gordon grant: participatory research some thoughts on working together

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Participatory research: some thoughts on working together Gordon Grant Sheffield Hallam University, UK University of Plymouth ESRC Seminar January 2013

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Presentation by Gordon Grant at the first ESRC funded seminar on participatory research hosted by Jane Seale and colleagues at Plymouth University, 10th Jan 2013

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Page 1: Gordon Grant: Participatory research some thoughts on working together

Participatory research: some thoughts on working together

Gordon GrantSheffield Hallam University, UK

University of PlymouthESRC SeminarJanuary 2013

Page 2: Gordon Grant: Participatory research some thoughts on working together

A bit about me

Participants

Partnerships

Putting it into action

Questions (????)

What I will talk about

Page 3: Gordon Grant: Participatory research some thoughts on working together

About me and my interests

• A programme that embraced inclusive research – the Learning Disability Research Initiative

• Inclusive research with family carers

• Stories about mental health; stories about growing older

• Setting up advocacy and self advocacy projects (a long time ago)

• Working with service user research groups in Sheffield and Doncaster

Page 4: Gordon Grant: Participatory research some thoughts on working together

Difference and diversity (1)

We can all have personal conditions that vary in their:

Onset – sudden/out of the blue or gradualCourse – gradual, constant or from time to timeOutcome – low to high risk of deathIncapacity – cognitive, sensory, mobility, energy,

stigma or combinations of these

Rolland, J.S. (1994) Families, Illness and Disability: an integrative treatment model. New York, Basic Books

Page 5: Gordon Grant: Participatory research some thoughts on working together

Difference and diversity (2)

Ideas about time:

physical or body clockfeeling ready to act (psychological readiness)historical time (different cohorts)personal narrative (history is personal)service timetableswhen others think it is ‘time’ (social/cultural)

Based on Mills, M. (2000) Providing space for time: the impact of temporality on life course research, Time and Society, 9, 1, 91-127.

Page 6: Gordon Grant: Participatory research some thoughts on working together

Some thoughts

Linking personal conditions with time:

• Explaining the selection of people with different personal conditions as (i) co-researchers, (ii) research participants

• Spotting ‘overlooked’ groups• Making use of people with different kinds of personal experience• Avoiding knowledge built on old ideas about incapacity

PLUS

Page 7: Gordon Grant: Participatory research some thoughts on working together

Outcomes

Individual

ProjectSocial

Page 8: Gordon Grant: Participatory research some thoughts on working together

Individual outcomes

Technical – understanding of research, learning new research skills

How well I feel – self confidence, assertiveness, self esteem

Project management – capacity for decision-making,giving direction, sharing expertise

Page 9: Gordon Grant: Participatory research some thoughts on working together

Social outcomes (partnerships)

Safety

Belonging

Continuity

Purpose

Achievement

Recognition

Page 10: Gordon Grant: Participatory research some thoughts on working together

Safety

Is this an ‘approved’ project? (ethics)Have I received relevant training? Do I have the right gear? (preparation)Am I receiving good support? (personal assistance where necessary)Am I being paid? (financial security)

£

Page 11: Gordon Grant: Participatory research some thoughts on working together

Belonging

Do I feel part of things? (group identity)Can I express myself? (contribution to discussion)Am I helping to make things work? (feeling part of a team)

Team

My pal

Me

Page 12: Gordon Grant: Participatory research some thoughts on working together

Continuity

Was it my decision to take part? (personal control)Am I building on my strengths and interests? (skill consolidation)Is it helping me to develop new career opportunities? (career progression)

Taking part New skills Next project

Page 13: Gordon Grant: Participatory research some thoughts on working together

Purpose

Do I actually value taking part? (importance)Has it been worthwhile for me? (meaningfulness)Does it make me feel better? (integrity)

Page 14: Gordon Grant: Participatory research some thoughts on working together

Achievement

Am I making progress?Am I developing useful skills?Am I helping to change things for the better?

Page 15: Gordon Grant: Participatory research some thoughts on working together

Recognition

Am I receiving (internal) recognition for what I am doing? (positive feedback, pay)Am I receiving external recognition for what I am doing? (publications, certification, validation)Am I being treated right? (self-image, dignity)

Page 16: Gordon Grant: Participatory research some thoughts on working together

Social outcomes (partnerships)

Adapted from:

Nolan, M., Lundh, U., Grant, G. and Keady, J. eds. (2003) Partnerships in Family Care: understanding the caregiving career. Maidenhead, Open University Press

Page 17: Gordon Grant: Participatory research some thoughts on working together

Outcomes - project

What is good participatory research?

using and explaining knowledge contributions - from service users and academic researchers

testing each-others’ knowledge contributions changing things (i) testing big ideas, (2) changing services, (3) policy

change, (4) building research capacity, (5) personal change data analysis – rigour and clarity is the main research question answered?

Page 18: Gordon Grant: Participatory research some thoughts on working together

Outcomes

(participatory action research)

• relational praxis – does the study fully involve others?• capable of application – resulting in better experience or better services• plurality of knowing – bringing together knowledge from different

stakeholder groups• ‘significant work’ – making a real difference to people’s lives• transformative – towards enduring consequences

(from Bradbury and Reason)

Page 19: Gordon Grant: Participatory research some thoughts on working together

More questions • How can science as evidence and evidence as conviction be made to

work together?

• How judge ‘good’ inclusive research – in relation to outcomes as well as processes?

• Is there a case for ‘core’ (fixed) and also ‘periphery’ (conditional) criteria in judging the quality of inclusive research? What might these be?

• What might knowledge transfer and exchange theorising tell us about good inclusive or participatory action research?

Page 20: Gordon Grant: Participatory research some thoughts on working together

Further information

Gordon GrantCentre for Health and Social Care Research

Sheffield Hallam UniversityMontgomery House

32 Collegiate CrescentCollegiate Campus

SheffieldS10 2BP

email: [email protected]