health and clinical research - data futures, nihr accelerating digital programme

Health & clinical research – data futuresMartin Hamilton

Photo credit: CC-BY-ND Tara Brown Photography / University of Washington

Visioning the future – NIHR Clinical Research Network

Roadmap

1.About Jisc

2.Health & clinical research

3.Data futures

4.Conclusions


1. About Jisc

1. About JiscAbout Jisc:› Registered charity championing the use of digital

technologies in research, education and skills› Shared services, national deals, advice & guidance:

– Janet: reaches 18m teachers, learners & researchers + eduroam wireless roaming

– Digital capabilities programme, supporting next generation of digital leaders

– Embracing student ideas and using them to build new digital solutions– Helping institutions to achieve efficiency gains through digital

technology, e.g.asset sharing and brokerage

› My role:– Generating and channelling new ideas– Building partnerships to bring them to fruition

1. About Jisc

Janet network[Image credit: Dan Perry]

1. About JiscNetflix

VoicenetAkamai

Virgin Radio

Bogons

Logicalis UKPipex / GXN

BBC

Datahop

InTechnology

INUK

Simplecall

LINX multicast

Gamma

Google

Simplecall Redstone

Updata

aql

Voicenet

Google

Limelight

Limelight

AkamaiBTnet

Init7

Amazon

Microsoft EU (via TN)

Telekom Malaysia

Globelynx

10Gbit/s 1Gbit/s

100Gbit/

s

GÉANT

GÉANT+

LINX

Microsoft EU (via TW)

Total external connectivity ≈ 1 Tbit/s

Leeds

Akamai

Google

VM for LGfLInTechnology

NHS N3

Exa Networks

Synetrix BBC (HD 4K pilots)

One Connect

Glasgow&

Edinburgh

HEAnet

BBC (Pacific Quay)

Gamma

BBC (HD 4K pilots)

NHS N3

SWAN (Glas)

SWAN (Edin)

Manchester

Telecity

Harbour

Exch.

Telehouse

North & West

VM for LGfLRM for

Schools

VM for LGfL

RM for Schools

Global Transit

Tata IXManchester

IXLeeds

Global Transit Level3

Global Transit Level3


2. Health & clinical research


www.jisc.ac.uk/shared-data-centre

https://www.jisc.ac.uk/shared-data-centre


www.emedlab.ac.uk

Data centretenant:eMedLab

http://www.emedlab.ac.uk/


www.emedlab.ac.uk

eMedLab (ctd):Picture credit: Bruno Silva, Francis Crick Institute

http://www.emedlab.ac.uk/

2. Health & clinical researchSafe share› Encrypted VPN infrastructure

between organisations› Providing enhanced confidentiality

and integrity per ISO27001› Requirement to move electronic

health data securely and support research collaboration

› Working with biomedical researchers at Farr Institute, MRC Medical Bioinformatics initiative, ESRC Administrative Data Centres


Cloud for researchWorking with hyperscale providers:

› Data egress charging waivers forAmazon Web Services andMicrosoft Azure

› Institutional cloud portal ontoAmazon Web Services

› Brokerage around terms and conditions for cloud collaboration services e.g. Google Apps for Education and Office 365

› Next steps: UK data centres, guidance on legal and regulatory environment,European Open Science Cloud


3. Data futures

3. Data futures

www.washington.edu/news/2016/04/07/uw-team-stores-digital-images-in-dna-and-retrieves-them-perfectly/

http://www.washington.edu/news/2016/04/07/uw-team-stores-digital-images-in-dna-and-retrieves-them-perfectly/

http://www.washington.edu/news/2016/04/07/uw-team-stores-digital-images-in-dna-and-retrieves-them-perfectly/

3. Data futures

http://singularityhub.com/2016/04/07/we-should-be-teaching-kids-to-code-biology-not-just-software/




3. Data futures

http://blog.martinh.net/2014/01/wake-up-sleepy-head-internet-of-things.html



3. Data futures

https://deepmind.com/health



3. Data futures






4. Conclusions

4. Conclusions

Workforce implications:› Patient comes with their own data

– Phase shift from reactive to proactive health care– Huge potential for research– But can you trust it?

› Cloud is integral, foundation fornew technologies– But our NHS trust blocks access?– Relationship with providers, e.g. Google Fit, Apple

HealthKit

4. Conclusions

Workforce implications:› Digital literacy & leadership

– From apps and social media…– ...to APIs and legal/regulatory

aspects– Visitors and residents

› What we can do together?– Discussion segment! A detailed Visitors & Residents map of online

engagement CC-BY from a UK Health and Social Care student


That’s all folks…

Except where otherwise noted, this work is licensed under CC-BY

Martin HamiltonFuturist, Jisc, London

@[email protected]