fifth annual meeting of the wg: objectives and agenda jennifer h. madans u.s.a

Fifth Annual Meeting of the WG: Objectives and Agenda

Jennifer H. Madans

U.S.A.

Summary of work to date

1st meeting (Washington, DC, Feb 2002): Agreed to develop short and long sets of internationally comparable disability measures using the ICF as a framework. Census questions priority.

2nd meeting (Ottawa, Canada, Jan 2003): Established link between purpose and aspects of measurement via matrix.

3rd meeting (Brussels, Belgium, Feb 2004): Equalization of opportunities selected as purpose of general measure.


4th meeting (Bangkok, Thailand, Sept 2004) Draft of general measure agreed upon conceptually;

revisions and statement of rationale to be completed Workgroup formed to develop implementation

protocols to test and field general measure General measure to be pre-tested in as many

countries as possible Workshops planned to inform local countries about

the WG general measure and the planned pre-testing


Two extended sets to be proposed Purpose: assessing equalization of opportunities Module that will go into existing national surveys Set 1: Additional questions to be developed in the

area of basic activities Set 2: Will examine aspects of participation that are

and are not covered in current surveys and how environmental factors are to be included

A new workgroup on methodological issues formed to address full population coverage and other issues

Major accomplishments since Bangkok

Draft implementation protocols developed: Objectives and evaluation plan for testing Cognitive test plan Translation guidelines Enumerator training protocol Sample design issues Plan for tabulation, analysis and report writing

Two regional workshops successfully implemented June 20-22, 2005 / Nairobi, Kenya September 19-20, 2005 / Rio de Janeiro, Brazil

Major accomplishments since Bangkok

15 countries offered funding to conduct pre-tests $5000.00 for Kenya, Gambia, and Vietnam to conduct

cognitive and field tests $1000.00 for India, Philippines, Seychelles, Lesotho,

Malawi, Congo, Mauritius, Uganda, Egypt, South Africa, Palestine, and Tanzania to conduct cognitive portion of the pre-test

7 countries have submitted test plans South Africa can conduct the full pre-test without

WG funding

Plan for 5th meeting

Each session has specific objectives Presentation of draft position papers will be followed

by focused discussion that will address specific session objectives

There will be products and a work plan following each session

Meeting and session objectives

Workgroup on general measure

Present questions recommended for pre-testing, the accompanying rationale, and the Q by Q specifications

Identify potential areas for revision Discuss potential use of the general measure as a

screener


Workgroup on implementation

Present the implementation protocols currently in use

Discuss lessons learned from the workshops about the protocols

Identify potential areas for revision


Report on the regional workshops

Present proceedings and outcomes of the regional WG workshops in Africa and Brazil

Present the results of the UNESCAP/WHO pre-tests Discuss plan for future pre-tests and workshops


Conceptual issues related to disability measurement

To examine what it means to use the ICF as a framework for disability measurement

To discuss the meaning of words that we use to describe and measure disability and identify areas where terminology lacks sufficient clarity / specificity

To clarify how the proposed general measure captures basic activities and identifies a population at high risk of participation limitations


Workgroup on extended measures Present alternative proposals for 1st extended set Present proposal for 2nd extended set Discuss purpose of extended sets, data needs, and

relationship to general measure Discuss timing of WG activities related to

development of extended sets Develop priorities for work to be accomplished


Workgroup on methodological issues Discuss issues of proxy and non-response and

mode of survey administration in relation to health questions

Identify the impact of excluding the institutionalized population from disability surveys

Discuss methods to estimate and control bias in disability statistics

Discuss other methodological challenges related to collecting national data on disability


UNSD report Introduce international data and metadata on

disability related to the Demographic Yearbook system and present available results of pre-testing

Discuss how different approaches to measurement impact disability prevalence


Strategic Issues Review country reports for planning purposes Discuss other international efforts related to WG

work Review use of WB DGF and plan for future funding Discuss WG governance issues

Next steps

fifth annual meeting of the wg: objectives and agenda jennifer h. madans u.s.a

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