first meeting of the task force on major and chronic...
TRANSCRIPT
EUROPEAN COMMISSION HEALTH & CONSUMER PROTECTION DIRECTORATE-GENERAL Directorate C - Public Health and Risk Assessment C2 - Health information
Luxembourg, 08 December 2004
First Meeting of the Task Force on Major and Chronic Diseases
Luxembourg, 12 October 2004
Room WAG/GLESENER
List of Participants
2
Reimbursed
Details Replaced by Signature Jacques BONTE Universitair Ziekenhuis Sint-Rafael Baron Joseph Ryelandtstr., 4 BE - 8000 BRUGES Tel.: +32 (0) 50 32 33 61 Fax: +32 (0) 50 32 33 61 E-mail: [email protected]
Present
Dag BRUUSGAARD University of Oslo P.O. Box 1130 Blindern N - 0317 OSLO Tel.: +47 (.22) .85.06.16 Fax: +47 (.22) .85.06.10 E-mail: [email protected]
Apologies
Sue DAVIES Office for National Statistics 1 Drummond Gate UK - LONDON SW1 V 2QQ Tel.: +44 (.0) .20.75.33.52.41 Fax: +44 (.0) .20.75.33.52.52 E-mail: [email protected]
Howard MELTZER Health and Care Division - Office for National Statistics Office B7/06 1, Drummond Gate Pimlico UK - SW1V 2QQ London Tel.: +44 20 75 33 52 53 Fax: +44 20 75 33 51 03 E-mail: [email protected]
Present
Mary HEANUE Centre Statistics Office - Vital Statistics Section Skehard Road IE - CORK IRELAND Tel.: +353 (.21) .45.35.423 Fax: +353 (.21) .45.35.555 E-mail: [email protected]
Apologies
3
Details Replaced by Signature Olof JOHNELL Dept of Orthopaedics UMAS SE - 205 02 MALMÖ Tel.: +46 (40) 332 452 Fax: +46 (40) 336 227 E-mail: [email protected]
Present
Eric JOUGLA CépiDc-INSERM 44, Chemin de Ronde FR - 78116 LE VESINET CEDEX Tel.: +33 (1) 34.80.24.30 Fax: +33 (1) 34.80.24.29 E-mail: [email protected]
Apologies
Raphaël LAGASSE Université libre de Bruxelles Route de Lennik 808 CP 597 BE - 1070 BRUXELLES Tel.: +32 (2) 555.40.84 Fax: +32 (2) 555.40.49 E-mail: [email protected]
Present
Hugh MAGEE Department of Health and Children Hawkins House IE - Dublin 2 Tel.: +353 (1) 635 43 00 Fax: +353 (1) 635 43 78 E-mail: [email protected]
Apologies
Jos OLESEN Department of Neurology Glostrup University Hospital DK - 2600 GLOSTRUP Tel.: Fax: E-mail: [email protected]
Absent
4
Details Replaced by Signature Niels RASMUSSEN National Institute of Public Health Svanemollevej 25 DK - 2100 COPENHAGEN O Tel.: +45.3920.7777 Fax: +45 (.3920) .8010 E-mail: [email protected]
Present
Michael RIGBY Centre for Health Planning and Managment Keele University Darwin Building Keele University UK - ST5 5 BG KEELE - STRAFFORDSHIRE Tel.: +44 (1782) 58.31.93 Fax: +44 (1782) 71.17.37 E-mail: [email protected]
Apologies
Jaap VAN DEN BERG Statistics Netherlands (NCBS) 1, Kloosterweg P.O. Box 4481 NL - 6401 CZ HEERLEN Tel.: +31 (0) 45.570.60.00 Tel. 2: +31 (0) 45.570.72.03 Fax: +31 (0) 45.572.74.40 E-mail: [email protected]
Apologies
Herman VAN OYEN Ministère des Affaires Sociales, de la Santé Publique et de l'Environnement - Institut Scientifique de la Santé Publique Louis Pasteur - Department of Epidemiology Rue J. Wystmanstraat, 14 BE - 1050 BRUXELLES Tel.: +32 (2) 642 57 92 (50 25) Fax: +32 (2) 642 5410 E-mail: [email protected] E-mail 2: [email protected]
Present
5
Details Replaced by Signature Joan Lluís VIVES CORRONS Fundació Clinic per a la Recerca Biomèdica Villarroel, 170 ES - 08036 BARCELONA Tel.: +34 (93) 227.54.51 Fax: +34 (93) 227.54.54 E-mail: [email protected]
Present
Jennifer ZEITLIN Epidemiology Research Unit on Perinatal and Women's Health INSERM U 149 123, Bd de Port Royal FR - 75014 PARIS Tel.: +33 (1) 42 34 55 85 Fax: +33 (1) 43 26 89 79 E-mail: [email protected]
Apologies
6
Not Reimbursed
Details Replaced by Signature Mercedes ALFARO LATORRE Dirección General de Planificación Sanitaria, Sistemas de Información y Prestaciones, Ministerio de Sanidad y Consumo 18-20, Paseo del Prado ES - 28073 MADRID Tel.: +34 (91) 5961 495 /531 Fax: E-mail: [email protected]
Rosa MATAIX GONZÁLEZ Ministerio de Sanidad y Consumo Paseo del Prado, 18-20 ES - 28071 MADRID Tel.: +34 (91) 596 17 76 Fax: +34 (91) 596 41 11 E-mail: [email protected]
Present
Arpo AROMAA National Public Health Institute, Department of Health and Functional Capacity 166, Mannerheimintie FI - 00300 HELSINKI Tel.: +358 (9) 4744 8770 Fax: +358 (9) 4744 8760 E-mail: [email protected]
Apologies
Gérard BADEYAN Ministère de la Santé, de la Famille et des Personnes Handicapées HCSP 8, avenue de Ségur 75350 PARIS 07 SP Tel.: +33 (1) 40567234 Fax: +33 (1) 40567949 E-mail: [email protected]
Present
Paolo BAILI National Institute of Cancer - Unit of Descreptive Epidemiology Via Venezia 1 IT - 20133 MILANO Tel.: +39 (02) 23 903 527 Fax: +39 (02) 26 681 292 E-mail: [email protected]
Absent
7
Details Replaced by Signature Walter BERGAMASCHI Ministero della Salute, Direzione Generale Sistema Informativo 20, Piazzale dell'Industria IT - 00144 ROMA Tel.: +39 659942448 Fax: +39 (6) 59942873 E-mail: [email protected]
Absent
Juliette BLOCH Institut national de veille sanitaire 12, rue du Val d'Osne FR - 94415 Saint Maurice Cedex Tel.: +33 (1) 41 79 67 00 Fax: +33 (1) 41 79 67 67 E-mail: [email protected]
Apologies
Denis BOURGEOIS Laboratoire d'Analyse des Systèmes de Santé - Faculté d'Odontologie - Université Lyon 1 Rue Paradin - UMR CNRS 5823 FR - 69372 LYON CEDEX 02 Tel.: +33 (.4) .78.77.86.81 Fax: +33 (.4) .78.77.87.12 E-mail: [email protected] E-mail 2: [email protected]
Present
Peter BOYLE International Agency for Research on Cancer (IARC) 150, Cours Albert Thomas FR - 69008 LYON Tel.: +33 4 72738577 Fax: +33 4 72738564 E-mail: [email protected]
Freddie BRAY International Agency for Reseach on Cancer (IARC) 150, Cours Albert Thomas FR - 69008 LYON Tel.: Fax: E-mail: [email protected]
Present
8
Details Replaced by Signature Judite CATARINO Direccao Geral da Saude Alameda D. afonso Henriques, 45 PT - 1056 LISBOA Tel.: +351 (.21) .84.30.526 Fax: +351 (.21) .84.30.687 E-mail: [email protected]
Present
Carine DE BEAUFORT Centre Hospitalier de Luxembourg - Clinique Pédiatrique 4, rue Barblé LU - 1210 LUXEMBOURG Tel.: +352 (.44) .11.31.73 /3133 Fax: +352 (.44) .11.61.16 E-mail: [email protected]
Apologies
Anca DUMITRESCU Division of Information, Evidence and Comminucation - Worl Health Organisation - Regional Office for Europe 8 Scherfigsvej DK - 2100 COPENHAGEN Tel.: +45 (3917) 1518 Fax: +45 (3917) 1868 E-mail: [email protected]
Apologies
9
Details Replaced by Signature Enric DURAN Institut Municipal d'Investigació Médica IMIM - Respiratory and Environmental Health Reseach Unit REHRU c/ Dr. Aiguader, 80 ES - 08003 BARCELONA Tel.: +34 (.93) .225.75.92 Fax: +34 (.93) .221.64.48 E-mail: [email protected]
Present
Aldona GAIZAUSKIENE Lithuanian Health Information Centre 153, Kalvariju LT - 2042 VILNIUS Tel.: +370 (5) 2773301 Fax: +370 (5) 2773302 E-mail: [email protected]
Absent
Jean GEORGES Alzheimer Europe Route de Thionville, 45 LU - 2611 LUXEMBOURG Tel.: 352 29 79 70 Fax: 352 29 79 72 E-mail: [email protected]
Absent
Simona GIAMPAOLI Centro Nazionale di Epidemiologia, Sorveglianza e Promozione della Salute Viale Regina Elena, 299 IT - 00198 ROMA Tel.: +39 (.06) .49.90.25.56 Tel. 2: +39 (.06) .49.90.29.85 Fax: +39 (.06) .49.38.70.69 E-mail: [email protected]
Apologies
10
Details Replaced by Signature Peter GOLDBLATT Office for National Statistics 1 Drummond Gate UK - SWIV 2 QQ LONDON Tel.: +44 (0) 207 533 5265 Fax: +44 (0) 207 533 5103 E-mail: [email protected]
Apologies
Liv GROTVEDT Norwegian Institute of Public Health, Department of Health Statistics PO Box 4404 Nydalen N - 0403 OSLO NORWAY Tel.: +47 (23) 408149 Fax: +47 (23) 408146 E-mail: [email protected]
Apologies
Eva-Maria HIEBL Office of Social and Preventive Medicine Postgebäude Postfach 63 FL - 9494 SCHAAN Liechtenstein Tel.: +423 236 73 30 Fax: +423 236 73 39 E-mail: [email protected]
Apologies
Manfred HÜBER OECD - Health Policy Unit 2, Rue André Pascal FR - 75775 PARIS CEDEX 16 Tel.: +33 (1) 45 24 76 33 Fax: +33 (1) 44 30 63 61 E-mail: [email protected]
Apologies
11
Details Replaced by Signature Marianne JESPERSEN National Board of Health Islands Brygge 67 DK - 2300 COPENHAGEN S Tel.: +45 (72) 227400 Tel. 2: +45 (72) 22 75 80 (Direct) Fax: +45 (72) 22 74 13 E-mail: [email protected]
Apologies
Hubert K. HARTL Federal Ministry for Health and Women Radetzkystrasse 2 AT - 1030 VIENNA Tel.: +43 (1) 711 004 137 Fax: +43 (1) 718 947 017 89 E-mail: [email protected]
Absent
Krasimira KIRILOVA DIKOVA National Center for Health Information Bul. Akademik Ivan Olshov BG - 1031 SOFIA Tel.: +359 (2) 954 95 79 Fax: +359 (2) 951 52 38 E-mail: [email protected]
Absent
Jan KRALIK Ministry of Health of the Slovak Republic 2, Limbova SK - 837 52 BRATISLAVA Tel.: +421 (2) 5937 3121 Fax: +421 (2) 5477 7949 E-mail: [email protected]
Absent
12
Details Replaced by Signature Pieter KRAMERS RIVM - Dept. of Public Health Forecasting - National Institute of Public Health and the Environment Antonie van Leeuwenhoeklaan 9 - Postbus 1 NL - 3720 BILTHOVEN Tel.: +31 (.30) .27.42.163 Fax: +31 (.30) .27.44.450 E-mail: [email protected]
Present
Sveinn MAGNUSSON Ministry of Health and Social Security Laugavegur 116 150 REYKJAVIK ICELAND Tel.: +354 5458 700 Fax: +354 5519165 E-mail: [email protected]
Absent
Hugh MARKOWE Department of Health Skipton House, 80 London Road UK - SE1 6LH LONDON Tel.: +44 2079723760 Fax: E-mail: [email protected]
Howard MELTZER Health and Care Division - Office for National Statistics Office B7/06 1, Drummond Gate Pimlico UK - SW1V 2QQ London Tel.: +44 20 75 33 52 53 Fax: +44 20 75 33 51 03 E-mail: [email protected]
Present
13
Details Replaced by Signature Andrea MICHELI Istituto Nazionale Tumori - Unit of Epidemiology Via Venezian, 1 IT - 20133 MILANO Tel.: +39 (.02) .23.90.2867 Tel. 2: +39 (.02) .23.90.28.69 Fax: +39 (.02) .2668.1292 E-mail: [email protected] E-mail 2:
Present
Dace MIHALOVSKA Health Statistics and Medical Technology Agency 12/22 Duntes Street LV - 1005 RIGA Tel.: +371 (75) 01 590 Fax: +371 (75) 01 591 E-mail: [email protected]
Apologies
André OCHOA Fédération Nationale des Observatoire Régionaux de la Santé 62, Bd Garibaldi F - 75015 PARIS PARIS Tel.: +33 (55) 65 69 960 Tel. 2: +33 (.55) .65.69.960 Fax: +33 (55) 65 69 961 E-mail: [email protected] E-mail 2: [email protected]
Present
Miguel OLIVEIRA DA SILVA Instituto de Medicina Preventiva - Faculdade de Medicina - Universidade de Lisboa Av. Prof. Egas Moniz, Piso 5 PT - 1649-028 LISBOA Tel.: +351 (21) 79 85 130 Fax: +351 (21) 726 20 25 E-mail: [email protected] E-mail 2: [email protected]
Apologies
14
Details Replaced by Signature Renzo PACE ASCIAK 95 G'Mangia Hill MT - MSD 08 G'MANGIA HILL Tel.: Fax: E-mail: [email protected]
Apologies
Max. PARKIN International Agency for Reseach on Cancer (IARC) 150, Cours Albert Thomas F - 69008 LYON Tel.: +33 (.4) .67.61.30.43 Fax: +33 (.4) .72.73.85.75 E-mail: [email protected]
Eva STELIAROVA-FOUCHER ACCIS and EUNICE projects International Agency for Reseach on Cancer (IARC) 150, Cours Albert Thomas FR - 69008 LYON Tel.: Fax: E-mail: [email protected]
Present
Pavlos PAVLOU Health Monitoring Unit - Ministry of Health Markou Drakou 10 Pallouriotissa CY - 1448 NICOSIA Tel.: +357 (22) 557 122 Fax: +357 (22) 875 021 E-mail: [email protected]
Present
Catrinel PERIANU Phare and Communitary Programmes Unit, General Directorate of International Co-operation, European Integration and Development Policies, Ministry of Health and Family Cristian Popisteanu Street, 1-3 RO - 70109 BUCHAREST Tel.: +40 (21) 3072620 Fax: +40 (21) 3121433 E-mail: [email protected]
Absent
15
Details Replaced by Signature Daniel REYNDERS Federal Public Service Health, Food Chain Safety and Environment, CAE Quartier Vésale 211, BE - 1010 BRUSSELS Tel.: +32 (2) 210 42 07 Fax: +32 (2) 210 47 45 E-mail: [email protected]
Absent
Jean-Marie ROBINE INSERM Démographie et Santé Centre Val d'Aurelle, Parc Euromédecine FR - 34298 MONTPELLIER CEDEX 5 Tel.: +33 (.4) .67.61.30.43 Fax: +33 (.4) .67.61.30.47 E-mail: [email protected]
Absent
Luule SAKKEUS Health Statistics Unit - Ministry of Social Affairs, Department of Health Information and Analysis Gonsiori St 29 EE - 15027 TALLINN Tel.: +372 (62) 69 161 Fax: +372 (62) 69 124 E-mail: [email protected]
Merike RÄTSEP Statistician Department of Health and Analysis Ministry of Social Affairs Gonsiori St 29 EE – 15027 TALLINN Tel.: +372 6269 167 Fax: +372 6269 124 E-mail: [email protected]
Present
János SÁNDOR University of Science, Public Health Institute Szigeti 12, HU - 7643 PÉCS Tel.: +36 (20) 932 31 40 Fax: +36 (72) 536 397 E-mail: [email protected]
Present
16
Details Replaced by Signature Jožica ŠEMERL Institute of Public Health of Republic Slovenia Trubarjeva cesta 2 LJUBLJANA SI - 1000 Tel.: +386 (01) 2441 460 Fax: E-mail: [email protected]
Present
Marteen L. SIMOONS European Society of Cardiology European House 2035 Route des Colles, Les Templiers BP 179 FR - 06903 SOPHIA ANTIPOLES CEDEX Tel.: +33 (0) 4 92 94 76 00 Fax: +33 (0) 4 92 94 76 01 E-mail: [email protected]
Sophie O’KELLY European Society of Cardiology European House 2035 Route des Colles, Les Templiers BP 179 FR - 06903 SOPHIA ANTIPOLES CEDEX Tel.: +33 (0) 4 92 94 77 57 Fax: +33 ( 0) 4 92 94 86 69 E-mail: [email protected]
Present
Yannis SKALKIDIS Hellenic Society for Quality in Health Care Ellanikou St., 32 EL - 11635 ATHENS Tel.: +30 (210) 729 7350 Fax: +30 (210) 729 7351 E-mail: [email protected]
Absent
Simone SPULER, M. D. Head of Neuromuscular Clinic Dept. of Neurology, Charité University Hospital Campus Virchow Klinikum Augustenburger Platz 1 DE - 13353 BERLIN Tel.: +49 030 450 560 193 Tel 2.: +49 30.32.64.16.02 Fax: +49 030 450 560 982 E-mail: [email protected]
Apologies
17
Details Replaced by Signature Magnus STENBECK Epidemiologiskt Centrum, Socialstyrelsen SE - 10333 STOCKHOLM Tel.: +46 (8) 555 531 17 Fax: +46 (8) 555 532 27 E-mail: [email protected]
Present
Erzsebet STOKKER Hungarian Central Statistic Office - Population, Health and Welfare Statistics Dept. Keleti Károly u. 5-7 HU - 1024 BUDAPEST Tel.: +36 (1) 345 6572 Fax: +36 (1) 345 6678 E-mail: [email protected]
Absent
Jean TAFFOREAU Scientific Institute of Public Health J. Wytsmanstreet 14 BE - 1050 BRUSSELS Tel.: +32 (.2) .642.51.11 Fax: +32 (.2) .642.50.01 E-mail: [email protected]
Apologies
18
Details Replaced by Signature Domenica TARUSCIO Centro Nazionale Malattie Rare - Istituto Superiore di Sanita Viale Regina Elena, 299 IT - 00161 ROME Tel.: +39 (06) 49 90 28 05 Tel. 2: +39 (06) 49.90.26.43 Fax: +39 (06) 49 38 71 40 E-mail: [email protected] E-mail 2: [email protected]
Apologies
Bertrand THELOT Institut de Veille Sanitaire - Département des Maladies Chroniques et Traumatismes 12, rue Val d'osne FR - 94415 Saint Maurice Tel.: +33 (1) 41 79 68 75 Fax: +33 (1) 41 79 68 11 E-mail: [email protected]
Apologies
Michael VIT Ministry of Health, Department of Public Health Palackého náměstí 4 CZ - 128 01 PRAHA 2 Tel.: +420 224 972 434 Fax: +420 224 916 007 E-mail: [email protected]
Jarmila RAZOVA Ministry of Health, Department of Public Health Head of division of Health Promotion Palackého náměstí 4 CZ - 128 01 PRAHA 2 Tel.: +420 224 972 189 Fax: +420 224 916 007 E-mail: [email protected]
Present
Marijke W. DE KLEIJN - DE VRANKRIJKER c/o RIVM P.O. Box 1, NL - 3720 BA BILTHOVEN Tel.: +31 (30) 274 4276 Fax: +31 (30) 274 4450 E-mail: [email protected]
Apologies
19
Details Replaced by Signature Yolande WAGENER Direction de la Santé Villa Louvigny LU - 2120 LUXEMBOURG Tel.: +352 (.47) .85.544 Fax: +352 (.46) .75.27 E-mail: [email protected]
Present
Bogdan WOJTYNIAK National Institute of Hygiene - Dept. of Medical Statistics Chocimska 24 PL - 00-791 WARSAW Tel.: +48 (22) 54 21 229 Fax: +48 (22) 84 97 484 E-mail: [email protected]
Absent
Nihat YURT Ministry of Health, Department of Information Processing Mithatpasa Cad. N° 3D, Blok Kat: 1 TR - 06434 SIHHIYE ANKARA Tel.: +90 (312) 430 01 42 Fax: +90 (312) 430 01 44 E-mail: [email protected]
Absent
Witold ZATONSKI Centrum Onkologii - Instytut im. Marii Skolodwskiej-Curie (COI) U1. W.K. Roentgena 5 PL - 02-781 WARSAW Tel.: +48 (22) 643 92 14 Fax: +48 (.22) .643.92.34 E-mail: [email protected] E-mail 2: [email protected]
Apologies
20
Details Replaced by Signature Thomas ZIESE Robert Koch Institute - Division 24, Health Reporting Seestrasse 10 DE - 13353 Berlin Tel.: +49 (0) 1888 7 54 33 06 Fax: +49 (0) 1888 7 54 35 13 E-mail: [email protected]
Apologies
21
European Monitoring Centre for Drugs and Drug
Addiction (EMCDDA)
Mr. P. ROUX Apologies EMCDDA Rua da Cruz de Santa Apolónia 23-25 PT – 1149-045 LISBOA Tel: +351 21 811 30 76 Fax: +351 21 E-mail: [email protected]
Mr. Norbert FROST Apologies Project Manager Programme 1 (Situation Analysis) EMCDDA Rua da Cruz de Santa Apolónia 23-25 PT – 1149-045 LISBOA Tel: +351 21 811 30 76 Fax: +351 21 E-mail: [email protected]
European Agency for the Evaluation of Medicinal Products (EMEA)
Agnès SAINT RAYMOND Apologies Head of Sector, Scientific Advice & Orphan Drugs 7 Westferry Circus, Canary Wharf UK – E14 4HB LONDON Tel.: +44 20 74 18 84 00 Fax: +44 20 75 23 70 50 E-mail: [email protected]
22
European Commission Heads of Unit SANCO/C No representation
Mr Georges GROUVAS, Head of Unit C3 Mr Matti RAJALA, Head of Unit C4 Mr Bernard MERKEL, Head of Unit C5 Mr Tapani PIHA, Head of Unit C6 Mr Peter WAGSTAFF, Head of Unit C7
SANCO/C2
Mr. John F. RYAN, Head of Unit Present Mr. Horst KLOPPENBURG Absent Dr. Frédéric SICARD Absent Mr Antoni MONTSERRAT Present Ms Zinta PODNIECE Present Mr Jürgen SCHEFTLEIN Absent Mr Antonio DORONZO Absent
ESTAT
Ms Marleen DE SMEDT, Head of Unit D6: Health and Food Safety Absent Mr. Didier DUPRE, Unit D6 Absent Ms Sabine GAGEL, Unit D6 Present Mr Lucian AGAFITEI, Unit D6 Absent
DG RTD No representation Directorate F: Health
Mr Timothy HALL, Head of Unit F1: Strategy and policy Mr Alain VANVOSSEL, Head of Unit F2: Major diseases Ms María José VIDAL-RAGOUT, Unit F2: Head of Sector Cancer Ms Catherine BERENS, Unit F2: Major diseases Mr Arnd HOEVELER, Head of Unit F3: Diseases linked to poverty
DG ENTR No representation Directorate F - Single market: management & legislation for consumer goods (pour la réunion Task Force Rare Diseases) Mr Peter ARLETT, Unit F2: Pharmaceuticals
DG ENV No representation Directorate B: Quality of Life - Health, Nature & Biodiversity Ms Chantal BRUETSCHY, Head of Unit B4: Health & Urban
DG EMPL No representation Directorate E: Employment and Social Affairs Ms Wallis GOELEN, Head of Unit E-4 Integration of people with disabilities Mr Frank MARX, Unit E4: Integration of people with disabilities