea Vogds Wisconsin Bankers Association Allison Smith Foundation American Girl AT&T Telecom Pioneers Culligan Water Treatment Gaylord Catering The Great Dane Pub & Brewing Co. HuHot Mongolian Grill Jane Kinney, AKA Ladybug the

Clown Molly Linn-Miller Living Christ Church Quilting Group Logan’s Heart and Smiles Madison Concourse Hotel Paint My Face Rejuvenations Ryan Signs Schoep’s Ice Cream Silly Yak Bakery

Thank You to All of Our 2016 FSRC Donors

In Memory of William Simmons Holiday Donors

In Kind Contributors

Consumer Satisfaction Survey

In April we distributed consumer satisfaction surveys

to 100 (20%) of our families based on a random

sample. 52% of the surveys were returned with

overwhelmingly positive responses.

Over 95% of families feel staff are:

respectful and supportive

take the time to listen, advocate, and

problem-solve

As a result of their relationship with FSRC, 100% of

families believe they have experienced significant

positive changes, including:

overall improved quality of life for their

child

lowered stress in their family

feeling better connected and supported

increased confidence to meet their

child’s needs

2016 Agency Highlights:

FSRC works closely with families and community providers whenever a child is being referred for out-of-home placement. If placement is necessary, we strive for options that are non-institutional and/or short-term. At the end of 2016, ten of 12 children experiencing significant crisis remain living with their families with additional supports.

Completed work to transition children from CLTS waiver to Medicaid for behavioral treatment

Facilitated monthly Spanish parent support group

Positive transition from Family Support to CCOP funding

A successful CLTS file review by the Wisconsin Department of Health Services

Transition of 23 young adults to the adult service system

Organized future’s planning events for 15 youth and their families

FSRC Celebrates 30 Years!

On August 27, FSRC celebrated 30 years of support to children and their families at our annual picnic at McKee Farms Park in Fitchburg.

Over 265 people enjoyed good food, company, activities and more, in honor of the agency’s many years of fine service.

Since 1986, 86 staff, over 100 members of our Board of Directors, and 1000’s of families and donors have worked together to make FSRC a great place to support children who have disabilities.

FINANCIALS

INCOME EXPENSES

Dane County Dept. of Human Services Personnel

Donations Operating

United Way Family Subsidies

TOTAL TOTAL

$3,960,742

$35,423

$4,518

$4,000,683

$1,238,939

$231,655

$2,526,220

$3,996,814

Support for

Waiting List Families

Families waiting for services are able to receive

support through information on the FSRC website,

quarterly newsletter, invitation to all agency special

events and mailings, holiday giving, consultation

from staff, and 1 X grants. In 2016, we distributed

28 grants totaling $38,000 for adaptive equipment,

home modifications, respite care, daily living skill

training, recreation and parent education.

Demographics of the Children and

Youth Served in 2016

Gender:

Male 69%

Female 31%

Age:

Birth - 5 years 10%

Six - 12 years 37%

Thirteen - 18 years 36%

Nineteen - 21 years 16%

Over 21 years <1%

Ethnic Background:

White 68%

Hispanic 13%

Asian 7%

African-American 7%

Multi-Racial 5%

Primary Diagnosis:

Autism spectrum 45%

Other Developmental Disabilities 16%

Intellectual 14%

Mental Health 10%

Physical Disability 8%

Cerebral Palsy 7%

Place of Residence:

Madison 38%

Outside Madison 62%

“Our case manager is very supportive,

knowledgeable and great advocate for us.”

- Parent of child served by FSRC

Family Support staff work

with families to:

Understand and gain access to available resources

Coordinate services, advocate for the child and facilitate teamwork and problem-solving

Purchase needed goods and services not available through other funding sources

Help families to build and strengthen networks of supports, to encourage friendships for their children, and to plan for the future

Keeping All Children at Home with Their Families

Our Family Support Program provided ongoing services to 542 children in 2016, including 46

children who first entered the program. 54 children were closed from the program during the

year. Reasons for program closures: 25 young adults transitioned to adult services, 13

voluntarily closed, nine individuals did not continue to meet eligibility, three died, two moved

to residential treatment, one moved from Dane County, and one young adult moved to own

apartment. As of December 31, 2016, there are 400 children on the waiting list for CLTS

Waiver.

FSRC Programs Offer Choices, Flexibility & High Impact Assistance

Families in our Family Support Program have access to and choices among

goods and services that are flexible and individually tailored to family needs.

Families receive varying levels of case management time and financial

assistance, according to needs they identify.

Our Family Support Program receives funds through various sources,

including Dane County Department of Human Services, United Way, donors,

and other funders. The majority of our funding is connected to the State

Children’s Community Options Program and the Children’s Long Term

Support (CLTS) Waiver Program. In 2016, our funds were distributed in the

form of grants of varying sizes to families, as shown on the following charts:

Size of Grants

542 children received funding during 2016

Total grant funding was $2,511,603. Average grant/child was $4,634

90% of funding CLTS Waiver, 10% Children’s COP

Family Subsidies

The chart reflects CLTS Waiver and Children’s COP funds that were paid

directly through the Family Support and Resource Center. During 2016,

funds for respite care, respite camp, and home modifications slightly

increased, while there were decreases in therapy, respite camp, and training.

During the year, changes were made to the CLTS Waiver disallowing

payment for many therapy services. Funds for recreation, day care,

supportive home care, and transportation remained about the same as

previous year.

Community Partners

FSRC is grateful to have been involved with so many community partners throughout 2016!

LOGAN’S HEART & SMILES

This Foundation was started in 2002 and has helped

many families with home modifications to enrich the

lives of children who have disabilities.

QUILTING GROUP

AT LIVING

CHRIST CHURCH

Over 50 handmade quilts

were donated to FSRC

families through the LCC

Quilting Group. Thank

you quilters for your

beautiful handiwork.

AMAZONSMILE

When individuals shop at smile.amazon.com and select

FSRC as their charity, AmazonSmile will donate a

portion of the purchase to us.

“Family Support and Resource Center = Excellence!”

- Quote from FSRC Parent

EXPLORING

ART CLASSES

60 children created

wonderful season

themed art with the

help of facilitator,

Molly Linn-Miller,

during Exploring Art

classes. FSRC

sponsored three art

events in 2016, and

are looking forward

to more in 2017.

OVERTURE CENTER FOR THE ARTS

COMMUNITY TICKET PROGRAM

This program helps families who are low income enjoy

performances at Overture for a greatly reduced rate.

BOOK PROJECT

FSRC receives free children’s books from the Barnes and

Noble Holiday Book Drive sponsored through the

Children’s Service Society.

THANK YOU HOLIDAY DONORS!

We are amazed each year at the generosity and

dedication of our holiday donors who give of their

resources and time to help make the holidays brighter

for many of the families we serve! This year, 175

children received individually selected gifts. Our donors

included the members of Unity Church of Madison,

employees of CapSpecialty, Capitol Lakes, Wisconsin

Bankers Association, Alliant Energy, and many

individuals and families.

GREAT PUMPKIN HALLOWEEN PARTY

– A TREAT FOR EVERYONE!

FSRC had fun partnering with the Country Inn and

Suites again this year to provide a free, safe, and

accessible environment to celebrate Halloween and trick

or treating. This year FSRC transformed a hotel room

into a Peter Pan themed experience. The event was

attended by over 200 children and parents.

HUHOT MONGOLIAN GRILL

Partial proceeds from their April 21, 2016 dinner service

was donated to FSRC as part of their Helping Hands

fundraising program.

AT&T PIONEERS

SUPPORT

STUDENTS!

54 children received

a new backpack full

of school supplies

to start off the 2016

school year. We

would like to thank

all of the AT&T

Pioneer members

who are involved with the backpack program and other

education-based support that make children's needs a

priority. We have enjoyed participating in this annual

activity since 2004.

STEVE JONES MEMORIAL AWARD

FSRC was the proud recipient of the 2016 Steve Jones

Memorial Award sponsored by the Capital Times Kids

Fund. The award is given each year to recognize an

“outstanding program in Dane County that exemplifies

working with youth.”

2016 Graduates

“We have appreciated all the support & help so much from Family Support & Resource Center — words can’t describe how life changing the help has been!”

- Parent of child served by FSRC