Friday, July 20, 2012 FOD Group OAA Group

Time Speaker Conf Rm Time Speaker Conf Room 7:00 – 8:00am

Continental Breakfast for Conference Registrants

Multnomah 7:00-8:00am Continental Breakfast for Conference Registrants

Clackamas

8:15 – 8:30 Introductions by Kathy & Deb Combined

8:15-8:30 am

Introductions by Kathy & Deb Combined

Multnomah Clackamas 8:30 - 930am

Melanie Gillingham, PhD, RD OHSU Portland, OR TOPIC: ‘Energy Balance: The tight rope between too little and too much’

8:30-9:30 am

Jerry Vockley, MD, PhD Children’s Hospital of Pittsburgh TOPIC: ‘Liver Transplants & OAs’

9:30-10:30am

Mark Korson, MD Tufts Medical Center Boston, MA TOPIC: ‘Anatomy of an FOD Metabolic Crisis’

9:30 – 10:15 am

Amira Al-Uzri, MD Associate Professor, OHSU TOPIC: ‘Renal Implications for MMA’

10:30 -10:45am

Break 10:15-10:30am

Break

1045 – 12 noon

FOD Breakout sessions - Introduce Families then move to groups (MCAD, VLCAD/LCHAD/TFP, CPT2, GA 2 etc) Professionals will move between sections

10:30 – 11:30am

Kim Chapman, MD, PhD George Washington University TOPIC: ‘Energy Metabolism for Propionic Acidemia’

11:30 – 12:00

Introduce Families/Questions/Family Networking

12:00 – 1:00pm

Lunch (provided to registrants only) Washington/Clark rooms

Dining Room

12:00 – 1:00pm

Lunch (provided to registrants only) Washington/Clark rooms

Dining Room

1:15-2:15pm

Jerry Vockley, MD, PhD Children’s Hospital of Pittsburgh TOPIC: ‘Emerging therapies for long chain fatty acid oxidation defects and glutaric acidemia type 2’

1:15-2:15pm David Koeller, MD OHSU Portland, OR TOPIC: ‘Lessons from mice on preventing brain damage in GA1‘

2:15-3:15pm

Cary Harding, MD OHSU Portland, OR TOPIC: ‘Exercise and rhabdomyolysis in long chain fatty acid oxidation disorders‘

2:15-3:00pm Martha Duffy, MS, RD, LD OHSU Idaho Genetic Services Program TOPIC: ‘Pregnancy and Propionic Acidemia‘

3:15-3:30pm

Break 3:00-3:15pm Break

3:30-4:30pm

David Koeller, MD OHSU Portland, OR TOPIC: ‘Mitochondrial Energy Metabolism: How Fatty Acids and Other Fuels Keep Our Bodies Running’

3:15-pm – 4:15pm

Mark Korson, MD Tufts Medical Center Boston, MA TOPIC: ‘A mitochondrial way of understanding the organic acidemias’

4:30-5:15pm

Professional Panel – Q & A with many of our speakers and some of our ‘oldtimer’ Parents!

4:15 pm – 5:15 pm

Randy Chandler, PhD NIH Staff Scientist TOPIC: ‘ Gene Therapy for MMA & PA‘

5:15pm Summary and THANK YOUs! 5:15pm Summary and THANK YOUs!

***6 to 9pm FRIDAY - RECEPTION by POOL (backup – Washington room) - for Families, Professionals, and Speakers

     

     

 

Saturday, July 21, 2012 – JOINT Session ♥♥♥ Wear your FOD & OAA Tshirts!!! ♥♥♥ Time Speaker Conference

Room 7:00 – 8:00am

Continental Breakfast for Conference Registrants Multnomah/Clackamas rooms

8:15-8:30am

Introductions – Multnomah/Clackamas rooms Combined

Speaker 8:30-9:30AM

Nancy Sinden, MS, CCC-SLP OHSU Pediatric Feeding & Swallowing Disorders Clinic Portland, OR TOPIC: ‘Feeding the Whole Child: Sensory, motor, and behavioral issues affecting children’s willingness to eat.’

9:30-10:30am

Mark Korson, MD Tufts Medical Center Boston, MA TOPIC: ‘Improving Metabolic Care through Education‘

10:30-10:45am

Break

10:45-11:45AM

Kathleen Huntington, RD, LD OHSU Portland, OR TOPIC: ‘Update on Metabolic Formula Legislation’

11:45-1:00pm

LUNCH (Provided to registrants) Washington/Clark rooms

Dining Room

1:15-2:15pm

Stephen Kahler, MD University of Arkansas for Medical Sciences Little Rock, AR TOPIC: ‘TBA’

2:15-3:15pm

Danny Duke, PhD Pediatric Psychologist OHSU TOPIC: ‘Three Key Parenting Strategies to Optimize Adjustment, Coping, and Adherence to Treatment Recommendations‘

3:15-330 BREAK - PICTURE of Groups 3:30 – 4:10pm

Karen Brown, MEd OHSU Portland, OR TOPIC: ‘Educational Rights & Strategies for Children/Teens with Healthcare and Developmental Needs’

4:10 – 5:00pm

Professional Panel – with all the Conference Speakers

5:00 – 5:15pm

Slideshow Ceremony ~ be sure to STAY!!!