gennere eu seminar: china it week, 27th, april, 2004 didier guillon & for the gennere wg haijin...

GENNEREEU seminar: China IT week, 27th, April, 2004

Didier GUILLON & for the GENNERE WG Haijin YU

Didier GUILLON & for the GENNERE WG Haijin YU

GENNEREGeneric Epidemiological Network in

Nephrology & Rheumatology

GENNEREGeneric Epidemiological Network in

Nephrology & Rheumatology


• SIMS-REIN: French national epidemiological network in Nephrology (Leader: Dr. Paul Landais)

• GENNERE – Chinese needs

– Genericity• Medical: easy extension to other fields

• Software: reuse and adaptability

• Language: Chinese, English, French …

• SIMS-REIN: French national epidemiological network in Nephrology (Leader: Dr. Paul Landais)

• GENNERE – Chinese needs

– Genericity• Medical: easy extension to other fields

• Software: reuse and adaptability

• Language: Chinese, English, French …

GENNERE Project BackgroundGENNERE Project Background


• Thank to ASIA-ITC EU Commission

• 18 months (Feb, 2003 ~ Aug, 2004)

• Budget: 400,000 €

• Chinese Partner: Rui Jin Hospital, SSMU

• Domains: Nephrology, Rheumatology

• Today’s focus: Nephrology - ESRD

• Thank to ASIA-ITC EU Commission

• 18 months (Feb, 2003 ~ Aug, 2004)

• Budget: 400,000 €

• Chinese Partner: Rui Jin Hospital, SSMU

• Domains: Nephrology, Rheumatology

• Today’s focus: Nephrology - ESRD

ContextContext


GENNERE: a challenge of public healthGENNERE: a challenge of public health

ESRD — An evolving care demand during the last decadeESRD — An evolving care demand during the last decade

End StageRenal Disease

( ESRD )

End StageRenal Disease

( ESRD )Liver cirrhosisLiver cirrhosis

Diabetes mellitusDiabetes mellitus

Cardiac diseasesCardiac diseases

Cerebral vascular accidentCerebral vascular accident


More effective management in ESRDMore effective management in ESRD

• More accurate monitor system

– Describe the population concerned

• macroscopic adjustment

– More accurate evaluation of disease control

– Medical financial administration & budgeteering

• More accurate monitor system

– Describe the population concerned

• macroscopic adjustment

– More accurate evaluation of disease control

– Medical financial administration & budgeteering


World-wide demand of epidemiological research in ESRD

World-wide demand of epidemiological research in ESRD

USRDS

A continuous & routine workA continuous & routine work

Africa America Asia Europe Oceania


Increasing problems of ESRD in ChinaIncreasing problems of ESRD in China

• High incidence

• High cost

• High personal burden

• High incidence

• High cost

• High personal burden

Government administrators（ Public Health Bureau, Medical Insurance Bureau, etc. ）

Patient

Hospital


The first step of Chinese renal registry (Shanghai, 1999)

The first step of Chinese renal registry (Shanghai, 1999)

180240

34

34

0

50

100

150

200

250

300

1999年 2002年

HD PD

• Manual (Totally/partly)

• Disadvantages– Statistical bias

(overlapping of patients)– Data-delay– Non-dynamic

• Manual (Totally/partly)

• Disadvantages– Statistical bias

(overlapping of patients)– Data-delay– Non-dynamic

• Retrospective & cross-sectional study• Retrospective & cross-sectional study

Annual point prevalence(pmp) in Shanghai

(pmp)

33.3%


Conjugated needs

Medical & paramedical teams

Health administrators

Researchers

GENNEREGENNERE

Patients


A network of Information for GENNERE

A network of Information for GENNERE

• Record and transmit epidemiological features

• Information & medical knowledge concerning

– Care and quality

– Epidemiology and research

– Planning and management

– Training

• Record and transmit epidemiological features

• Information & medical knowledge concerning

– Care and quality

– Epidemiology and research

– Planning and management

– Training


Renal and Epidemiological Information Network

Renal and Epidemiological Information Network

• Unity of action: the patient

• Unity of location: the region

• Unity of exchange: a secured network

• Unity of action: the patient

• Unity of location: the region

• Unity of exchange: a secured network


Unity of action: the patientUnity of action: the patient

• Patient-oriented information

• Focused on channels of care

• A shared common minimal medical file

• A unique identifier for ESRD

• Patient-oriented information

• Focused on channels of care

• A shared common minimal medical file

• A unique identifier for ESRD


Unity of location: the regionUnity of location: the region

The most pertinent level for

– Exchanges of proximity

– Control of exhaustivity

– Quality control

– Network management

The most pertinent level for

– Exchanges of proximity

– Control of exhaustivity

– Quality control

– Network management


Unity of exchange: a secured information transfer

Unity of exchange: a secured information transfer

• https, 128 bits encoding

• Respect of confidentiality

• https, 128 bits encoding

• Respect of confidentiality


universaluniversalclientsclients

universaluniversalclientsclients

web dynamic serverweb dynamic server web dynamic serverweb dynamic server datadatadatadata

Event database

Identity database

Web Interface

JSP

Servlet

HTML

3-tier architecture3-tier architecture


Need for agreementsNeed for agreements

• Institutional support

• Agreements between partners

• User charter

• Information charter

• Strong synergy with public health units

• Institutional support

• Agreements between partners

• User charter

• Information charter

• Strong synergy with public health units

Medical technique supportMedical technique support

• Multiple language• Unique international code (ICD-10)

• Specialized classification (Paul LANDAIS)

• Multiple language• Unique international code (ICD-10)

• Specialized classification (Paul LANDAIS)


Results (1)Results (1)



• Features of GENNERE

– High efficiency• macroscopic economical control• local administration

– Real-time information

– Dynamic data

– Break the regional restriction of data

• Features of GENNERE

– High efficiency• macroscopic economical control• local administration

– Real-time information

– Dynamic data

– Break the regional restriction of data


Next step (2005~2006)Next step (2005~2006)

• Objective– Epidemiology

• Descriptive statistics of ESRD

• Aid to public health decision-making

• Visual and intuitive graphic interface

• How?– Data warehouse

– Integration of remote databases

• Objective– Epidemiology

• Descriptive statistics of ESRD

• Aid to public health decision-making

• Visual and intuitive graphic interface

• How?– Data warehouse

– Integration of remote databases


PerspectiveGeographic Information System

PerspectiveGeographic Information System


GENNERE partners GENNERE partners GENNERE partners GENNERE partners

Paris - NECKERParis - NECKER

Paul LANDAISMichel SIMONET

Didier GUILLON

Belgium - RAMITBelgium - RAMIT

Georges de MOOR

Nan CHEN

Wen ZHANG

Grenoble - AGDUCGrenoble - AGDUC

Michel FORET

Philippe GAUDIN

Grenoble – TIMC IMAGGrenoble – TIMC IMAG

Shanghai – RUI JINShanghai – RUI JIN


The end


Contact 联系方式Contact 联系方式• Michel SIMONET

[email protected]

• Didier GUILLON

[email protected]

• Haijin YU 俞海瑾 [email protected]

• Michel SIMONET

[email protected]

• Didier GUILLON

[email protected]

• Haijin YU 俞海瑾 [email protected]

Shanghai Grenoble

gennere eu seminar: china it week, 27th, april, 2004 didier guillon & for the gennere wg haijin...

Documents

gennere eu seminar

gennere record

paul landais gennere

nephrology rheumatology

decade esrd

esrd usrds

nephrology leader

patient hospital slide