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© 2020 THE MITRE CORPORATION. ALL RIGHTS RESERVED. APPROVED FOR PUBLIC RELEASE CASE #20-0352 © 2020 THE MITRE CORPORATION. ALL RIGHTS RESERVED. FOR INTERNAL USE ONLY. APPROVED FOR PUBLIC RELEASE CASE #20-0352 Paul E. Jarris, MD, MBA Chief Medical Advisor Health Transformation Center Got Symptoms? Meet Sara Alert A 21st Century Tale of Rapid Collaboration and Partnership in the Face of a Growing Epidemic

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Page 1: Got Symptoms? Meet Sara Alert - The MITRE Corporation€¦ · Presentation-HIMSS20-Sara-Alert-P.Jarris Author: Jarris Subject: Sara Alert: A 21st-century tale of rapid collaboration

© 2020 THE MITRE CORPORATION. ALL RIGHTS RESERVED. APPROVED FOR PUBLIC RELEASE CASE #20-0352

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© 2020 THE MITRE CORPORATION. ALL RIGHTS RESERVED. FOR INTERNAL USE ONLY. APPROVED FOR PUBLIC RELEASE CASE #20-0352

Paul E. Jarris, MD, MBAChief Medical AdvisorHealth Transformation Center

Got Symptoms? Meet Sara Alert A 21st Century Tale of Rapid Collaboration and Partnership in the Face of a Growing Epidemic

Page 2: Got Symptoms? Meet Sara Alert - The MITRE Corporation€¦ · Presentation-HIMSS20-Sara-Alert-P.Jarris Author: Jarris Subject: Sara Alert: A 21st-century tale of rapid collaboration

© 2020 THE MITRE CORPORATION. ALL RIGHTS RESERVED. APPROVED FOR PUBLIC RELEASE CASE #20-0352

• CDC, WHO and others are closely monitoring an outbreak of respiratory illness known as COVID-19 caused by a novel (new) coronavirus

• Outbreak started in Wuhan, China, and cases have been identified in a growing number of other international locations, including the US

COVID-19 Outbreak 2

Page 3: Got Symptoms? Meet Sara Alert - The MITRE Corporation€¦ · Presentation-HIMSS20-Sara-Alert-P.Jarris Author: Jarris Subject: Sara Alert: A 21st-century tale of rapid collaboration

© 2020 THE MITRE CORPORATION. ALL RIGHTS RESERVED. APPROVED FOR PUBLIC RELEASE CASE #20-0352

Peter Sandman. SOURCE: https://virologydownunder.com/past-time-to-tell-the-public-it-will-probably-go-pandemic-and-we-should-all-prepare-now/

• Decisions must be made based upon the best (or less bad) information available• You never know what you need to know when you make a decision• Use best judgement to make a decision and take action – then change it as

necessary.• “Darned if you do, Damned if you don’t*”• Infectivity: Spread: Ro, doubling time• Severity: Case fatality rate• Trajectory: Waves and seasonality

What do we really know?

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Page 4: Got Symptoms? Meet Sara Alert - The MITRE Corporation€¦ · Presentation-HIMSS20-Sara-Alert-P.Jarris Author: Jarris Subject: Sara Alert: A 21st-century tale of rapid collaboration

© 2020 THE MITRE CORPORATION. ALL RIGHTS RESERVED. APPROVED FOR PUBLIC RELEASE CASE #20-0352

“The early recognition of cases in the United States reduces transmission risk

and increases understanding of the virus, including its transmission and

severity, to inform national and global response actions.”

Publication citation

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Page 5: Got Symptoms? Meet Sara Alert - The MITRE Corporation€¦ · Presentation-HIMSS20-Sara-Alert-P.Jarris Author: Jarris Subject: Sara Alert: A 21st-century tale of rapid collaboration

© 2020 THE MITRE CORPORATION. ALL RIGHTS RESERVED. APPROVED FOR PUBLIC RELEASE CASE #20-0352

Clear need for an enduring national resource to contain disease

• Public health agencies must respond swiftly to public health emergencies– First lines of defense are containment and mitigation– Both are intensive because the process is largely manual

• Any tools that are built are hard-coded to track just that disease

Problem

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Page 6: Got Symptoms? Meet Sara Alert - The MITRE Corporation€¦ · Presentation-HIMSS20-Sara-Alert-P.Jarris Author: Jarris Subject: Sara Alert: A 21st-century tale of rapid collaboration

© 2020 THE MITRE CORPORATION. ALL RIGHTS RESERVED. APPROVED FOR PUBLIC RELEASE CASE #20-0352

Force multiplier to allow resources to be directed where most needed

• Deliver flexible information technology to automate the solution

‒ Enable public health officials to enroll individuals at risk

‒ Allow individuals to enter symptoms daily

‒ Enable quick and safe referral to care

‒ Monitor case contacts to contain spread

‒ Provide dashboards for federal, state, and local public health officials

• Build infrastructure for a disease-independent approach

• Develop in partnership with key public health partner organizations

Contain the spread of disease through effective monitoring and rapid response

Solution 6

Page 7: Got Symptoms? Meet Sara Alert - The MITRE Corporation€¦ · Presentation-HIMSS20-Sara-Alert-P.Jarris Author: Jarris Subject: Sara Alert: A 21st-century tale of rapid collaboration

© 2020 THE MITRE CORPORATION. ALL RIGHTS RESERVED. APPROVED FOR PUBLIC RELEASE CASE #20-0352

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Collaborating for an Effective Solution

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Page 8: Got Symptoms? Meet Sara Alert - The MITRE Corporation€¦ · Presentation-HIMSS20-Sara-Alert-P.Jarris Author: Jarris Subject: Sara Alert: A 21st-century tale of rapid collaboration

© 2020 THE MITRE CORPORATION. ALL RIGHTS RESERVED. APPROVED FOR PUBLIC RELEASE CASE #20-0352

• Healthcare and Public Health• Rapid Prototyping & Software

Engineering• Health Systems Engineering &

Process Integration Programming• Health Communication and Health

Social/Behavioral Analysis • Stakeholder and Network

Management• Health Standards and Interoperability

OUR EXPERTISE

• Risk-taking • Adaptability• Collaboration • Speed • Grace and Respect

OUR CULTURE

We work in the public interest to address complex structural, technical, behavioral, and social challenges that affect health and healthcare.

MITRE’s Unique Contribution

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Page 9: Got Symptoms? Meet Sara Alert - The MITRE Corporation€¦ · Presentation-HIMSS20-Sara-Alert-P.Jarris Author: Jarris Subject: Sara Alert: A 21st-century tale of rapid collaboration

© 2020 THE MITRE CORPORATION. ALL RIGHTS RESERVED. APPROVED FOR PUBLIC RELEASE CASE #20-0352

Image source: MITRE

Engagement & Collaboration 9

Page 10: Got Symptoms? Meet Sara Alert - The MITRE Corporation€¦ · Presentation-HIMSS20-Sara-Alert-P.Jarris Author: Jarris Subject: Sara Alert: A 21st-century tale of rapid collaboration

© 2020 THE MITRE CORPORATION. ALL RIGHTS RESERVED. APPROVED FOR PUBLIC RELEASE CASE #20-0352

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SARA Alert section divider

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Page 11: Got Symptoms? Meet Sara Alert - The MITRE Corporation€¦ · Presentation-HIMSS20-Sara-Alert-P.Jarris Author: Jarris Subject: Sara Alert: A 21st-century tale of rapid collaboration

© 2020 THE MITRE CORPORATION. ALL RIGHTS RESERVED. APPROVED FOR PUBLIC RELEASE CASE #20-0352 Image source: MITRE

Public health enrolls at-risk individual

Individual reports temperature and symptoms Federal, state, and local public health

agencies monitor using dashboards

State and local public health monitor potentially exposed individuals

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Concept of Operations

Page 12: Got Symptoms? Meet Sara Alert - The MITRE Corporation€¦ · Presentation-HIMSS20-Sara-Alert-P.Jarris Author: Jarris Subject: Sara Alert: A 21st-century tale of rapid collaboration

© 2020 THE MITRE CORPORATION. ALL RIGHTS RESERVED. APPROVED FOR PUBLIC RELEASE CASE #20-0352

• Simple - Minimizes effort to monitor individuals

• Quick - Must be implemented to address current outbreak

• Partner-supported - Addresses essential needs of local, state, and federal public health organizations

• Accessible - Offers multiple platforms (e.g., mobile, desktop, text-based) and languages

• Adaptable ‒ Adapts easily for different symptoms, evolving pathogens, etc.

‒ Supports households and individuals

• Timely use - Purges data after monitoring is complete

• Disease-independent - Supports future outbreaks with no coding changes

• Scalable - Aids the nation in current and future outbreaks

• Interoperable - Utilizes standards for future integration with public health systems

• Compliant - Provides record-level access controls to meet data use laws and policy

Differentiators: A National Resource for Efficient Response

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Page 13: Got Symptoms? Meet Sara Alert - The MITRE Corporation€¦ · Presentation-HIMSS20-Sara-Alert-P.Jarris Author: Jarris Subject: Sara Alert: A 21st-century tale of rapid collaboration

© 2020 THE MITRE CORPORATION. ALL RIGHTS RESERVED. APPROVED FOR PUBLIC RELEASE CASE #20-0352

• Collecting minimal viable data set• Collecting just what is needed to support public health operations• Collecting low risk data elements• Control access by jurisdiction• Providing fine-grained access control‒ Single record, single user

• Encryption at rest and in flight• Data is stored only during monitoring period

Ensuring Privacy

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Page 14: Got Symptoms? Meet Sara Alert - The MITRE Corporation€¦ · Presentation-HIMSS20-Sara-Alert-P.Jarris Author: Jarris Subject: Sara Alert: A 21st-century tale of rapid collaboration

© 2020 THE MITRE CORPORATION. ALL RIGHTS RESERVED. APPROVED FOR PUBLIC RELEASE CASE #20-0352

Image source: MITRE

Public health official enrolls at-risk individual

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Page 15: Got Symptoms? Meet Sara Alert - The MITRE Corporation€¦ · Presentation-HIMSS20-Sara-Alert-P.Jarris Author: Jarris Subject: Sara Alert: A 21st-century tale of rapid collaboration

© 2020 THE MITRE CORPORATION. ALL RIGHTS RESERVED. APPROVED FOR PUBLIC RELEASE CASE #20-0352

Image source: MITRE

Basic interface

Individual reports temperature and any symptoms15

Page 16: Got Symptoms? Meet Sara Alert - The MITRE Corporation€¦ · Presentation-HIMSS20-Sara-Alert-P.Jarris Author: Jarris Subject: Sara Alert: A 21st-century tale of rapid collaboration

© 2020 THE MITRE CORPORATION. ALL RIGHTS RESERVED. APPROVED FOR PUBLIC RELEASE CASE #20-0352 Image source: MITRE

Public health officials track patients16

Page 17: Got Symptoms? Meet Sara Alert - The MITRE Corporation€¦ · Presentation-HIMSS20-Sara-Alert-P.Jarris Author: Jarris Subject: Sara Alert: A 21st-century tale of rapid collaboration

© 2020 THE MITRE CORPORATION. ALL RIGHTS RESERVED. APPROVED FOR PUBLIC RELEASE CASE #20-0352

Image source: MITRE

Public health agencies monitor using dashboards 17

Page 18: Got Symptoms? Meet Sara Alert - The MITRE Corporation€¦ · Presentation-HIMSS20-Sara-Alert-P.Jarris Author: Jarris Subject: Sara Alert: A 21st-century tale of rapid collaboration

© 2020 THE MITRE CORPORATION. ALL RIGHTS RESERVED. APPROVED FOR PUBLIC RELEASE CASE #20-0352

EMAIL: [email protected]

WEB: Saraalert.org

For more information