heal. summer 2015
DESCRIPTION
A publication of the Sheppard Pratt Health System.TRANSCRIPT
UNDERSTANDINGADDICTION
HELPING ADULTSWITH AUTISM
A WORKSHOP IN AFRICA
PLUS
healA publication of the Sheppard Pratt Health System • SUMMER 2015
Breaking New Ground
After a $4 million renovation,
the Steven S. Sharfstein, M.D. Integrated
Health Care Center is completed.
Breaking New Ground
After a $4 million renovation,
the Steven S. Sharfstein, M.D.
Integrated Health Care
Center is completed.
3 Helping Adults with Autism Spectrum Disorder
6 Understanding Addiction
7 Progress Report: Medication Management in the Dementia Population
8 In the News/Calendar
10 Out of Africa
12 Philanthropy: You give. They heal.
13 Raising Autism™: A Family Aff air
15 Meet Our Team: Behavior Specialists Remy Chappell and Thomas Flis
4
heal. is published four times a year by the Marketing Department of the Sheppard Pratt Health System, one of the nation’s top mental health programs, providing compassionate solutions to help those suff ering from mental illness and addiction recover and get back to their lives. Information provided is general in nature and should not be substituted for the medical advice of a physician. Please consult your health care provider for recommendations specifi c to your personal health, medical treatment, and medical conditions.
Editor/Director of Marketing & PR Jessica Kapustin
Outreach & Project Manager Chelsea Soobitsky
Design, Production & Editorial Mid-Atlantic Custom Media
Cortney Geare, Jeni Mann,
Geoff rey Melada, and
Suzanne Pollak
Contributing Photographers Brian Glock, Patti Prugh,
and David Stuck
On the cover.Steven S. Sharfstein, M.D., and Jeff Richardson cut the ribbon at the dedication of the new Steven S. Sharfstein, M.D. Integrated Health Care Center.
Photo by David Stuck
Connect with us.
CMYK / .epsCMYK / .eps
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facebook.com/SheppardPratt @sheppardpratt youtube.com/user/SheppardPrattHealth
In this issue. SUMMER 2015
4
10 12
If you wish to have your name removed from the list of those receiving communications from Sheppard Pratt Health System, please email the Marketing Department at [email protected] or call 410.938.3133.
This issue of heal. is dedicated to the late Czarina (Rina) Santos-Borja, M.D., director of geriatric services
at Sheppard Pratt Health System who died in April of a sudden cranial aneurysm. She was a distinguished
member of our medical staff and a long-standing part of the Sheppard Pratt family. We will never forget
her determination, brilliant smile, and kind heart.
sheppardpratt.org • heal. 3
ADULT PSYCHIATRY
SHEPPARD PRATT marked Autism
Awareness Month this past April by
reopening our seven-bed Adult
Neuropsychiatric Unit, which provides
inpatient treatment for adults with
developmental and/or intellectual
disabilities, including those diagnosed
with Autism Spectrum Disorder
(ASD) who are having an acute
psychiatric emergency.
This new unit, which I am privileged
to lead, is the only inpatient unit of its
kind in Maryland and one of only a
handful in the country to specialize in
treating patients with severe psychiatric
and behavioral problems. It was fi lled to
capacity in its fi rst weekend of operation.
Because some of the patients are
nonverbal, diagnosing and treating mood
disorders or other mental illnesses in
this population can be diffi cult. Finding
psychologists and nurses specially
trained to treat this patient population’s
needs is, admittedly, a challenge. But
meeting a need is the core of what we
do at Sheppard Pratt.
To give you a better sense of that
need, one in every 68 children is
diagnosed with ASD today, a number that
has increased from 1 in 88 just two years
ago, according to the U.S. Centers for
Disease Control and Prevention.
As a result, programming and resources
must keep pace, or an enormous
burden falls on the caretakers. This
need is particularly acute with the adult
population, as they age out of the
programs and services that were once
available to them when they were part
of the educational system.
Despite these challenges, it was
critically important for us to move
forward with this venture. And yet the
opening of this new unit is just the
beginning. In terms of securing
state funding and program
development to serve this
adult population, there
remains much work to
be done.
Helping Adults with Autism Spectrum Disorder RECOGNIZING AN URGENT NEED, SHEPPARD PRATT OPENS ADULT NEUROPSYCHIATRIC UNIT
ROBERT WISNER-CARLSON, M.D.
Robert Wisner-Carlson, M.D.,
is service chief of the Adult
Neuropsychiatric Unit and
medical director of The
Developmental Neuropsychiatry
Clinic, part of the Neuropsychiatry Program at
Sheppard Pratt. A graduate of University of
Michigan Medical School, he trained in psychiatry
at The Henry Phipps Psychiatric Clinic at Johns
Hopkins Hospital and at Maudsley Hospital in
London. He holds specialty certifi cation in
Behavioral Neurology and Neuropsychiatry from
the United Council for Neurologic Subspecialties.
4 heal. • Sheppard Pratt Health System
FEATURE/SHEPPARD PRATT
W hen Kelly Damon finished
a year-long, state-run
rehabilitation program, she walked
away with a certificate, a 30-day supply
of medicine, and nowhere to go.
Six months later, Damon overheard
someone talking about Mosaic
Community Services. She went there
that very day, beginning what became
an eight-year relationship that she
believes saved her life.
The 51-year-old Baltimore native
started using drugs when she was 19 and
soon became addicted to heroin. She
had attempted suicide six times. But
through Mosaic’s classes and therapies,
she said she has learned to control her
anger, better deal with her family, and
even lose 70 pounds.
“Mosaic’s integrated care combines
a range of services — including
psychiatry, addiction, primary care, and
pain management — in one facility,
making it easier for its clients to get the
help they need,” said executive director
Jeff Richardson. That approach has
paved the way for Mosaic, part of the
Sheppard Pratt Health System since
1995, to become Maryland’s largest
community-based behavioral health
services provider.
Today, that growth continues,
with the reopening of The Harry and
Jeannette Weinberg Building in May,
including a new $4 million integrated
health care center on North Charles
Street in Baltimore. The Steven S.
Sharfstein, M.D. Integrated Health
Care Center is named for the
president and CEO of Sheppard Pratt
Health System.
Sharfstein, who will step down from
his leadership position in July of 2016 but
continue to be involved in clinical work,
has presided over a period of exponential
Breaking New Ground BY SUZANNE POLLAK
AFTER A $4 MILLION RENOVATION, THE STEVEN S. SHARFSTEIN, M.D. INTEGRATED HEALTH CARE CENTER IS COMPLETED
Steven S. Sharfstein, M.D., and Jeff Richardson cut
the ribbon to officially open the new center.
The writing’s on the wall: Community members gathered in May to dedicate the newly launched Steven S. Sharfstein, M.D. Integrated Health Care Center.
sheppardpratt.org • heal. 5
growth for Sheppard Pratt — from the
single hospital he joined in 1986 to
a health system today spawning
38 locations throughout Maryland.
When he started, Sheppard Pratt
had 850 employees and a $40 million
annual budget. It now has 2,700
employees and a $350 million annual
budget. The health system, which
had 1,000 admissions in his first year
and extremely long lengths of stay,
now provides services for 10,000
admitted patients and another
70,000 outpatients annually.
About 27,000 people received
assistance from Mosaic last year.
Although numerous therapies
and medications designed to treat
mental illness have been developed
since Sharfstein began his psychiatry
career in Boston more than 40 years
ago, there is still much to learn in the
field, he said.
For one, scientists are only
beginning to understand the workings
of the brain, he said. Removing
the societal stigma attached to
mental illness remains a critical
priority. Increasing funding
is another.
“We still struggle with
these illnesses,” Sharfstein said.
“They are poorly understood.
We do a good job, but we can
do better.”
The building opened in 1959
and was renovated to include the
brand new center that bears his
name in an effort to redesign its
space to accommodate the needs of the
clients by offering a variety of services
under one roof. Mosaic offers patients a
team-based approach, coordinating care
for its clients among professionals in
different fields.
Statistics show that, on average,
people with mental health problems
die 25 years earlier than the general
population largely due to treatable
medical conditions. Mosaic is battling
this early mortality rate
by embedding primary
care into a behavioral
health setting so that
people coming in with
mental health and
addiction issues, for
instance, can access
services to help stop
smoking, lose weight,
and make other
behavioral changes.
Mosaic treats
a wide range of
people, from those
who need immediate
hospitalization to
others who can
best be helped
with short-term interventions. It provides
medical and psychiatric services, as
well as residential, vocational, and
crisis services. “We will go to a bridge.
We will go to a hospital. We go to
where the people are, where they live,
wherever and whenever they need us,”
Richardson said.
The goal is to do more than treat
a discrete illness by guiding individuals
back into society.
Damon said she has been clean
and sober for more than eight years
now. She believes Mosaic is successful,
because “they actually take time out
to find out what’s wrong with you.
They talk to you, not at you.” She tried
other programs and failed. Mosaic
was different.
“They don’t talk down to you,
and I never had a program that did that.”
Damon lives with her husband in
Mosaic housing and has a part-time job
helping a child with special needs learn
in an integrated classroom setting. She is
taking care of herself, too. Her weight
loss has enabled her to control her blood
pressure. She is no longer suicidal.
If not for Mosaic, she said, putting
it bluntly: “I don’t think that I’d be here
right now.”
Jeff Richardson, Mosaic’s executive director and Steven S. Sharfstein, M.D., Sheppard Pratt’s president and CEO.
Kelly Damon uses Mosaic’s classes and therapies to help take charge of her life.
Mosaic treats a wide range of people, from those
who need immediate hospitalization to others who
can be best helped with short-term interventions.
6 heal. • Sheppard Pratt Health System
THE RETREAT
DENISE CONNELLY, LCSW-C, CAC-AD
Denise Connelly is a licensed clinical social worker and certifi ed addictions
counselor at The Retreat at Sheppard Pratt. She holds bachelor’s and
master’s degrees in social work from the University of Maryland.
WHAT sort of person do you picture
when you think of a drug addict or an
alcoholic? Film and television give us
caricatures — a homeless man, collapsed
in an alley, clutching a bottle wrapped
in a brown paper bag.
The truth is that most people who
suff er with drug addiction or alcoholism
cannot easily be spotted in a crowd.
In fact, chances are good you know
someone who has a substance use
disorder. Addiction aff ects every ethnic
group, gender, and tax bracket.
Most people are introduced to
alcohol or drugs by someone close to
them, an infl uencer — a parent, sibling,
or friend. Some unwittingly become
addicted after taking prescription
medications lawfully prescribed by
their doctors.
The reasons people abuse drugs
and alcohol also vary. Some fi nd
temporary relief from emotional and
physical pain or from boredom and
loneliness. For others, they simply like
the way substances make them feel, at
least until addiction takes hold.
Addiction, which includes
alcoholism, is a brain disease. It is not a
moral defi ciency. The American Society
of Addiction Medicine defi nes addiction
as a chronic disease of the brain
characterized by impairment in behavior
control and an inability to consistently
abstain from cravings. Along with these
symptoms, addicts experience signifi cant
problems with interpersonal relationships
and dysfunctional emotional responses.
Addiction does not happen
overnight. It is a progressive
disease. How quickly one becomes
an addict depends on a number
of factors, both genetic and
environmental. No one signs up to
be an addict or alcoholic. And once
the brain is altered from addiction,
recovery is not simply a matter
of “Just Say No!” As a disease,
addiction requires intervention
like any other.
There is good news:
Recovery from addiction
is possible.
Like addiction itself, though,
recovery is a process — not a single
event. Inpatient, intensive outpatient,
and outpatient substance abuse
programs are fi rst steps on that path.
In early recovery, medications are
available to help patients combat
powerful, physical urges to return to
substance abuse, while self-help
groups such as Alcoholics Anonymous,
Narcotics Anonymous, and SMART
Recovery provide emotional support.
When used in tandem, these treatment
approaches work.
Because addiction is a process,
some people will experience setbacks or
even relapses along the way. People who
have never experienced addiction or
seen it up close sometimes struggle to
understand this. “Why can’t you just
stop?!” they ask.
If only the solution were that simple.
Because the reality is more complicated,
it is important for family and friends
to educate themselves about addiction
and recovery. Al-Anon, Alateen, and
Nar-Anon are self-help programs for
people coping with someone else’s
addiction or alcoholism.
If you, or someone you know is
using substances, ask for help — doing
so is not a sign of weakness. It takes
courage to pick up the phone, or to walk
into that fi rst meeting. But you can do it.
And when you do, know this: You will fi nd
an entire community of professionals and
recovering individuals there who
understand you, support you, and are
ready and willing to help you.
Understanding Addiction
GERIATRIC SERVICES launched an
initiative in 2013 to more safely and
eff ectively manage agitation on the
Geriatric Neuropsychiatry Unit at
Sheppard Pratt. There is good
progress to report.
During the course of an 11-month
period, a 90 percent reduction in the
frequency of agitation was shown in
the rate of antipsychotic use for the
management of behavioral and
psychological symptoms of dementia.
How did we get there? Studies have
shown an increased risk of side eff ects
with uncertain benefi ts for some elderly
patients with symptoms of dementia
being treated with antipsychotic
medication. In the face of that evidence,
Centers for Medicare & Medicaid
Services launched a broad eff ort to
reduce the use of these medications
among this patient population.
As part of our LEAN methodology
program that focuses on continuously
improving and eliminating waste, the
geriatric services team at Sheppard Pratt
fi rst implemented a new process in the
pharmacy order system calling
for physicians and team members to
re-evaluate the way they document
behavioral symptoms and communicate
with each other. For example, instead
of recording a patient’s symptoms
generally as “agitation,” the team began
listing more specifi c symptoms such as
exit-seeking, kicking, or insomnia. This
greatly improved communication among
staff deciphering records and created
process effi ciencies. An increased focus
on documenting nonpharmacological
interventions — such as art, music, and
exercise therapies — also helped convey
the benefi ts of these activities, so they
were used more often.
The process improvements resulting
from this project continue to be in eff ect
at Sheppard Pratt.
Ultimately, our hope is to advance
fi ndings and share them with the greater
health care community to encourage
increased safety and eff ectiveness in
managing medication among loved ones
in this elderly dementia population.
Sheppard Pratt’s geriatric services
serve older adults experiencing clinical
depression, anxiety, severe forgetfulness,
and other mental health problems. These
services include two inpatient units,
outpatient care, and off -site medical
daycare services.
The staff members who were
part of this project included myself,
Emily Draper, Rochel Friedman, Sheila
Harvey, Dr. Robert Roca, the late Dr. Rina
Santos-Borja, Sheila Underwood, and
Susan Wolski-Vincenzes. This team was
awarded a 2015 Minogue Award for
Patient Safety by the Maryland Patient
Safety Center.
Progress Report: Medication Management in the Dementia Population
During the course of an 11-month period, a 90 percent
reduction in the rate of agitation was shown in
the rate of antipsychotic use for the management
of behavioral and psychological symptoms
of dementia.
DR. JOSHANA GOGA
Joshana Goga is a pharmacist and clinical specialist with Sheppard Pratt
Health System. She is also an assistant professor at the University of
Maryland School of Pharmacy.
GERIATRIC PSYCHIATRY
sheppardpratt.org • heal. 7
Some of the staff from the Geriatric Neuropsychiatry Unit who participated in the project.
IN THE NEWS
PHILANTHROPIC EVENTS
2nd Annual Sheppard Pratt Stride
Saturday, October 10, 2015
Save the date for this family-fun
event complete with music,
games, and more.
EDUCATIONAL CLASSES
Dick Prodey Lecture Series
Sponsored jointly by The Kolmac Clinic,
Sheppard Pratt Health System, and the
National Council on Alcoholism and
Drug Dependence of Maryland.
A FREE, eight-class series
held Wednesday evenings at
The Conference Center at
Sheppard Pratt from 7 p.m. to 9 p.m.
Call 410.938.3900 for information.
Continuing Education:
Wednesdays @ Sheppard Pratt
A lecture series at The Conference
Center at Sheppard Pratt most
Wednesdays from noon to
1 p.m. to support continuing
education of medical and mental
health professionals. Visit
sheppardpratt.org/education-training
for more information.
Two Doctors, Two Generations: Medical Ethics Then and Now
July 8, 2015
Barron H. Lerner, M.D., Ph.D.,
professor, Department of Medicine
and Population Health,
Lagone Medical Center
Please Join Us in Congratulating• DR. STEVEN SHARFSTEIN, president and CEO of Sheppard Pratt Health System,
for receiving a 2015 NAMI Exemplary Psychiatrist Award.
• DR. HARRY BRANDT, co-director of The Center for Eating Disorders at Sheppard
Pratt, for being selected by the readers of Chesapeake Family as one of their
Family Favorite Doctors.
• BONNIE LINK, program coordinator and teacher at Hannah More School, and
VERA ROTH, career and technology education director at The Forbush School at
Glyndon, for being recognized as recipients of this year’s Unsung Hero Award
by the Reisterstown/Owings Mills/Glyndon Chamber of Commerce.
Student Shows Poster at Annual Child and Adolescent ConferenceCONGRATULATIONS to Jenna Michelle
Jackson, a student at The Jefferson
School at Finan Center, whose artwork
was selected as the Maryland Coalition
of Families for Children’s Mental Health
Awareness Week poster for this year.
The poster was unveiled at a reception
on March 24 during the annual statewide
Child and Adolescent Conference.
Exemplary Physicians HonoredTHE SECOND RECIPIENTS
of the Michael Edelstein, M.D.,
Physician Humanitarian Award
were announced at Sheppard
Pratt’s annual Doctor’s Day
Luncheon on Thursday,
April 2, 2015. More than
80 nominations were received for
the award, which recognizes physicians who dedicate their time to fulfilling the
needs of patients in a selfless and extraordinary way. Congratulations to Dr. Khizar
Khan and Dr. Edward Zuzarte for being recognized as this year’s winners.
Mark Your Calendar!For a complete listing of events, continuing
education classes, and lectures,
visit sheppardpratt.org/calendar-events.
stride
Dr. Khizar Khan Dr. Edward Zuzarte
8 heal. • Sheppard Pratt Health System
Acceptance and Commitment Therapy July 22, 2015
Jesse M. Crosby, Ph.D., administrative
director, Office of Clinical Assessment
and Research, OCD Institute,
McLean Hospital
Value in Mental Health Care: What Is It and Who Decides?
August 5, 2015
Robert P. Roca, M.D., M.B.A., M.P.H.,
vice president and medical director,
Sheppard Pratt Health System
How Can Biological Measures Help Guide Diagnostic Classification in Psychiatry? A Focus on Psychotic Illnesses September 9, 2015
Godfrey D. Pearlson, M.D., professor
of psychiatry and neurobiology, Yale
University School of Medicine
The Bad Mother in American Psychiatry: Where She Came From, Why Her Story Still Matters
September 30, 2015
Anne Harrington, Ph.D., director of
undergraduate studies, Department
of the History of Science,
Harvard University
CONFERENCE EXHIBITING
Throughout the year, Sheppard Pratt
Health System and its programs exhibit
at a number of conferences and
community events. Make sure to stop
by our booth if you plan to be at any
of these.
NASW MD 10th Annual Clinical Conference
September 24-25, 2015
Linthicum Heights, Maryland
Diamonds in the Rough 2015Conference for families, educators, and professionals working with students with special learning needs
September 26, 2015
Rockville, Maryland
5th Biennial Trauma Conference Kennedy Krieger Institute
October 1-2, 2015
Timonium, Maryland
ISTSS 31st Annual Meeting
November 5-7, 2015
New Orleans, Louisiana
sheppardpratt.org • heal. 9
The Mann Residential Treatment Center (RTC) Residents Lend Hands, Help the HungryAS PART OF an initiative created by occupational therapy interns at Mann RTC,
residents within this program have been spending time in the community helping
others. The girls units provided care packages
to families at the Baltimore Ronald McDonald
House, and the boys unit visited Moveable
Feast, a local food pantry, and made more
than 600 sandwiches for those in need. We are
proud of the work this program is doing to give
back and support our local community.
Sheppard Pratt Sponsors Art Exhibit to Promote Mental Health AwarenessTHIS MAY, Sheppard Pratt was a proud sponsor of the Maryland Coalition for Mental
Health Awareness’s Third Annual Art Exhibit, which took place on May 7th at the American
Visionary Art Museum. In addition to helping sponsor the event, which showcases artwork
created by behavioral health consumers to eradicate stigma surrounding mental health,
Sheppard Pratt also sponsored artwork created by a patient of The Neuropsychiatry
Program at Sheppard Pratt.
Recognized ExcellenceSHEPPARD PRATT received
awards for both our logo
design and Heal magazine in the
2015 Aster Awards competition,
which recognizes the nation’s
most talented healthcare marketing
professionals for outstanding
excellence in advertising.
IN THE NEWS
Interns at Mann RTC.
10 heal. • Sheppard Pratt Health System
SHEPPARD PRATT
What was the purpose of the trip
to South Africa?
Desmond Kaplan: This trip was a further
step in the work we’ve done with the
Capetown community. We wanted to
focus on what we felt were the real
needs of the community. This wasn’t a
fancy academic conference; it was a free
conference that was sold out every day
for five days.
Telemedicine has allowed us to
expand our reach on a local, national,
and international level. For the purposes
of this project, we used our telemedicine
equipment to video conference with
those in South Africa, which helped
us open the lines of communication
and understand the needs of their
community before we even arrived.
What inspired each of you to get
involved with this project?
Mark Rapaport: Look at it from the lens
of what we do here. We forget how much
expertise we have in our own little world
at Sheppard Pratt. This was a chance to
bring that knowledge someplace where
they were willing to hear what we have to
say, and, in the end, it was very beneficial
for us and the participants. And it was
a chance to get the Sheppard Pratt name
out there, on a truly international level
and show people what we stand for.
Eunice Dube: Having come from the
region, and having worked there as a
nurse, I have an idea of what health care
services are like, so to be invited to
participate in this really big, educational
component of our health services,
was inspiring.
Desmond Kaplan: The issues in inner
city Baltimore are not that different from
what goes on in the shanty towns with
drugs, alcoholism, and poverty.
How is the mental health landscape
different in South Africa from in the
United States?
Eunice Dube: There is a lack of enough
qualified psychiatrists, and too many
patients to care for.
Desmond Kaplan: Just to give you some
perspective, in South Africa there are
70 million people and approximately
20 child psychiatrists. In the United
States, we have 350 million people and
8,600 child psychiatrists. In South Africa
they are producing just two child
Out of Africa
From left: David Pruitt, Tamara Maresky, Desmond Kaplan, Rene Nassen, Patti Prugh, and Eunice Dube.
Spray-painted mural by Juma Mkwela, Khayelitsha Township, South Africa.
IN ORDER TO ADDRESS the mental health needs of those living in the underserved
communities of the Western Cape of South Africa, a joint South African/U.S.
child and adolescent mental health alliance was recently established among
the University of Cape Town, Stellenbosch University, Columbia University, the
University of Maryland, and Sheppard Pratt Health System.
The inaugural project was a five-day child and adolescent mental health
workshop that took place this past March, in which three Sheppard Pratt
employees and two University of Maryland employees participated and led many
of the lectures, workshops, and clinics. The workshop was free and open to all
mental health and allied professionals.
In their first debriefing with Sheppard Pratt since returning from the workshop,
the participants reflect on their experiences in South Africa, the inspiration for this
collaboration, and where they see it headed.
sheppardpratt.org • heal. 11
psychiatrists a year, and, in the United
States, we are producing 800 a year.
Mark Rapaport: On the trip, I went to
several schools for children with autism
and related disabilities. There were 27
children in a classroom with one teacher
and then a couple of people who were
not trained. In contrast, in our schools, we
put a lot of time into training, even for the
noncertified and non-disciplined staff.
On the units, the modality and delivery
of services was lacking.
David Pruitt: Their public health thinking
was actually more sophisticated than
ours here in the United States, because
they have to look at the whole and find
the issues they want to intervene on. But
there is a large gap between the private,
public, and academic centers; they’re
much more siloed there because of the
lack of resources.
Patti Prugh: When I was really on
the ground, I found that the frontline
workers who do not have formal training,
the work that they would do was so
sophisticated and really
targeted at what we felt
were the important topics
for this community.
And while that disconnect
is there within their
system, there’s been
a back door for addressing
the issues through the
para-professionals.
I wouldn’t have known that
without having spent time
going to the presentations
for domestic violence that were going on
directly in these little community
organizations, in the shacks.
What happens next?
Desmond Kaplan: One of the nurses
from South Africa is coming in June to
Sheppard Pratt to visit, and I’m going
to South Africa in August to work on
a project in Johannesburg, and one of
the focuses will be telepsychiatry.
Patti Prugh: People are asking us
for help with grants writing, how to
formulate their concept into something
they can convey to a funder. Teaching
this skill isn’t something that has to
happen in South Africa; it can be done
long distance using telemedicine.
David Pruitt: I would hope that, whatever
we do, we layer on to the good work
that’s already been created. Telemedicine
is a remarkable technology, and it can
help us, but I still think the group coming
together and creating the experience
we had was key.
What is your biggest take away
from the trip?
Patti Prugh: I did not know that I had so
much that I could give that would be
meaningful for others.
Laurel Kiser: I walked away with an
appreciation of the universality of the
issues that we’re dealing with. The recent
protests in Baltimore have made these
parallels all the more real. The magnitude
of the issues and the problems and how
we can intervene to help people is just so
critical at this point. One of the things I
heard in South Africa was that it’s not very
often that someone from the United
States comes over and talks about
poverty here and draws those parallels.
David Pruitt: I took away the
relationships, both internally and once
we were in Cape Town. I really did feel
I learned more than I taught which
is remarkable. Because of those
relationships, I think it’s sustainable.
Mark Rapaport: The relationships.
As much as I think we gave, we were
able to receive. It was not a one-way
process. The need to go back and do
more is another take-away.
Desmond Kaplan: This get-together
has made me dream big. I’d love to
create an institute of international child
mental health through Sheppard Pratt
and the University of Maryland. There’s
an enormous amount of work to be
done, and the world is getting smaller
through technology.
From Sheppard Pratt: Desmond Kaplan, M.D., service chief of the Child and Adolescent Neuropsychiatry unit and medical director of the Telepsychiatry
Program; Patti Prugh, senior art therapist and rehabilitation services coordinator; Mark Rapaport, M. Ed., principal/education director at The Forbush School at
Prince George’s County and special education teacher on the Child and Adolescent Neuropsychiatry unit. From the University of Maryland School of Medicine:
Laurel Kiser, Ph. D., M.B.A., psychologist and associate professor in the Department of Psychiatry, University of Maryland School of Medicine; David Pruitt, M.D.,
child and adolescent psychiatrist, director of the Division of Child and Adolescent Psychiatry, and director of Telepsychiatry, University of Maryland, Baltimore.
From the VA Baltimore: Eunice Dube, R.N. Also participating in the collaboration: From Columbia University: Christina Hoven, Ph.D.; From Hershey Medical
Center: Fauzia Mahr, M.D.; From the Psychiatric Institute of Washington: Michael Bogrov, M.D; From Tel Aviv University: Alan Apter, M.D.
Monica “Momma” Duda conducting a frontline domestic violence workshop in Khayelitsha Township, South Africa.
12 heal. • Sheppard Pratt Health System
You give. They heal.You make great things happen when you give to the Sheppard Pratt Health System.
SHEPPARD PRATT HEALTH SYSTEM PHILANTHROPY
Join us for a family-fun day to raise awareness and funds to support Sheppard Pratt
programs that help patients and students, their families, and those affected by
serious mental illness.
SAVE THE DATE for the 2nd Annual Sheppard Pratt StrideSaturday, October 10, 2015Sheppard Pratt Health System’s Towson Campus
stride
SHEPPARD PRATT HEALTH SYSTEM hosted its
23rd Annual Care for Kids Benefit on March 21 at the
Four Seasons Hotel Baltimore. More than 400 donors and
community members gathered at the disco-themed gala,
which raised money to provide essential supplies and
therapeutically beneficial activities to our 20,000 pediatric
patients and students. It was the most successful event
to date and raised over $300,000!
RECORD-BREAKING BENEFIT
To see more photos from the Care for Kids
Benefit, please visit facebook.com/
SheppardPratt. You do not need an
account to view the pictures. Save the
date for next year’s event on April 2!
QUESTIONS regarding the Sheppard Pratt
Stride or the Care for Kids Benefit can be
directed to the Office of Philanthropy at
[email protected] or 410.938.4020.
SPECIAL EDUCATION
THE CHERRY FAMILY knows autism.
In 1996, Cathy and Michael Cherry
traveled to Russia to meet Matthew for
the first time. They quickly found
themselves interacting with a 3-year-old
whose actions could only be described
as chaotic. Once in the states and old
enough for a diagnosis around age 3,
Matthew was shown to have autism
spectrum disorder (ASD), bipolar disorder,
attention deficit hyperactivity disorder
(ADHD), obsessive compulsive disorder
(OCD), and fetal alcohol syndrome.
Later, with two other children in the
household, Jason, the middle child, and
Samantha, the youngest, the Cherry
family began a lifelong journey to
understand autism and to raise a family
with compassion, patience, and, most
importantly, humor.
We recently sat down with Cathy,
principal of Purposeful Architecture and
Purple Cherry Architects, and her middle
son, Jason, now 18 and the exclusive
professional race car driver of the Autism
Society of America (ASA), to find out a bit
more about their journey and to share
their advice on navigating family life
with a child with special needs.
Disability is a household eventAccording to Cathy, one of the greatest
challenges to life with a child on the
autism spectrum or any other special
need, is realizing that it impacts
everyone in the house. Says Cathy,
“You don’t just raise a child with autism;
you raise a family through autism.”
By the time Matthew was in second and
third grade, home life was tumultuous.
It was a highly structured environment in
school, but not at home, and things only
got worse as Matthew hit puberty.
In sixth grade, Matthew began attending
The Hannah More School in Reisterstown,
Md., part of the Sheppard Pratt Health
System, where he progressed and did
well in the school setting for about
five years.
Through this process, the family has
learned that you must look at home and
school settings together. Children with
special needs require more time to
transition to adulthood. Ensuring that
they have both life and social skills is key
to establishing their independence.
The Cherrys have also learned
not to feel guilty about actively finding
respite for the entire family, however
they have to go about accomplishing
this. Often, the family would break
apart mealtime, sometimes feeding
Matthew at a different time to avoid
conflict. According to Jason, the family
“has not been afraid to take breaks
and to operate atypically as a family.
We’ve looked past the commotion and
frustration inherent to Raising Autism™
to find the humor in life.”
Parents have no frame of reference when their first born is a child with special needsWhen Matthew was about 13 years
old, he became more physically
aggressive and had very poor judgment,
especially as it came to safety. Cathy
understood that Matthew never wanted
to intentionally harm other children, but
he had such poor judgment that she had
concerns for the safety of the whole
family. Then conflict started happening
among the siblings.
“As a parent, when your first-born
child has special needs, you have no
frame of reference for what behaviors
and social skills may be typically
developing,” says Cathy. “Without any
prior parenting experience, I could not
determine what was autism, what was
adolescence, and what was just being
a boy.” Not until her second son,
Jason, was 8 did she finally gain a better
understanding of what was neurotypical
development. During these early years,
as Cathy was learning how to manage
Matthew’s challenges, her younger two
children experienced events that were
scary to them. When Matthew pulled a
knife on his aide, it created a year-long
fear in Jason, then about 7, which
manifested as anger and defense.
Raising Autism:™A Family Affair
Matthew and Jason Cherry.
sheppardpratt.org • heal. 13
SPECIAL EDUCATION
Samantha, who was much younger,
would deflect her feelings in response
to the fear. Jason went to private
counseling to learn how to cope with his
anger. And Cathy learned that she
needed to take Matthew’s audience
away when he was becoming aggressive.
“Sometimes I turned off the lights in the
house and other times, I honestly had to
place him outside on the lawn to remove
him from a space where he could harm
himself and others,” explains Cathy.
Humor is the best remedyIt took years for the younger siblings to
get past their anger and resentment. But
once they did, and once Matthew started
maturing, the family was left with humor
to help piece the relationships back
together. Matthew is usually the one
generating the humor, sometimes on
purpose and other times by accident.
Cathy and Jason remember one time
when Matthew was stung by a bee
because he picked it up. When they
asked him why he would ever do
something like that, his response:
“Because I wanted to see if I was
worthy of holding a bee.” Says Cathy,
“Developing such a great sense of humor
has empowered all of us with a level
of patience that we would not have
developed otherwise.”
Full disclosure is vitalOne of the biggest mistakes parents
make, in Cathy’s opinion, is to hide the
realities of how difficult the situation is
and to make it seem that everything is
wonderful. For the Cherry family, it’s been
very important to fully disclose
everything that they’re going through, the
good and the bad, so that they can
receive the maximum support they need.
When Matthew was 17, the family
knew it was time to seek residential
treatment for him. He would throw huge
fits, running across the room and
slamming his entire body into the
window. He’d throw himself into shower
doors. Cathy says, “We fixed the wall 10
times. He was hospitalized three times.
When it happens too much, you’re
overwhelmed.” And every member of
their support team needed to know what
was happening at home.
Now that Matthew is in a residential
environment, he composes himself
better and is more comfortable. He can
be home for two or three days at a time,
and the family is able to enjoy that time
together. According to Cathy, “When he
got into residential treatment, it allowed
the whole family time to begin healing.”
Be proactiveWith the siblings now 15, 18, and 23, the
family, especially Cathy and Jason, has
used the knowledge and patience
they’ve learned from raising and growing
up with Matthew, to help others with
special needs. As principal of Purple
Cherry Architects, Cathy started receiving
calls to work on special needs projects.
She began creating living, learning, and
vocational environments locally, but
knew she could do more. This led to the
development of Purposeful Architecture,
a nonprofit arm of her firm dedicated to
creating spaces where children and
adults with special needs can thrive.
Purposeful Architecture allows Cathy
to marry her expertise in architecture
with her experience working with
individuals with special needs. She can
truly understand goals and provide
compassionate solutions to impact these
environments. “It’s what’s important to
me now,” she says.
Jason chose to use his career
as a race car driver as a springboard to
support ASA. Says Jason, “When I was
growing up with Matt as my brother, I was
embarrassed to have friends come over
the house, and so I would ride my dirt
bike a lot.” I then got into auto racing and
began pro road racing. With 50,000 to
150,000 people in attendance at each
race, and millions of viewers watching
at home, Jason wondered, “What can
I do with all of this attention? I saw an
opportunity to speak as a sibling of
autism, so I partnered with the Autism
Society.” As the exclusive professional
race car driver of ASA, Jason works with
its local affiliates to host families with
special needs at each of his races. He is
working to form an ASA sibling board for
the next generation of leaders who will
eventually represent their autistic siblings.
Today, the relationship among
all three siblings is healed. A video on
Jason’s YouTube channel shows true
love and friendship between the
brothers. Jason’s best advice to other
siblings is to “be patient, give it time,
things will come full circle. In the
moment, you don’t think anything will go
right — I thought that for years. Looking
back on it, I can attribute a lot of my
success to my brother and to dealing
with the challenges and adversity.”
Jason Cherry can be reached through his
website, jasoncherryracing.com, or through his
Facebook page. To learn more about Cathy
Cherry’s Purposeful Architecture firm, visit
purposefularchitecture.com.
“ Without any prior parenting experience, I could not
determine what was autism, what was adolescence,
and what was just being a boy.” — Cathy Cherry
14 heal. • Sheppard Pratt Health System
Get to Know Our Behavior SpecialistsCREATING POSITIVE BEHAVIORAL CHANGES IN OUR PATIENTS
MEET OUR TEAM
Q. What is a behavior specialist?
A. Chappell: Behavior specialists look
at behavior to determine why a person
is doing what they are doing. There is
a reason behind every behavior, and
we try to fi gure that out by looking at
environmental infl uences to determine
the cause of the negative behaviors and
to break the cycle and replace with and
reinforce new, positive behaviors.
Flis: For example, an individual who is
unable to communicate verbally may be
hitting his head against the wall because
he has learned that every time he wants
or needs something, hitting himself in the
head has gotten the attention he wanted.
Our goal is to try to manage problem
behavior and to teach adaptive behaviors.
Q. What types of patients do you
work with?
A. Chappell: On 1H, we work with
children with neurodevelopmental issues,
including autism spectrum disorder (ASD),
Down’s syndrome, traumatic brain
injury (TBI), and intellectual disabilities,
among others. In addition to working with
children, we also work with their families,
bringing them to team meetings, showing
them what has worked and what hasn’t;
it’s the key to reinforcing the positive
behaviors once a child leaves the unit.
Flis: Remy and I are the only two behavior
specialists at Sheppard Pratt. On A7,
I work with adults with developmental
disabilities, including ASD, genetic
disorders, TBI, and intellectual disabilities.
The adult population is diff erent than the
child population, because sometimes
these adults have had problem behaviors
for a long time, so it is much harder to
break those behaviors.
Q. How do you work with patients once they leave to ensure they continue practicing the positive behaviors you have taught them?
A. Chappell: Our biggest challenge
is our time limitations, as patients are
only on our units for about two weeks,
and we’re aiming to accomplish a lot
in a short time.
Flis: Modifying behavior is a long-
term process for people on and off
our units. We perform numerous
assessments, work to create intensive
behavior plans, and determine
what works and what doesn’t
work for our patients.
It takes continuous
reinforcement to make
a behavior stick.
Chappell: We also work
to connect caretakers
with outside resources for
in-home support, like an in-home
therapist.
Q. What do you love most about your job?
A. Flis: Many of our patients want to be
able to express themselves, but because
of their illness, they’re not able to. It’s
amazingly rewarding when we’re able to
manage a problem behavior and then
teach a new, adaptive behavior that
allows them to be more independent
and express their feelings.
Chappell: For me, it’s working with
families who are really invested and want
our help and accept our feedback. Those
are the kids that get better and stay better
and stay out of the hospital. That makes
it all worth it.
Remy Chappell has worked since 2008 as a senior behavior specialist on 1H, the Child and Adolescent
Neuropsychiatric Inpatient Unit. Her colleague, Thomas Flis, a 12-year veteran of Sheppard Pratt, serves as a senior
behavior specialist on A7, the new Adult Neuropsychiatric Unit, having previously held the same position on 1H.
The following are highlights from a conversation with these two professionals dedicated to achieving
positive behavioral changes in our patients.
To learn more from our behavior specialists, visit our
YouTube channel: youtube.com/user/SheppardPrattHealth
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focused on helping you sheppardpratt.org
THESE FOUR SHORT, SIMPLE WORDS
succinctly and powerfully sum up exactly
what we try to do for each and every person
we touch and can be applied to all programs
and departments that comprise our vast
health system throughout Maryland.
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Share Your Story With UsShare with us your memorable story from your time with Sheppard Pratt, and help us fi ght stigma.Please contact us at 410.938.4466 or [email protected].