getting involved in clahrc east midlands
DESCRIPTION
ÂTRANSCRIPT
July 2015
Getting involved in
CLAHRC EM
Research support
and evaluation
Patient and public
involvement
Working with
industry
Capacity
development
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IntroductionAs the very name Collaboration for Leadership in Applied Health Research and Care (CLAHRC) implies, working closely with all our partners, including patients and the public, is the keystone of how CLAHRC East Midlands operates.
I want as many organisations and individuals to become involved in our activities as possible, because their positive contribution will provide valuable insights and energy that will improve both what we do and how we do it. Professor Kamlesh Khunti
Director, CLAHRC EM
About CLAHRC East MidlandsCLAHRC East Midlands brings together academic, NHS, industry, local government, third sector and patient and public partners to collaboratively generate and apply evidence in prevention and management of long term conditions to achieve “healthier living for longer”.
The collaboration will improve the health of the East Midlands population by carrying out and implementing world class research in prevention and management of chronic disease, enhancement of mental health, the care of older people and stroke survivors
By emphasising the Collaboration in our title I want us to develop a network of people and teams across the East Midlands, and further afield, who will enthusiastically engage with us. I want them to contribute and share their ideas, knowledge and skills so that our goal of delivering world class research that can transform the health and lives of people in the East Midlands is achieved.
and implementation and improvement science.
CLAHRC EM is building on the strengths of the
two previous regional CLAHRCs whose activities and outcomes have been praised by its main
funder, the National Institute of Health Research (NIHR).
From 2008-13 the two previous regional CLAHRCs - NDL and LNR -
produced a substantial level of high quality studies, delivered over 100
research and implementation projects, recruited over 30,000 participants, attracted over £20 million of external research grant funding, published over 300 papers in peer reviewed journals and supported over 30 PhDs.
www.clahrc-em.nihr.ac.uk
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Capacity development
PhDsEach year we make a number of PhD studentships available to practitioners, in line with our aim to increase research capacity in the NHS and get evidence in practice. The studentships will be advertised in the Spring of each year, to ensure a September/October start.
We are also interested in working with potential candidates on applying for external funding. If you are interested and want to work with us, please contact Emma Rowley (see below).
Short coursesWe offer short courses on research and evaluation methods, implementing change and engagement and involvement for implementation. We film sessions, and make them available on the CLAHRC website. However, we are also happy to deliver sessions at partner organisations or at our Nottingham or Leicester bases.
We are also happy to discuss ideas about future CLAHRC programmes, or hear how we can all share learning across the East Midlands.
Getting involved with CLAHRC studiesCLAHRC EM recognises that key to getting evidence based research into practice, is to understand the local context into which the evidence is to be implemented. In doing this, our approach emphasises the importance of working with health and social care partners. There are two main ways of doing this....
1. Being a Knowledge BrokerOur study teams want to work with practitioners who are passionate about change and carrying out improvement work. These people join the CLAHRC teams as ‘knowledge brokers’, acting as critical friends and champions for the study. Time spent working with a project team is decided on a case-by-case basis. Details of each of the CLAHRC studies can be found at www.clahrc-em.nihr.ac.uk and interested parties should contact the theme manager for the relevant CLAHRC theme:
We are also interested in exploring a different type of knowledge brokering role, focusing more on developing and maintaining a ‘liaison’ link between our partners and CLAHRC teams. These people would be enthusiastic and passionate about change and carrying out improvement work, but who don’t want to work into just one CLAHRC study. Instead, this ‘liaison’ role would mean spreading updates, news and information about the CLAHRC across their employing organisation, as well as providing similar information back to the CLAHRC. Sound interesting? We’d love to know your thoughts!
2. “I’m in!” - Stakeholder networks of practiceEach of our study teams has established their own stakeholder network. These are groups of individuals who come together regularly to support a collective aim, such as helping an improvement get into practice.
The networks are an ideal space in which to bring stakeholders together to explore factors linked to implementing interventions, including any unanticipated knock-on effects to the care pathway, and how to overcome these. Networks are comprised of service users and carers, healthcare professionals from each implementation site, academics, commissioners and providers.
» Preventing chronic disease - [email protected] » Managing chronic disease - [email protected] » Enhancing mental health - [email protected] » Caring for older people and stroke survivors -
We are hoping to launch an “I’m in!” campaign – similar to the NIHR “ok to ask” campaign.
The aim would be to raise awareness of the CLAHRC networks, encourage others to join in and share their ideas and experiences, and help the CLAHRC studies make a real and lasting difference to practice.
Contact: [email protected]
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Research support and evaluation
CLAHRC East Midlands brings together extensive expertise in applied health research and evaluation for complex interventions.
By their nature, complex interventions are often difficult to appraise and evaluate through single trial methodologies, but require a combination of methods and techniques that can address the design and implementation of new practices, the processes and mechanisms of operational and their service and patient outcomes, including health outcomes but also costs. CLAHRC EM provides this expertise to its partners across the region. The Implementing Evidence and Improvement (IEI) theme, in collaboration with Nottingham's Centre for Health Innovation, Leadership and Learning (CHILL), Leicester's SAPPHIRE and the Institute of Mental Health's Evaluation Service, can provide expert guidance and support for service evaluations.
We recognise that other evaluation units operate across the East Midlands and we look forward to developing new partnerships.
The evaluation and appraisal services provided by the IEI theme can be tailored to meet partner needs, including large-scale programme evaluations to short-scale' fact-finding' enquiries. Most evaluations are based on co-design so that they meet the real world needs of partners. Our main modes of collaboration include:
1. Providing technical expertise and guidance of evaluation design and planning.
2. Undertaking the evaluation or appraisal on behalf of our partners.
3. Working with partners to apply for external research funding, i.e. NIHR.
4. Working with partners to apply for CLAHRC EM Support.
The team have expertise in:
» Supporting and appraising implementation and knowledge translation » Systematic and narrative reviews » Process and ‘Cause-and-Effect’ modelling of
complex interventions » Realist and process evaluations » Micro-costing studies » Patient tracking and experience methodologies » Professional and stakeholder workshops » Observational and ethnographic methodologies » Innovative focus groups and engagement activities » Formative and summative learning
Please note, these evaluation and appraisal services are resource restricted, and are neither currently readily nor freely available. Partners wil be expected to pick up any costs incurred. However, we are happy to discuss potential costs with interested parties.
Contact: [email protected]
Public and patient involvement (PPI)
PPI in CLAHRC East Midlands is fundamental. Patients and members of the public provide a pragmatic perspective which complements the specialised expert experiences of researchers and clinical staff.
Involving people in health and social care research is about giving the intended beneficiaries of research a say in shaping the research agenda. We ensure that stakeholders are involved on an equal basis to academics and health care professionals. This includes not just participating in research that has been initiated by academics, but ensuring that users and carers are involved in the selection, design and development of all projects, and that they can work collaboratively with academics.
Training for service users and carers to work as partners in research is available along with PPI learning and development for clinical staff, research teams and individuals. All PPI members are fully supported through their involvement and further opportunities provided.
Our projectsPublic Involvement (PI) is embedded in projects and activities within four main themes - Enhancing Mental Health, Caring for Older People and Stroke Survivors, Managing Chronic Disease and Preventing Chronic Disease. Many of the project teams are actively collaborating with lay members who have had a significant impact on the project direction and outcomes. If you would like further information on the projects or to be involved please contact the relevant theme manager (see p3)
Patient Public Partners’ Council (PPPC)The PPPC provides information and opinions from lay perspectives to support the development, coordination and capture of public involvement activities across CLAHRC EM. The PPPC is represented at Management and Executive Board levels as well as theme meetings. Membership of the PPPC is diverse in terms of age, geography, cultural background
and experience of health and social care services. Current members include:
» Partner organisations » Community and voluntary sector » Members of the public with an interest in
healthcare research » Individuals with lived experience, such
as patients or carers, of conditions being researched by CLAHRC EM » Staff from CLAHRC EM.
The East Midlands Centre for Black and Minority Ethnic HealthThe East Midlands Centre for Black and Minority Ethnic Health (EMCBMEH) has been established and we support local patient and community groups to capture the needs of the East Midlands population and disseminate the latest health research information to diverse communities.
The EMCBMEH is committed to actively inspiring and developing dynamic, collaborative partnerships between patients, public, community and voluntary sectors, researchers, health and social care organisations and others, to help address and reduce ethnic health disparities in the East Midlands.
Contact: Paula Wray - [email protected]
Working with industry
Current CLAHRC EM Projects
» NB Group, which is a marketing and communications group, are working with us on our “Healthy Schools Programme” project.
» The Practice plc and Baxter Healthcare, both primary care providers, are supporting our “IMPAKT Evolve” project and its implementation in their practices. Baxter Healthcare have agreed to fund an implementation nurse.
» The “Clinical utility and economic case of QbTest in ADHD” project will work closelywith QbTech Ltd. QbTech - a private healthcare company specialising in ADHD assessments - will provide support, including test equipment and licenses.
» Janssen Pharmaceutical are supporting a cardiovascular study.
Matched Funding Support
In addition, CLAHRC EM has received offers of matched funding support from Novo Nordisk, Sanofi and InHealth.
CLAHRC EM is committed to strengthening its existing links with industry partners as well as developing new partnerships.
Contact: [email protected]
CLAHRC East Midlands (EM) is committed to building on existing industry relationships and developing new ones across its research themes.
Working with industry
@CLAHRC_EM
CLAHRC East Midlands Diabetes Research CentreCollege of Medicine, Biological Sciences & PsychologyLeicester General HospitalGwendolen RoadLeicesterLE5 4PW
T: 0116 258 8969E: [email protected]
www.clahrc-em.nihr.ac.uk