future health summit - dr derick mitchell - may 26th 2016
TRANSCRIPT
![Page 1: Future Health Summit - Dr Derick Mitchell - May 26th 2016](https://reader035.vdocument.in/reader035/viewer/2022062523/58ed6c441a28ab09358b4681/html5/thumbnails/1.jpg)
PATIENT ACCESS +
EMPOWERMENT
![Page 2: Future Health Summit - Dr Derick Mitchell - May 26th 2016](https://reader035.vdocument.in/reader035/viewer/2022062523/58ed6c441a28ab09358b4681/html5/thumbnails/2.jpg)
IPPOSI Members
Over 100 Patient Organisations
![Page 3: Future Health Summit - Dr Derick Mitchell - May 26th 2016](https://reader035.vdocument.in/reader035/viewer/2022062523/58ed6c441a28ab09358b4681/html5/thumbnails/3.jpg)
IPPOSI Members – Science (examples)
250+ Scientific / Academic
![Page 4: Future Health Summit - Dr Derick Mitchell - May 26th 2016](https://reader035.vdocument.in/reader035/viewer/2022062523/58ed6c441a28ab09358b4681/html5/thumbnails/4.jpg)
IPPOSI Members – Industry (examples)
17 Companies
![Page 5: Future Health Summit - Dr Derick Mitchell - May 26th 2016](https://reader035.vdocument.in/reader035/viewer/2022062523/58ed6c441a28ab09358b4681/html5/thumbnails/5.jpg)
Patient-led activities
Health HacksWorkshopsConferencesConsultationsRound-tablesWorking GroupsTraining Days
Rare DiseaseseHealthClinical ResearchHealth InformationHealth EconomicsPatient RegistriesBiobanking
![Page 6: Future Health Summit - Dr Derick Mitchell - May 26th 2016](https://reader035.vdocument.in/reader035/viewer/2022062523/58ed6c441a28ab09358b4681/html5/thumbnails/6.jpg)
Patients have a key role in all aspects of health research
Public
Research Ethics Committees
Competent authorities
Policy makers/ Research
Policy
HTA agencies&
committees
Research subject
Info provider
Advisor
Reviewer
Co-researcher
Driving force
Clinical Research
Research designInformed consent
Ethical reviewValue assessment
Health policy
Are there enough patient
advocates to engage in R&D?
![Page 7: Future Health Summit - Dr Derick Mitchell - May 26th 2016](https://reader035.vdocument.in/reader035/viewer/2022062523/58ed6c441a28ab09358b4681/html5/thumbnails/7.jpg)
Unique insights
![Page 8: Future Health Summit - Dr Derick Mitchell - May 26th 2016](https://reader035.vdocument.in/reader035/viewer/2022062523/58ed6c441a28ab09358b4681/html5/thumbnails/8.jpg)
Educated Patient Communities
IPPOSI Training for Members
• Clinical Research• Health Technology Assessment• eHealth (coming soon!)
IMI-EUPATI develops Patient Education on Medicines R&D
• Training & Education• Disseminates through national platforms
![Page 9: Future Health Summit - Dr Derick Mitchell - May 26th 2016](https://reader035.vdocument.in/reader035/viewer/2022062523/58ed6c441a28ab09358b4681/html5/thumbnails/9.jpg)
EUPATI Patient ExpertsTraining Course
EUPATI develops patient education targeted towards different audiences
100patient experts
EUPATI Educational Toolbox
EUPATI Internet Library
English FrenchGermanSpanishPolishItalian Russian
English
Patientadvocates(12,000)
Health-interestedpublic(100,000)
![Page 10: Future Health Summit - Dr Derick Mitchell - May 26th 2016](https://reader035.vdocument.in/reader035/viewer/2022062523/58ed6c441a28ab09358b4681/html5/thumbnails/10.jpg)
EUPATI contributing to paradigm shift
Key Objectives:
1. Develop and disseminate objective, credible, correct and up-to-date public knowledge about medicines R&D
2. Build competencies & expert capacity among patients & public
3. Facilitate patient involvement in R&D to collaborate in academic research, industry research, authorities and ethics committees
…and NOT:develop indication- or therapy-specific information!
![Page 11: Future Health Summit - Dr Derick Mitchell - May 26th 2016](https://reader035.vdocument.in/reader035/viewer/2022062523/58ed6c441a28ab09358b4681/html5/thumbnails/11.jpg)
Areas covered
1. Medicines development process from research to approval
2. Personalized and predictive medicine
3. Drug safety and risk/benefit assessment of medicines
4. Pharmaco-economics, health economics, health technology assessment
5. Design and objectives of clinical trials (& roles of stakeholders)
6. Patients roles & responsibilities in medicines development
![Page 12: Future Health Summit - Dr Derick Mitchell - May 26th 2016](https://reader035.vdocument.in/reader035/viewer/2022062523/58ed6c441a28ab09358b4681/html5/thumbnails/12.jpg)
EUPATI Toolbox – www.eupati.eu
The EUPATI project is receiving support from the Innovative Medicines Initiative Joint Undertaking under grant agreement n° 115334, resources of which are composed of financial contribution from the European Union's Seventh Framework Programme (FP7/2007-2013) and EFPIA companies.
![Page 13: Future Health Summit - Dr Derick Mitchell - May 26th 2016](https://reader035.vdocument.in/reader035/viewer/2022062523/58ed6c441a28ab09358b4681/html5/thumbnails/13.jpg)
EUPATI Toolbox – Content available
Infographics
Articles
Fact sheets
PowerPoints
Videos
www.eupati.eu
![Page 14: Future Health Summit - Dr Derick Mitchell - May 26th 2016](https://reader035.vdocument.in/reader035/viewer/2022062523/58ed6c441a28ab09358b4681/html5/thumbnails/14.jpg)
Education Platforms
EUPATI
AustriaBelgium
France
Germany
Ireland
ItalyLuxem-bourg
Malta
Poland
Spain
Switz-erland
UKDenmark
Greece
Netherlands
Portugal
Serbia
Slovakia
![Page 15: Future Health Summit - Dr Derick Mitchell - May 26th 2016](https://reader035.vdocument.in/reader035/viewer/2022062523/58ed6c441a28ab09358b4681/html5/thumbnails/15.jpg)
IPPOSI = Irish Platform
• Rachel Lynch, FibroIreland• Damien Peelo, COPD Support Ireland • Julie Power, Vasculitis Ireland Awareness• Sharon Thompson, Rare Dis. + Palliative care• John Dowling, Men Against Cancer• Caitriona Dunne, Fighting Blindness• Joan Jordan, MS Ireland• Katie Murphy, CF Ireland• Noirín O’Neill, General Advocate
9 Irish Trainees
![Page 16: Future Health Summit - Dr Derick Mitchell - May 26th 2016](https://reader035.vdocument.in/reader035/viewer/2022062523/58ed6c441a28ab09358b4681/html5/thumbnails/16.jpg)
Patients: Experts by Experience